Faire l'experience de l'independance : perspectives d'adultes autistes

Titre original en anglais : Experiencing Independence: Perspectives from Autistic Adults

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Bhattacharya, P., Matthews, R., Field, R., Heath, H., Woodcock, K., & Surtees, A. (2025). Experiencing Independence: Perspectives from Autistic Adults. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-025-06812-0

Date de publication: 03/04/2025 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
6
Auteur·ices de la publication identifié·es comme autistes
1 / 6 (16,7 %)
  1. Piyali Bhattacharya
  2. Rose Matthews *
  3. Rae Field
  1. Hannah Heath
  2. Kate Woodcock
  3. Andrew Surtees

Résumé

Les criteres diagnostiques de l'autisme sont lies a des difficultes de fonctionnement dans de multiples domaines du developpement, qui ont souvent une incidence sur l'independance d'une personne. Il existe differentes manieres de conceptualiser et d'exercer l'independance, mais aucune etude anterieure n'a examine comment les adultes autistes le font. Cette etude qualitative visait a comprendre comment les adultes autistes definissent et vivent l'independance. Elle a ete concue pour approfondir notre comprehension de la maniere dont les adultes autistes rendent compte des strategies d'adaptation et les utilisent pour surmonter les obstacles a la vie autonome et parvenir au niveau d'independance souhaite. Douze entretiens semi-structures ont ete menes avec des adultes autistes vivant au Royaume-Uni. Les donnees ont ete analysees au moyen d'une analyse thematique reflexive. Les chercheurs ont degage trois themes majeurs. Le premier theme, « L'independance n'est pas une taille unique pour tous », souligne qu'il n'existe pas une seule definition ou conception de l'independance pour les personnes autistes ; celles-ci sont relatives et propres a chaque individu. Le deuxieme theme, « Etre autiste a ses revers » dans un monde neurotypique, decrit les obstacles rencontres par les adultes autistes qui recherchent l'independance au sein d'une societe qui privilegie les normes neurotypiques. Le troisieme theme, « Trouver des moyens pour que cela fonctionne », rend compte des strategies que les adultes autistes utilisent pour atteindre ou maintenir leur independance. Les resultats de cette etude fournissent une base pour de futures recherches explorant les domaines de l'independance chez les adultes autistes. La desirabilite percue d'atteindre differents degres d'in(ter)dependance et la nature fluctuante de l'autosuffisance sont explorees a travers l'experience vecue. Une meilleure comprehension des obstacles et des defis lies a l'independance pourrait donner davantage de pouvoir aux adultes autistes et ameliorer les services et le soutien.

Autism diagnostic criteria relate to difficulties in functioning across multiple developmental domains, that often impact on a person's independence. There are different ways to conceptualise and exercise independence, but no previous studies have questioned how autistic adults do so. This qualitative study aimed to understand how autistic adults define and experience independence. It was designed to further our understanding of how autistic adults account for and use coping strategies to overcome barriers to independent living and navigate their way to their desired level of independence. Twelve semi-structured interviews were conducted with autistic adults living in the United Kingdom. The data were analysed using reflexive thematic analysis. The researchers generated three major themes. The first theme 'Independence is "not a one-size-fits-all"' highlights that there is no one definition or concept of independence for autistic people; these are relative and uniquely individual. The second theme '"Being autistic has its setbacks" in a neurotypical world' describes the obstacles encountered by autistic adults seeking independence within a society that favours neurotypical norms. The third theme 'Finding ways of making it work' captures strategies autistic adults use in achieving or maintaining independence. The findings from this study provide a foundation for future research exploring domains of independence for autistic adults. The perceived desirability of achieving different degrees of in(ter)dependence and the fluctuating nature of self-sufficiency are explored through lived experience. Increasing understanding of barriers and challenges to independence has the potential to empower autistic adults and improve services and support.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 14:02.

Références citées
94
Avec un DOI
89
Sans DOI, à partir du texte brut de la bibliographie
4
26 / 94 (27,7 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
5 / 94 (5,3 %)
Références avec noms d’auteurices détectés
89 / 94 (94,7 %)
Sans nom d’auteurice détecté
5
Sans titre structuré
4
Sans identifiant stable
4
Références avec noms bruts d’auteurices restant à vérifier
5
Références avec problème de récupération des métadonnées externes
1
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
315
À partir du DOI ou de métadonnées externes
315
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
9
162 / 315 (51,4 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 153 / 315 (48,6 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
49 / 315 (15,6 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 49 / 162 (30,2 %). Personnes distinctes identifiées comme autistes : 36 / 280 (12,9 %).
