Cutting our own keys: New possibilities of neurodivergent storying in research

Bertilsdotter Rosqvist, H., Botha, M., Hens, K., O’Donoghue, S., Pearson, A., & Stenning, A. (2022). Cutting our own keys: New possibilities of neurodivergent storying in research. Autism, 27(5), 1235-1244. https://doi.org/10.1177/13623613221132107

Publication date: 19 Oct 2022 Added to AutiHub: 4 Jul 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
6
Publication authors identified as autistic
5 / 6 (83.3%)

Abstract

Increasingly, neurodivergent people are sharing their own narratives and conducting their own research. Prominent individuals have integrated the ‘nothing about us without us’ slogan, used by neurodivergent and other disabled social activists, into academia. This article imagines a neuromixed academia. We consider how to work through challenges present in neuromixed encounters; to support cross-neurotype communication and pave the way for an ethos of community and collaboration. We explore how we might create a space in which neurodivergent experiences are seen as just one part of our complex and multifaceted identities. We do this through the process of ‘cutting our own keys’, to try out new possibilities of neurodivergent storying aimed at finding ourselves in our own stories about neurodivergence. This involves borrowing and developing methodological approaches formulated outside of research on different forms of neurodivergence, and to invent our own concepts based on our own embodied experiences and the social worlds we inhabit. Throughout, we mingle our own autoethnographic accounts in relation to research accounts and theories, as a way of illustrating the work with the text as a thinking about neurodivergence with each other in itself. Lay abstract A lot of people who do research are also neurodivergent (such as being autistic or attention deficit hyperactivity disorder), but neurodivergent people do not always feel welcome in research spaces which are often shaped around neurotypical people. Some neurotypical researchers lack confidence in talking to neurodivergent people, and others feel like neurodivergent people might not be able to do good research about other people who are like them without being biased. We think it is important that all researchers are able to work well together, regardless of whether they are neurotypical, autistic, or attention deficit hyperactivity disorder (or any other neurotype) – in truly ‘neurodiverse’ teams. In this article we talk about how to create better spaces for all researchers, where we feel valued for who we are and take each others’ needs into account. We do this using some approaches from other areas of research and talking about how they relate to our personal experiences of being neurodivergent researchers with our own personal stories. This article adds to a growing work on how we can work with people who are different from us, in more respectful and kind ways.

Bibliography cited by this reference

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Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.

