“I Don't Feel Like a Gender, I Feel Like Myself”: Autistic Individuals Raised as Girls Exploring Gender Identity
Kourti, M. & MacLeod, A. (2018). “I Don't Feel Like a Gender, I Feel Like Myself”: Autistic Individuals Raised as Girls Exploring Gender Identity. Autism in Adulthood, 1(1), 52-59. https://doi.org/10.1089/aut.2018.0001
This publication is integrated into AutiHub through:
Authors
Abstract
Abstract Background: This article addresses a gap in current research by considering perceptions of gender within autistic adults raised as girls. Methods: We report on an online focus group, in which 21 individuals who had been raised as girls discussed their gender identities. This discussion was part of a larger study, involving 43 participants from eight countries. We used an emancipatory approach wherein participants set their own agenda, thereby highlighting directly that gender identity was significant for them. The discussion was open for 2 weeks, after which the transcript was analyzed using Applied Thematic Analysis. Results: Participants reported not identifying with typical presentations of the female gender for a variety of reasons, linked both to autism and to sociocultural expectations. Participants described childhoods of being a tomboy or wanting to be a boy, having difficulties conforming to gender-based social expectations and powerful identifications with their personal interests. Conclusions: Consideration is given to the ways in which autistic individuals conform to, or resist, gendered roles, as well as the implications for identity formation within autistic individuals raised as girls. The innovative emancipatory design proved effective in giving voice to a group who have had little presence within the academic and medical communities and, through its use of online platforms, in engaging a large and internationally based participant sample. This article highlights both the importance of approaching autism from an intersectional perspective that takes greater account of context, and the unique contributions that autistic individuals can make to current understandings within autism research. Lay Summary Background: This article tries to look at a new part of autism research. It reports on what autistic adults who were raised as girls say about their feelings in relation to their gender—whether they feel more like typical women, more like typical men, or feel differently to both. Method: The research used online discussion groups. Forty-three individuals who had been raised as girls chose to join the group and be part of the research. Participants from eight countries decided what they would talk about. This means that they chose the topic of gender identity as one that was important to them. We analyzed the comments that people made in the discussion about gender. Results: Most said that they did not feel like they were similar to typical women and they gave different reasons for this. Some thought it was because they were autistic and some thought it was to do with people around them putting pressure on them to be more “girly.” Participants often said they had been tomboys or wanted to be a boy growing up and their personal interests were very important to them. Conclusions: The discussion looks at how autistic people are sometimes forced to act in certain ways to fit in, and how this can make them feel confused and depressed. The research design was led by the participants and this meant that a group who have rarely been asked their opinion were able to have a say. Because the research was all online, the participant group could be larger than usual and came from all over the world. This article shows that it is important to understand a person's environment, to really understand how autism affects them. It also shows that autistic people can give important information that helps others understand them better, and the only way to get this type of information is to ask autistic people.
Bibliography cited by this reference
Cited references are imported from external metadata sources when they are available. The list may be partial.
Bibliography inclusion overview
These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.
-
Christina Nicolaidis , Dora M Raymaker *Autistic author. Learn more… , Katherine McDonald , Sebastian Dern , Elesia Ashkenazy *Autistic author. Learn more… , W. Cody Boisclair *Autistic author. Learn more… et al. (1985). Natural experiments and the educational context: The environment and effects of an alternative inner‐city public school on adolescents . American Journal of Community Psychology, 13(6), 617-643. Wiley.OpenAlex
-
Elizabeth Pellicano (2014). Chapter 4. A future made together: new directions in the ethics of autism research . Journal of Research in Special Educational Needs, 14(3), 200-204. Wiley.