  1. Stephanie Brewster , Liz Coleyshaw (2011). Participation or exclusion? Perspectives of pupils with autistic spectrum disorders on their participation in leisure activities . British Journal of Learning Disabilities, 39(4), 284-291. Wiley.
    Type: Article DOI: 10.1111/j.1468-3156.2010.00665.x OpenAlex: https://openalex.org/W1537227011
    Crossref OpenAlex OpenCitations
  2. William C. Adams (2015). Conducting Semi‐Structured Interviews . Dans Handbook of Practical Program Evaluation (pp. 492-505). Wiley.
    Type: Chapitre de livre DOI: 10.1002/9781119171386.ch19 OpenAlex: https://openalex.org/W2338991735
    Crossref OpenAlex OpenCitations
  3. Elizabeth M. Radulski (2022). Conceptualising Autistic Masking, Camouflaging, and Neurotypical Privilege: Towards a Minority Group Model of Neurodiversity . Human Development, 66(2), 113-127. S. Karger AG.
    Type: Article DOI: 10.1159/000524122 OpenAlex: https://openalex.org/W4287738988
    Crossref OpenAlex OpenCitations
  4. Patricia Howlin (2005). Outcomes in Autism Spectrum Disorders . Dans Handbook of Autism and Pervasive Developmental Disorders (pp. 201-220). Wiley.
    Type: Chapitre de livre DOI: 10.1002/9780470939345.ch7 OpenAlex: https://openalex.org/W1585757336
    Crossref OpenAlex OpenCitations
  5. Dawn Adams , Kate Young (2021). A Systematic Review of the Perceived Barriers and Facilitators to Accessing Psychological Treatment for Mental Health Problems in Individuals on the Autism Spectrum . Review Journal of Autism and Developmental Disorders, 8(4), 436-453. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-020-00226-7 OpenAlex: https://openalex.org/W3094212365
    Crossref OpenAlex OpenCitations
  6. Katharine E. Zuckerman , Olivia J. Lindly , Nuri M. Reyes , Alison E. Chavez , Maritza Cobian , Kristy Macias et al. (2018). Parent Perceptions of Community Autism Spectrum Disorder Stigma: Measure Validation and Associations in a Multi-site Sample . Journal of Autism and Developmental Disorders, 48(9), 3199-3209. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-018-3586-x OpenAlex: https://openalex.org/W2800558898
    Crossref OpenAlex OpenCitations
  7. Katherine Gotham , Alison R Marvin , Julie Lounds Taylor , Zachary Warren , Connie M Anderson , Paul A Law et al. (2015). Characterizing the daily life, needs, and priorities of adults with autism spectrum disorder from Interactive Autism Network data . Autism, 19(7), 794-804. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315583818 OpenAlex: https://openalex.org/W1927816754
    Crossref OpenAlex OpenCitations
  9. Elisabeth M. A. Späth , Karin R. Jongsma (2020). Autism, autonomy, and authenticity . Medicine, Health Care and Philosophy, 23(1), 73-80. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11019-019-09909-3 OpenAlex: https://openalex.org/W2948389913
    Crossref OpenAlex OpenCitations
  10. Melanie J. Zimmer‐Gembeck , W. Andrew Collins (2006). Autonomy Development During Adolescence . Dans Blackwell Handbook of Adolescence (pp. 174-204). Wiley.
