Dora M. Raymaker
This author is included in the Autistic Autism Scholarship Project as a person identified as autistic.
Learn more about how autistic status is determinedPublication overview
Autistic Autism Scholarship Project publications
Collaborations and cited bibliographies
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Publication types
44 publications
Hannah Merrick, Helen Taylor, Barry Ingham, Tracy Finch, Ruby Herrington, Sarah Al-Ashmori, Carole Buckley, Sally-Ann Cooper, Cristina Fernandez-Garcia, Shona Haining, Rhianna Lees, Nicholas Lennox, Sebastian Moss, Tim Nicholls, Christina Nicolaidis, Malcolm Osborne, Dora M. Raymaker*Autistic author. Learn more… , Tomos Robinson, Clare Scarlett, Anna Urbanowicz, James M.S. Wason, Colin Wilson, Jeremy R. Parr (2026). Primary Care Health Checks for Autistic Adults: A Qualitative Study of Autistic Adults’, Carers/Supporters’, and Primary Care Staff’s Perspectives. Autism in Adulthood.
Christina Nicolaidis, Ian Moura*Autistic author. Learn more… , Mary Baker-Ericzén, Mirah Scharer, Joelle Maslak*Autistic author. Learn more… , Rachel Kripke-Ludwig*Autistic author. Learn more… , Willi Horner-Johnson, Julia Love, Dora M. Raymaker*Autistic author. Learn more… , Andrea Joyce*Autistic author. Learn more… , Shannon des Roches Rosa, Grace A. Herbert, Julie Lounds Taylor, Liu-Qin Yang, Katherine McDonald, Zack Siddeek*Autistic author. Learn more… , Steven K. Kapp*Autistic author. Learn more… , Emanuel Frowner*Autistic author. Learn more… , Ivanova Smith*Autistic author. Learn more… , Anna Furra Wallington*Autistic author. Learn more… , K. J. Flores, Noah Kaufman, Clarissa Kripke, Joseph Vera, Vivian D. Grillo, Finn Gardiner*Autistic author. Learn more… (2026). Addressing Common Problems in Autism Research: Cohort Development and Sample Description for a Participatory, Real-World, Longitudinal Study of Outcomes in Autistic Adults. Autism, 30(10), 2628-2647.
Preprint versions associated with this published version
Christina Nicolaidis, Liu-Qin Yang, Mathew Uretsky, Dora M. Raymaker*Autistic author. Learn more… , Mary Baker-Ericzén, Vivian D. Grillo, Steven K. Kapp*Autistic author. Learn more… , Rachel Kripke-Ludwig*Autistic author. Learn more… , Joelle Maslak*Autistic author. Learn more… , Ian Moura*Autistic author. Learn more… , Mirah Scharer, Anna Furra Wallington*Autistic author. Learn more… (2026). Psychometric Properties of the AASPIRE Autistic Burnout Measure - Revised (AABM-R). medRxiv.
Dora M. Raymaker*Autistic author. Learn more… , Shawna Spain, Nybelle Caruso, Joelle Maslak*Autistic author. Learn more… , Nicole Leblanc, Morénike Giwa Onaiwu*Autistic author. Learn more… , Jonathan Spector, Passion Ilea, Julia Crown, Kristin Akervall, Wayne Wakeland (2026). “We love our jobs!” Systems Thinking and Participatory Action Research for the future of neurodiversity and skilled employment. Center for Open Science.
M. Brown, Hunter S. Cheng, Phillip H. Smith, Dora M. Raymaker*Autistic author. Learn more… , John F. Strang, Ashley de Marchena (2026). Gender Differences in Nonverbal Communication Barriers Across Everyday Contexts. Autism in Adulthood.
Dora M. Raymaker*Autistic author. Learn more… , Shawna Spain, Nybelle Caruso, Joelle Maslak*Autistic author. Learn more… , Nicole Leblanc, Morénike Giwa Onaiwu*Autistic author. Learn more… , Jonathan Spector, Passion Ilea, Julia Crown, Kristin Akervall, Wayne Wakeland (2026). “We love our jobs!” Systems Thinking and Participatory Action Research for the future of neurodiversity and skilled employment. Center for Open Science.
