Points d'acces : comprendre les interets speciaux a travers les recits autistiques

Titre original en anglais : Access Points: Understanding Special Interests Through Autistic Narratives

Sources de métadonnées utilisées pour cette référence

OpenAlex Crossref OpenCitations
En savoir plus sur les sources utilisées

Long, R. E. M. (2024). Access Points: Understanding Special Interests Through Autistic Narratives. Autism in Adulthood, 7(1), 100-111. https://doi.org/10.1089/aut.2023.0157

Date de publication: 26/02/2024 Ajout dans AutiHub: 09/08/2026 Type: Article Langue de l’article: Anglais
Source OpenAlex Source éditeur (DOI) Texte intégral

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
1
Auteur·ices de la publication identifié·es comme autistes
1 / 1 (100,0 %)
  1. Rebecca-Eli M. Long *

Résumé

Contexte : Bien que les personnes autistes aient fait part de l'importance que peuvent revetir leurs interets, employant parfois l'expression « interets speciaux », les interets autistiques sont couramment pathologises. La recherche a commence a reconnaitre les avantages des interets speciaux pour les personnes autistes. Ces avantages sont souvent etudies principalement pendant l'enfance et en lien avec des objectifs neuronormatifs. En outre, les recherches existantes ne remettent pas en question la definition des « interets speciaux ». Cette etude enrichit la litterature en examinant non seulement ce que les adultes autistes entendent par « interets speciaux », mais aussi la maniere dont ils expliquent pourquoi ces interets comptent. Methodes : La chercheuse a interroge 15 adultes autistes militants aux Etats-Unis au sujet de leurs « interets speciaux » afin de comprendre ce que ce terme signifiait pour eux a partir de leurs propres experiences de vie. Grace a une analyse qualitative critique des transcriptions d'entretiens, comprenant un codage inductif-deductif iteratif, une organisation hierarchique des codes et une cartographie positionnelle, la chercheuse a recherche les similitudes et les differences dans la maniere dont les participants conceptualisaient les interets speciaux. Resultats : Les participants ont utilise trois strategies narratives differentes pour decrire les interets speciaux et leur importance : expliquer le temps consacre a l'interet, discuter de la maniere dont ils vivent cet interet et comparer les interets speciaux a d'autres types d'interets. Les personnes autistes ont declare que leurs interets avaient de l'importance pour elles sur le plan personnel, et qu'ils les aidaient egalement a communiquer et a etablir des liens avec autrui. Les participants ont aussi indique qu'il etait important que les personnes non autistes sachent pourquoi les interets speciaux comptent pour les personnes autistes et creent une societe plus accueillante. Conclusions : Le concept d'« interets speciaux » avait des significations differentes pour les personnes autistes de cette etude. Malgre cela, les participants consideraient les interets speciaux comme globalement importants et comme un aspect de leur vie qui devrait etre soutenu par la societe. Les recits sur les interets speciaux recueillis dans ce projet remettent en cause les stereotypes presentant les personnes autistes comme deconnectees et asociales. Cette etude a plutot montre comment les interets speciaux prennent une importance individuelle et societale accrue pour les personnes autistes.

