Trente ans après Sinclair : une revue de portée des définitions et conceptualisations de la neurodiversité dans la recherche empirique

Titre original en anglais : Thirty Years on from Sinclair: A Scoping Review of Neurodiversity Definitions and Conceptualisations in Empirical Research

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McLennan, H., Aberdein, R., Saggers, B., & Gillett‐Swan, J. (2025). Thirty Years on from Sinclair: A Scoping Review of Neurodiversity Definitions and Conceptualisations in Empirical Research. Review Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s40489-025-00493-2

Date de publication: 30/01/2025 Ajout dans AutiHub: 04/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Helen McLennan
  2. Rachel Aberdein *
  3. Beth Saggers
  4. Jenna Gillett‐Swan

Résumé

Résumé Une revue de la recherche est utile pour contribuer au débat sur la conceptualisation de la neurodiversité. Ainsi, l'objectif de cette étude était d'identifier comment la neurodiversité a été définie et conceptualisée dans la recherche empirique. Une revue de portée de recherches présentant la neurodiversité comme axe central a été menée, en consultant 10 bases de données. Les concepts clés liés à la neurodiversité ont été rassemblés à partir de 46 articles, et une analyse comparative constante a été utilisée pour produire les résultats. Les résultats situent la neurodiversité comme une variation humaine naturelle, ainsi que dans sept autres catégories. Ces résultats ont été comparés à des travaux théoriques et aux premiers principes de la neurodiversité, en particulier ceux introduits par Jim Sinclair il y a 30 ans. Bien qu'un certain consensus existe dans le domaine, des contrastes et des débats subsistent, notamment concernant l'alignement de la neurodiversité sur les modèles du handicap.

Abstract A review of research is beneficial in contributing to the debate about neurodiversity conceptualisation. Thus, the aim of this study was to identify how neurodiversity has been defined and conceptualised in empirical research. A scoping review of research featuring neurodiversity as a central focus was conducted, accessing 10 databases. Key concepts related to neurodiversity were collated from 46 articles, and a constant comparative analysis was used to generate results. Results position neurodiversity as natural human variation alongside a further seven categories. These results were compared to theoretical work and early principles of neurodiversity, particularly those introduced by Jim Sinclair 30 years ago. While some consensus in the field exists, contrasts and debate remain, particularly regarding the alignment of neurodiversity with disability models.

Bibliographie citée par cette référence

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Références citées
127
Avec un DOI
108
Sans DOI, à partir du texte brut de la bibliographie
17
34 / 127 (26,8 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
11 / 127 (8,7 %)
Références avec noms d’auteurices détectés
122 / 127 (96,1 %)
Sans nom d’auteurice détecté
5
Sans titre structuré
10
Sans identifiant stable
15
Références avec noms bruts d’auteurices restant à vérifier
4
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
313
À partir du DOI ou de métadonnées externes
312
À partir du texte brut validé de la bibliographie
1
Noms bruts déjà validés
1
Noms bruts restant à vérifier
8
144 / 313 (46,0 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 169 / 313 (54,0 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
54 / 313 (17,3 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 54 / 144 (37,5 %). Personnes distinctes identifiées comme autistes : 36 / 276 (13,0 %).
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