Hannah Merrick, Helen Taylor, Barry Ingham, Tracy Finch, Sarah Al-Ashmori, Ruby Herrington, Clare Scarlett, Carole Buckley, Sally-Ann Cooper, Cristina Fernandez-Garcia, Shona Haining, Rhianna Lees, Nicholas Lennox, Sebastian Moss, Tim Nicholls, Christina Nicolaidis, Malcolm Osborne, Dora M. Raymaker*Autistic author. Learn more… , Tomos Robinson, Anna Urbanowicz, James M.S. Wason, Colin Wilson, Jeremy R. Parr (2026). Acceptability and Implementation of a Primary Care Health Check for Autistic People: Findings From Evaluation Questionnaires and Interviews. Autism, 13623613261433106-13623613261433106.
So Yoon Kim, Kristen Gillespie-Lynch, Steven K. Kapp*Autistic author. Learn more… , Liu-Qin Yang, Anna Furra Wallington*Autistic author. Learn more… , Dora M. Raymaker*Autistic author. Learn more… , Ian Moura*Autistic author. Learn more… , Katherine McDonald, Joelle Maslak*Autistic author. Learn more… , Rachel Kripke-Ludwig*Autistic author. Learn more… , Andrea Joyce*Autistic author. Learn more… , Willi Horner-Johnson, Emanuel Frowner*Autistic author. Learn more… , Mary Baker-Ericzén, Christina Nicolaidis (2026). Self- and Caregiver-Reported Choice-Making in Autistic Adults: Development and Validation of the AASPIRE–Choices and Decisions Scale. medRxiv.
Judith Peth, Nicole David, Sophia Dückert, Petia Gewohn, Daniel Schöttle, Pascal Rahlff, Alexander Konnopka, Hannah König, Kai Vogeley, Christina Nicolaidis, Dora M. Raymaker*Autistic author. Learn more… , H Schulz (2026). Psychometric Analysis of the German Version of the Barriers to Healthcare Checklist—Short Form. Autism in Adulthood.
Dora M. Raymaker*Autistic author. Learn more… , Joelle Maslak*Autistic author. Learn more… , Nicole A. Steckler, Ian Moura*Autistic author. Learn more… , Alan R. Teo, Morrigan Hunter*Autistic author. Learn more… , Liu-Qin Yang, Steven K. Kapp*Autistic author. Learn more… , Mirah Scharer, Christina Nicolaidis (2026). The AASPIRE Autistic Burnout Scale: Creation, pilot testing, and psychometric properties of a new measure of autistic burnout. Center for Open Science.
Christina Nicolaidis, Dora M. Raymaker*Autistic author. Learn more… , Mary Baker-Ericzén, Shannon des Roches Rosa, Todd Edwards, Emanuel Frowner*Autistic author. Learn more… , Willi Horner-Johnson, Andrea Joyce*Autistic author. Learn more… , Steven K. Kapp*Autistic author. Learn more… , Clarissa Kripke, Julie Lounds Taylor, Julia Love, Rachel Kripke-Ludwig*Autistic author. Learn more… , Joelle Maslak*Autistic author. Learn more… , Katherine McDonald, Ian Moura*Autistic author. Learn more… , Mirah Scharer, Zack Siddeek*Autistic author. Learn more… , Ivanova Smith*Autistic author. Learn more… , Joseph Vera, Anna Furra Wallington*Autistic author. Learn more… , Liu-Qin Yang, K. J. Flores, N Chaiyachakorn (2026). Measuring High-Priority Outcomes in Autistic Adults: Initial psychometric assessment of the instruments in the AASPIRE Measurement Toolkit. medRxiv.
Aimee Grant*Autistic author. Learn more… , Harriet Axbey*Autistic author. Learn more… , Ami Nisa, Krysia Emily Waldock*Autistic author. Learn more… , Katherine McDonald, Kelly B. Beck, Maya Sabatello, Ian Moura*Autistic author. Learn more… , Anne V. Kirby, Elizabeth Rutenberg, Kaitlyn Breitenfeldt, Kathryn Williams*Autistic author. Learn more… , Monique Craine*Autistic author. Learn more… , Abigail Wilkins, Selena Caemawr*Autistic author. Learn more… , Willow Holloway*Autistic author. Learn more… , Madeleine Sinfield, Kay Ribbons, Dora M. Raymaker*Autistic author. Learn more… , Rachel Kripke-Ludwig*Autistic author. Learn more… , Mary Baker-Ericzén, Joseph Vera, Christina Nicolaidis, Rebecca Ellis*Autistic author. Learn more… (2026). Recommendations for data sharing in populations at higher risk of discrimination: the case of Autism research. Open Science Framework.
