Etudes critiques de l'autisme : exploration des dialogues et intersections epistemiques, remise en question des conceptions dominantes de l'autisme

Titre original en anglais : Critical autism studies: exploring epistemic dialogues and intersections, challenging dominant understandings of autism

O’Dell, L., Bertilsdotter Rosqvist, H., Ortega, F., Brownlow, C., & Orsini, M. (2016). Critical autism studies: exploring epistemic dialogues and intersections, challenging dominant understandings of autism. Disability & Society, 31(2), 166-179. https://doi.org/10.1080/09687599.2016.1164026

Date de publication: 07/02/2016 Ajout dans AutiHub: 04/07/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)

Résumé

Etudes critiques de l'autisme : exploration des dialogues et intersections epistemiques, remise en question des conceptions dominantes de l'autisme. Dans cet article, nous examinons comment nos contextes culturels donnent lieu a differents types de savoirs sur l'autisme et etudions comment ils sont articules, gagnent en legitimite et constituent la base des politiques, des pratiques et des mouvements politiques. Nous exposons les tensions essentielles pour le developpement des etudes critiques de l'autisme en tant qu'approche internationale et critique des capacites. Notre objectif n'est pas de proposer un compte rendu transculturel de l'autisme ni de supposer une coherence ou une universalite de « l'autisme » en tant que categorie/realite diagnostique singuliere. Nous cartographions plutot les manieres dont ce qui est vecu et compris comme l'autisme se manifeste dans differents contextes culturels, en nous appuyant sur la notion de « communautes epistemiques » afin d'explorer les evolutions des connaissances sur l'autisme, y compris des concepts tels que la « neurodiversite », et la maniere dont ceux-ci circulent dans les espaces culturels. L'article explore deux tensions epistemiques essentielles : la domination de la « neuroculture » et les constructions dominantes de la personne et de ce que signifie etre humain.

Critical autism studies: exploring epistemic dialogues and intersections, challenging dominant understandings of autismIn this paper we explore how our cultural contexts give rise to different kinds of knowledges of autism and examine how they are articulated, gain currency, and form the basis for policy, practice and political movements.We outline key tensions for the development of critical autism studies as an international, critical abilities approach.Our aim is not to offer a cross-cultural account of autism or to assume a coherence or universality of 'autism' as a singular diagnostic category/reality.Rather, we map the ways in which what is experienced and understood as autism, plays out in different cultural contexts, drawing on the notion of 'epistemic communities' to explore shifts in knowledge about autism, including concepts such as 'neurodiversity', and how these travel through cultural spaces.The paper explores two key epistemic tensions; the dominance of 'neuro culture' and dominant constructions of personhood and what it means to be human.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
75
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
5 / 75 (6,7 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
5 / 111 (4,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 5 / 29 (17,2 %). Auteurices cité·es distinct·es identifié·es comme autistes : 2 / 89 (2,2 %).
Occurrences citées rattachées à la base AutiHub
29 / 111 (26,1 %)
Auteurices cité·es distinct·es rattaché·es : 16 / 89 (18,0 %)
Occurrences rattachées, non identifiées comme autistes
24 / 29 (82,8 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 24 / 111 (21,6 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 14 / 16 (87,5 %).
1 entrée de bibliographie citée n’a pas pu être entièrement enrichie à partir des métadonnées DOI.
Crossref: introuvable (1)
  1. Lennard J. Davis (1995). Enforcing Normalcy: Disability, Deafness, and the Body .
    Type: Livre OpenAlex: https://openalex.org/W356539818
    Crossref OpenAlex
  2. Aggege S. (2006). A vida segregada do brasileiro autista . O Globo, 18.
    Type: Autre
    Crossref
  3. Michael L. Dorn (1997). Book Review: Lennard J. Davis' Enforcing Normalcy: Disability, Deafness and the Body. New York: Verso, 1995. UKnowledge (University of Kentucky), 6(1), 4. Committee on Social Theory, University of Kentucky.
    OpenAlex
  4. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.
    Crossref OpenAlex
  5. Smith R. (2008). Being human: historical knowledge and the creation of human nature . Choice Reviews Online, 45(10), 45-5507-45-5507. American Library Association.
    Crossref OpenAlex
  6. Tony Attwood (1997). Asperger's Syndrome: A Guide for Parents and Professionals .
    Type: Livre OpenAlex: https://openalex.org/W1577621244
    Crossref
  7. Richard Devlin , Dianne Pothier (2005). Critical disability theory: essays in philosophy, politics, policy, and law .
    Type: Livre OpenAlex: https://openalex.org/W619320854
    OpenAlex
  8. Simon Baron-Cohen (1995). Mindblindness . The MIT Press.
    Crossref OpenAlex
  9. (2014). Dis/ability studies: theorising disablism and ableism . Choice Reviews Online, 52(04), 52-2284-52-2284. American Library Association.
