Sonic bombardment, noise hypersensitivity and ethics: A response to Fodstad and colleagues: ‘Assessment and treatment of noise hypersensitivity in a teenager with autism Spectrum Disorder’
Botha, M., Grant, A., Memmott, A., Milton, D., Pearson, A., Williams, G., & Woods, R. (2021). Sonic bombardment, noise hypersensitivity and ethics: A response to Fodstad and colleagues: ‘Assessment and treatment of noise hypersensitivity in a teenager with autism Spectrum Disorder’ [Preprint]. Center for Open Science. https://doi.org/10.31219/osf.io/9578b
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Abstract
This commentary – provided by a group of Autistic researchers – reflects on a case study trialling a ‘modified Cognitive Behavioural Therapy intervention’ to address the ‘noise hypersensitivity’ and associated behaviours of an Autistic teenager, ‘Aaron’. We identify serious flaws in the evidence base behind the ‘therapy’: including failing to account for divergent Autistic sensory reactivity, aiming to remove ‘stimming’ behaviours and promoting masking. We challenge the lack of informed consent reported as given by either Aaron or a proxy and the absence of any reported ethical approval for this case study. We also strongly condemn the methods of sonic bombardment delivered upon Aaron under the guise of ‘therapy’. We conclude with three questions around the processes that led to the original article’s publication. All authors are joint first authors. The essay was published by Participatory Autism Research Collective: https://participatoryautismresearch.wordpress.com/2021/10/27/sonic-bombardment-noise-hypersensitivity-and-ethics-a-response-to-fodstad-and-colleagues/
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