Faire l'experience de l'independance : perspectives d'adultes autistes

Auteurs

Résumé

Les criteres diagnostiques de l'autisme sont lies a des difficultes de fonctionnement dans de multiples domaines du developpement, qui ont souvent une incidence sur l'independance d'une personne. Il existe differentes manieres de conceptualiser et d'exercer l'independance, mais aucune etude anterieure n'a examine comment les adultes autistes le font. Cette etude qualitative visait a comprendre comment les adultes autistes definissent et vivent l'independance. Elle a ete concue pour approfondir notre comprehension de la maniere dont les adultes autistes rendent compte des strategies d'adaptation et les utilisent pour surmonter les obstacles a la vie autonome et parvenir au niveau d'independance souhaite. Douze entretiens semi-structures ont ete menes avec des adultes autistes vivant au Royaume-Uni. Les donnees ont ete analysees au moyen d'une analyse thematique reflexive. Les chercheurs ont degage trois themes majeurs. Le premier theme, « L'independance n'est pas une taille unique pour tous », souligne qu'il n'existe pas une seule definition ou conception de l'independance pour les personnes autistes ; celles-ci sont relatives et propres a chaque individu. Le deuxieme theme, « Etre autiste a ses revers » dans un monde neurotypique, decrit les obstacles rencontres par les adultes autistes qui recherchent l'independance au sein d'une societe qui privilegie les normes neurotypiques. Le troisieme theme, « Trouver des moyens pour que cela fonctionne », rend compte des strategies que les adultes autistes utilisent pour atteindre ou maintenir leur independance. Les resultats de cette etude fournissent une base pour de futures recherches explorant les domaines de l'independance chez les adultes autistes. La desirabilite percue d'atteindre differents degres d'in(ter)dependance et la nature fluctuante de l'autosuffisance sont explorees a travers l'experience vecue. Une meilleure comprehension des obstacles et des defis lies a l'independance pourrait donner davantage de pouvoir aux adultes autistes et ameliorer les services et le soutien.

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