    Type: Chapitre de livre DOI: 10.1002/9780470756607.ch9 OpenAlex: https://openalex.org/W1951222910
    Crossref OpenAlex OpenCitations
  11. Ayoubkhani, D., King, S., Bosworth, M., & Pawelek, P. (2021). Self-Reported Long COVID after Infection with the Omicron Variant in the UK. https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/disability/articles/outcomesfordisabledpeopleintheuk/2021
    Type: Autre
    Crossref
  13. Elizabeth Baker , Katherine K.M. Stavropoulos , Bruce L. Baker , Jan Blacher (2021). Daily living skills in adolescents with autism spectrum disorder: Implications for intervention and independence . Research in Autism Spectrum Disorders, 83, 101761. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2021.101761 OpenAlex: https://openalex.org/W3134698961
    Crossref OpenAlex OpenCitations
  14. Kara Hume , Sam Odom (2007). Effects of an Individual Work System on the Independent Functioning of Students with Autism . Journal of Autism and Developmental Disorders, 37(6), 1166-1180. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-006-0260-5 OpenAlex: https://openalex.org/W2025088280
    Crossref OpenAlex OpenCitations
  15. Lauren Bishop-Fitzpatrick , Eric Rubenstein (2019). The physical and mental health of middle aged and older adults on the autism spectrum and the impact of intellectual disability . Research in Autism Spectrum Disorders, 63, 34-41. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2019.01.001 OpenAlex: https://openalex.org/W2913601089
    Crossref OpenAlex OpenCitations
  17. Ling-Yi Lin , Shu-Ning Yu , Ya-Tsu Yu (2012). A study of activities of daily living and employment in adults with autism spectrum disorders in Taiwan . International Journal of Rehabilitation Research, 35(2), 109-115. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/mrr.0b013e32835108b1 OpenAlex: https://openalex.org/W2062113595
    Crossref OpenAlex OpenCitations
  18. Melissa H. Black , Dana L. Greenwood , Jerome Choo Chen Hwa , Jacqueline Pivac , Jessica Tang , Patrick Clarke (2024). What Are You Worried About? Content and Extent of Worry in Autistic Adults . Journal of Autism and Developmental Disorders, 54(5), 2040-2054. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-023-05963-2 OpenAlex: https://openalex.org/W4361297967
    Crossref OpenAlex OpenCitations
  19. Darcy Jones (DJ) McMaughan , Casey Lewis , Amy McGehee , Dani Noreen , Elliot Parker , Michael M Criss (2024). Meaningful Social Inclusion and Mental Well-Being Among Autistic Adolescents and Emerging Adults: Protocol for a Community-Based Mixed Methods Study . JMIR Research Protocols, 13, e52658. JMIR Publications Inc..
    Type: Article DOI: 10.2196/52658 OpenAlex: https://openalex.org/W4389137440
    Crossref OpenAlex OpenCitations
  20. Kara Hume , Brian A. Boyd , Jill V. Hamm , Suzanne Kucharczyk (2014). Supporting Independence in Adolescents on the Autism Spectrum . Remedial and Special Education, 35(2), 102-113. SAGE Publications.
    Type: Article DOI: 10.1177/0741932513514617 OpenAlex: https://openalex.org/W2099140631
    Crossref OpenAlex OpenCitations
  23. Michael L. Wehmeyer (2000). Assessment of Self-Determination—Negotiating the Minefield . Focus on Autism and Other Developmental Disabilities, 15(3), 157-158. SAGE Publications.
    Type: Article DOI: 10.1177/108835760001500305 OpenAlex: https://openalex.org/W2101707451
    Crossref OpenAlex OpenCitations
  26. Natalie A. Henninger , Julie Lounds Taylor (2013). Outcomes in adults with autism spectrum disorders: a historical perspective . Autism, 17(1), 103-116. SAGE Publications.
    Type: Article DOI: 10.1177/1362361312441266 OpenAlex: https://openalex.org/W2109872026
    Crossref OpenAlex OpenCitations
  28. Kate Cooper , Laura G. E. Smith , Ailsa Russell (2017). Social identity, self‐esteem, and mental health in autism . European Journal of Social Psychology, 47(7), 844-854. Wiley.
    Type: Article DOI: 10.1002/ejsp.2297 OpenAlex: https://openalex.org/W2593228649
    Crossref OpenAlex OpenCitations
  29. Miranda J. Cunningham , Marcelo Diversi (2013). Aging out: Youths’ perspectives on foster care and the transition to independence . Qualitative Social Work, 12(5), 587-602. SAGE Publications.
    Type: Article DOI: 10.1177/1473325012445833 OpenAlex: https://openalex.org/W2128329824
    Crossref OpenAlex OpenCitations
  31. Elizabeth A. Wise , Marcia D. Smith , Peter V. Rabins (2020). Correlates of daily functioning in older adults with autism spectrum disorder . Aging & Mental Health, 24(10), 1754-1762. Informa UK Limited.
