Perspectives communautaires sur les objectifs de soutien pour les jeunes enfants autistes : une étude qualitative

Titre original en anglais : Community perspectives on support goals for young autistic children: A qualitative investigation

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Waddington, H., Jordan, P., Scott, E., Minnell, H., Patrick, L., Meer, L. v. d., Monk, R., Andrew, J., & Tupou, J. (2023). Community perspectives on support goals for young autistic children: A qualitative investigation. Neurodiversity, 1. https://doi.org/10.1177/27546330231218587

Date de publication: 01/01/2023 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
Source OpenAlex Source éditeur (DOI)

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Auteurs

Auteur·ices des publications
9
Auteur·ices de la publication identifié·es comme autistes
2 / 9 (22,2 %)
  1. Hannah Waddington
  2. Phoebe Jordan
  3. E. Scott
  4. Hannah Minnell
  5. Lee Patrick *
  1. Larah van der Meer
  2. Ruth Monk *
  3. Janet Andrew
  4. Jessica Tupou

Résumé

La définition d’objectifs fait partie intégrante de la prestation d’un soutien efficace, mais les perspectives communautaires sur les objectifs de soutien pour les enfants autistes restent peu connues. Au total, 41 adultes autistes, 50 parents d’enfants autistes et 31 professionnels cliniciens vivant en Nouvelle-Zélande et en Australie ont répondu à des questions d’enquête ouvertes concernant leurs perceptions des objectifs de soutien pour les jeunes enfants autistes. Une analyse thématique réflexive a abouti à cinq thèmes généraux liés aux objectifs de soutien précoce : (a) affirmation de la neurodiversité, (b) changer l’environnement, et non l’enfant, (c) aider les adultes à soutenir les enfants autistes, (d) qualité de vie et (e) respecter les limites. Les perspectives des adultes autistes, des parents et des professionnels étaient pour la plupart concordantes.