Christina Nicolaidis, Mirah Scharer, Dora M. Raymaker*Autistic author. Learn more… , Joseph Vera, Todd Edwards, Ian Moura*Autistic author. Learn more… , Mary Baker-Ericzén, Joelle Maslak*Autistic author. Learn more… , Liu-Qin Yang, Rachel Kripke-Ludwig*Autistic author. Learn more… , Steven K. Kapp*Autistic author. Learn more… , Andrea Joyce*Autistic author. Learn more… , Anna Furra Wallington*Autistic author. Learn more… , AASPIRE (2025). Consensus on high-priority outcomes to be used in the evaluation of services for autistic adults: Results from a “CBPR-Nested Delphi Process”. Autism, 29(8), 1959-1972.
Preprint version associated with this published version
Jeremy R. Parr, Helen Taylor, Colin Wilson, Clare Scarlett, Sarah Al-Ashmori, Carole Buckley, Sally-Ann Cooper, Cristina Fernandez-Garcia, Tracy Finch, Rhianna Lees, Nicholas Lennox, Hannah Merrick, Sebastian Moss, Christina Nicolaidis, Malcolm Osborne, Dora M. Raymaker*Autistic author. Learn more… , Tomos Robinson, Anna Urbanowicz, James M.S. Wason, Barry Ingham (2024). Health checks for autistic adults: study protocol for a cluster randomised controlled trial. Trials, 25(1), 858-858.
Dora M. Raymaker*Autistic author. Learn more… (2024). Disrupting Oppression: Critical Systems Thinking and Ethics in Autism Research. In The International Library of Bioethics (pp. 137-149). Springer International Publishing.
Dora M. Raymaker*Autistic author. Learn more… , Christina Nicolaidis (2024). Neurodivergent Futures. In The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies (pp. 423-435). Springer Nature Switzerland.
Desiree R Jones, Christina Nicolaidis, TC Waisman*Autistic author. Learn more… , Alana J. McVey, Dora M. Raymaker*Autistic author. Learn more… , Brenna Maddox (2023). Mindshift in autism: a call to professionals in research, clinical, and educational settings. UNC Libraries.
Alana J. McVey, Desiree R Jones, TC Waisman*Autistic author. Learn more… , Dora M. Raymaker*Autistic author. Learn more… , Christina Nicolaidis, Brenna Maddox (2023). Mindshift in autism: a call to professionals in research, clinical, and educational settings. Frontiers in Psychiatry, 14, 1251058-1251058.
Helen Taylor, Barry Ingham, David Mason*Autistic author. Learn more… , Tracy Finch, Colin Wilson, Clare Scarlett, Sebastian Moss, Carole Buckley, Anna Urbanowicz, Dora M. Raymaker*Autistic author. Learn more… , Charlotte Seiboth, Rhianna Lees, Deborah Garland, Malcolm Osborne, Nicholas Lennox, Sally-Ann Cooper, Christina Nicolaidis, Jeremy R. Parr (2022). Co-design of an NHS primary care health check for autistic adults. Autism, 27(4), 1079-1091.
Allison B. Ratto, Julia Bascom*Autistic author. Learn more… , Sharon daVanport*Autistic author. Learn more… , John F. Strang, Laura G. Anthony, Alyssa Verbalis, Cara E. Pugliese, Nicole Nadwodny, Ly Xīnzhèn M. Zhǎngsūn Brown*Autistic author. Learn more… , Mallory Cruz*Autistic author. Learn more… , Becca Lory Hector*Autistic author. Learn more… , Steven K. Kapp*Autistic author. Learn more… , Morénike Giwa Onaiwu*Autistic author. Learn more… , Dora M. Raymaker*Autistic author. Learn more… , John Elder Robison*Autistic author. Learn more… , Catriona Stewart*Autistic author. Learn more… , Ren Stone*Autistic author. Learn more… , Emma Whetsell*Autistic author. Learn more… , Kevin A. Pelphrey, Lauren Kenworthy (2022). Centering the Inner Experience of Autism: Development of the Self-Assessment of Autistic Traits. Autism in Adulthood, 5(1), 93-105.
David Mason*Autistic author. Learn more… , Helen Taylor, Barry Ingham, Tracy Finch, Colin Wilson, Clare Scarlett, Anna Urbanowicz, Christina Nicolaidis, Nicholas Lennox, Sebastian Moss, Carole Buckley, Sally-Ann Cooper, Malcolm Osborne, Deborah Garland, Dora M. Raymaker*Autistic author. Learn more… , Jeremy R. Parr (2022). Views about primary care health checks for autistic adults: UK survey findings. BJGP Open, 6(4), BJGPO.2022.0067.
