Bombardement sonore, hypersensibilité au bruit et éthique : une réponse à Fodstad et ses collègues : « Évaluation et traitement de l’hypersensibilité au bruit chez un adolescent atteint d’un trouble du spectre de l’autisme »

Titre original en anglais : Sonic bombardment, noise hypersensitivity and ethics: A response to Fodstad and colleagues: ‘Assessment and treatment of noise hypersensitivity in a teenager with autism Spectrum Disorder’

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». sept auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

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Botha, M., Grant, A., Memmott, A., Milton, D., Pearson, A., Williams, G., & Woods, R. (2021). Sonic bombardment, noise hypersensitivity and ethics: A response to Fodstad and colleagues: ‘Assessment and treatment of noise hypersensitivity in a teenager with autism Spectrum Disorder’ [Preprint]. Center for Open Science. https://doi.org/10.31219/osf.io/9578b

Date de publication: 29/10/2021 Ajout dans AutiHub: 05/07/2026 Type: Prépublication Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
7
Auteur·ices de la publication identifié·es comme autistes
7 / 7 (100,0 %)
  1. Monique Botha *
  2. Aimee Grant *
  3. Ann Memmott *
  4. Damian Milton *
  1. Amy Pearson *
  2. Gemma Williams *
  3. Richard Woods *

Résumé

Ce commentaire, proposé par un groupe de chercheurs Autistes, porte une réflexion sur une étude de cas expérimentant une « intervention de thérapie cognitivo-comportementale modifiée » afin de traiter l’« hypersensibilité au bruit » et les comportements associés d’un adolescent Autiste, « Aaron ». Nous relevons de graves lacunes dans la base de données probantes étayant la « thérapie » : notamment l’absence de prise en compte de la réactivité sensorielle Autiste divergente, l’objectif d’éliminer les comportements de « stimming » et la promotion du camouflage. Nous contestons l’absence de consentement éclairé rapporté comme ayant été donné soit par Aaron, soit par un représentant, ainsi que l’absence de toute approbation éthique rapportée pour cette étude de cas. Nous condamnons également fermement les méthodes de bombardement sonore infligées à Aaron sous le prétexte d’une « thérapie ». Nous concluons par trois questions concernant les processus ayant conduit à la publication de l’article original. Tous les auteurs sont co-premiers auteurs. L’essai a été publié par Participatory Autism Research Collective : https://participatoryautismresearch.wordpress.com/2021/10/27/sonic-bombardment-noise-hypersensitivity-and-ethics-a-response-to-fodstad-and-colleagues/

This commentary – provided by a group of Autistic researchers – reflects on a case study trialling a ‘modified Cognitive Behavioural Therapy intervention’ to address the ‘noise hypersensitivity’ and associated behaviours of an Autistic teenager, ‘Aaron’. We identify serious flaws in the evidence base behind the ‘therapy’: including failing to account for divergent Autistic sensory reactivity, aiming to remove ‘stimming’ behaviours and promoting masking. We challenge the lack of informed consent reported as given by either Aaron or a proxy and the absence of any reported ethical approval for this case study. We also strongly condemn the methods of sonic bombardment delivered upon Aaron under the guise of ‘therapy’. We conclude with three questions around the processes that led to the original article’s publication. All authors are joint first authors. The essay was published by Participatory Autism Research Collective: https://participatoryautismresearch.wordpress.com/2021/10/27/sonic-bombardment-noise-hypersensitivity-and-ethics-a-response-to-fodstad-and-colleagues/

Bibliographie citée par cette référence

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Références citées
79
Avec un DOI
73
Sans DOI, à partir du texte brut de la bibliographie
0
22 / 79 (27,8 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
0 / 79 (0,0 %)
Références avec noms d’auteurices détectés
79 / 79 (100,0 %)
Sans nom d’auteurice détecté
0
Sans titre structuré
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Sans identifiant stable
0
Références avec noms bruts d’auteurices restant à vérifier
0
Références avec problème de récupération des métadonnées externes
0
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Noms d’auteurices détectés dans la bibliographie citée
271
À partir du DOI ou de métadonnées externes
271
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
0
134 / 271 (49,4 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 137 / 271 (50,6 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
36 / 271 (13,3 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 36 / 134 (26,9 %). Personnes distinctes identifiées comme autistes : 24 / 236 (10,2 %).
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