Goal setting is integral to the provision of effective support, but little is known about community perspectives on support goals for autistic children. A total of 41 autistic adults, 50 parents of autistic children and 31 clinical professionals living in New Zealand and Australia completed open-ended survey questions regarding their perceptions of support goals for young autistic children. Reflexive thematic analysis resulted in five overarching themes related to early support goals: (a) neurodiversity affirming, (b) change the environment, not the child, (c) helping adults to support autistic children, (d) quality of life and (e) respect boundaries. The perspectives of autistic adults, parents and professionals were mostly aligned.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
42
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
11 / 42 (26,2 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
16 / 194 (8,2 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 16 / 98 (16,3 %). Auteurices cité·es distinct·es identifié·es comme autistes : 14 / 178 (7,9 %).
Occurrences citées rattachées à la base AutiHub
98 / 194 (50,5 %)
Auteurices cité·es distinct·es rattaché·es : 82 / 178 (46,1 %)
Occurrences rattachées, non identifiées comme autistes
82 / 98 (83,7 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 82 / 194 (42,3 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 68 / 82 (82,9 %).
4 entrées de bibliographie citée n’ont pas pu être entièrement enrichies à partir des métadonnées DOI.
Crossref: introuvable (2) · DataCite: introuvable (2)
  1. Sylvia Rodger , Michelle Braithwaite , Deb Keen (2004). Early Intervention for Children with Autism: Parental Priorities . Australasian Journal of Early Childhood, 29(3), 34-41. SAGE Publications.
    Type: Article DOI: 10.1177/183693910402900306 OpenAlex: https://openalex.org/W204036318
    Crossref OpenAlex OpenCitations
  2. Laura K Anderson (2023). Autistic experiences of applied behavior analysis . Autism, 27(3), 737-750. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221118216 OpenAlex: https://openalex.org/W4292878180
    Crossref OpenAlex OpenCitations
  3. Micheal Sandbank , Kristen Bottema‐Beutel , Shannon Crowley , Margaret Cassidy , Kacie Dunham , Jacob I. Feldman et al. (2020). Project AIM: Autism intervention meta-analysis for studies of young children. Psychological Bulletin, 146(1), 1-29. American Psychological Association (APA).
    Type: Article DOI: 10.1037/bul0000215 OpenAlex: https://openalex.org/W2990306783
    Crossref OpenAlex OpenCitations
  4. Helen Penn (2000). Early childhood services: theory, policy and practice .
    Type: Livre OpenAlex: https://openalex.org/W585121343
    OpenAlex
  6. Mélina Rivard , Marie Millau , Catherine Mello , Céline Clément , Catalina Mejia-Cardenas , Mélina Boulé et al. (2021). Immigrant Families of Children with Autism disorder’s Perceptions of Early Intensive Behavioral Intervention Services . Journal of Developmental and Physical Disabilities, 33(4), 633-651. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10882-020-09764-8 OpenAlex: https://openalex.org/W3082128057
    Crossref OpenAlex OpenCitations
  7. Marie Larochelle , Nadine Bednarz (1998). Constructivism and education: beyond epistemological correctness . Dans Constructivism and Education (pp. 3-20). Cambridge University Press.
    Type: Chapitre de livre DOI: 10.1017/cbo9780511752865.002 OpenAlex: https://openalex.org/W1558824257
    Crossref OpenAlex OpenCitations
  8. Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.
    Type: Article DOI: 10.1191/1478088706qp063oa OpenAlex: https://openalex.org/W1979290264
    Crossref OpenAlex OpenCitations
  9. Elizabeth A. Fuller , Ann P. Kaiser (2020). The Effects of Early Intervention on Social Communication Outcomes for Children with Autism Spectrum Disorder: A Meta-analysis . Journal of Autism and Developmental Disorders, 50(5), 1683-1700. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-019-03927-z OpenAlex: https://openalex.org/W2916113381
    Crossref OpenAlex OpenCitations
  10. Virginia Braun , Victoria Clarke (2019). Reflecting on reflexive thematic analysis . Qualitative Research in Sport, Exercise and Health, 11(4), 589-597. Informa UK Limited.
    Type: Article DOI: 10.1080/2159676x.2019.1628806 OpenAlex: https://openalex.org/W2950504429
    Crossref OpenAlex OpenCitations
  11. Giacomo Vivanti , Connie Kasari , Jonathan Green , David S. Mandell , Melissa Maye , Kristelle Hudry (2018). Implementing and evaluating early intervention for children with autism: Where are the gaps and what should we do? Autism Research, 11(1), 16-23. Wiley.
    Type: Article DOI: 10.1002/aur.1900 OpenAlex: https://openalex.org/W2771507369
    Crossref OpenAlex OpenCitations
  12. Patricia Howlin (2011). Early Start Denver Model for Young Children with Autism: Promoting Language, Learning, and Engagement . Child and Adolescent Mental Health, 16(2), 128-128. Wiley.
    Type: Article DOI: 10.1111/j.1475-3588.2011.00603_2.x OpenAlex: https://openalex.org/W2002003773
    OpenAlex
  13. Virginia Braun , Victoria Clarke (2021). One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qualitative Research in Psychology, 18(3), 328-352. Informa UK Limited.
    Type: Article DOI: 10.1080/14780887.2020.1769238 OpenAlex: https://openalex.org/W3048560297
    Crossref OpenAlex OpenCitations
  14. Keenan A. Pituch , Vanessa A. Green , Robert Didden , Russell Lang , Mark F. O’Reilly , Giulio E. Lancioni et al. (2011). Parent reported treatment priorities for children with autism spectrum disorders . Research in Autism Spectrum Disorders, 5(1), 135-143. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2010.03.003 OpenAlex: https://openalex.org/W2014938646
    Crossref OpenAlex OpenCitations
  15. Carr M. (2000). Early childhood services: Theory, policy and practice . Early childhood services: Theory, policy and practice, 53.