Background: Although autistic people have shared how important their interests can be, sometimes using the phrase “special interests,” autistic interests are commonly pathologized. Research has begun to recognize the benefits of special interests for autistic people. These benefits are often investigated primarily in childhood and in relation to neuronormative aims. In addition, existing research leaves the definition of “special interests” unquestioned. This study adds to the literature by examining not only what autistic adults mean by “special interests,” but how they explain why these interests matter. Methods: The researcher interviewed 15 adult autistic advocates in the United States about their “special interests” to understand what this term meant to them based on their own life experiences. Through critical qualitative analysis of interview transcripts, including iterative inductive-deductive coding, hierarchical code organization, and positional mapping, the researcher looked for similarities and differences in how participants conceptualized special interests. Results: Participants used three different narrative strategies to describe special interests and their importance: explaining the amount of time spent on the interest, discussing how they experience the interest, and comparing special interests with other types of interests. Autistic people said that their interests mattered to them personally, as well as helped them communicate and connect with others. Participants also shared that it was important for non-autistic people to know about why special interests matter to autistic people and create a more accepting society. Conclusions: The concept of “special interests” meant different things to the autistic people in this study. Even so, participants saw special interests as generally important and an aspect of their lives that should be societally supported. The narratives of special interests collected in this project challenge stereotypes of autistic people as disconnected and asocial. Instead, this study demonstrated how special interests take on increased individual and societal importance for autistic people.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
67
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
16 / 67 (23,9 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
29 / 166 (17,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 29 / 98 (29,6 %). Auteurices cité·es distinct·es identifié·es comme autistes : 21 / 143 (14,7 %).
Occurrences citées rattachées à la base AutiHub
98 / 166 (59,0 %)
Auteurices cité·es distinct·es rattaché·es : 78 / 143 (54,5 %)
Occurrences rattachées, non identifiées comme autistes
69 / 98 (70,4 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 69 / 166 (41,6 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 57 / 78 (73,1 %).
  1. Hans Asperger (1991). ‘Autistic psychopathy’ in childhood . Dans Autism Asperger syndrome (pp. 37-92). Cambridge University Press.
    Type: Chapitre de livre DOI: 10.1017/cbo9780511526770.002 OpenAlex: https://openalex.org/W1600568800
    Crossref OpenAlex OpenCitations
  2. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.
    Type: Livre DOI: 10.1176/appi.books.9780890425596 OpenAlex: https://openalex.org/W4247665917
    Crossref OpenAlex OpenCitations
  4. (s. d.). Schaber A. What are special interests?. Neurowonderful. May 29 2014. https://neurowonderful.tumblr.com/post/87249925186/what-are-special-interests-what-do-special [Last accessed July12 2023].
    Type: Autre
    Crossref
  5. Chris Bailey (2023). ‘Neurodivergent literacies’: exploring autistic adults' ‘ruling passions’ and embracing neurodiversity through classroom literacies . Literacy, 57(2), 120-131. Wiley.
    Type: Article DOI: 10.1111/lit.12320 OpenAlex: https://openalex.org/W4366200719
    Crossref OpenAlex OpenCitations
  6. J. Franklin Robinson , Louis J. Vitale (1954). Children with circumscribed interest patterns. American Journal of Orthopsychiatry, 24(4), 755-766. American Psychological Association (APA).
    Type: Article DOI: 10.1111/j.1939-0025.1954.tb06145.x OpenAlex: https://openalex.org/W2010848768
    Crossref OpenAlex OpenCitations
  7. (s. d.). Lynch CL. 7 Cool aspects of autistic culture. NeuroClastic. April 5 2019. https://neuroclastic.com/7-cool-aspects-of-autistic-culture [Last accessed July12 2019].
    Type: Autre
    Crossref
  8. Cara Ryan Idriss (2021). Invisible Autistic Infrastructure: Ethnographic Reflections on an Autistic Community . Medical Anthropology, 40(2), 129-140. Informa UK Limited.
