Meaningful research for autistic people? Ask autistics!

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Poulsen, R., Brownlow, C., Lawson, W., & Pellicano, E. (2022). Meaningful research for autistic people? Ask autistics! Autism, 26(1), 3-5. https://doi.org/10.1177/13623613211064421

Publication date: 1 Jan 2022 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
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Authors

Publication authors
4
Publication authors identified as autistic
2 / 4 (50.0%)
  1. Rebecca Poulsen *
  2. Charlotte Brownlow
  3. Wenn Lawson *
  4. Elizabeth Pellicano

Abstract

No structured abstract stored for this reference.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.

Cited references
26
Total cited references integrated for this publication.
Cited references with an identified autistic author
13 / 26 (50.0%)
Cited author occurrences identified as autistic
30 / 126 (23.8%)
Among occurrences linked to AutiHub author records: 30 / 114 (26.3%). Distinct cited authors identified as autistic: 24 / 111 (21.6%).
Cited author occurrences linked to AutiHub author records
114 / 126 (90.5%)
Distinct linked cited authors: 99 / 111 (89.2%)
Linked cited-author occurrences not identified as autistic
84 / 114 (73.7%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 84 / 126 (66.7%). Distinct linked cited authors not identified as autistic: 75 / 99 (75.8%).
  1. Jo Brett , Sophie Staniszewska , Carole Mockford , Sandra Herron‐Marx , John Hughes , Colin Tysall et al. (2014). Mapping the impact of patient and public involvement on health and social care research: a systematic review . Health Expectations, 17(5), 637-650. Wiley.
    Type: Article DOI: 10.1111/j.1369-7625.2012.00795.x OpenAlex: https://openalex.org/W2049504028
    Crossref OpenAlex OpenCitations
  2. Dawn Adams , H. Heussler , Kylie M. Gray (2018). Behavioural phenotypes: working towards translational research through research partnerships . Journal of Intellectual Disability Research, 62(8), 661-663. Wiley.
    Type: Article DOI: 10.1111/jir.12513 OpenAlex: https://openalex.org/W2883959754
    Crossref OpenAlex OpenCitations
  4. Australian Autism Research Council. (2021a). Research report on focus groups to identify research questions for community informed priority areas: Final report. https://www.autismcrc.com.au/sites/default/files/aarc/AARC_Research_Report_Focus_Groups_Final_Report.pdf
    Type: Other
    Crossref
  7. Australian Autism Research Council. (2021b). 2020–21 research priority update. https://www.autismcrc.com.au/sites/default/files/aarc/AARC_2020-21_Research_Priority_Update.pdf
    Type: Other
    Crossref
  13. M. Ariel Cascio , Jonathan A. Weiss , Éric Racine , and the Autism Research Ethics Task Force (2020). Person-oriented ethics for autism research: Creating best practices through engagement with autism and autistic communities . Autism, 24(7), 1676-1690. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320918763 OpenAlex: https://openalex.org/W3036990083
    Crossref OpenAlex OpenCitations
  14. Paul Shattuck , Lynette Lau , Kristy A. Anderson , Alice A. Kuo (2018). A National Research Agenda for the Transition of Youth With Autism . Pediatrics, 141(Supplement_4), S355-S361. American Academy of Pediatrics (AAP).
    Type: Article DOI: 10.1542/peds.2016-4300m OpenAlex: https://openalex.org/W2796322305
    Crossref OpenAlex OpenCitations
  15. Cusack J. (2016). Your Questions: Shaping Future Autism Research . Your questions: Shaping future autism research.
    Type: Other
    Crossref
  17. Thomas Frazier , Géraldine Dawson , Donna S. Murray , Andy Shih , Jessica Snyder Sachs , Angela Geiger (2018). Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders . Journal of Autism and Developmental Disorders, 48(11), 3965-3971. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-018-3642-6 OpenAlex: https://openalex.org/W2807852720
    AutiHub · Documentation center Crossref OpenAlex OpenCitations
  21. Kristen Gillespie-Lynch , Jennifer B Bisson , Sabine Saade , Rita Obeid , Bella Kofner , Ashley Johnson Harrison et al. (2022). If you want to develop an effective autism training, ask autistic students to help you . Autism, 26(5), 1082-1094. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211041006 OpenAlex: https://openalex.org/W3198012637
    Crossref OpenAlex OpenCitations
  25. Damian Milton * , Michael Bracher (2013). Autistics speak but are they heard . Medical Sociology, 7(2), 61.
    Type: Article OpenAlex: https://openalex.org/W2337764906
    Crossref
  26. Milton D. E. M. (2019). Beyond tokenism: Autistic people in autism research . The Psychologist.
    Type: Other
    Crossref