-
Rebekah J. Hamilton , Barbara J. Bowers (2006). Internet Recruitment and E-Mail Interviews in Qualitative Studies . Qualitative Health Research, 16(6), 821-835. SAGE Publications.Crossref OpenAlex OpenCitations
-
Kimberle Crenshaw (2018). Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory, and Antiracist Politics [1989] . In Feminist Legal Theory (pp. 57-80). Routledge.OpenAlex
-
Thomas R. Insel , Susan A. Daniels (2011). Future Directions: Setting Priorities to Guide the Federal Research Effort . In Autism Spectrum Disorders (pp. 1361-1368). Oxford University Press.Type: Book chapter DOI: 10.1093/med/9780195371826.003.0089 OpenAlex: https://openalex.org/W2479318535Crossref OpenAlex OpenCitations
-
Tatja Hirvikoski , Ellenor Mittendorfer-Rutz , Marcus Boman , Henrik Larsson , Paul Lichtenstein , Sven Bölte (2016). Premature mortality in autism spectrum disorder . British Journal of Psychiatry, 208(3), 232-238. Royal College of Psychiatrists.Crossref OpenAlex OpenCitations
-
Greg Guest , Kathleen MacQueen , Emily Namey (2012). Applied Thematic Analysis . SAGE Publications, Inc..Crossref OpenAlex
-
Patricia Howlin , Joanne Arciuli , Sander Begeer , Jon Brock , Kristina Clarke , Debra Costley et al. (2015). Research on adults with autism spectrum disorder: Roundtable report . Journal of Intellectual and Developmental Disability, 40(4), 388-393. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Sarah Cassidy , Paul Bradley , Janine Robinson , Carrie Allison , Meghan McHugh , Simon Baron-Cohen (2014). Suicidal ideation and suicide plans or attempts in adults with Asperger's syndrome attending a specialist diagnostic clinic: a clinical cohort study . The Lancet Psychiatry, 1(2), 142-147. Elsevier BV.Crossref OpenAlex OpenCitations
-
Margaret Wangui Murugami (2009). Disability and Identity . Disability Studies Quarterly, 29(4). The Ohio State University Libraries.Crossref OpenAlex OpenCitations
-
Sarah Parsons (2015). ‘Why are we an ignored group?’ Mainstream educational experiences and current life satisfaction of adults on the autism spectrum from an online survey . International Journal of Inclusive Education, 19(4), 397-421. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Emma Stone , Mark Priestley (1996). Parasites, Pawns and Partners: Disability Research and the Role of Non-Disabled Researchers . The British Journal of Sociology, 47(4), 699. JSTOR.Crossref OpenAlex OpenCitations
-
Elizabeth Pellicano , Adam Dinsmore , Tony Charman (2014). What should autism research focus upon? Community views and priorities from the United Kingdom . Autism, 18(7), 756-770. SAGE Publications.
-
Stephanie A. Shields (2008). Gender: An Intersectionality Perspective . Sex Roles, 59(5-6), 301-311. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Ari Ne'eman *Autistic author. Learn more… (2010). The Future (and the Past) of Autism Advocacy, Or Why the ASA’s Magazine, The Advocate, Wouldn't Publish This Piece . Disability Studies Quarterly, 30(1), 17. The Ohio State University Libraries.