Dora M. Raymaker*Autistic author. Learn more… , Mirah Sharer, Joelle Maslak*Autistic author. Learn more… , Laurie E. Powers, Katherine McDonald, Steven K. Kapp*Autistic author. Learn more… , Ian Moura*Autistic author. Learn more… , Anna Furra Wallington*Autistic author. Learn more… , Christina Nicolaidis (2022). “[I] don’t wanna just be like a cog in the machine”: Narratives of autism and skilled employment. Autism, 27(1), 65-75.
Patrick Dwyer*Autistic author. Learn more… , Sara M. Acevedo*Autistic author. Learn more… , Heather M. Brown*Autistic author. Learn more… , Jordan Grapel*Autistic author. Learn more… , Sandra C. Jones*Autistic author. Learn more… , Brett Ranon Nachman*Autistic author. Learn more… , Dora M. Raymaker*Autistic author. Learn more… , Zachary J. Williams*Autistic author. Learn more… (2021). An Expert Roundtable Discussion on Experiences of Autistic Autism Researchers. Autism in Adulthood, 3(3), 209-220.
Christina Nicolaidis, Kelly Y. Zhen, Junghee Lee, Dora M. Raymaker*Autistic author. Learn more… , Steven K. Kapp*Autistic author. Learn more… , Lisa A. Croen, Anna Urbanowicz, Joelle Maslak*Autistic author. Learn more… , Mirah Scharer (2020). Psychometric testing of a set of patient-reported instruments to assess healthcare interventions for autistic adults. Autism, 25(3), 786-799.
Christina Nicolaidis, Gavin Schnider, Junghee Lee, Dora M. Raymaker*Autistic author. Learn more… , Steven K. Kapp*Autistic author. Learn more… , Lisa A. Croen, Anna Urbanowicz, Joelle Maslak*Autistic author. Learn more… (2020). Development and psychometric testing of the AASPIRE Adult Autism Healthcare Provider Self-Efficacy Scale. Autism, 25(3), 767-773.
Dora M. Raymaker*Autistic author. Learn more… , Alan R. Teo, Nicole A. Steckler, Brandy Lentz, Mirah Scharer, Austin Delos Santos, Steven K. Kapp*Autistic author. Learn more… , Morrigan Hunter*Autistic author. Learn more… , Andrea Joyce*Autistic author. Learn more… , Christina Nicolaidis (2020). “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew”: Defining Autistic Burnout. Autism in Adulthood, 2(2), 132-143.
Christina Nicolaidis, Dora M. Raymaker*Autistic author. Learn more… , Katherine McDonald, Emily M. Lund, Sandra M. Leotti, Steven K. Kapp*Autistic author. Learn more… , Marsha Katz, Leanne Beers, Clarissa Kripke, Joelle Maslak*Autistic author. Learn more… , Morrigan Hunter*Autistic author. Learn more… , Kelly Y. Zhen (2020). Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations. Autism in Adulthood, 2(1), 61-76.
Dora M. Raymaker*Autistic author. Learn more… (2019). Shifting the System: AASPIRE and the Loom of Science and Activism. In Autistic Community and the Neurodiversity Movement (pp. 133-145). Springer Singapore.
David Nicholas, Darren Hedley, Jena K. Randolph, Dora M. Raymaker*Autistic author. Learn more… , Scott Robertson*Autistic author. Learn more… , Jonathan Vincent (2019). An Expert Discussion on Employment in Autism. Autism in Adulthood, 1(3), 162-169.
Dora M. Raymaker*Autistic author. Learn more… (2019). Reclaiming Research for the Autistic Adult Community. Autism in Adulthood, 1(3), 160-161.
Christina Nicolaidis, Dora M. Raymaker*Autistic author. Learn more… , Steven K. Kapp*Autistic author. Learn more… , Mel Baggs*Autistic author. Learn more… , Elesia Ashkenazy*Autistic author. Learn more… , Katherine McDonald, Michael Weiner, Joelle Maslak*Autistic author. Learn more… , Morrigan Hunter*Autistic author. Learn more… , Andrea Joyce*Autistic author. Learn more… (2019). The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants. Autism, 23(8), 2007-2019.
Dora M. Raymaker*Autistic author. Learn more… , Steven K. Kapp*Autistic author. Learn more… , Katherine McDonald, Michael Weiner, Elesia Ashkenazy*Autistic author. Learn more… , Christina Nicolaidis (2019). Development of the AASPIRE Web Accessibility Guidelines for Autistic Web Users. Autism in Adulthood, 1(2), 146-157.
