Faire l'experience de l'independance : perspectives d'adultes autistes

Titre original en anglais : Experiencing Independence: Perspectives from Autistic Adults

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Bhattacharya, P., Matthews, R., Field, R., Heath, H., Woodcock, K., & Surtees, A. (2025). Experiencing Independence: Perspectives from Autistic Adults. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-025-06812-0

Date de publication: 03/04/2025 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
6
Auteur·ices de la publication identifié·es comme autistes
1 / 6 (16,7 %)
  1. Piyali Bhattacharya
  2. Rose Matthews *
  3. Rae Field
  1. Hannah Heath
  2. Kate Woodcock
  3. Andrew Surtees

Résumé

Les criteres diagnostiques de l'autisme sont lies a des difficultes de fonctionnement dans de multiples domaines du developpement, qui ont souvent une incidence sur l'independance d'une personne. Il existe differentes manieres de conceptualiser et d'exercer l'independance, mais aucune etude anterieure n'a examine comment les adultes autistes le font. Cette etude qualitative visait a comprendre comment les adultes autistes definissent et vivent l'independance. Elle a ete concue pour approfondir notre comprehension de la maniere dont les adultes autistes rendent compte des strategies d'adaptation et les utilisent pour surmonter les obstacles a la vie autonome et parvenir au niveau d'independance souhaite. Douze entretiens semi-structures ont ete menes avec des adultes autistes vivant au Royaume-Uni. Les donnees ont ete analysees au moyen d'une analyse thematique reflexive. Les chercheurs ont degage trois themes majeurs. Le premier theme, « L'independance n'est pas une taille unique pour tous », souligne qu'il n'existe pas une seule definition ou conception de l'independance pour les personnes autistes ; celles-ci sont relatives et propres a chaque individu. Le deuxieme theme, « Etre autiste a ses revers » dans un monde neurotypique, decrit les obstacles rencontres par les adultes autistes qui recherchent l'independance au sein d'une societe qui privilegie les normes neurotypiques. Le troisieme theme, « Trouver des moyens pour que cela fonctionne », rend compte des strategies que les adultes autistes utilisent pour atteindre ou maintenir leur independance. Les resultats de cette etude fournissent une base pour de futures recherches explorant les domaines de l'independance chez les adultes autistes. La desirabilite percue d'atteindre differents degres d'in(ter)dependance et la nature fluctuante de l'autosuffisance sont explorees a travers l'experience vecue. Une meilleure comprehension des obstacles et des defis lies a l'independance pourrait donner davantage de pouvoir aux adultes autistes et ameliorer les services et le soutien.

Autism diagnostic criteria relate to difficulties in functioning across multiple developmental domains, that often impact on a person's independence. There are different ways to conceptualise and exercise independence, but no previous studies have questioned how autistic adults do so. This qualitative study aimed to understand how autistic adults define and experience independence. It was designed to further our understanding of how autistic adults account for and use coping strategies to overcome barriers to independent living and navigate their way to their desired level of independence. Twelve semi-structured interviews were conducted with autistic adults living in the United Kingdom. The data were analysed using reflexive thematic analysis. The researchers generated three major themes. The first theme 'Independence is "not a one-size-fits-all"' highlights that there is no one definition or concept of independence for autistic people; these are relative and uniquely individual. The second theme '"Being autistic has its setbacks" in a neurotypical world' describes the obstacles encountered by autistic adults seeking independence within a society that favours neurotypical norms. The third theme 'Finding ways of making it work' captures strategies autistic adults use in achieving or maintaining independence. The findings from this study provide a foundation for future research exploring domains of independence for autistic adults. The perceived desirability of achieving different degrees of in(ter)dependence and the fluctuating nature of self-sufficiency are explored through lived experience. Increasing understanding of barriers and challenges to independence has the potential to empower autistic adults and improve services and support.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 16:12.

Références citées
94
Avec un DOI
89
Sans DOI, à partir du texte brut de la bibliographie
4
26 / 94 (27,7 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
5 / 94 (5,3 %)
Références avec noms d’auteurices détectés
89 / 94 (94,7 %)
Sans nom d’auteurice détecté
5
Sans titre structuré
4
Sans identifiant stable
4
Références avec noms bruts d’auteurices restant à vérifier
5
Références avec problème de récupération des métadonnées externes
1
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
315
À partir du DOI ou de métadonnées externes
315
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
9
162 / 315 (51,4 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 153 / 315 (48,6 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
49 / 315 (15,6 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 49 / 162 (30,2 %). Personnes distinctes identifiées comme autistes : 36 / 280 (12,9 %).
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