What Is Autistic Burnout? A Thematic Analysis of Posts on Two Online Platforms

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Mantzalas, J., Richdale, A., Adikari, A., Lowe, J., & Dissanayake, C. (2021). What Is Autistic Burnout? A Thematic Analysis of Posts on Two Online Platforms. Autism in Adulthood, 4(1), 52-65. https://doi.org/10.1089/aut.2021.0021

Publication date: 21 Sep 2021 Added to AutiHub: 30 Aug 2026 Type: Article Article language: English
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Authors

Publication authors
5
Publication authors identified as autistic
1 / 5 (20.0%)
  1. Jane Mantzalas
  2. Amanda Richdale
  3. Achini Adikari
  4. Jennifer Lowe *
  5. Cheryl Dissanayake

Abstract

Background: Compared with adults in the general population, autistic adults are more likely to experience poor mental health, which can contribute to increased suicidality. While the autistic community has long identified autistic burnout as a significant mental health risk, to date, only one study has been published. Early research has highlighted the harmful impact of autistic burnout among autistic adults and the urgent need to better understand this phenomenon. Methods: To understand the lived experiences of autistic adults, we used data scraping to extract public posts about autistic burnout from 2 online platforms shared between 2005 and 2019, which yielded 1127 posts. Using reflexive thematic analysis and an inductive “bottom-up” approach, we sought to understand the etiology, symptoms, and impact of autistic burnout, as well as prevention and recovery strategies. Two autistic researchers with self-reported experience of autistic burnout reviewed the themes and provided insight and feedback. Results: We identified eight primary themes and three subthemes across the data. (1) Systemic, pervasive lack of autism awareness. (1.1) Discrimination and stigma. (2) A chronic or recurrent condition. (3) Direct impact on health and well-being. (4) A life unlived. (5) A blessing in disguise? (6) Self-awareness and personal control influence risk. (6.1) “You need enough balloons to manage the weight of the rocks.” (7) Masking: Damned if you do, damned if you don't. (8) Ask the experts. (8.1) Stronger together. The overarching theme was that a pervasive lack of awareness and stigma about autism underlie autistic burnout. Conclusions: We identified a set of distinct yet interrelated factors that characterize autistic burnout as a recurring condition that can, directly and indirectly, impact autistic people's functioning, mental health, quality of life, and well-being. The findings suggest that increased awareness and acceptance of autism could be key to burnout prevention and recovery.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 12 Sep 2026 07:09.

Cited references
76
With a DOI
68
Without a DOI, from raw bibliography text
8
14 / 76 (18.4%) cited references include at least one author identified as autistic.
References with data to complete
7 / 76 (9.2%)
References with detected author names
69 / 76 (90.8%)
Without detected author names
7
Without a structured title
6
Without a stable identifier
8
References with raw author names still to review
6
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
248
From DOI or external metadata
248
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
6
124 / 248 (50.0%) names are linked to an author already present in AutiHub. 124 / 248 (50.0%) names are not yet linked.
Names linked to a person identified as autistic
21 / 248 (8.5%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 21 / 124 (16.9%). Distinct people identified as autistic: 13 / 204 (6.4%).
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