« J’ai fait ce que j’ai pu pour gagner un peu d’argent et être utile » : une exploration qualitative des parcours des personnes autistes vers la réussite et l’épanouissement professionnels

Titre original en anglais : ‘I did what I could to earn some money and be of use’: A qualitative exploration of autistic people’s journeys to career success and fulfilment

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Davies, J., Melinek, R., Livesey, A., Killick, E., Sam, E., Romualdez, A. M., Pellicano, E., & Remington, A. (2024). ‘I did what I could to earn some money and be of use’: A qualitative exploration of autistic people’s journeys to career success and fulfilment. Autism, 29(4), 988-1004. https://doi.org/10.1177/13623613241292177

Date de publication: 20/12/2024 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
8
Auteur·ices de la publication identifié·es comme autistes
2 / 8 (25,0 %)
  1. Jade Davies
  2. Rachel Melinek *
  3. Adam Livesey *
  4. Estelle Killick
  1. Evelyn Sam
  2. Anna Melissa Romualdez
  3. Elizabeth Pellicano
  4. Anna Remington

Résumé

L’emploi contribue au bien-être, pourtant de nombreuses personnes autistes qui souhaitent travailler se heurtent à des obstacles à l’accès à un emploi porteur de sens. Une grande partie de la recherche se concentre uniquement sur les taux d’emploi, plutôt que d’adopter une vision plus holistique des trajectoires professionnelles et des expériences professionnelles. Nous avons mené des entretiens semi-structurés avec 18 adultes autistes afin d’explorer leurs expériences de la réussite professionnelle et leurs perspectives à son sujet. Nos participants ont souligné l’importance primordiale de trouver un épanouissement dans leur carrière. À l’aide d’une analyse thématique réflexive, nous avons identifié cinq thèmes clés supplémentaires : (1) des parcours professionnels instables, (2) le besoin d’un soutien continu en matière de carrière, (3) l’impact, positif ou négatif, des interactions sociales, (4) le rôle important des organisations et (5) l’impact catastrophique de mauvaises expériences. Nos résultats soulignent l’importance d’un soutien à l’emploi personnalisé tout au long de la vie et de lieux de travail inclusifs pour permettre aux personnes autistes de s’épanouir au travail. Permettre l’épanouissement professionnel des personnes autistes exige d’aller au-delà du recrutement à des postes de débutant afin de favoriser un emploi durable et épanouissant pour toutes les personnes autistes. Résumé grand public De nombreuses personnes autistes souhaitent travailler, mais ont des difficultés à trouver des emplois qu’elles apprécient et qu’elles peuvent conserver. La plupart des recherches cherchent à aider davantage de personnes autistes à obtenir un emploi, mais n’examinent pas si ces emplois sont épanouissants, ni comment les personnes progressent une fois qu’elles commencent à travailler. Nous avons parlé à 18 personnes autistes de leurs expériences au travail et de leurs idées sur la réussite au travail. Les participants ont indiqué que trouver un épanouissement dans leur carrière était essentiel. Nous avons relevé cinq « thèmes » communs dans les entretiens. Premièrement, les carrières des personnes autistes prennent souvent des tournants inattendus. Par exemple, de nombreux participants n’ont reçu un diagnostic qu’à l’âge adulte, ce qui a parfois modifié leurs projets professionnels. Deuxièmement, les personnes autistes peuvent avoir besoin d’une aide continue pour leur carrière, notamment d’une aide pour trouver des emplois qu’elles apprécieraient et dans lesquels elles seraient compétentes, ainsi que de conseils sur la manière de progresser dans leur emploi. Troisièmement, bien s’entendre avec les autres au travail est vraiment important. Le fait d’avoir des collègues bienveillants a aidé nos participants à s’épanouir, mais le harcèlement au travail a forcé certains à quitter leur emploi. Quatrièmement, les lieux de travail doivent être accueillants pour tout le monde. Les aménagements et les responsables compréhensifs ont aidé, mais les lieux de travail de nombreux participants n’étaient pas inclusifs. Enfin, de mauvaises expériences de travail peuvent être dévastatrices pour la santé mentale et le bien-être, et des expériences négatives telles que le harcèlement ont conduit certains participants à cesser complètement de travailler. Nos résultats montrent qu’un soutien tout au long de la vie, adapté à chaque personne, et des lieux de travail accueillants sont importants pour permettre aux personnes autistes de s’épanouir au travail. Il ne suffit pas d’embaucher des personnes autistes : nous devons les aider à avoir des emplois qu’elles apprécient et qu’elles peuvent conserver à long terme.

Employment contributes to well-being, yet many autistic people who want to work face barriers to meaningful employment. Much research focuses solely on employment rates, rather than taking a more holistic view of professional trajectories and occupational experiences. We conducted semi-structured interviews with 18 autistic adults to explore their experiences of, and perspectives on, career success. Our participants highlighted the overarching importance of finding fulfilment in one's career. Using reflexive thematic analysis, we identified five additional key themes: (1) volatile career journeys, (2) the need for continuing career support, (3) the impact (positive or negative) of social interactions, (4) the important role of organisations and (5) the catastrophic impact of poor experiences. Our findings highlight the importance of tailored, lifelong employment support and inclusive workplaces in enabling autistic people to thrive at work. Enabling autistic career fulfilment requires moving beyond entry-level hiring to foster sustainable, fulfilling employment for all autistic people.Lay abstractMany autistic people want to work but have trouble finding jobs they like and can stick with. Most research tries to help more autistic people get jobs, but does not look at whether those jobs are fulfilling, or how people progress once they start working. We spoke to 18 autistic people about their experiences at work, and their ideas about success at work. Participants said finding fulfilment in their careers was key. We found five common 'themes' across the interviews. First, autistic people's careers often take unexpected turns. For example, many participants only got diagnosed as adults, which sometimes changed their work plans. Second, autistic people might need ongoing help with their career, including help with finding jobs they would enjoy and be good at, and advice on how to progress in their job. Third, getting along with others at work is really important. Having supportive colleagues helped our participants thrive, but workplace bullying forced some to leave their jobs. Fourth, workplaces need to be welcoming to everybody. Adjustments and understanding managers helped, but many of our participants' workplaces were not inclusive. Finally, bad work experiences can be devastating for mental health and well-being and negative experiences like bullying led some participants to quit working entirely. Our findings show that lifelong support tailored to each person and welcoming workplaces are important for autistic people to thrive at work. It is not enough to just hire autistic people - we need to help them have jobs they like and can stick with long-term.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
85
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
13 / 85 (15,3 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
24 / 253 (9,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 24 / 97 (24,7 %). Auteurices cité·es distinct·es identifié·es comme autistes : 16 / 209 (7,7 %).
Occurrences citées rattachées à la base AutiHub
97 / 253 (38,3 %)
Auteurices cité·es distinct·es rattaché·es : 62 / 209 (29,7 %)
Occurrences rattachées, non identifiées comme autistes
73 / 97 (75,3 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 73 / 253 (28,9 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 46 / 62 (74,2 %).
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