    OpenAlex
  10. C Silverman (2012). Understanding autism: parents, doctors, and the history of a disorder . Choice Reviews Online, 49(09), 49-5096-49-5096. American Library Association.
    Crossref OpenAlex
  11. Hanna Bertilsdotter Rosqvist *Auteur·ice autiste. En savoir plus… , Lindsay O’Dell , Charlotte Brownlow (2014). The citizen-worker: ambivalent meanings of ‘real jobs’, ‘full citizenship’ and adulthood in the case of autistic people . The Australian Community Psychologist., 26(1), 1.
    Type: Article OpenAlex: https://openalex.org/W1924871924
    Crossref OpenAlex
  12. Emma Whelan (2007). ‘No one agrees except for those of us who have it’: endometriosis patients as an epistemological community . Sociology of Health & Illness, 29(7), 957-982. Wiley.
    Crossref OpenAlex
  13. Majia Holmer Nadesan (2005). Constructing Autism: Unravelling the 'Truth' and Understanding the Social .
    Type: Livre OpenAlex: https://openalex.org/W1608527469
    Crossref OpenAlex
  14. Block P. (2014). Disability Histories . Disability Histories, 77.
    Type: Autre
    Crossref
  15. J. R. Brasic , A. Mankodi (1999). Asperger's Syndrome: A Guide for Parents and Professionals . Neurology, 52(5), 1112-1112. Ovid Technologies (Wolters Kluwer Health).
    OpenAlex
  16. Bourke J. (2011). What It Means to Be Human: Reflections from 1791 to the Present . What It Means to Be Human: Reflections from 1791 to the Present.
    Type: Autre
    Crossref
  17. Alicia A. Broderick , Ari Ne'eman *Auteur·ice autiste. En savoir plus… (2008). Autism as metaphor: narrative and counter‐narrative . International Journal of Inclusive Education, 12(5-6), 459-476. Informa UK Limited.
  18. Brigitte Chamak (2008). Autism and social movements: French parents’ associations and international autistic individuals’ organisations . Sociology of Health & Illness, 30(1), 76-96. Wiley.
    Crossref OpenAlex
  19. Erica Burman (2008). Deconstructing developmental psychology, 2nd ed. Deconstructing Developmental Psychology.
    Type: Article OpenAlex: https://openalex.org/W2558778717
    Crossref OpenAlex
  20. Justin H. G. Williams , A. Whiten , T. Suddendorf , D.I. Perrett (2001). Imitation, mirror neurons and autism . Neuroscience & Biobehavioral Reviews, 25(4), 287-295. Elsevier BV.
    Crossref OpenAlex
  21. Fátima Gonçalves Cavalcante (2003). Pessoas muito especiais: a construção social do portador de deficiência e a reinvenção da família . Editora FIOCRUZ.
    Crossref OpenAlex
  22. Craig J. Newschaffer , Laura Kresch Curran (2003). Autism: an emerging public health problem . Public Health Reports, 118(5), 393-399. SAGE Publications.
    OpenAlex
  23. Sally Ozonoff , Bruce F. Pennington , Sally J. Rogers (1991). Executive Function Deficits in High‐Functioning Autistic Individuals: Relationship to Theory of Mind . Journal of Child Psychology and Psychiatry, 32(7), 1081-1105. Wiley.
    OpenAlex
  24. Brigitte Chamak (2014). Autism as Viewed by French Parents . Dans Comprehensive Guide to Autism (pp. 2533-2543). Springer New York.
    Type: Chapitre de livre DOI: 10.1007/978-1-4614-4788-7_153 OpenAlex: https://openalex.org/W4205833653
    Crossref OpenAlex
  25. Katherine Runswick-Cole (2014). ‘Us’ and ‘them’: the limits and possibilities of a ‘politics of neurodiversity’ in neoliberal times . Disability & Society, 29(7), 1117-1129. Informa UK Limited.
    Crossref OpenAlex
  26. B. Chamak , B. Bonniau (2013). Changes in the Diagnosis of Autism: How Parents and Professionals Act and React in France . Culture, Medicine, and Psychiatry, 37(3), 405-426. Springer Science and Business Media LLC.
    Crossref OpenAlex
  27. Tony Charman (2006). Autism at the crossroads: determining the phenotype matters for neuroscience . Nature Neuroscience, 9(10), 1197-1197. Springer Science and Business Media LLC.
    Crossref OpenAlex
  28. Edward Feinberg , John Vacca (2000). The Drama and Trauma of Creating Policies on Autism . Focus on Autism and Other Developmental Disabilities, 15(3), 130-137. SAGE Publications.
