An Expert Discussion on Structural Racism in Autism Research and Practice

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Jones, D. R., Nicolaidis, C., Ellwood, L. J., Garcia, A., Johnson, K. R., Lopez, K., & Waisman, T. (2020). An Expert Discussion on Structural Racism in Autism Research and Practice. Autism in Adulthood, 2(4), 273-281. https://doi.org/10.1089/aut.2020.29015.drj

Publication date: 4 Nov 2020 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English
Publisher source (DOI) OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
7
Publication authors identified as autistic
1 / 7 (14.3%)
  1. Desiree R Jones
  2. Christina Nicolaidis
  3. Lisa J. Ellwood
  4. Arianne Garcia
  1. Khalilah R. Johnson
  2. Kristina Lopez
  3. TC Waisman *

Abstract

Autism research has a race problem. Despite improvements in screening and diagnosis, autism continues to be underdiagnosed in Black and Hispanic children, and those who obtain a diagnosis often have limited access to support services. Racial disparities persist during the transition to adulthood, with autistic adults from racial and ethnic minority groups experiencing a number of challenges, including lower rates of employment, social participation, and postsecondary education compared to White autistic adults. While these studies highlight the important intersection between race, ethnicity and autism, people of color remain consistently under-represented in autism research, and dialogues regarding the impact of racial and ethnic discrimination on autistic people of color have been limited.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 13:58.