    Type: Article DOI: 10.1080/13607863.2019.1647138 OpenAlex: https://openalex.org/W2965162710
    Crossref OpenAlex OpenCitations
  32. Patricia Howlin , Lynn Mawhood , Michael Rutter (2000). Autism and Developmental Receptive Language Disorder—a Follow‐up Comparison in Early Adult Life. II: Social, Behavioural, and Psychiatric Outcomes . Journal of Child Psychology and Psychiatry, 41(5), 561-578. Wiley.
    Type: Article DOI: 10.1111/1469-7610.00643 OpenAlex: https://openalex.org/W2164309747
    Crossref OpenAlex OpenCitations
  33. Virginia Braun , Victoria Clarke (2019). Reflecting on reflexive thematic analysis . Qualitative Research in Sport, Exercise and Health, 11(4), 589-597. Informa UK Limited.
    Type: Article DOI: 10.1080/2159676x.2019.1628806 OpenAlex: https://openalex.org/W2950504429
    Crossref OpenAlex OpenCitations
  34. Jane D McLeod , Amelia Hawbaker , Emily Meanwell (2021). The health of college students on the autism spectrum as compared to their neurotypical peers . Autism, 25(3), 719-730. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320926070 OpenAlex: https://openalex.org/W3036528418
    Crossref OpenAlex OpenCitations
  35. Jinkuk Hong , Lauren Bishop-Fitzpatrick , Leann E. Smith , Jan S. Greenberg , Marsha R. Mailick (2016). Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports . Journal of Autism and Developmental Disorders, 46(4), 1368-1378. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-015-2678-0 OpenAlex: https://openalex.org/W2203061867
    Crossref OpenAlex OpenCitations
  36. Virginia Braun , Victoria Clarke (2021). Can I use TA? Should I use TA? Should I not use TA? Comparing reflexive thematic analysis and other pattern‐based qualitative analytic approaches . Counselling and Psychotherapy Research, 21(1), 37-47. Wiley.
    Type: Article DOI: 10.1002/capr.12360 OpenAlex: https://openalex.org/W3093223973
    Crossref OpenAlex OpenCitations
  37. Dara Chan , Julie D Doran (2024). Mental health counseling is rated as most helpful by autistic adults: Service perspectives in adulthood . Autism, 28(5), 1190-1202. SAGE Publications.
    Type: Article DOI: 10.1177/13623613231197446 OpenAlex: https://openalex.org/W4386530409
    Crossref OpenAlex OpenCitations
  38. Timo Lorenz , Cora Frischling , Raphael Cuadros , Kathrin Heinitz (2016). Autism and Overcoming Job Barriers: Comparing Job-Related Barriers and Possible Solutions in and outside of Autism-Specific Employment . PLOS ONE, 11(1), e0147040. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0147040 OpenAlex: https://openalex.org/W2235500658
    Crossref OpenAlex OpenCitations
  39. Virginia Braun , Victoria Clarke (2021). To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales . Qualitative Research in Sport, Exercise and Health, 13(2), 201-216. Informa UK Limited.
    Type: Article DOI: 10.1080/2159676x.2019.1704846 OpenAlex: https://openalex.org/W2996597775
    Crossref OpenAlex OpenCitations
  40. Abraham David Graber (2017). Autism, intellectual disability, and a challenge to our understanding of proxy consent . Medicine, Health Care and Philosophy, 20(2), 229-236. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11019-016-9745-y OpenAlex: https://openalex.org/W2546223226
    Crossref OpenAlex OpenCitations
  41. Anne-Marie DePape , Sally Lindsay (2016). Lived experiences from the perspective of individuals with autism spectrum disorder: a qualitative meta-synthesis . Focus Autism Other Dev Disabil, 31(1), 60. SAGE Publications.
    Type: Article DOI: 10.1177/1088357615587504 OpenAlex: https://openalex.org/W2245253210
    Crossref OpenAlex OpenCitations
  42. Virginia Braun , Victoria Clarke (2022). Thematic Analysis . Dans Thematic analysis: a practical guide (pp. 1-7). Springer International Publishing.
