Can We Broaden the Neurodiversity Movement without Weakening It? Participatory Approaches as a Framework for Cross-disability Alliance Building

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Gillespie-Lynch, K., Dwyer, P., Constantino, C., Kapp, S. K., Hotez, E., Riccio, A., DeNigris, D., Kofner, B., & Endlich, E. (2020). Can We Broaden the Neurodiversity Movement without Weakening It? Participatory Approaches as a Framework for Cross-disability Alliance Building. In Disability Alliances and Allies (pp. 189-223). Emerald Publishing Limited. https://doi.org/10.1108/s1479-354720200000012013

Publication date: 27 Oct 2020 Added to AutiHub: 5 Jul 2026 Type: Book chapter Article language: English
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Authors

Publication authors
9
Publication authors identified as autistic
4 / 9 (44.4%)
  1. Kristen Gillespie-Lynch
  2. Patrick Dwyer *
  3. Christopher Constantino
  4. Steven K. Kapp *
  5. Emily Hotez
  1. Ariana Riccio
  2. Danielle DeNigris
  3. Bella Kofner *
  4. Eric Endlich *

Abstract

Abstract Purpose: We critically examine the idea of neurodiversity, or the uniqueness of all brains, as the foundation for the neurodiversity movement, which began as an autism rights movement. We explore the neurodiversity movement's potential to support cross-disability alliances that can transform cultures. Methods/Approach: A neurodiverse team reviewed literature about the history of the neurodiversity movement and associated participatory research methodologies and drew from our experiences guiding programs led, to varying degrees, by neurodivergent people. We highlight two programs for autistic university students, one started by and for autistics and one developed in collaboration with autistic and nonautistic students. These programs are contrasted with a national self-help group started by and for stutterers that is inclusive of “neurotypicals.” Findings: Neurodiversity-aligned practices have emerged in diverse communities. Similar benefits and challenges of alliance building within versus across neurotypes were apparent in communities that had not been in close contact. Neurodiversity provides a framework that people with diverse conditions can use to identify and work together to challenge shared forms of oppression. However, people interpret the neurodiversity movement in diverse ways. By honing in on core aspects of the neurodiversity paradigm, we can foster alliances across diverse perspectives. Implications/ Values: Becoming aware of power imbalances and working to rectify them is essential for building effective alliances across neurotypes. Sufficient space and time are needed to create healthy alliances. Participatory approaches, and approaches solely led by neurodivergent people, can begin to address concerns about power and representation within the neurodiversity movement while shifting public understanding.

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Cited references
173
With a DOI
117
Without a DOI, from raw bibliography text
55
28 / 173 (16.2%) cited references include at least one author identified as autistic.
References with data to complete
13 / 173 (7.5%)
References with detected author names
160 / 173 (92.5%)
Without detected author names
13
Without a structured title
13
Without a stable identifier
52
References with raw author names still to review
13
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
566
From DOI or external metadata
566
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
13
263 / 566 (46.5%) names are linked to an author already present in AutiHub. 303 / 566 (53.5%) names are not yet linked.
Names linked to a person identified as autistic
43 / 566 (7.6%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 43 / 263 (16.3%). Distinct people identified as autistic: 31 / 467 (6.6%).
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