    Crossref OpenAlex
  29. (s. d.). Couto M. C. V. 2012. “Política de Saúde Mental para crianças e adolescentes: especificidades e desafios da experiência brasileira (2001-2010).” Ph D. Dissertation. Institute of Psychiatry. Federal University of Rio de Janeiro.
    Type: Autre
    Crossref
  30. Uta Frith , Francesca Happé (1994). Autism: beyond “theory of mind” . Cognition, 50(1-3), 115-132. Elsevier BV.
    Crossref OpenAlex
  31. (s. d.). Curran M. 2014. “A Historical Journey through Autism Spectrum Disorders in the Wake of DSM–5: A Review of the Journal of Autism and Developmental Disorders 1971–2012.” Unpublished Master Thesis in Clinical Psychology University of South Queensland.
    Type: Autre
    Crossref
  32. Katherine A. Loveland , Jocelyne Bachevalier , Deborah A. Pearson , David M. Lane (2008). Fronto-limbic functioning in children and adolescents with and without autism . Neuropsychologia, 46(1), 49-62. Elsevier BV.
    Crossref OpenAlex
  33. J Davidson (2013). Worlds of Autism . University of Minnesota Press.
    Crossref OpenAlex
  34. Simon Baron-Cohen (1995). Mindblindness: an essay on autism and theory of mind . Choice Reviews Online, 33(04), 33-2412-33-2412. American Library Association.
    OpenAlex
  35. Scott DeShong (2012). On (post)human (dis)ability . Subjectivity, 5(3), 265-275. Springer Science and Business Media LLC.
    Crossref OpenAlex
  36. Michael Orsini , Miriam Smith (2010). Social movements, knowledge and public policy: the case of autism activism in Canada and the US . Critical Policy Studies, 4(1), 38-57. Informa UK Limited.
    Crossref OpenAlex
  37. Doan M. (2013). The Philosophy of Autism . The Philosophy of Autism, 47.
    Type: Autre
    Crossref
  38. Ann Folwell , Rosemarie Garland Thomson (1998). Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature . American Literature, 70(1), 187. JSTOR.
    Type: Article DOI: 10.2307/2902469 OpenAlex: https://openalex.org/W2067886807
    OpenAlex
  39. Uta Frith , Chris Frith (2010). The social brain: allowing humans to boldly go where no other species has been . Philosophical Transactions of the Royal Society B: Biological Sciences, 365(1537), 165-176. The Royal Society.
    Crossref OpenAlex
  40. Dan Goodley , Rebecca Lawthom , Katherine Runswick-Cole (2014). Dis/ability and austerity: beyond work and slow death . Disability & Society, 29(6), 980-984. Informa UK Limited.
    Crossref OpenAlex
  41. Clarice Rios , Barbara Costa Andrada (2015). The changing face of autism in Brazil . Culture, Medicine, and Psychiatry, 39(2), 213-234. Springer Science and Business Media LLC.
    Crossref OpenAlex
  42. Garland Thomson R (1997). Extraordinary bodies: figuring physical disability in American culture and literature . Choice Reviews Online, 34(11), 34-6147-34-6147. American Library Association.
    Crossref
  43. Dan Goodley (2013). Dis/entangling critical disability studies . Disability & Society, 28(5), 631-644. Informa UK Limited.
    Crossref OpenAlex
  44. Dan Goodley (2014). Dis/ability Studies . Routledge.
    Crossref OpenAlex
  45. Catherine Lord , Rebecca M. Jones (2012). Annual Research Review: Re‐thinking the classification of autism spectrum disorders . Journal of Child Psychology and Psychiatry, 53(5), 490-509. Wiley.
    Crossref OpenAlex
  46. Hacking I. (1995). Causal Cognition: A Multidisciplinary Approach . Causal Cognition: A Multidisciplinary Approach, 351.
    Type: Autre
    Crossref
  47. Hacking I. (2002). ‘Making up People’, Historical Ontology . ‘Making up People’, Historical Ontology.
    Type: Autre
    Crossref
  48. Halberstam J. (1995). Posthuman Bodies . Posthuman Bodies, 1.
    Type: Autre
    Crossref
  49. Shanti R. Mitchell , Allan L. Reiss , Danielle H. Tatusko , Ichiro Ikuta , Dana B. Kazmerski , Jo-Anna C. Botti et al. (2009). Neuroanatomic Alterations and Social and Communication Deficits in Monozygotic Twins Discordant for Autism Disorder . American Journal of Psychiatry, 166(8), 917-925. American Psychiatric Association Publishing.
    Crossref OpenAlex
  50. Michele Noterdaeme , Anna Hutzelmeyer-Nickels (2010). Early symptoms and recognition of pervasive developmental disorders in Germany . Autism, 14(6), 575-588. SAGE Publications.