Cited references
23
With a DOI
16
Without a DOI, from raw bibliography text
7
1 / 23 (4.3%) cited references include at least one author identified as autistic.
References with data to complete
7 / 23 (30.4%)
References with detected author names
18 / 23 (78.3%)
Without detected author names
5
Without a structured title
7
Without a stable identifier
7
References with raw author names still to review
5
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
80
From DOI or external metadata
80
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
9
16 / 80 (20.0%) names are linked to an author already present in AutiHub. 64 / 80 (80.0%) names are not yet linked.
Names linked to a person identified as autistic
2 / 80 (2.5%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 2 / 16 (12.5%). Distinct people identified as autistic: 2 / 75 (2.7%).
  1. Jina Jang , Johnny L. Matson , Paige E. Cervantes , Matthew J. Konst (2014). The relationship between ethnicity and age of first concern in toddlers with autism spectrum disorder . Research in Autism Spectrum Disorders, 8(7), 925-932. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2014.04.003 OpenAlex: https://openalex.org/W1985460373
    OpenAlex OpenCitations
  2. Maureen S. Durkin , Matthew J. Maenner , Jon Baio , Deborah Christensen , Julie Daniels , Robert Fitzgerald et al. (2017). Autism Spectrum Disorder Among US Children (2002–2010): Socioeconomic, Racial, and Ethnic Disparities . American Journal of Public Health, 107(11), 1818-1826. American Public Health Association.
    Type: Article DOI: 10.2105/ajph.2017.304032 OpenAlex: https://openalex.org/W2757083081
    Crossref OpenAlex
  3. DAVID S. MANDELL , JOHN LISTERUD , SUSAN E. LEVY , JENNIFER A. PINTO-MARTIN (2002). Race Differences in the Age at Diagnosis Among Medicaid-Eligible Children With Autism . Journal of the American Academy of Child & Adolescent Psychiatry, 41(12), 1447-1453. Elsevier BV.
    Type: Article DOI: 10.1097/00004583-200212000-00016 OpenAlex: https://openalex.org/W1998074079
    Crossref OpenAlex OpenCitations
  4. Kathleen C. Thomas , Alan R. Ellis , Carolyn McLaurin , Julie Daniels , Joseph P. Morrissey (2007). Access to Care for Autism-Related Services . Journal of Autism and Developmental Disorders, 37(10), 1902-1912. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-006-0323-7 OpenAlex: https://openalex.org/W2087760159
    Crossref OpenAlex OpenCitations
  5. Jenna Sandler Eilenberg , Madison Paff , Ashley Johnson Harrison , Kristin A. Long (2019). Disparities Based on Race, Ethnicity, and Socioeconomic Status Over the Transition to Adulthood Among Adolescents and Young Adults on the Autism Spectrum: a Systematic Review . Current Psychiatry Reports, 21(5), 32. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11920-019-1016-1 OpenAlex: https://openalex.org/W2924533675
    Crossref OpenAlex OpenCitations
  6. Schieve, Laura A. , Daniels, Julie , Christensen, Deborah , Yeargin-Allsopp, Marshalyn , Imm, Pamela , Baio, Jon et al. (2017). Autism Spectrum Disorder Among US Children (2002–2010): Socioeconomic, Racial, and Ethnic Disparities . UNC Libraries. The University of North Carolina at Chapel Hill University Libraries.
    Type: Article DOI: 10.17615/rbdp-n598 OpenAlex: https://openalex.org/W4299966533
    OpenCitations
  7. Katherine Gottlieb (2013). The Nuka System of Care: improving health through ownership and relationships . International Journal of Circumpolar Health, 72(1), 21118. Informa UK Limited.
    Type: Article DOI: 10.3402/ijch.v72i0.21118 OpenAlex: https://openalex.org/W2091131889
    Crossref OpenAlex OpenCitations
  8. Elizabeth A. West , Jason C. Travers , Talya D. Kemper , Lisa M. Liberty , Debra L. Cote , Meaghan M. McCollow et al. (2016). Racial and Ethnic Diversity of Participants in Research Supporting Evidence-Based Practices for Learners With Autism Spectrum Disorder . The Journal of Special Education, 50(3), 151-163. SAGE Publications.
    Type: Article DOI: 10.1177/0022466916632495 OpenAlex: https://openalex.org/W2305572153
    Crossref OpenAlex OpenCitations
  9. Desiree R Jones , DAVID S. MANDELL (2020). To address racial disparities in autism research, we must think globally, act locally . Autism, 24(7), 1587-1589. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320948313 OpenAlex: https://openalex.org/W3090890396
    Crossref OpenAlex OpenCitations
  10. Arianne E. Eason , Laura M. Brady , Stephanie A. Fryberg (2018). Reclaiming Representations & Interrupting the Cycle of Bias Against Native Americans . Daedalus, 147(2), 70-81. MIT Press - Journals.
    Type: Article DOI: 10.1162/daed_a_00491 OpenAlex: https://openalex.org/W2789698893
    Crossref OpenAlex OpenCitations
  11. Katharine E. Zuckerman , Brianna Sinche , Martiza Cobian , Marlene Cervantes , Angie Mejia , Thomas Becker et al. (2014). Conceptualization of Autism in the Latino Community and its Relationship With Early Diagnosis . Journal of Developmental & Behavioral Pediatrics, 35(8), 522-532. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/dbp.0000000000000091 OpenAlex: https://openalex.org/W2322839949
    Crossref OpenAlex OpenCitations
  12. Jang J (2014). Jang J,, Matson JL,, Cervantes PE,, Konst MJ. The relationship between ethnicity and age of first concern in toddlers with autism spectrum disorder. Res Autism Spectr Disord. 2014. DOI:10. 1016/j.rasd. 2014. 04. 003 Res Autism Spectr Disord.
    Type: Other
    Crossref
  13. Jean Reith Schroedel , Roger J. Chin (2020). Whose Lives Matter: The Media’s Failure to Cover Police Use of Lethal Force Against Native Americans . Race and Justice, 10(2), 150-175. SAGE Publications.
    Type: Article DOI: 10.1177/2153368717734614 OpenAlex: https://openalex.org/W2764312622
    OpenAlex OpenCitations
  14. Sarah Dababnah , Wendy E. Shaia , Karen Campion , Helen M. Nichols (2018). “We Had to Keep Pushing”: Caregivers' Perspectives on Autism Screening and Referral Practices of Black Children in Primary Care . Intellectual and Developmental Disabilities, 56(5), 321-336. Informa UK Limited.
    Type: Article DOI: 10.1352/1934-9556-56.5.321 OpenAlex: https://openalex.org/W2894823838
    Crossref OpenAlex OpenCitations
  15. Sarabeth Broder‐Fingert , Camilla Mateo , Katherine E. Zuckerman (2020). Structural Racism and Autism . Pediatrics, 146(3), e2020015420. American Academy of Pediatrics (AAP).
    Type: Article DOI: 10.1542/peds.2020-015420 OpenAlex: https://openalex.org/W3081058156
    Crossref OpenAlex OpenCitations
  17. (n.d.). Thompkins L. Here's What you need to know about elijah mcclain's death. The New York Times. 2020.
    Type: Other
    Crossref
  18. (n.d.). Cramer M. A Tennessee man called police for help then died in their custody. The New York Times. 2020.
    Type: Other
    Crossref
  19. Frank Edwards , Hedwig Lee , Michael Esposito (2019). Risk of being killed by police use of force in the United States by age, race–ethnicity, and sex . Proceedings of the National Academy of Sciences, 116(34), 16793-16798. National Academy of Sciences.
    Type: Article DOI: 10.1073/pnas.1821204116 OpenAlex: https://openalex.org/W2965198355
    Crossref OpenAlex
  20. (n.d.). Edwards E Greytak E Ofer U Takei C Fernandez P. The Other Epidemic: Fatal Police Shootings in the Time of COVID-19. New York New York: American Civil Liberties Union; 2020.
    Type: Other
    Crossref
  21. Schroedel JR (2020). Schroedel JR,, Chin RJ,. Whose lives matter: the media's failure to cover police use of lethal force against native Americans. Race Justice. 2020. doi:10. 1177/2153368717734614 Race Justice.
    Type: Other
    Crossref
  22. (n.d.). Revesz R. Native Americans most likely ethnic group to be killed by police. The Independent. 2016.
    Type: Other
    Crossref
  23. (n.d.). Hansen E. The forgotten minority in police shootings. CNN. 2017.
    Type: Other
    Crossref