    Type: Chapitre de livre DOI: 10.1007/978-3-319-69909-7_3470-2 OpenAlex: https://openalex.org/W4320081749
    Crossref OpenAlex
  43. Kirsti Malterud , Volkert Dirk Siersma , Ann Dorrit Guassora (2016). Sample Size in Qualitative Interview Studies . Qualitative Health Research, 26(13), 1753-1760. SAGE Publications.
    Type: Article DOI: 10.1177/1049732315617444 OpenAlex: https://openalex.org/W2305278139
    Crossref OpenAlex OpenCitations
  44. Brown, L. X. Z. (2012). Privilege and the myth of independence [Autistic Hoya]. Privilege and the Myth of Independence. https://www.autistichoya.com/2012/08/privilege-and-myth-of-independence.html
    Type: Autre
    Crossref
  45. Meghan M. Burke , Chak Li , Amanda Johnston , Adriana Kaori Terol (2024). Promoting Advocacy and Empowerment for Individuals with Intellectual Disabilities and Autism . Dans The International Library of Bioethics (pp. 209-220). Springer International Publishing.
    Type: Chapitre de livre DOI: 10.1007/978-3-031-61565-8_16 OpenAlex: https://openalex.org/W4402081982
    Crossref OpenAlex OpenCitations
  46. Robert H. Wozniak , Nina B. Leezenbaum , Jessie B. Northrup , Kelsey L. West , Jana M. Iverson (2017). The development of autism spectrum disorders: variability and causal complexity . WIREs Cognitive Science, 8(1-2). Wiley.
    Type: Article DOI: 10.1002/wcs.1426 OpenAlex: https://openalex.org/W2559638458
    Crossref OpenAlex OpenCitations
  47. Jessica L. Johnson , Donna Adkins , Sheila Chauvin (2020). A Review of the Quality Indicators of Rigor in Qualitative Research . American Journal of Pharmaceutical Education, 84(1), 7120. Elsevier BV.
    Type: Article DOI: 10.5688/ajpe7120 OpenAlex: https://openalex.org/W2936015247
    Crossref OpenAlex OpenCitations
  48. Clarke, V. (2013). Successful qualitative research: A practical guide for beginners. SAGE Publications Ltd. http://digital.casalini.it/9781446281024
    Type: Autre
    Crossref
  51. (2021). Code of Ethics and Conduct . British Psychological Society.
    Type: Livre DOI: 10.53841/bpsrep.2021.inf94 OpenAlex: https://openalex.org/W4320158841
    Crossref OpenAlex OpenCitations
  53. Laura Hull , K.V. Petrides , Carrie T. Allison , P. Smith , Simon Baron-Cohen , Meng-Chuan Lai et al. (2017). “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions . Journal of Autism and Developmental Disorders, 47(8), 2519-2534. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3166-5 OpenAlex: https://openalex.org/W2616560149
    Crossref OpenAlex OpenCitations
  56. Serena Cribb , Lorcan Kenny , Elizabeth Pellicano (2019). ‘I definitely feel more in control of my life’: The perspectives of young autistic people and their parents on emerging adulthood . Autism, 23(7), 1765-1781. SAGE Publications.
    Type: Article DOI: 10.1177/1362361319830029 OpenAlex: https://openalex.org/W2918237446
    Crossref OpenAlex OpenCitations
  58. Ling-Yi Lin , Pai-Chuan Huang (2019). Quality of life and its related factors for adults with autism spectrum disorder . Disability and Rehabilitation, 41(8), 896-903. Informa UK Limited.
    Type: Article DOI: 10.1080/09638288.2017.1414887 OpenAlex: https://openalex.org/W2772050964
    Crossref OpenAlex OpenCitations
  61. Amy D. Spriggs , Kevin M. Ayres , Carolyn Trump , Christopher Taylor (2017). Building Programs Focused on Daily Living and Adult Independence . Dans Autism and Child Psychopathology Series (pp. 195-224). Springer International Publishing.
    Type: Chapitre de livre DOI: 10.1007/978-3-319-69983-7_9 OpenAlex: https://openalex.org/W2789243472
    Crossref OpenAlex OpenCitations
  62. Rosa A. Hoekstra , Fikirte Girma , Bethlehem Tekola , Zemi Yenus (2018). Nothing about us without us: the importance of local collaboration and engagement in the global study of autism . BJPsych International, 15(2), 40-43. Royal College of Psychiatrists.