Cited references
58
Total cited references integrated for this publication.
Cited references with an identified autistic author
18 / 58 (31.0%)
Cited author occurrences identified as autistic
23 / 88 (26.1%)
Among occurrences linked to AutiHub author records: 23 / 43 (53.5%). Distinct cited authors identified as autistic: 15 / 76 (19.7%).
Cited author occurrences linked to AutiHub author records
43 / 88 (48.9%)
Distinct linked cited authors: 32 / 76 (42.1%)
Linked cited-author occurrences not identified as autistic
20 / 43 (46.5%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 20 / 88 (22.7%). Distinct linked cited authors not identified as autistic: 17 / 32 (53.1%).
  1. Elizabeth Pellicano , Adam Dinsmore , Tony Charman (2013). A future made together: shaping autism research in the UK . IOE EPrints.
    Type: Article OpenAlex: https://openalex.org/W150421255
    Crossref OpenAlex
  2. Nicola L. Abram (2020). Forging Connections . In The Cambridge History of Black and Asian British Writing (pp. 403-416). Cambridge University Press.
    Crossref OpenAlex OpenCitations
  3. (2002). Damaged identities, narrative repair . Choice Reviews Online, 39(07), 39-3911-39-3911. American Library Association.
    OpenAlex
  4. Jaime Craig , Simon Baron-Cohen (1999). Creativity and Imagination in Autism and Asperger Syndrome . Journal of Autism and Developmental Disorders, 29(4), 319-326. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  5. David Jackson‐Perry , Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… , Jenn Layton Annable , Marianthi Kourti *Autistic author. Learn more… (2020). Sensory strangers . In Neurodiversity Studies (pp. 125-140). Routledge.
    Crossref OpenAlex OpenCitations
  6. Jim Sinclair *Autistic author. Learn more… (2010). Being Autistic Together . Disability Studies Quarterly, 30(1). The Ohio State University Libraries.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  7. Simon Baron-Cohen , Sally Wheelwright , Richard Skinner , Joanne Martin , Emma Clubley (2001). The Autism-Spectrum Quotient (AQ): Evidence from Asperger Syndrome/High-Functioning Autism, Males and Females, Scientists and Mathematicians . Journal of Autism and Developmental Disorders, 31(1), 5-17. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  8. Anna Stenning *Autistic author. Learn more… (2020). Understanding empathy through a study of autistic life writing . In Neurodiversity Studies (pp. 108-124). Routledge.
    Crossref OpenAlex OpenCitations
  9. Francesca Happé (1991). Theory of mind and communication in autism . OpenGrey (Institut de l'Information Scientifique et Technique).
    Type: Dissertation OpenAlex: https://openalex.org/W1669637988
    Crossref OpenAlex
  10. Bergenmar J. (2016). bibr4-13623613221132107 LIR Journal, 6(16), 60.
    Type: Other
    Crossref
  11. Sandra Laugier (2015). The Ethics of Care as a Politics of the Ordinary . New Literary History, 46(2), 217-240. Project MUSE.
    Crossref OpenAlex OpenCitations
  12. Miranda Fricker (2007). Epistemic Injustice . Oxford University PressOxford.
    Crossref OpenAlex OpenCitations
  13. Damian Milton *Autistic author. Learn more… (2012). On the ontological status of autism: the ‘double empathy problem’ . Disability & Society, 27(6), 883-887. Informa UK Limited.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  14. Catriona Mackenzie (2021). Relational Autonomy . In The Oxford handbook of feminist philosophy (pp. 374-384). Oxford University Press.
    Crossref OpenAlex OpenCitations
  15. Margaret Price (2015). The Bodymind Problem and the Possibilities of Pain . Hypatia, 30(1), 268-284. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  16. Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… , Linda Örulv , Serena Hasselblad , Dennis Hansson , Kirke Nilsson , Hajo Seng (2020). Designing an autistic space for research . In Neurodiversity Studies (pp. 156-171). Routledge.
    Crossref OpenAlex OpenCitations
  17. Coralie Chevallier , Gregor Kohls , Vanessa Troiani , Edward S. Brodkin , Robert T. Schultz (2012). The social motivation theory of autism . Trends in Cognitive Sciences, 16(4), 231-239. Elsevier BV.
    Crossref OpenAlex OpenCitations
  18. Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… , Anna Stenning *Autistic author. Learn more… , Nicholas Chown *Autistic author. Learn more… (2020). Neurodiversity studies . In Neurodiversity Studies (pp. 226-229). Routledge.
    Crossref OpenAlex OpenCitations
  19. Brown L. X. Z. (2016). All the weight of our dreams: On living racialized autism . All the weight of our dreams: On living racialized autism.
    Type: Other
    Crossref
