Chapitre 4. Un avenir construit ensemble : nouvelles orientations dans l’éthique de la recherche sur l’autisme

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1. Elizabeth Pellicano , Adam Dinsmore , Tony Charman (2013). A future made together: shaping autism research in the UK . IOE EPrints.

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2. Syed M. Ahmed , Ann-Gel S. Palermo (2010). Community Engagement in Research: Frameworks for Education and Peer Review . American Journal of Public Health, 100(8), 1380-1387. American Public Health Association.

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3. Gillian Baird , Emily Simonoff , Andrew Pickles , Susie Chandler , Tom Loucas , David Meldrum et al. (2006). Prevalence of disorders of the autism spectrum in a population cohort of children in South Thames: the Special Needs and Autism Project (SNAP) . The Lancet, 368(9531), 210-215. Elsevier BV.

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4. Victor Lotter (1966). Epidemiology of autistic conditions in young children . Social Psychiatry, 1(3), 124-135. Springer Science and Business Media LLC.

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5. Sherry R. Arnstein (1969). A Ladder Of Citizen Participation . Journal of the American Institute of Planners, 35(4), 216-224. Informa UK Limited.

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7. Barbara A. Israel , Edith A. Parker , Zachary Rowe , Alicia Salvatore , Meredith Minkler , Jesús López et al. (2005). Community-Based Participatory Research: Lessons Learned from the Centers for Children’s Environmental Health and Disease Prevention Research . Environmental Health Perspectives, 113(10), 1463-1471. American Chemical Society (ACS).

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8. Elizabeth Pellicano , Ari Ne'eman *Auteur·ice autiste. En savoir plus… , Marc Stears (2011). Engaging, not excluding: a response to Walsh et al. Nature Reviews Neuroscience, 12(12), 769-769. Springer Science and Business Media LLC.

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9. Traolach Brugha , Sally McManus , John Bankart , Fiona Scott , Susan Purdon , Jane Smith et al. (2011). Epidemiology of Autism Spectrum Disorders in Adults in the Community in England . Archives of General Psychiatry, 68(5), 459. American Medical Association (AMA).

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10. Craig J. Newschaffer , Laura Kresch Curran (2003). Autism: an emerging public health problem . Public Health Reports, 118(5), 393-399. SAGE Publications.

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11. Éric Fombonne (2009). Epidemiology of Pervasive Developmental Disorders . Pediatric Research, 65(6), 591-598. Springer Science and Business Media LLC.

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12. Scott O. Lilienfeld , Hal Arkowitz (2007). Is There Really an Autism Epidemic? Scientific American sp, 17(4), 58-61. Springer Science and Business Media LLC.

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13. Géraldine Dawson (2013). Dramatic Increase in Autism Prevalence Parallels Explosion of Research Into Its Biology and Causes . JAMA Psychiatry, 70(1), 9. American Medical Association (AMA).

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14. Christina Nicolaidis , Dora M Raymaker *Auteur·ice autiste. En savoir plus… , Katherine McDonald , Sebastian Dern , Elesia Ashkenazy *Auteur·ice autiste. En savoir plus… , W. Cody Boisclair *Auteur·ice autiste. En savoir plus… et al. (2011). Collaboration Strategies in Nontraditional Community-Based Participatory Research Partnerships: Lessons From an Academic–Community Partnership With Autistic Self-Advocates . Progress in Community Health Partnerships: Research, Education, and Action, 5(2), 143-150. Project MUSE.

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15. Anna Laura van der Laan , Marianne Boenink (2015). Beyond Bench and Bedside: Disentangling the Concept of Translational Research . Health Care Analysis, 23(1), 32-49. Springer Science and Business Media LLC.

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16. Patricia Howlin , Philippa Moss , Sarah Savage , Michael Rutter (2013). Social Outcomes in Mid- to Later Adulthood Among Individuals Diagnosed With Autism and Average Nonverbal IQ as Children . Journal of the American Academy of Child & Adolescent Psychiatry, 52(6), 572-581.e1. Elsevier BV.

    Type: Article DOI: 10.1016/j.jaac.2013.02.017 OpenAlex: https://openalex.org/W2005094520

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17. Morton Ann Gernsbacher , Michelle Dawson *Auteur·ice autiste. En savoir plus… , H. Hill Goldsmith (2005). Three Reasons Not to Believe in an Autism Epidemic . Current Directions in Psychological Science, 14(2), 55-58. SAGE Publications.

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18. Patricia Howlin , Susan Goode , Jane Hutton , Michael Rutter (2004). Adult outcome for children with autism . Journal of Child Psychology and Psychiatry, 45(2), 212-229. Wiley.

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19. Craig J. Newschaffer , Laura Kresch Curran (2003). Autism: an emerging public health problem . Public Health Reports, 118(5), 393-399. SAGE Publications.

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20. Nick Partridge , John Scadding (2004). The James Lind Alliance: patients and clinicians should jointly identify their priorities for clinical trials . The Lancet, 364(9449), 1923-1924. Elsevier BV.

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21. Thomas R. Insel , Susan A. Daniels (2011). Future Directions: Setting Priorities to Guide the Federal Research Effort . Dans Autism Spectrum Disorders (pp. 1361-1368). Oxford University Press.

    Type: Chapitre de livre DOI: 10.1093/med/9780195371826.003.0089 OpenAlex: https://openalex.org/W2479318535

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22. Jennifer Singh , Judy Illes , Laura Lazzeroni , Joachim Hallmayer (2009). Trends in US Autism Research Funding . Journal of Autism and Developmental Disorders, 39(5), 788-795. Springer Science and Business Media LLC.

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