    Type: Article DOI: 10.1080/01459740.2020.1849185 OpenAlex: https://openalex.org/W3099841821
    Crossref OpenAlex OpenCitations
  10. (s. d.). Kim C. What's so special about a special interest? Musings of An Aspie. November 7 2012. https://musingsofanaspie.com/2012/11/07/whats-so-special-about-a-special-interest [Last accessed July12 2023].
    Type: Autre
    Crossref
  11. Anne McGuire (2016). War on Autism . University of Michigan Press.
    Type: Livre DOI: 10.3998/mpub.7784427 OpenAlex: https://openalex.org/W2467244311
    Crossref OpenAlex OpenCitations
  12. Joyce Davidson , Michael Orsini (2010). The place of emotions in critical autism studies . Emotion, Space and Society, 3(2), 131-133. Elsevier BV.
    Type: Article DOI: 10.1016/j.emospa.2010.10.005 OpenAlex: https://openalex.org/W2018822920
    Crossref OpenAlex OpenCitations
  13. (s. d.). Sparrow M. Autism and intense interests: Why we love what we love and why it should matter to you. Thinking Person's Guide to Autism. November 22 2017. https://thinkingautismguide.com/2017/11/autism-and-intense-interests-why-we.html [Last accessed July12 2023].
    Type: Autre
    Crossref
  14. Clare Harrop , Jessica Amsbary , Sarah Towner-Wright , Brian Reichow , Brian A. Boyd (2019). That’s what I like: The use of circumscribed interests within interventions for individuals with autism spectrum disorder. A systematic review . Research in Autism Spectrum Disorders, 57, 63-86. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2018.09.008 OpenAlex: https://openalex.org/W2898421348
    Crossref OpenAlex OpenCitations
  16. (s. d.). Autistic special interests: Our brain's in-built coping strategy. Authentically Emily. July 18 2023. https://www.authenticallyemily.uk/blog/autistic-special-interests-our-brains-in-built-coping-strategy [Last accessed July14 2023].
    Type: Autre
    Crossref
  17. Julia Cook , Laura Crane , Laura Hull , Laura Bourne , Will Mandy (2022). Self-reported camouflaging behaviours used by autistic adults during everyday social interactions . Autism, 26(2), 406-421. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211026754 OpenAlex: https://openalex.org/W3175040857
    Crossref OpenAlex OpenCitations
  18. Céline Mercier , Laurent Mottron , Sylvie Belleville (2000). A Psychosocial Study on Restricted Interests in High Functioning Persons with Pervasive Developmental Disorders . Autism, 4(4), 406-425. SAGE Publications.
    Type: Article DOI: 10.1177/1362361300004004006 OpenAlex: https://openalex.org/W2048296262
    Crossref OpenAlex OpenCitations
  20. Lawrence A. Palinkas , Sarah M. Horwitz , Carla A. Green , Jennifer P. Wisdom , Naihua Duan , Kimberly Hoagwood (2015). Purposeful Sampling for Qualitative Data Collection and Analysis in Mixed Method Implementation Research . Administration and Policy in Mental Health and Mental Health Services Research, 42(5), 533-544. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10488-013-0528-y OpenAlex: https://openalex.org/W2085028749
    Crossref OpenAlex OpenCitations
  21. Walker N. (2021). Neuroqueer heresies: Notes on the neurodiversity paradigm, Autistic empowerment, and postnormal possibilities . Neuroqueer heresies: Notes on the neurodiversity paradigm, Autistic empowerment, and postnormal possibilities.
    Type: Autre
    Crossref
  23. Richard Melling (2014). Worlds of autism: across the spectrum of neurological difference . Educational Psychology in Practice, 30(2), 208-209. Informa UK Limited.
    Type: Article DOI: 10.1080/02667363.2014.900914 OpenAlex: https://openalex.org/W2090217617
    OpenAlex
  24. Orsini M (2013). Worlds of Autism: Across the Spectrum of Neurological Difference . Worlds of Autism: Across the Spectrum of Neurological Difference, 1.
    Type: Autre
    Crossref
  25. Michael A. Spiker , C. Enjey Lin , Marilyn Van Dyke , Jeffrey J. Wood (2012). Restricted interests and anxiety in children with autism . Autism, 16(3), 306-320. SAGE Publications.
    Type: Article DOI: 10.1177/1362361311401763 OpenAlex: https://openalex.org/W2098578022
    Crossref OpenAlex OpenCitations
  28. Joyce Davidson (2008). Autistic culture online: virtual communication and cultural expression on the spectrum . Social & Cultural Geography, 9(7), 791-806. Informa UK Limited.
    Type: Article DOI: 10.1080/14649360802382586 OpenAlex: https://openalex.org/W2118419532
    Crossref OpenAlex OpenCitations
