Besoins et priorités de recherche concernant la transition et l'emploi dans l'autisme : considérations issues d'un « groupe d'intérêt spécial » lors de la Réunion internationale pour la recherche sur l'autisme

Titre original en anglais : Research needs and priorities for transition and employment in autism: Considerations reflected in a “Special Interest Group” at the International Meeting for Autism Research

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Nicholas, D. B., Hodgetts, S., Zwaigenbaum, L., Smith, L. E., Shattuck, P., Parr, J. R., Conlon, O., Germani, T., Mitchell, W., Sacrey, L., & Stothers, M. E. (2016). Research needs and priorities for transition and employment in autism: Considerations reflected in a “Special Interest Group” at the International Meeting for Autism Research. Autism Research, 10(1), 15-24. https://doi.org/10.1002/aur.1683

Date de publication: 17/10/2016 Ajout dans AutiHub: 16/10/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
11
Auteur·ices de la publication identifié·es comme autistes
1 / 11 (9,1 %)
  1. David B. Nicholas
  2. Sandra Hodgetts
  3. Lonnie Zwaigenbaum
  4. Leann E. Smith
  1. Paul Shattuck
  2. Jeremy R. Parr
  3. Olivia Conlon
  4. Tamara Germani
  1. Wendy Mitchell
  2. Lori Sacrey
  3. M. E. Stothers *

Résumé

La recherche relative aux soutiens destinés aux adultes présentant un trouble du spectre de l'autisme (TSA) est sous-développée. Par exemple, le développement de systèmes et de services visant à soutenir une transition réussie vers l'âge adulte et une activité professionnelle valorisante pour les adultes a fait l'objet d'un examen scientifique relativement limité jusqu'à récemment, les praticiens et les concepteurs de programmes ne disposant pas d'approches fondées sur des données probantes pour orienter la prestation des services. Un groupe d'intérêt spécial (SIG) a été réuni lors de la Réunion internationale pour la recherche sur l'autisme en mai 2014 et en mai 2015, en mettant l'accent sur les questions de transition et d'emploi dans le TSA. Le SIG était composé de 120 délégués internationaux, notamment des personnes autistes défendant leurs propres intérêts, des membres de la famille, des chercheurs, des concepteurs de programmes et de politiques, des praticiens et des stagiaires interdisciplinaires dans le domaine du TSA. Après un résumé de la littérature, les participants ont été répartis en petits sous-groupes afin d'identifier les besoins et les priorités de recherche. Des chercheurs internationaux ont animé ces discussions, et des notes ont été prises dans chaque sous-groupe. À l'aide d'une approche d'analyse qualitative, des thèmes clés communs aux groupes ont été identifiés. Ces thèmes clés, présentés dans cet article, portent sur le besoin identifié de : (a) faire progresser la capacité de recherche ; (b) renforcer la capacité des employeurs en matière d'emploi de personnes présentant un TSA ; et (c) améliorer les ressources de soutien destinées aux adultes présentant un TSA et à leurs familles. Une intensification des activités de recherche orientant la pratique et les politiques, l'engagement des communautés et des employeurs, ainsi que des services centrés sur la personne et la famille ont été recommandés. Des implications pour le progrès et la mise en oeuvre sont proposées. Autism Res 2017, 10 : 15-24. © 2016 International Society for Autism Research, Wiley Periodicals, Inc.

Research related to supports for adults with autism spectrum disorder (ASD) is under‐developed. As an example, system and service development to support successful transition to adulthood and meaningful vocation for adults has received relatively little research scrutiny until recently, with practitioners and program developers lacking evidenceinformed approaches guiding service delivery. A Special Interest Group (SIG) was convened at the International Meeting for Autism Research in May 2014 and May 2015, with a focus on transitional and vocational issues in ASD. The SIG consisted of 120 international delegates, including self‐advocates, family members, researchers, program and policy developers, practitioners, and interdisciplinary ASD trainees. Following a summary of the literature, subgroups of attendees were convened in smaller groups to identify research needs and priorities. International researchers facilitated these discussions with notes taken in each subgroup. Using a qualitative analytic approach, key themes across groups were identified. These key themes, outlined in this paper, address the identified need to (a) advance research capacity; (b) build employer capacity relative to employing persons with ASD; and (c) enhance support resources for adults with ASD and their families. Heightened research activity guiding practice and policy, community/employer engagement, and person and family‐centered services were recommended. Implications for advancement and implementation are offered. Autism Res 2017, 10: 15–24. © 2016 International Society for Autism Research, Wiley Periodicals, Inc.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 17/10/2026 01:28.

Références citées
59
Avec un DOI
43
Sans DOI, à partir du texte brut de la bibliographie
15
1 / 59 (1,7 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
7 / 59 (11,9 %)
Références avec noms d’auteurices détectés
52 / 59 (88,1 %)
Sans nom d’auteurice détecté
7
Sans titre structuré
7
Sans identifiant stable
15
Références avec noms bruts d’auteurices restant à vérifier
7
Références avec problème de récupération des métadonnées externes
1
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
152
À partir du DOI ou de métadonnées externes
152
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
10
35 / 152 (23,0 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 117 / 152 (77,0 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
1 / 152 (0,7 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 1 / 35 (2,9 %). Personnes distinctes identifiées comme autistes : 1 / 143 (0,7 %).
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