Meaningful research for autistic people? Ask autistics!

This publication is included in the Autistic Autism Scholarship Project. two authors of this publication are identified as autistic in the project.

About the autistic author marker

Metadata sources used for this reference

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Poulsen, R. E., Brownlow, C., Lawson, W., & Pellicano, E. (2022). Meaningful research for autistic people? Ask autistics! Autism, 26(1), 3-5. https://doi.org/10.1177/13623613211064421

Publication date: 1 Jan 2022 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
4
Publication authors identified as autistic
2 / 4 (50.0%)
  1. Rebecca E. Poulsen *
  2. Charlotte Brownlow
  3. Wenn Lawson *
  4. Elizabeth Pellicano

Abstract

No structured abstract stored for this reference.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 07:50.

Cited references
26
With a DOI
21
Without a DOI, from raw bibliography text
5
14 / 26 (53.8%) cited references include at least one author identified as autistic.
References with data to complete
2 / 26 (7.7%)
References with detected author names
24 / 26 (92.3%)
Without detected author names
2
Without a structured title
2
Without a stable identifier
4
References with raw author names still to review
2
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
126
From DOI or external metadata
126
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
2
120 / 126 (95.2%) names are linked to an author already present in AutiHub. 6 / 126 (4.8%) names are not yet linked.
Names linked to a person identified as autistic
49 / 126 (38.9%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 49 / 120 (40.8%). Distinct people identified as autistic: 42 / 111 (37.8%).
  1. Jo Brett , Sophie Staniszewska , Carole Mockford , Sandra Herron‐Marx , John Hughes , Colin Tysall et al. (2014). Mapping the impact of patient and public involvement on health and social care research: a systematic review . Health Expectations, 17(5), 637-650. Wiley.
    Type: Article DOI: 10.1111/j.1369-7625.2012.00795.x OpenAlex: https://openalex.org/W2049504028
    Crossref OpenAlex OpenCitations
  2. Dawn Adams , H. Heussler , Kylie M. Gray (2018). Behavioural phenotypes: working towards translational research through research partnerships . Journal of Intellectual Disability Research, 62(8), 661-663. Wiley.
    Type: Article DOI: 10.1111/jir.12513 OpenAlex: https://openalex.org/W2883959754
    Crossref OpenAlex OpenCitations
  4. Australian Autism Research Council. (2021a). Research report on focus groups to identify research questions for community informed priority areas: Final report. https://www.autismcrc.com.au/sites/default/files/aarc/AARC_Research_Report_Focus_Groups_Final_Report.pdf
    Type: Other
    Crossref
  7. Australian Autism Research Council. (2021b). 2020–21 research priority update. https://www.autismcrc.com.au/sites/default/files/aarc/AARC_2020-21_Research_Priority_Update.pdf
    Type: Other
    Crossref
  13. M. Ariel Cascio , Jonathan Weiss , Éric Racine , and the Autism Research Ethics Task Force (2020). Person-oriented ethics for autism research: Creating best practices through engagement with autism and autistic communities . Autism, 24(7), 1676-1690. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320918763 OpenAlex: https://openalex.org/W3036990083
    Crossref OpenAlex OpenCitations
  14. Paul Shattuck , Lynette Lau , Kristy A. Anderson , Alice A. Kuo (2018). A National Research Agenda for the Transition of Youth With Autism . Pediatrics, 141(Supplement_4), S355-S361. American Academy of Pediatrics (AAP).
    Type: Article DOI: 10.1542/peds.2016-4300m OpenAlex: https://openalex.org/W2796322305
    Crossref OpenAlex OpenCitations
  15. Cusack J (2016). Your Questions: Shaping Future Autism Research . Your Questions: Shaping Future Autism Research.
    Type: Other
    Crossref
  17. Thomas W Frazier , Géraldine Dawson , Donna S. Murray , Andy J. Shih , Jessica Snyder Sachs , Angela Geiger (2018). Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders . Journal of Autism and Developmental Disorders, 48(11), 3965-3971. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-018-3642-6 OpenAlex: https://openalex.org/W2807852720
    AutiHub · Documentation center Crossref OpenAlex OpenCitations
  25. Damian Milton * , Michael Bracher (2013). Autistics speak but are they heard? Med Sociol online, 7(2), 61.
    Type: Article OpenAlex: https://openalex.org/W2337764906
    Crossref
  26. Milton D. E. M. (2019). Beyond tokenism: Autistic people in autism research . The Psychologist.
    Type: Other
    Crossref