  29. Raymaker D (2013). Worlds of Autism: Across the Spectrum of Neurological Difference . Worlds of Autism: Across the Spectrum of Neurological Difference, 169.
    Type: Autre
    Crossref
  31. Chantelle Wood , Megan Freeth (2016). Students’ Stereotypes of Autism . Journal of Educational Issues, 2(2), 131. Macrothink Institute, Inc..
    Type: Article DOI: 10.5296/jei.v2i2.9975 OpenAlex: https://openalex.org/W2532162578
    Crossref OpenAlex OpenCitations
  33. Kristie Patten Koenig , Lauren Hough Williams (2017). Characterization and Utilization of Preferred Interests: A Survey of Adults on the Autism Spectrum . Occupational Therapy in Mental Health, 33(2), 129-140. Informa UK Limited.
    Type: Article DOI: 10.1080/0164212x.2016.1248877 OpenAlex: https://openalex.org/W2584331516
    Crossref OpenAlex OpenCitations
  34. Chloe Farahar * (2022). Autistic identity, culture, community, and space for well-being . Dans The Routledge International Handbook of Critical Autism Studies (pp. 229-241). Routledge.
    Type: Chapitre de livre DOI: 10.4324/9781003056577-23 OpenAlex: https://openalex.org/W4307049144
    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
  35. Kate Cooper , Laura G. E. Smith , Ailsa Russell (2017). Social identity, self‐esteem, and mental health in autism . European Journal of Social Psychology, 47(7), 844-854. Wiley.
    Type: Article DOI: 10.1002/ejsp.2297 OpenAlex: https://openalex.org/W2593228649
    Crossref OpenAlex OpenCitations
  37. Laura Hull , K. V. Petrides , Carrie Allison , Paula Smith , Simon Baron-Cohen , Meng-Chuan Lai et al. (2017). “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions . Journal of Autism and Developmental Disorders, 47(8), 2519-2534. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3166-5 OpenAlex: https://openalex.org/W2616560149
    Crossref OpenAlex OpenCitations
  38. Emma Shercliff , Amy Twigger Holroyd (2020). Stitching together: Ethical dimensions and innovative approaches to participatory textile making . Journal of Arts & Communities, 11(1), 3-11. Intellect.
    Type: Article DOI: 10.1386/jaac_00011_1 OpenAlex: https://openalex.org/W3127847361
    Crossref OpenAlex OpenCitations
  39. Mirka Koro-Ljungberg , Gaile S. Cannella (2017). Critical Qualitative Inquiry . International Review of Qualitative Research, 10(4), 327-339. SAGE Publications.
    Type: Article DOI: 10.1525/irqr.2017.10.4.327 OpenAlex: https://openalex.org/W2787398296
    Crossref OpenAlex OpenCitations
  40. Eilidh Cage , Zoe Troxell-Whitman (2019). Understanding the Reasons, Contexts and Costs of Camouflaging for Autistic Adults . Journal of Autism and Developmental Disorders, 49(5), 1899-1911. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-018-03878-x OpenAlex: https://openalex.org/W2909219349
    Crossref OpenAlex OpenCitations
  42. Rachel Grove , Rosa A. Hoekstra , Marlies Wierda , Sander Begeer (2018). Special interests and subjective wellbeing in autistic adults . Autism Research, 11(5), 766-775. Wiley.
    Type: Article DOI: 10.1002/aur.1931 OpenAlex: https://openalex.org/W2789112474
    Crossref OpenAlex OpenCitations
  43. Louise Bradley , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2021). Autistic Adults' Experiences of Camouflaging and Its Perceived Impact on Mental Health . Autism in Adulthood, 3(4), 320-329. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2020.0071 OpenAlex: https://openalex.org/W3170765972
    Crossref OpenAlex OpenCitations
  44. Carla Rice , Andrea LaMarre , Roxanne Mykitiuk (2018). Cripping the Ethics of Disability Arts Research . Dans The Palgrave Handbook of Ethics in Critical Research (pp. 257-272). Springer International Publishing.
    Type: Chapitre de livre DOI: 10.1007/978-3-319-74721-7_17 OpenAlex: https://openalex.org/W2804077213
    Crossref OpenAlex OpenCitations
  45. (s. d.). White-Johnson J. Autistic joy as an act of resistance. Thinking person's guide to autism. October 25 2019. www.thinkingautismguide.com/2019/10/autistic-joy-as-act-of-resistance.html [Last accessed July1 2021].
    Type: Autre
    Crossref
  47. Bradley Lewis (2019). Authoring Autism: On Rhetoric and Neurological Queerness . Journal of Medical Humanities, 40(2), 277-279. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10912-018-9520-6 OpenAlex: https://openalex.org/W2809950918
    OpenAlex
  48. Autistic Self Advocacy Network (2020). Welcome to the Autistic Community . Welcome to the Autistic Community.
    Type: Autre
    Crossref