    Crossref OpenAlex
  51. (s. d.). Lutz Amy S. F. 2013. “You Do Not Have Asperger’s: What Psychiatry’s New Diagnostic Manual Means for People on the Autism Spectrum.” Slate. May 22. http://www.slate.com/articles/health_and_science/medical_examiner/2013/05/autism_spectrum_diagnoses_the_dsm_5_eliminates_asperger_s_and_pdd_nos.html
    Type: Autre
    Crossref
  52. Lindsay O’Dell , Charlotte Brownlow (2015). Normative Development and the Autistic Child . Dans The Palgrave Handbook of Child Mental Health (pp. 296-309). Palgrave Macmillan UK.
    Type: Chapitre de livre DOI: 10.1057/9781137428318_16 OpenAlex: https://openalex.org/W2343717071
    Crossref OpenAlex
  53. Helen Meekosha , Russell Shuttleworth (2009). What's so ‘critical’ about critical disability studies? Australian Journal of Human Rights, 15(1), 47-75. Informa UK Limited.
    Crossref
  54. Oberdiek, Hans (2012). What it means to be human: reflections from 1791 to the present . Choice Reviews Online, 49(08), 49-4377-49-4377. American Library Association.
    OpenAlex
  55. Nelson L. H. (1993). Feminist Epistemologies . Feminist Epistemologies, 121.
    Type: Autre
    Crossref
  56. Francisco Ortega , Fernando Vidal (2011). Neurocultures: glimpses into an expanding universe . Neurocultures: Glimpses into an expanding universe.
    Type: Article OpenAlex: https://openalex.org/W2565609851
    Crossref OpenAlex
  57. Craig J. Newschaffer , Laura Kresch Curran (2003). Autism: an emerging public health problem . Public Health Reports, 118(5), 393-399. SAGE Publications.
    Crossref OpenAlex
  58. Michael Orsini (2016). Contesting the Autistic Subject: Biological Citizenship and the Autism/Autistic Movement .
    Type: Article DOI: 10.4324/9781315575025-15 OpenAlex: https://openalex.org/W2896632138 Crossref: introuvable
    OpenAlex
  59. (s. d.). Nunes F. C. F. 2014. “Atuação política de grupos de pais de autistas no Rio de Janeiro: perspectivas para o campo da saúde.” Master Dissertation. Institute for Social Medicine. State University of Rio de Janeiro.
    Type: Autre
    Crossref
  60. Marcia Jean Carter (2014). Diagnostic and Statistical Manual of Mental Disorders, 5th ed. Therapeutic Recreation Journal, 48(3).
    Type: Article OpenAlex: https://openalex.org/W2906253013
    OpenAlex
  61. Erica Burman (2016). Deconstructing Developmental Psychology . Routledge.
    OpenAlex
  62. (2010). e_1_3_2_46_1 Ethos, 38(1). Wiley.
    Crossref OpenAlex
  63. Orsini M. (2009). Critical Interventions in the Ethics of Health Care . Critical Interventions in the Ethics of Health Care, 115.
    Type: Autre
    Crossref
  64. Francisco Ortega (2013). Critical Autism Studies: Enabling Inclusion, Defending Difference . Critical Autism Studies: Enabling Inclusion, Defending Difference, 73.
    Type: Autre
    Crossref
  65. (1991). e_1_3_2_52_1 Journal of Child Psychology and Psychiatry, 32(7). Wiley.
    Crossref OpenAlex
  66. Francisco Ortega (2016). Re-thinking Autism . Re-thinking Autism.
    Type: Autre
    Crossref
  67. Dave Holmes (2016). Critical Interventions in the Ethics of Healthcare . Routledge.
    OpenAlex
  68. Merl Storr , Linda Alcoff , Elizabeth Potter (1994). Feminist Epistemologies . Feminist Review, (48), 142. JSTOR.
    Type: Article DOI: 10.2307/1395183 OpenAlex: https://openalex.org/W4246742847
    OpenAlex
  69. Pothier D. (2006). Critical Disability Theory. Essays in Philosophy, Politics, Policy and Law . Critical Disability Theory. Essays in Philosophy, Politics, Policy and Law.
    Type: Autre
    Crossref
  70. Dan Goodley (2017). Dis/entangling Critical Disability Studies . Dans Culture - Theory - Disability (pp. 81-110). transcript Verlag.
    Type: Chapitre de livre DOI: 10.1515/9783839425336-008 OpenAlex: https://openalex.org/W4249767345
    OpenAlex
  71. Rose N. (2005). Global Anthropology . Global Anthropology, 439.
    Type: Autre
    Crossref
  72. (s. d.). The National Board of Health and Welfare (NBHW). 2009. Swedish Disability Policy – Service and Care for People with Functional Impairments. Accessed October 27 2013. http://www.socialstyrelsen.se/Lists/Artikelkatalog/Attachments/8407/2009-126-188_2009126188.pdf
    Type: Autre
    Crossref