Cutting our own keys: New possibilities of neurodivergent storying in research

This publication is included in the Autistic Autism Scholarship Project. five authors of this publication are identified as autistic in the project.

About the autistic author marker

Bertilsdotter Rosqvist, H., Botha, M., Hens, K., O’Donoghue, S., Pearson, A., & Stenning, A. (2022). Cutting our own keys: New possibilities of neurodivergent storying in research. Autism, 27(5), 1235-1244. https://doi.org/10.1177/13623613221132107

Publication date: 19 Oct 2022 Added to AutiHub: 4 Jul 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
6
Publication authors identified as autistic
5 / 6 (83.3%)

Abstract

Increasingly, neurodivergent people are sharing their own narratives and conducting their own research. Prominent individuals have integrated the ‘nothing about us without us’ slogan, used by neurodivergent and other disabled social activists, into academia. This article imagines a neuromixed academia. We consider how to work through challenges present in neuromixed encounters; to support cross-neurotype communication and pave the way for an ethos of community and collaboration. We explore how we might create a space in which neurodivergent experiences are seen as just one part of our complex and multifaceted identities. We do this through the process of ‘cutting our own keys’, to try out new possibilities of neurodivergent storying aimed at finding ourselves in our own stories about neurodivergence. This involves borrowing and developing methodological approaches formulated outside of research on different forms of neurodivergence, and to invent our own concepts based on our own embodied experiences and the social worlds we inhabit. Throughout, we mingle our own autoethnographic accounts in relation to research accounts and theories, as a way of illustrating the work with the text as a thinking about neurodivergence with each other in itself. Lay abstract A lot of people who do research are also neurodivergent (such as being autistic or attention deficit hyperactivity disorder), but neurodivergent people do not always feel welcome in research spaces which are often shaped around neurotypical people. Some neurotypical researchers lack confidence in talking to neurodivergent people, and others feel like neurodivergent people might not be able to do good research about other people who are like them without being biased. We think it is important that all researchers are able to work well together, regardless of whether they are neurotypical, autistic, or attention deficit hyperactivity disorder (or any other neurotype) – in truly ‘neurodiverse’ teams. In this article we talk about how to create better spaces for all researchers, where we feel valued for who we are and take each others’ needs into account. We do this using some approaches from other areas of research and talking about how they relate to our personal experiences of being neurodivergent researchers with our own personal stories. This article adds to a growing work on how we can work with people who are different from us, in more respectful and kind ways.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 07:50.