  50. Kirsten Corden , Rebecca Brewer , Eilidh Cage (2021). Personal Identity After an Autism Diagnosis: Relationships With Self-Esteem, Mental Wellbeing, and Diagnostic Timing . Frontiers in Psychology, 12, 699335-699335. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2021.699335 OpenAlex: https://openalex.org/W3161811598
    Crossref OpenAlex OpenCitations
  51. Natalie Loveless (2019). How to Make Art at the End of the World . Duke University Press.
    Type: Article DOI: 10.1515/9781478004646 OpenAlex: https://openalex.org/W2981953782
    OpenAlex
  52. Leslie Ann Bross , Jonathan M. Huffman , Mayumi Hagiwara (2022). Examining the special interest areas of autistic adults with a focus on their employment and mental health outcomes . Journal of Vocational Rehabilitation, 57(3), 289-305. SAGE Publications.
    Type: Article DOI: 10.3233/jvr-221218 OpenAlex: https://openalex.org/W4306746301
    Crossref OpenAlex OpenCitations
  53. Emma Shercliff , Amy Twigger Holroyd (2020). Stitching Together: Participatory textile making as an emerging methodological approach to research . Journal of Arts & Communities, 10(1), 5-18. Intellect.
    Type: Article DOI: 10.1386/jaac_00002_1 OpenAlex: https://openalex.org/W3031572349
    Crossref OpenAlex OpenCitations
  54. M. Ariel Cascio , Jonathan A. Weiss , Éric Racine , and the Autism Research Ethics Task Force (2020). Person-oriented ethics for autism research: Creating best practices through engagement with autism and autistic communities . Autism, 24(7), 1676-1690. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320918763 OpenAlex: https://openalex.org/W3036990083
    Crossref OpenAlex OpenCitations
  55. Natalie Loveless (2019). How to Make Art at the End of the World . Duke University Press.
    Type: Livre DOI: 10.1215/9781478004646 OpenAlex: https://openalex.org/W4246124577
    Crossref
  57. Adele E. Clarke , Rachel Washburn , Carrie Friese (2022). Situational Analysis in Practice . Routledge.
    Type: Livre DOI: 10.4324/9781003035923 OpenAlex: https://openalex.org/W4214524509
    Crossref OpenAlex OpenCitations
  58. Monique Botha * (2022). Community psychology as reparations for violence in the construction of autism knowledge 1 . Dans The Routledge International Handbook of Critical Autism Studies (pp. 76-94). Routledge.
    Type: Chapitre de livre DOI: 10.4324/9781003056577-8 OpenAlex: https://openalex.org/W4307049296
    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
  59. Dawn Prince-Hughes (2018). Joy . Dans Autism in Translation (pp. 283-289). Springer International Publishing.
    Type: Chapitre de livre DOI: 10.1007/978-3-319-93293-4_14 OpenAlex: https://openalex.org/W4253052200
    Crossref OpenAlex OpenCitations
  60. Graham R Gibbs (2018). Analyzing Qualitative Data . SAGE Publications Ltd.
    Type: Livre DOI: 10.4135/9781526441867 OpenAlex: https://openalex.org/W4242609399
    Crossref OpenAlex OpenCitations
  61. Rebecca Wood (2022). From disempowerment to well-being and flow . Dans The Routledge International Handbook of Critical Autism Studies (pp. 277-287). Routledge.
    Type: Chapitre de livre DOI: 10.4324/9781003056577-27 OpenAlex: https://openalex.org/W4307049315
    Crossref OpenAlex OpenCitations
  62. The Re•Storying Autism Writing Collective: , Raya Shields , Steacy Easton , Julia Gruson-Wood , Margaret F. Gibson , Patty Douglas et al. (2025). Storytelling methods on the move . International Journal of Qualitative Studies in Education, 38(5), 691-710. Informa UK Limited.
    Type: Article DOI: 10.1080/09518398.2022.2061625 OpenAlex: https://openalex.org/W4224285657
    Crossref
  63. Daniel Glenn (2022). Neuroqueer Heresies: Notes on the Neurodiversity Paradigm, Autistic Empowerment, and Postnormal Possibilities . World Futures, 78(5), 339-341. Informa UK Limited.
    Type: Article DOI: 10.1080/02604027.2022.2094194 OpenAlex: https://openalex.org/W4285727398
    OpenAlex
  64. Yergeau M (2018). Authoring Autism: On Rhetoric and Neurological Queerness . Authoring Autism: On Rhetoric and Neurological Queerness.
    Type: Autre
    Crossref
  65. McDonnell A (2014). GAP: Good Autism Practice . GAP: Good Autism Practice, 38.
    Type: Autre
    Crossref
  66. (s. d.). Bascom J. The obsessive joy of autism. Just Stimming. April 5 2011. https://juststimming.wordpress.com/2011/04/05/the-obsessive-joy-of-autism [Last accessed September18 2020].
    Type: Autre
    Crossref
  67. (2024). Stories of Autistic Joy . John Murray Press.
    Type: Livre DOI: 10.5040/9781839979736 OpenAlex: https://openalex.org/W4415128262
    Crossref