Bombardement sonore, hypersensibilité au bruit et éthique : une réponse à Fodstad et ses collègues : « Évaluation et traitement de l’hypersensibilité au bruit chez un adolescent atteint d’un trouble du spectre de l’autisme »

Titre original en anglais : Sonic bombardment, noise hypersensitivity and ethics: A response to Fodstad and colleagues: ‘Assessment and treatment of noise hypersensitivity in a teenager with autism Spectrum Disorder’

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Botha, M., Grant, A., Memmott, A., Milton, D., Pearson, A., Williams, G., & Woods, R. (2021). Sonic bombardment, noise hypersensitivity and ethics: A response to Fodstad and colleagues: ‘Assessment and treatment of noise hypersensitivity in a teenager with autism Spectrum Disorder’ [Preprint]. Center for Open Science. https://doi.org/10.31219/osf.io/9578b

Date de publication: 29/10/2021 Ajout dans AutiHub: 05/07/2026 Type: Prépublication Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
7
Auteur·ices de la publication identifié·es comme autistes
6 / 7 (85,7 %)
  1. Monique Botha *
  2. Aimee Grant *
  3. Ann Memmott
  4. Damian Milton *
  1. Amy Pearson *
  2. Gemma Williams *
  3. Richard Woods *

Résumé

Ce commentaire, proposé par un groupe de chercheurs Autistes, porte une réflexion sur une étude de cas expérimentant une « intervention de thérapie cognitivo-comportementale modifiée » afin de traiter l’« hypersensibilité au bruit » et les comportements associés d’un adolescent Autiste, « Aaron ». Nous relevons de graves lacunes dans la base de données probantes étayant la « thérapie » : notamment l’absence de prise en compte de la réactivité sensorielle Autiste divergente, l’objectif d’éliminer les comportements de « stimming » et la promotion du camouflage. Nous contestons l’absence de consentement éclairé rapporté comme ayant été donné soit par Aaron, soit par un représentant, ainsi que l’absence de toute approbation éthique rapportée pour cette étude de cas. Nous condamnons également fermement les méthodes de bombardement sonore infligées à Aaron sous le prétexte d’une « thérapie ». Nous concluons par trois questions concernant les processus ayant conduit à la publication de l’article original. Tous les auteurs sont co-premiers auteurs. L’essai a été publié par Participatory Autism Research Collective : https://participatoryautismresearch.wordpress.com/2021/10/27/sonic-bombardment-noise-hypersensitivity-and-ethics-a-response-to-fodstad-and-colleagues/

This commentary – provided by a group of Autistic researchers – reflects on a case study trialling a ‘modified Cognitive Behavioural Therapy intervention’ to address the ‘noise hypersensitivity’ and associated behaviours of an Autistic teenager, ‘Aaron’. We identify serious flaws in the evidence base behind the ‘therapy’: including failing to account for divergent Autistic sensory reactivity, aiming to remove ‘stimming’ behaviours and promoting masking. We challenge the lack of informed consent reported as given by either Aaron or a proxy and the absence of any reported ethical approval for this case study. We also strongly condemn the methods of sonic bombardment delivered upon Aaron under the guise of ‘therapy’. We conclude with three questions around the processes that led to the original article’s publication. All authors are joint first authors. The essay was published by Participatory Autism Research Collective: https://participatoryautismresearch.wordpress.com/2021/10/27/sonic-bombardment-noise-hypersensitivity-and-ethics-a-response-to-fodstad-and-colleagues/

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
79
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
19 / 79 (24,1 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
25 / 270 (9,3 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 25 / 119 (21,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 15 / 235 (6,4 %).
Occurrences citées rattachées à la base AutiHub
119 / 270 (44,1 %)
Auteurices cité·es distinct·es rattaché·es : 86 / 235 (36,6 %)
Occurrences rattachées, non identifiées comme autistes
94 / 119 (79,0 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 94 / 270 (34,8 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 71 / 86 (82,6 %).
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