Cited references
58
With a DOI
37
Without a DOI, from raw bibliography text
21
18 / 58 (31.0%) cited references include at least one author identified as autistic.
References with data to complete
6 / 58 (10.3%)
References with detected author names
56 / 58 (96.6%)
Without detected author names
2
Without a structured title
5
Without a stable identifier
18
References with raw author names still to review
1
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
90
From DOI or external metadata
90
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
1
43 / 90 (47.8%) names are linked to an author already present in AutiHub. 47 / 90 (52.2%) names are not yet linked.
Names linked to a person identified as autistic
23 / 90 (25.6%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 23 / 43 (53.5%). Distinct people identified as autistic: 15 / 78 (19.2%).
  1. Elizabeth Pellicano , Adam Dinsmore , Tony Charman (2013). A Future Made Together: Shaping Autism Research in the UK . IOE EPrints.
    Type: Article OpenAlex: https://openalex.org/W150421255
    Crossref OpenAlex
  2. Nicola L. Abram (2020). Forging Connections . In The Cambridge History of Black and Asian British Writing (pp. 403-416). Cambridge University Press.
    Crossref OpenAlex OpenCitations
  3. (2002). Damaged identities, narrative repair . Choice Reviews Online, 39(07), 39-3911-39-3911. American Library Association.
    OpenAlex
  4. Jaime Craig , Simon Baron-Cohen (1999). Creativity and Imagination in Autism and Asperger Syndrome . Journal of Autism and Developmental Disorders, 29(4), 319-326. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  5. David Jackson‐Perry , Hannah Bertilsdotter Rosqvist *Autistic author. Learn more… , Jenn Layton Annable , Marianthi Kourti *Autistic author. Learn more… (2020). Sensory strangers . In Neurodiversity Studies (pp. 125-140). Routledge.
    Crossref OpenAlex OpenCitations
  6. Jim Sinclair *Autistic author. Learn more… (2010). Being Autistic Together . Disability Studies Quarterly, 30(1). The Ohio State University Libraries.
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  7. Simon Baron-Cohen , Sally Wheelwright , Richard Skinner , Joanne Martin , Emma Clubley (2001). The Autism-Spectrum Quotient (AQ): Evidence from Asperger Syndrome/High-Functioning Autism, Males and Females, Scientists and Mathematicians . Journal of Autism and Developmental Disorders, 31(1), 5-17. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  8. Anna Stenning *Autistic author. Learn more… (2020). Understanding empathy through a study of autistic life writing . In Neurodiversity Studies (pp. 108-124). Routledge.
    Crossref OpenAlex OpenCitations
  9. Francesca Happé (1991). Theory of mind and communication in autism . OpenGrey (Institut de l'Information Scientifique et Technique).
    Type: Dissertation OpenAlex: https://openalex.org/W1669637988
    Crossref OpenAlex
  10. Bergenmar J. (2016). bibr4-13623613221132107 LIR Journal, 6(16), 60.
    Type: Other
    Crossref
  11. Sandra Laugier (2015). The Ethics of Care as a Politics of the Ordinary . New Literary History, 46(2), 217-240. Project MUSE.
    Crossref OpenAlex OpenCitations
  12. Miranda Fricker (2007). Epistemic Injustice . Oxford University PressOxford.
    Crossref OpenAlex OpenCitations
  13. Catriona Mackenzie (2021). Relational Autonomy . In The Oxford handbook of feminist philosophy (pp. 374-384). Oxford University Press.
    Crossref OpenAlex OpenCitations
  14. Margaret Price (2015). The Bodymind Problem and the Possibilities of Pain . Hypatia, 30(1), 268-284. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  15. Hannah Bertilsdotter Rosqvist *Autistic author. Learn more… , Linda Örulv , Serena Hasselblad , Dennis Hansson , Kirke Nilsson , Hajo Seng (2020). Designing an autistic space for research . In Neurodiversity Studies (pp. 156-171). Routledge.
    Crossref OpenAlex OpenCitations
  16. Coralie Chevallier , Gregor Kohls , Vanessa Troiani , Edward S. Brodkin , Robert T. Schultz (2012). The social motivation theory of autism . Trends in Cognitive Sciences, 16(4), 231-239. Elsevier BV.
    Crossref OpenAlex OpenCitations
  17. Hannah Bertilsdotter Rosqvist *Autistic author. Learn more… , Anna Stenning *Autistic author. Learn more… , Nicholas Chown *Autistic author. Learn more… (2020). Neurodiversity studies . In Neurodiversity Studies (pp. 226-229). Routledge.
    Crossref OpenAlex OpenCitations
  18. Brown L. X. Z. (2016). All the weight of our dreams: On living racialized autism . All the weight of our dreams: On living racialized autism.