    Type: Article DOI: 10.1192/bji.2017.26 OpenAlex: https://openalex.org/W2789273782
    Crossref OpenAlex OpenCitations
  63. Craig Thompson , Sven Bölte , Torbjörn Falkmer , Sonya Girdler (2018). To be understood: Transitioning to adult life for people with Autism Spectrum Disorder . PLOS ONE, 13(3), e0194758. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0194758 OpenAlex: https://openalex.org/W2791148865
    Crossref OpenAlex OpenCitations
  64. Valeria Khudiakova , Emmeline Russell , Sophie Sowden , Andrew Surtees (2024). A systematic review and meta-analysis of mental health outcomes associated with camouflaging in autistic people . Research in Autism Spectrum Disorders, 118, 102492. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2024.102492 OpenAlex: https://openalex.org/W4403258917
    Crossref OpenAlex OpenCitations
  65. Erin Harmuth , Emerald Silletta , Anthony Bailey , Tracy Adams , Charlotte Beck , Skye Pamela Barbic (2018). Barriers and Facilitators to Employment for Adults With Autism: A Scoping Review . Annals of International Occupational Therapy, 1(1), 31-40. SLACK, Inc..
    Type: Article DOI: 10.3928/24761222-20180212-01 OpenAlex: https://openalex.org/W2796368235
    Crossref OpenAlex OpenCitations
  66. Nancy Doyle , Almuth McDowall , Uzma Waseem (2022). Intersectional Stigma for Autistic People at Work: A Compound Adverse Impact Effect on Labor Force Participation and Experiences of Belonging . Autism in Adulthood, 4(4), 340-356. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2021.0082 OpenAlex: https://openalex.org/W4309329450
    Crossref OpenAlex OpenCitations
  70. Parisa Ghanouni , Stephanie Quirke (2023). Resilience and Coping Strategies in Adults with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 53(1), 456-467. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-022-05436-y OpenAlex: https://openalex.org/W4206943117
    Crossref OpenAlex OpenCitations
  71. Parisa Ghanouni , Stephanie Quirke , Jennifer Blok , Amanda Casey (2021). Independent living in adults with autism spectrum disorder: Stakeholders’ perspectives and experiences . Research in Developmental Disabilities, 119, 104085. Elsevier BV.
    Type: Article DOI: 10.1016/j.ridd.2021.104085 OpenAlex: https://openalex.org/W3203243544
    Crossref OpenAlex OpenCitations
  72. Jane D. McLeod , Emily Meanwell , Amelia Hawbaker (2019). The Experiences of College Students on the Autism Spectrum: A Comparison to Their Neurotypical Peers . Journal of Autism and Developmental Disorders, 49(6), 2320-2336. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-019-03910-8 OpenAlex: https://openalex.org/W2914644561
    Crossref OpenAlex OpenCitations
  73. Iris Schneid , Aviad E. Raz (2020). The mask of autism: Social camouflaging and impression management as coping/normalization from the perspectives of autistic adults . Social Science & Medicine, 248(112), 112826. Elsevier BV.
    Type: Article DOI: 10.1016/j.socscimed.2020.112826 OpenAlex: https://openalex.org/W3003216866
    Crossref OpenAlex OpenCitations
  74. Natasha Mitter , Afia Ali , Katrina Scior (2019). Stigma experienced by families of individuals with intellectual disabilities and autism: A systematic review . Research in Developmental Disabilities, 89, 10-21. Elsevier BV.
    Type: Article DOI: 10.1016/j.ridd.2019.03.001 OpenAlex: https://openalex.org/W2922325519
    Crossref OpenAlex OpenCitations
  75. Meng-Chuan Lai , Caroline Kassee , Richard Besney , Sarah Bonato , Laura Hull , Will Mandy et al. (2019). Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis . Lancet Psychiatry, 6(10), 819. Elsevier BV.
    Type: Article DOI: 10.1016/s2215-0366(19)30289-5 OpenAlex: https://openalex.org/W2936336589
    Crossref OpenAlex OpenCitations
  79. Goldie A. McQuaid , Colin H. Weiss , Alex Job Said , Kevin A. Pelphrey , Nancy Raitano Lee , Gregory L. Wallace (2022). Increased perceived stress is negatively associated with activities of daily living and subjective quality of life in younger, middle, and older autistic adults . Autism Research, 15(8), 1535-1549. Wiley.