  20. Becky Francis , Valerie Hey (2009). Talking back to power: snowballs in hell and the imperative of insisting on structural explanations . Gender and Education, 21(2), 225-232. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  21. Daniel G. Solórzano , Tara J. Yosso (2002). Critical Race Methodology: Counter-Storytelling as an Analytical Framework for Education Research . Qualitative Inquiry, 8(1), 23-44. SAGE Publications.
    Crossref OpenAlex OpenCitations
  22. Donna J. Haraway (2016). Staying with the Trouble . Duke University Press.
    Crossref OpenAlex OpenCitations
  23. Charlie Crerar (2016). TABOO, HERMENEUTICAL INJUSTICE, AND EXPRESSIVELY FREE ENVIRONMENTS . Episteme, 13(2), 195-207. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  24. Gregory Hollin (2017). Autistic Heterogeneity: Linking Uncertainties and Indeterminacies . Science as Culture, 26(2), 209-231. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  25. Evans B. (2017). The metamorphosis of autism . The metamorphosis of autism.
    Type: Other
    Crossref
  26. Sarah Drews Lucas (2016). The Primacy of Narrative Agency: A Feminist Theory of the Self . The Sydney eScholarship Repository (The University of Sydney).
    Type: Dissertation OpenAlex: https://openalex.org/W2561294162
    Crossref OpenAlex
  27. Goffman E. (1959). The Presentation of Self in Everyday Life . The presentation of self in everyday life.
    Type: Other
    Crossref
  28. Catherine McDermott (2022). Theorising the neurotypical gaze: autistic love and relationships in The Bridge (Bron/Broen 2011–2018) . Medical Humanities, 48(1), 51-62. BMJ.
    Crossref OpenAlex OpenCitations
  29. Larry R. Arnold *Autistic author. Learn more… (2020). Autonomy, the Critical Journal of Interdisciplinary Autism Studies . In Autistic Community and the Neurodiversity Movement (pp. 211-220). Springer Singapore.
  30. Alyssa Hillary Zisk *Autistic author. Learn more… (2020). Neurodiversity and cross-cultural communication . In Neurodiversity Studies (pp. 91-107). Routledge.
    Crossref OpenAlex OpenCitations
  31. Hanna Meretoja (2020). A dialogics of counter-narratives . In Routledge Handbook of Counter-Narratives (pp. 30-42). Routledge.
    Type: Book chapter DOI: 10.4324/9780429279713-4 OpenAlex: https://openalex.org/W3097515782
    Crossref OpenAlex OpenCitations
  32. Huxley-Jones L. (2020). Stim: An autistic anthology . Stim: An autistic anthology.
    Type: Other
    Crossref
  33. Limburg J. (2021). Letters to my weird sisters: On autism and feminism . Letters to my weird sisters: On autism and feminism.
    Type: Other
    Crossref
  34. Lindemann Nelson H (2001). Damaged identities, narrative repair . Damaged identities, narrative repair.
    Type: Other
    Crossref
  35. Volkmar, Fred R. (2015). Encyclopedia of Autism Spectrum Disorders . Springer New York.
    OpenAlex
  36. McDonnell A. (2014). Good Autism Practice: Autism, Happiness and Wellbeing . Good Autism Practice: Autism, Happiness and Wellbeing, 38.
    Type: Other
    Crossref
  37. Milton D. E. (2019). bibr35-13623613221132107 The Psychologist, 32, 2.
    Type: Other
    Crossref
  38. Milton D. E. (2014). bibr37-13623613221132107 Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(3), 1.
    Type: Other
    Crossref
  39. Gayatri Chakravorty Spivak (2012). Outside in the Teaching Machine . Routledge.
    OpenAlex
  40. Murray D. (2018). bibr38-13623613221132107 Encyclopedia of Autism Spectrum Disorders, 10, 978.
    Type: Other
    Crossref
  41. Erving Goffman (2023). The Presentation of Self in Everyday Life . In Social Theory Re-Wired (pp. 450-459). Routledge.
    OpenAlex
  42. Murray F. (2019). bibr39-13623613221132107 The Psychologist, 32, 44.
    Type: Other
    Crossref
  43. Peña E. V. (2019). Leaders around me: Autobiographies of autistics who type, point, & spell to communicate . Leaders around me: Autobiographies of autistics who type, point, & spell to communicate.
    Type: Other
    Crossref
  44. Sequenzia A. (2015). Typed words, loud voices: A collection . Typed words, loud voices: A collection.
    Type: Other
    Crossref
  45. Julia Sinclair (2012). Loud Hands: Autistic People Speaking . Loud hands: Autistic people, speaking, 223.
    Type: Other
    Crossref
  46. Spivak G. (1993). Outside in the teaching machine . Outside in the teaching machine, 179.
    Type: Other
    Crossref
  47. Stengers I. (2010). Cosmopolitics I . Cosmopolitics I.
    Type: Other
    Crossref
  48. Walker N. (2014). Neurodiversity: Some basic terms & definitions. https://neuroqueer.com/neurodiversity-terms-and-definitions/
    Type: Other
    Crossref