    Type: Other
    Crossref
  19. Becky Francis , Valerie Hey (2009). Talking back to power: snowballs in hell and the imperative of insisting on structural explanations . Gender and Education, 21(2), 225-232. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  20. Daniel G. Solórzano , Tara J. Yosso (2002). Critical Race Methodology: Counter-Storytelling as an Analytical Framework for Education Research . Qualitative Inquiry, 8(1), 23-44. SAGE Publications.
    Crossref OpenAlex OpenCitations
  21. Donna J. Haraway (2016). Staying with the Trouble . Duke University Press.
    Crossref OpenAlex OpenCitations
  22. Charlie Crerar (2016). TABOO, HERMENEUTICAL INJUSTICE, AND EXPRESSIVELY FREE ENVIRONMENTS . Episteme, 13(2), 195-207. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  23. Gregory Hollin (2017). Autistic Heterogeneity: Linking Uncertainties and Indeterminacies . Science as Culture, 26(2), 209-231. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  24. Evans B. (2017). The metamorphosis of autism . The metamorphosis of autism.
    Type: Other
    Crossref
  25. Sarah Drews Lucas (2016). The Primacy of Narrative Agency: A Feminist Theory of the Self . The Sydney eScholarship Repository (The University of Sydney).
    Type: Dissertation OpenAlex: https://openalex.org/W2561294162
    Crossref OpenAlex
  26. Goffman E. (1959). The presentation of self in everyday life . The presentation of self in everyday life.
    Type: Other
    Crossref
  27. Catherine McDermott (2022). Theorising the neurotypical gaze: autistic love and relationships in The Bridge (Bron/Broen 2011–2018) . Medical Humanities, 48(1), 51-62. BMJ.
    Crossref OpenAlex OpenCitations
  28. Larry R. Arnold *Autistic author. Learn more… (2020). Autonomy, the Critical Journal of Interdisciplinary Autism Studies . In Autistic community and the Neurodiversity movement (pp. 211-220). Springer Singapore.
  29. Hanna Meretoja (2020). A dialogics of counter-narratives . In Routledge Handbook of Counter-Narratives (pp. 30-42). Routledge.
    Type: Book chapter DOI: 10.4324/9780429279713-4 OpenAlex: https://openalex.org/W3097515782
    Crossref OpenAlex OpenCitations
  30. Huxley-Jones L. (2020). Stim: An autistic anthology . Stim: An autistic anthology.
    Type: Other
    Crossref
  31. Limburg J. (2021). Letters to my weird sisters: On autism and feminism . Letters to my weird sisters: On autism and feminism.
    Type: Other
    Crossref
  32. Lindemann Nelson H (2001). Damaged identities, narrative repair . Damaged identities, narrative repair.
    Type: Other
    Crossref
  33. Margari L. , de Giambattista C. , Ventura P (2015). Encyclopedia of Autism Spectrum Disorders . Springer New York.
    OpenAlex
  34. McDonnell A. (2014). Good Autism Practice: Autism, Happiness and Wellbeing . Good Autism Practice: Autism, Happiness and Wellbeing, 38.
    Type: Other
    Crossref
  35. Milton D. E. (2019). bibr35-13623613221132107 The Psychologist, 32, 2.
    Type: Other
    Crossref
  36. Milton D. E. (2014). bibr37-13623613221132107 Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(3), 1.
    Type: Other
    Crossref
  37. Gayatri Chakravorty Spivak (2012). Outside in the Teaching Machine . Routledge.
    OpenAlex
  38. Murray D. (2018). Encyclopedia of autism spectrum disorders . Encyclopedia of Autism Spectrum Disorders, 10, 1.
    Type: Other
    Crossref
  39. Erving Goffman (2023). The Presentation of Self in Everyday Life . In Social Theory Re-Wired (pp. 450-459). Routledge.
    OpenAlex
  40. Murray F. (2019). bibr39-13623613221132107 The Psychologist, 32, 44.
    Type: Other
    Crossref
  41. Peña E. V. (2019). Leaders around me: Autobiographies of autistics who type, point, & spell to communicate . Leaders around me: Autobiographies of autistics who type, point, & spell to communicate.
    Type: Other
    Crossref
  42. Sequenzia A. (2015). Typed words, loud voices: A collection . Typed words, loud voices: A collection.
    Type: Other
    Crossref
  43. Julia Sinclair (2012). Loud Hands: Autistic People Speaking . Loud hands: Autistic people, speaking, 223.
    Type: Other
    Crossref
  44. Spivak G. (1993). Outside in the teaching machine . Outside in the teaching machine, 179.
    Type: Other
    Crossref
  45. Stengers I. (2010). Cosmopolitics I . Cosmopolitics I.
    Type: Other
    Crossref
  46. Walker N. (2014). Neurodiversity: Some basic terms & definitions. https://neuroqueer.com/neurodiversity-terms-and-definitions/
    Type: Other
    Crossref