-
Allison Shefcyk (2015). Count us in: Addressing gender disparities in autism research . Autism, 19(2), 131-132. SAGE Publications.Crossref OpenAlex OpenCitations
-
Joyce Davidson , Sophie Tamas (2016). Autism and the ghost of gender . Emotion, Space and Society, 19, 59-65. Elsevier BV.Crossref OpenAlex OpenCitations
-
Cheryl Tatano Beck (2005). Benefits of Participating in Internet Interviews: Women Helping Women . Qualitative Health Research, 15(3), 411-422. SAGE Publications.Crossref OpenAlex OpenCitations
-
Andrea MacLeod , Ann Lewis , Christopher Robertson (2014). ‘CHARLIE: PLEASE RESPOND!’ Using a participatory methodology with individuals on the autism spectrum . International Journal of Research & Method in Education, 37(4), 407-420. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Sarah Cassidy , Jacqui Rodgers (2017). Understanding and prevention of suicide in autism . The Lancet Psychiatry, 4(6), e11. Elsevier BV.Crossref OpenAlex OpenCitations
-
Joyce Davidson , Victoria L. Henderson (2010). ‘Coming out’ on the spectrum: autism, identity and disclosure . Social & Cultural Geography, 11(2), 155-170. Informa UK Limited.Crossref OpenAlex OpenCitations
-
-
Fabiola Baltar , Ignasi Brunet (2012). Social research 2.0: virtual snowball sampling method using Facebook . Internet Research, 22(1), 57-74. Emerald.Crossref OpenAlex OpenCitations
-
Arnold H. Grossman , Anthony R. D'Augelli (2007). Transgender Youth and Life‐Threatening Behaviors . Suicide and Life-Threatening Behavior, 37(5), 527-537. Wiley.Crossref OpenAlex OpenCitations
-
François Guillemette (2003). Handbook of Interview Research. Context and Method . Loisir et Société / Society and Leisure, 26(1), 271-272. Informa UK Limited.OpenAlex
-
Stephen T. Russell (2003). Sexual Minority Youth and Suicide Risk . American Behavioral Scientist, 46(9), 1241-1257. SAGE Publications.Crossref OpenAlex OpenCitations
-
Dinah Murray *Autistic author. Learn more… , Mike Lesser *Autistic author. Learn more… , Wenn Lawson *Autistic author. Learn more… (2005). Attention, monotropism and the diagnostic criteria for autism . Autism, 9(2), 139-156. SAGE Publications.
-
Meng-Chuan Lai , Michael Lombardo , Amber Ruigrok , Bhismadev Chakrabarti , Bonnie Auyeung , Péter Szatmári et al. (2017). Quantifying and exploring camouflaging in men and women with autism . Autism, 21(6), 690-702. SAGE Publications.Crossref OpenAlex OpenCitations
-
Susan Lonsdale (1990). Women and Disability . Macmillan Education UK.Crossref OpenAlex OpenCitations
-
Damian Milton *Autistic author. Learn more… , Richard Mills , Elizabeth Pellicano (2014). Ethics and Autism: Where is the Autistic Voice? Commentary on Post et al. Journal of Autism and Developmental Disorders, 44(10), 2650-2651. Springer Science and Business Media LLC.
-
Damian Milton *Autistic author. Learn more… (2014). Autistic expertise: A critical reflection on the production of knowledge in autism studies . Autism, 18(7), 794-802. SAGE Publications.
-
(n.d.). Shelly S. Women from another planet: Feminism and AC awareness. Proceedings from Autreat 2004 1–13. http://solashelly.tripod.com/Women.pdfType: OtherCrossref
-
Mary McIntosh , Judith Butler (1991). Gender Trouble: Feminism and the Subversion of Identity . Feminist Review, (38), 113. JSTOR.OpenAlex
-
Penny Benford , P Standen (2009). The internet: a comfortable communication medium for people with Asperger syndrome (AS) and high functioning autism (HFA)? Journal of Assistive Technologies, 3(2), 44-53. Emerald.Crossref OpenAlex OpenCitations
-
Jordynn Jack (2012). Gender Copia: Feminist Rhetorical Perspectives on an Autistic Concept of Sex/Gender . Women's Studies in Communication, 35(1), 1-17. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Christina Nicolaidis , Dora M Raymaker *Autistic author. Learn more… , Katherine McDonald , Sebastian Dern , Elesia Ashkenazy *Autistic author. Learn more… , W. Cody Boisclair *Autistic author. Learn more… et al. (2011). Collaboration Strategies in Nontraditional Community-Based Participatory Research Partnerships: Lessons From an Academic–Community Partnership With Autistic Self-Advocates . Progress in Community Health Partnerships: Research, Education, and Action, 5(2), 143-150. Project MUSE.
