Can We Broaden the Neurodiversity Movement without Weakening It? Participatory Approaches as a Framework for Cross-disability Alliance Building

Gillespie-Lynch, K., Dwyer, P., Constantino, C., Kapp, S. K., Hotez, E., Riccio, A., DeNigris, D., Kofner, B., & Endlich, E. (2020). Can We Broaden the Neurodiversity Movement without Weakening It? Participatory Approaches as a Framework for Cross-disability Alliance Building. In Disability Alliances and Allies (pp. 189-223). Emerald Publishing Limited. https://doi.org/10.1108/s1479-354720200000012013

Publication date: 27 Oct 2020 Added to AutiHub: 5 Jul 2026 Type: Book chapter Article language: English

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9
Publication authors identified as autistic
3 / 9 (33.3%)

Abstract

Abstract Purpose: We critically examine the idea of neurodiversity, or the uniqueness of all brains, as the foundation for the neurodiversity movement, which began as an autism rights movement. We explore the neurodiversity movement's potential to support cross-disability alliances that can transform cultures. Methods/Approach: A neurodiverse team reviewed literature about the history of the neurodiversity movement and associated participatory research methodologies and drew from our experiences guiding programs led, to varying degrees, by neurodivergent people. We highlight two programs for autistic university students, one started by and for autistics and one developed in collaboration with autistic and nonautistic students. These programs are contrasted with a national self-help group started by and for stutterers that is inclusive of “neurotypicals.” Findings: Neurodiversity-aligned practices have emerged in diverse communities. Similar benefits and challenges of alliance building within versus across neurotypes were apparent in communities that had not been in close contact. Neurodiversity provides a framework that people with diverse conditions can use to identify and work together to challenge shared forms of oppression. However, people interpret the neurodiversity movement in diverse ways. By honing in on core aspects of the neurodiversity paradigm, we can foster alliances across diverse perspectives. Implications/ Values: Becoming aware of power imbalances and working to rectify them is essential for building effective alliances across neurotypes. Sufficient space and time are needed to create healthy alliances. Participatory approaches, and approaches solely led by neurodivergent people, can begin to address concerns about power and representation within the neurodiversity movement while shifting public understanding.

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Cited references
173
Total cited references integrated for this publication.
Cited references with an identified autistic author
23 / 173 (13.3%)
Cited author occurrences identified as autistic
32 / 566 (5.7%)
Among occurrences linked to AutiHub author records: 32 / 225 (14.2%). Distinct cited authors identified as autistic: 20 / 467 (4.3%).
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225 / 566 (39.8%)
Distinct linked cited authors: 140 / 467 (30.0%)
Linked cited-author occurrences not identified as autistic
193 / 225 (85.8%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 193 / 566 (34.1%). Distinct linked cited authors not identified as autistic: 120 / 140 (85.7%).
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