    Type: Article DOI: 10.1002/aur.2779 OpenAlex: https://openalex.org/W4283822824
    Crossref OpenAlex OpenCitations
  80. William Nguyen , Tamara Ownsworth , Chelsea Nicol , David Zimmerman (2020). How I See and Feel About Myself: Domain-Specific Self-Concept and Self-Esteem in Autistic Adults . Frontiers in Psychology, 11, 913. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2020.00913 OpenAlex: https://openalex.org/W3024675062
    Crossref OpenAlex OpenCitations
  81. Victoria Clarke , Virginia Braun (2014). Thematic analysis . Dans Encyclopedia of Critical Psychology (pp. 1947). Springer New York.
    Type: Chapitre de livre DOI: 10.1007/978-1-4614-5583-7_311 OpenAlex: https://openalex.org/W4232818056
    OpenCitations
  82. Damian Milton * , Krysia Emily Waldock * , Nathan Keates (2023). Autism and the ‘double empathy problem’ . Dans Conversations on empathy: Interdisciplinary perspectives on empathy, imagination and othering (pp. 78-97). Routledge.
    Type: Chapitre de livre DOI: 10.4324/9781003189978-6 OpenAlex: https://openalex.org/W3092319393
    AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
  83. Alice Turnock , Kate Langley , Catherine RG Jones (2022). Understanding stigma in autism: a narrative review and theoretical model . Autism Adulthood, 4(1), 76. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2021.0005 OpenAlex: https://openalex.org/W4214570045
    Crossref OpenAlex OpenCitations
  85. Lisa R. Trainor , Andrea Bundon (2021). Developing the craft: reflexive accounts of doing reflexive thematic analysis . Qualitative Research in Sport, Exercise and Health, 13(5), 705-726. Informa UK Limited.
    Type: Article DOI: 10.1080/2159676x.2020.1840423 OpenAlex: https://openalex.org/W3095215786
    Crossref OpenAlex OpenCitations
  86. Melanie Muniandy , Amanda Richdale , Samuel R. C. Arnold , Julian Trollor , Lauren P Lawson (2022). Associations between coping strategies and mental health outcomes in autistic adults . Autism Research, 15(5), 929-944. Wiley.
    Type: Article DOI: 10.1002/aur.2694 OpenAlex: https://openalex.org/W4214638186
    Crossref OpenAlex OpenCitations
  88. So Yoon Kim (2024). Understanding Perspectives of Job Coaches of Supported Employment Programs Working with Adults with Autism . International Journal of Disability, Development and Education, 71(3), 484-501. Informa UK Limited.
    Type: Article DOI: 10.1080/1034912x.2022.2134557 OpenAlex: https://openalex.org/W4304203081
    Crossref OpenAlex OpenCitations
  89. Peter Mitchell , Elizabeth Sheppard , Sarah Cassidy (2021). Autism and the double empathy problem: Implications for development and mental health . British Journal of Developmental Psychology, 39(1), 1-18. Wiley.
    Type: Article DOI: 10.1111/bjdp.12350 OpenAlex: https://openalex.org/W3119501104
    Crossref OpenAlex OpenCitations
  91. Karen O'Reilly (2012). Ethnographic Methods . Routledge.
    Type: Livre DOI: 10.4324/9780203864722 OpenAlex: https://openalex.org/W4248032145
    Crossref OpenAlex OpenCitations
  92. Sergio A. Silverio , Kayleigh Sheen , Alessandra Bramante , Katherine Knighting , Thula U. Koops , Elsa Montgomery et al. (2022). Sensitive, Challenging, and Difficult Topics: Experiences and Practical Considerations for Qualitative Researchers . International Journal of Qualitative Methods, 21, 160940692211247. SAGE Publications.
    Type: Article DOI: 10.1177/16094069221124739 OpenAlex: https://openalex.org/W4294974629
    Crossref OpenAlex OpenCitations
  94. Clarke, V. , Braun, V. (2013). Successful qualitative research: A practical guide for beginners .
    Type: Livre OpenAlex: https://openalex.org/W7062190157
    OpenAlex