Réflexions de scientifiques de l’autisme sur les possibilités et les défis de l’engagement du public : une analyse qualitative

Titre original en anglais : Autism Scientists’ Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis

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Hollin, G. & Pearce, W. (2018). Autism Scientists’ Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis. Journal of Autism and Developmental Disorders, 49(3), 809-818. https://doi.org/10.1007/s10803-018-3783-7

Date de publication: 24/10/2018 Ajout dans AutiHub: 17/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

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  1. Gregory Hollin
  2. Warren Pearce

Résumé

Cet article s’appuie sur des entretiens qualitatifs afin d’examiner comment des psychologues de la recherche basés au Royaume-Uni comprennent les activités d’engagement du public et les interactions avec des défenseurs autistes. Les chercheurs décrivent l’engagement du public comme difficile et comprennent ces difficultés comme découlant des déficiences autistiques. En particulier, il est rapporté qu’une hétérogénéité des déficiences liées à l’autisme signifie qu’il existe peu d’accord sur la forme que devrait prendre la recherche, tandis que les déficiences socio-communicationnelles rendent les interactions difficiles. À l’inverse, les chercheurs décrivent les personnes autistes comme ayant la capacité d’influencer positivement la recherche. Dans cet article, nous discutons de la nature de ces affirmations et soulignons la nécessité de développer des modes d’engagement spécifiques à l’autisme.

This article draws upon qualitative interviews in order to examine how UK based research psychologists understand public engagement activities and interactions with autistic advocates. Researchers describe public engagement as difficult and understand these difficulties as stemming from autistic impairments. In particular, it is reported that a heterogeneity of autism impairments means there is little agreement on the form research should take, while socio-communicative impairments make interactions difficult. Conversely, researchers describe autistic individuals as having the capacity to positively influence research. In this paper we discuss the nature of these claims and stress the need for autism-specific modes of engagement to be developed.

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