    Type: Autre
    Crossref
  17. Tim Rochford (2004). Whare Tapa Wha: A Mäori Model of a Unified Theory of Health . Journal of Primary Prevention, 25(1), 41-57. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1023/b:jopp.0000039938.39574.9e OpenAlex: https://openalex.org/W2036702879
    Crossref OpenAlex OpenCitations
  18. Kate Cooper , Ailsa Russell , Jiedi Lei , Laura GE Smith (2023). The impact of a positive autism identity and autistic community solidarity on social anxiety and mental health in autistic young people . Autism, 27(3), 848-857. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221118351 OpenAlex: https://openalex.org/W4294605745
    Crossref OpenAlex OpenCitations
  19. Laura Crane , James W Chester , Lorna Goddard , Lucy A Henry , Elisabeth L. Hill (2016). Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom . Autism, 20(2), 153-162. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315573636 OpenAlex: https://openalex.org/W2118478153
    Crossref OpenAlex OpenCitations
  21. Steven K. Kapp * , Kristen Gillespie-Lynch , Lauren E. Sherman , Ted Hutman (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59-71. American Psychological Association (APA).
    Type: Article DOI: 10.1037/a0028353 OpenAlex: https://openalex.org/W2124715426
    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
  23. Lorcan Kenny , Caroline Hattersley , Bonnie Molins , Carole Buckley , Carol Povey , Elizabeth Pellicano (2016). Which terms should be used to describe autism? Perspectives from the UK autism community . Autism, 20(4), 442-462. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315588200 OpenAlex: https://openalex.org/W2227393071
    Crossref OpenAlex OpenCitations
  25. Marion Rutherford , Karen McKenzie , Tess Johnson , Ciara Catchpole , Anne O’Hare , Iain McClure et al. (2016). Gender ratio in a clinical population sample, age of diagnosis and duration of assessment in children and adults with autism spectrum disorder . Autism, 20(5), 628-634. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315617879 OpenAlex: https://openalex.org/W2296343167
    Crossref OpenAlex OpenCitations
  26. Mehdi Ghanadzade , Mitzi Waltz , Tehnaz Ragi (2018). The intervention priorities of parents of children with autism spectrum disorders in Iran . Research in Autism Spectrum Disorders, 55, 14-24. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2018.08.002 OpenAlex: https://openalex.org/W2888049013
    Crossref OpenAlex OpenCitations
  27. Emily Ogilvie , Matthew T. McCrudden (2017). Evaluating the Social Validity of the Early Start Denver Model: A Convergent Mixed Methods Study . Journal of Autism and Developmental Disorders, 47(9), 2899-2910. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3214-1 OpenAlex: https://openalex.org/W2730313373
    Crossref OpenAlex OpenCitations
  28. Lucie Jurek , Kathy Leadbitter , Bruno Falissard , Cyrille Colin , Sandrine Touzet , Marie-Maude Geoffray (2023). Parental experience of parent-mediated intervention for children with ASD: A systematic review and qualitative evidence synthesis . Autism, 27(3), 647-666. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221112204 OpenAlex: https://openalex.org/W4288084639
    Crossref OpenAlex OpenCitations
  31. Owen McGill , Anna Robinson (2021). “Recalling hidden harms”: autistic experiences of childhood applied behavioural analysis (ABA) . Advances in Autism, 7(4), 269-282. Emerald.
    Type: Article DOI: 10.1108/aia-04-2020-0025 OpenAlex: https://openalex.org/W3083430053
    Crossref OpenAlex OpenCitations
  32. Jiwon Seo , Karyn France , Laurie McLay , Hannah Waddington (2022). Parents’ Perceptions of Coaching and Low-Intensity Therapy for Young Children on the Autism Spectrum . Advances in Neurodevelopmental Disorders, 6(1), 65-75. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s41252-021-00233-7 OpenAlex: https://openalex.org/W4206705825
    Crossref OpenAlex OpenCitations
  33. Mullen E. M. (1995). Mullen scales of early learning . Mullen Scales of Early Learning.
    Type: Autre
    Crossref
  36. Andrew Whitehouse , Kandice J. Varcin , Sarah Pillar , Wesley Billingham , Gail A. Alvares , Josephine Barbaro et al. (2021). Effect of Preemptive Intervention on Developmental Outcomes Among Infants Showing Early Signs of Autism . JAMA Pediatrics, 175(11), e213298. American Medical Association (AMA).
    Type: Article DOI: 10.1001/jamapediatrics.2021.3298 OpenAlex: https://openalex.org/W3199581472
    Crossref OpenAlex OpenCitations
  38. Rogers S. J. (2010). Early start Denver model for young children with autism: Promoting language, learning, and engagement . Early start Denver model for young children with autism: Promoting language, learning, and engagement.
    Type: Autre
    Crossref
  39. Sharon Bradley‐Johnson (1997). Mullen Scales of Early Learning . Psychology in the Schools, 34(4), 379-382.
    Type: Article DOI: 10.1002/(sici)1520-6807(199710)34:4 OpenAlex: https://openalex.org/W2037716870 Crossref: introuvable DataCite: introuvable
    OpenAlex
  40. Karrie A. Shogren , Michael L. Wehmeyer , Susan B. Palmer , Anjali J. Forber-Pratt , Todd J. Little , Shane Lopez (2015). Causal Agency Theory: Reconceptualizing a Functional Model of Self-Determination . Education and Training in Autism and Developmental Disabilities, 50(3), 251-263. SAGE Publications.
    Type: Article DOI: 10.1177/215416471505000302 OpenAlex: https://openalex.org/W2260436772
    Crossref
  41. Sparrow S. S. (2016). Vineland-3: Vineland Adaptive Behavior Scales . Vineland‐3: Vineland adaptive behavior scales.
    Type: Autre
    Crossref
  42. David Trembath National guideline for supporting the learning, participation, and wellbeing of autistic children and their families in Australia . National guideline for supporting the learning, participation, and wellbeing of autistic children and their families in Australia.
    Type: Autre
    Crossref