-
Lawson WB (2017). Transitioning Together: One Couple's Journey of Gender and Identity Discovery . Transitioning Together: One Couple's Journey of Gender and Identity Discovery.Type: OtherCrossref
-
Debbie Kramer-Roy (2015). Using participatory and creative methods to facilitate emancipatory research with people facing multiple disadvantage: a role for health and care professionals . Disability & Society, 30(8), 1207-1224. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Damian Milton *Autistic author. Learn more… , Michael Bracher (2013). Autistics speak but are they heard . Medical Sociology, 7(2), 61.Type: Article OpenAlex: https://openalex.org/W2337764906Crossref OpenAlex
-
Caitlin Harrington , Michele Foster , Sylvia Rodger , Jill Ashburner (2014). Engaging young people with A utism S pectrum D isorder in research interviews . British Journal of Learning Disabilities, 42(2), 153-161. Wiley.Crossref OpenAlex OpenCitations
-
Kimberle Crenshaw (1991). Mapping the Margins: Intersectionality, Identity Politics, and Violence against Women of Color . Stanford Law Review, 43(6), 1241. JSTOR.Crossref OpenAlex OpenCitations
-
Waltz M (2009). Autism 2006 Virtual Conference . Autism 2006 Virtual Conference.Type: OtherCrossref
-
Mann C (2002). Handbook of Interview Research: Context and Method . Handbook of Interview Research: Context and Method, 141.Type: OtherCrossref
-
Judith Butler (1988). Performative Acts and Gender Constitution: An Essay in Phenomenology and Feminist Theory . Theatre Journal, 40(4), 519. JSTOR.Crossref OpenAlex OpenCitations
-
L Jody (2012). A Gender Not Listed Here: Genderqueers, Gender Rebels, and OtherWise in the National Transgender Discrimination Survey Author: .Type: Article OpenAlex: https://openalex.org/W2182041248OpenAlex
-
Rudy Simone (2010). Aspergirls . Jessica Kingsley Publishers.Crossref OpenAlex OpenCitations
-
Sola Shelly (2004). Women from another planet? Feminism and AC awareness .Type: Article OpenAlex: https://openalex.org/W2185398538OpenAlex
-
(n.d.). Sinclair J. Autism network international: The development of a community and its culture. 2005. Accessed December2017 from: www.autreat.com/History_of_ANI.htmlType: OtherCrossref
-
Judith Butler (1988). Performative Acts and Gender Constitution: An Essay in Phenomenology and Feminist Theory .Type: Article DOI: 10.4324/9780203567234-13 OpenAlex: https://openalex.org/W2315312727 Crossref: not found DataCite: not foundOpenAlex
-
Morgan DL (2002). Handbook of Interview Research: Context and Method . Handbook of Interview Research: Context and Method, 59.Type: OtherCrossref
-
Ballou EP (2017). What Every Autistic Girl Wishes her Parents Knew . What Every Autistic Girl Wishes her Parents Knew.Type: OtherCrossref
-
Hillary A. (2014). Criptiques . Criptiques, 121.Type: OtherCrossref
-
David L. Morgan (2012). 7 Focus Group Interviewing . In Handbook of Interview Research (pp. 141-159). SAGE Publications, Inc..OpenAlex
-
Butler J (1990). Gender trouble: feminism and the subversion of identity . Gender Trouble: Feminism and the subversion of identity.Type: OtherCrossref
-
Harrison J (2012). A gender not listed here: Genderqueers, gender rebels, and otherwise in the National Transgender Discrimination Survey . LGBTQ Public Policy J Harv Kennedy Sch, 2(1).Type: OtherCrossref
-
Rudy Simone (2010). Aspergirls: Empowering Females with Asperger Syndrome .Type: Book OpenAlex: https://openalex.org/W2798841585OpenAlex
-
Lawson J (2010). An investigation into behaviours which challenge at university: The impact of neurotypical expectations on autistic students . Good Autism Pract GAP, 11(1), 45.Type: OtherCrossref
-
Crenshaw K. (1989). Demarginalizing the intersection of race and sex: A Black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics . University of Chicago Legal Forum, 1989(1).Type: OtherCrossref
-
Brown LXZ (2017). All the Weight of Our Dreams: On Living Racialized Autism . All the Weight of Our Dreams: On Living Racialized Autism.Type: OtherCrossref