Dora M. Raymaker*Autistic author. Learn more… , Katherine McDonald, Elesia Ashkenazy*Autistic author. Learn more… , Martha Gerrity, Mel Baggs*Autistic author. Learn more… , Clarissa Kripke, Sarah Hourston, Christina Nicolaidis (2016). Barriers to healthcare: Instrument development and comparison between autistic adults and adults with and without other disabilities. Autism, 21(8), 972-984.
Christina Nicolaidis, Dora M. Raymaker*Autistic author. Learn more… , Katherine McDonald, Steven K. Kapp*Autistic author. Learn more… , Michael Weiner, Elesia Ashkenazy*Autistic author. Learn more… , Martha Gerrity, Clarissa Kripke, Laura Platt, Mel Baggs*Autistic author. Learn more… (2016). The Development and Evaluation of an Online Healthcare Toolkit for Autistic Adults and their Primary Care Providers. Journal of General Internal Medicine, 31(10), 1180-1189.
Dora M. Raymaker*Autistic author. Learn more… (2016). Intersections of Critical Systems Thinking and Community Based Participatory Research: A Learning Organization Example with the Autistic Community. Systemic Practice and Action Research, 29(5), 405-423.
Dora M. Raymaker*Autistic author. Learn more… (2016). Reflections of a community-based participatory researcher from the intersection of disability advocacy, engineering, and the academy. Action Research, 15(3), 258-275.
Christina Nicolaidis, Dora M. Raymaker*Autistic author. Learn more… , Marsha Katz, Mary Oschwald, Rebecca Goe, Sandra M. Leotti, Leah Grantham, Eddie Plourde, Janice Salomon, Rosemary B. Hughes, Laurie E. Powers (2015). Community-Based Participatory Research to Adapt Health Measures for Use by People With Developmental Disabilities. Progress in Community Health Partnerships: Research, Education, and Action, 9(2), 141-143.
Christina Nicolaidis, Dora M. Raymaker*Autistic author. Learn more… , Elesia Ashkenazy*Autistic author. Learn more… , Katherine McDonald, Sebastian Dern*Autistic author. Learn more… , Mel Baggs*Autistic author. Learn more… , Steven K. Kapp*Autistic author. Learn more… , Michael Weiner, W. Cody Boisclair*Autistic author. Learn more… (2015). “Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum. Autism, 19(7), 824-831.
Christina Nicolaidis, Clarissa Kripke, Dora M. Raymaker*Autistic author. Learn more… (2014). Primary Care for Adults on the Autism Spectrum. Medical Clinics of North America, 98(5), 1169-1191.
Christina Nicolaidis, Dora M. Raymaker*Autistic author. Learn more… (2013). Healthcare Experiences of Autistic Adults. Journal of General Internal Medicine, 28(7), 871-871.
Christina Nicolaidis, Dora M. Raymaker*Autistic author. Learn more… , Katherine McDonald, Sebastian Dern*Autistic author. Learn more… , W. Cody Boisclair*Autistic author. Learn more… , Elesia Ashkenazy*Autistic author. Learn more… , Mel Baggs*Autistic author. Learn more… (2012). Comparison of Healthcare Experiences in Autistic and Non-Autistic Adults: A Cross-Sectional Online Survey Facilitated by an Academic-Community Partnership. Journal of General Internal Medicine, 28(6), 761-769.
Christina Nicolaidis, Dora M. Raymaker*Autistic author. Learn more… , Katherine McDonald, Sebastian Dern*Autistic author. Learn more… , Elesia Ashkenazy*Autistic author. Learn more… , W. Cody Boisclair*Autistic author. Learn more… , Scott Robertson*Autistic author. Learn more… , Mel Baggs*Autistic author. Learn more… (2011). Collaboration Strategies in Nontraditional Community-Based Participatory Research Partnerships: Lessons From an Academic–Community Partnership With Autistic Self-Advocates. Progress in Community Health Partnerships: Research, Education, and Action, 5(2), 143-150.
Dora M. Raymaker*Autistic author. Learn more… , Christina Nicolaidis (2010). Participatory Research With Autistic Communities. In Worlds of Autism (pp. 169-188). University of Minnesota Press.
Dora M. Raymaker*Autistic author. Learn more… (2000). Intersections of Critical Systems Thinking and Community Based Participatory Research in Developing a Web Site for Autistic Adults. Portland State University.