‘Something needs to change’: Mental health experiences of young autistic adults in England

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Crane, L., Adams, F., Harper, G., Welch, J., & Pellicano, E. (2018). ‘Something needs to change’: Mental health experiences of young autistic adults in England. Autism, 23(2), 477-493. https://doi.org/10.1177/1362361318757048

Publication date: 7 Feb 2018 Added to AutiHub: 14 Sep 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
5
Publication authors identified as autistic
1 / 5 (20.0%)
  1. Laura Crane
  2. Fern Adams
  3. Georgia Harper *
  4. Jack Welch
  5. Elizabeth Pellicano

Abstract

There is a high incidence and prevalence of mental health problems among young people, with several barriers to help-seeking noted in this group. High rates of mental health problems have also been reported in children and adults on the autism spectrum. Taken together, young autistic people may be a particularly vulnerable group when it comes to mental health. Yet, there has been remarkably little work on the mental health needs and experiences of young autistic adults (16–25 years). Adopting a community-based participatory research (CBPR) approach – in which academic researchers and young autistic adults collaborated in an equitable research partnership – we explored young autistic people’s experiences of mental health problems and their perspectives on the support they sought, if any, for these problems. A total of 130 young autistic adults took part in the research: 109 completed an online survey and 21 took part in detailed interviews. The results highlight how young autistic people find it difficult to evaluate their mental health, experience high levels of stigma and often face severe obstacles when trying to access mental health support. The findings also demonstrate how listening to – and learning from – young autistic people is crucial in ensuring that their mental health needs are met.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 14 Sep 2026 18:08.

Cited references
75
With a DOI
65
Without a DOI, from raw bibliography text
10
6 / 75 (8.0%) cited references include at least one author identified as autistic.
References with data to complete
6 / 75 (8.0%)
References with detected author names
72 / 75 (96.0%)
Without detected author names
3
Without a structured title
5
Without a stable identifier
9
References with raw author names still to review
2
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
276
From DOI or external metadata
276
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
4
97 / 276 (35.1%) names are linked to an author already present in AutiHub. 179 / 276 (64.9%) names are not yet linked.
Names linked to a person identified as autistic
17 / 276 (6.2%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 17 / 97 (17.5%). Distinct people identified as autistic: 7 / 223 (3.1%).
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