« Aucune issue en dehors d'une intervention extérieure » : récits de première main sur l'inertie autistique

Titre original en anglais : “No Way Out Except From External Intervention”: First-Hand Accounts of Autistic Inertia

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Buckle, K. L., Leadbitter, K., Poliakoff, E., & Gowen, E. (2021). “No Way Out Except From External Intervention”: First-Hand Accounts of Autistic Inertia. Frontiers in Psychology, 12, 631596-631596. https://doi.org/10.3389/fpsyg.2021.631596

Date de publication: 13/07/2021 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Karen Leneh Buckle *
  2. Kathy Leadbitter
  3. Ellen Poliakoff
  4. Emma Gowen

Résumé

Cette étude, demandée par des personnes autistes et menée par un chercheur autiste, est la première à explorer l'« inertie autistique », une difficulté généralisée et souvent invalidante à agir conformément à leurs intentions. Les recherches antérieures n'ont examiné l'initiation que dans le contexte de l'interaction sociale ou de conditions expérimentales. Cette étude est unique en ce qu'elle considère la difficulté à initier des tâches de tout type dans des contextes de vie réelle et recueille des données qualitatives directement auprès de personnes autistes. Quatre groupes de discussion en face à face et 2 en ligne (par texte) ont été menés auprès de 32 adultes autistes (19 femmes, 8 hommes et 5 autres), âgés de 23 à 64 ans, capables d'exprimer leurs expériences internes par des mots. Ils décrivent en détail les actions avec lesquelles ils ont des difficultés, ce qui rend l'action plus facile ou plus difficile, et l'impact sur leur vie. L'analyse thématique des transcriptions a mis en évidence quatre thèmes généraux : les descriptions de l'inertie, l'étayage pour soutenir l'action, l'influence du bien-être et l'impact sur les activités quotidiennes. Les participants ont décrit des difficultés à commencer, arrêter et changer d'activité qui n'étaient pas sous leur contrôle conscient. Bien que les difficultés de planification aient été fréquentes, un sous-groupe de participants a décrit une atteinte profonde de l'initiation même d'actions simples, évoquant davantage un trouble du mouvement. Les incitations et une activité compatible dans l'environnement favorisaient l'action, tandis que les difficultés de santé mentale et le stress exacerbaient les difficultés. L'inertie avait des effets généralisés sur les activités quotidiennes et le bien-être des participants. Cette recherche, attendue depuis longtemps, ouvre la voie à de nombreux domaines d'investigation supplémentaires afin de mieux comprendre l'inertie autistique et les stratégies de soutien efficaces.

This study, called for by autistic people and led by an autistic researcher, is the first to explore 'autistic inertia,' a widespread and often debilitating difficulty acting on their intentions. Previous research has considered initiation only in the context of social interaction or experimental conditions. This study is unique in considering difficulty initiating tasks of any type in real life settings, and by gathering qualitative data directly from autistic people. Four face-to-face and 2 online (text) focus groups were conducted with 32 autistic adults (19 female, 8 male, and 5 other), aged 23-64 who were able to express their internal experiences in words. They articulate in detail the actions they have difficulty with, what makes it easier or harder to act, and the impact on their lives. Thematic analysis of the transcripts found four overarching themes: descriptions of inertia, scaffolding to support action, the influence of wellbeing, and the impact on day-to-day activities. Participants described difficulty starting, stopping and changing activities that was not within their conscious control. While difficulty with planning was common, a subset of participants described a profound impairment in initiating even simple actions more suggestive of a movement disorder. Prompting and compatible activity in the environment promoted action, while mental health difficulties and stress exacerbated difficulties. Inertia had pervasive effects on participants' day-to-day activities and wellbeing. This overdue research opens the door to many areas of further investigation to better understand autistic inertia and effective support strategies.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
66
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
4 / 66 (6,1 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
6 / 189 (3,2 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 6 / 38 (15,8 %). Auteurices cité·es distinct·es identifié·es comme autistes : 6 / 169 (3,6 %).
Occurrences citées rattachées à la base AutiHub
38 / 189 (20,1 %)
Auteurices cité·es distinct·es rattaché·es : 32 / 169 (18,9 %)
Occurrences rattachées, non identifiées comme autistes
32 / 38 (84,2 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 32 / 189 (16,9 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 26 / 32 (81,2 %).
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