Autistic Perspectives on the Future of Clinical Autism Research
Pukki, H., Bettin, J., Outlaw, A. G., Hennessy, J., Brook, K., Dekker, M., Doherty, M., Shaw, S. C. K., Bervoets, J., Rudolph, S., Corneloup, T., Derwent, K., Lee, O., Garcia Rojas, Y., Lawson, W., Vidal Gutierrez, M., Petek, K., Tsiakkirou, M., Suoninen, A.,..., & Yoon, w. h. (2022). Autistic Perspectives on the Future of Clinical Autism Research. Autism in Adulthood, 4(2), 93-101. https://doi.org/10.1089/aut.2022.0017
Authors
Abstract
No structured abstract stored for this reference.
Bibliography cited by this reference
Cited references are imported from external metadata sources when they are available. The list may be partial.
Bibliography inclusion overview
These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.
-
K Horvath , G Stefanatos , K N Sokolski , R Wachtel , L Nabors , J T Tildon (1998). Improved social and language skills after secretin administration in patients with autistic spectrum disorders. J Assoc Acad Minor Phys, 9(1), 9.Type: Article OpenAlex: https://openalex.org/W48282315Crossref OpenAlex
-
Catherine Lord , Tony Charman , Alexandra Havdahl , Paul Carbone , Evdokia Anagnostou , Brian Boyd et al. (2022). The Lancet Commission on the future of care and clinical research in autism . The Lancet, 399(10321), 271-334. Elsevier BV.Crossref OpenAlex OpenCitations
-
Chloe X. Yap , Anjali K. Henders , Gail A. Alvares , David L.A. Wood , Lutz Krause , Gene W. Tyson et al. (2021). Autism-related dietary preferences mediate autism-gut microbiome associations . Cell, 184(24), 5916-5931.e17. Elsevier BV.Crossref OpenAlex OpenCitations
-
Elizabeth Pellicano , Adam Dinsmore , Tony Charman (2013). A future made together: shaping autism research in the UK . IOE EPrints.Type: Article OpenAlex: https://openalex.org/W150421255Crossref OpenAlex
-
(n.d.). The Global Autistic Task Force on Autism Research. An open letter to the Lancet Commission on the future of care and clinical research in autism. https://eucap.eu/2022/02/14/open-letter-to-lancet-commission/ Accessed February14 2022.Type: OtherCrossref
-
Tatja Hirvikoski , Ellenor Mittendorfer-Rutz , Marcus Boman , Henrik Larsson , Paul Lichtenstein , Sven Bölte (2016). Premature mortality in autism spectrum disorder . British Journal of Psychiatry, 208(3), 232-238. Royal College of Psychiatrists.Crossref OpenAlex OpenCitations
-
Brian Reichow , Erin E Barton , Brian A Boyd , Kara Hume (2012). Early intensive behavioral intervention (EIBI) for young children with autism spectrum disorders (ASD) . Cochrane Database of Systematic Reviews, 10, CD009260. Wiley.OpenAlex
-
Laura Roche , Dawn Adams , Megan Clark (2021). Research priorities of the autism community: A systematic review of key stakeholder perspectives . Autism, 25(2), 336-348. SAGE Publications.
-
Shenae Calleja , Fakir M. Amirul Islam , Jonathan Kingsley , Rachael McDonald (2020). Healthcare access for autistic adults . Medicine, 99(29), e20899. Ovid Technologies (Wolters Kluwer Health).Crossref OpenAlex OpenCitations
-
Damian Milton *Autistic author. Learn more… (2012). On the ontological status of autism: the ‘double empathy problem’ . Disability & Society, 27(6), 883-887. Informa UK Limited.
-
Elizabeth Pellicano , Adam Dinsmore , Tony Charman (2014). What should autism research focus upon? Community views and priorities from the United Kingdom . Autism, 18(7), 756-770. SAGE Publications.
-
Ye In Hwang , Preeyaporn Srasuebkul , Kitty‐Rose Foley , Samuel R. C. Arnold , Julian N Trollor (2019). Mortality and cause of death of Australians on the autism spectrum . Autism Research, 12(5), 806-815. Wiley.Crossref OpenAlex OpenCitations
-
Andrew McDonnell , Michael McCreadie , Richard Mills , Roy Deveau , Regine Anker , Judy Hayden (2015). The role of physiological arousal in the management of challenging behaviours in individuals with autistic spectrum disorders . Research in Developmental Disabilities, 36, 311-322. Elsevier BV.Crossref OpenAlex OpenCitations
-
(n.d.). Australian Autism Research Council. Research report on focus groups to identify research questions for community informed priority areas. https://www.autismcrc.com.au/aarc Accessed February2 2022.Type: OtherCrossref
-
Anna Stenning *Autistic author. Learn more… , Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… (2021). Neurodiversity studies: mapping out possibilities of a new critical paradigm . Disability & Society, 36(9), 1532-1537. Informa UK Limited.
-
George A. Rekers , O. Ivar Lovaas (1974). BEHAVIORAL TREATMENT OF DEVIANT SEX‐ROLE BEHAVIORS IN A MALE CHILD1 . Journal of Applied Behavior Analysis, 7(2), 173-190. Wiley.Crossref OpenAlex OpenCitations
-
(n.d.). Australian Autism Research Council. Draft Research Priorities for Consultation 2019. https://www.autismcrc.com.au/aar Accessed February2 2022.Type: OtherCrossref
-
Steven D. Stagg , Hannah Belcher (2019). Living with autism without knowing: receiving a diagnosis in later life . Health Psychology and Behavioral Medicine, 7(1), 348-361. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Evdokia Anagnostou , Latha Soorya , Jessica Brian , Annie Dupuis , Deepali Mankad , Sharon Smile et al. (2014). Intranasal oxytocin in the treatment of autism spectrum disorders: A review of literature and early safety and efficacy data in youth . Brain Research, 1580, 188-198. Elsevier BV.Crossref OpenAlex OpenCitations
-
Sissel Berge Helverschou , Trine Lise Bakken , Heidi Berge , Tale Gjertine Bjørgen , Henrik Botheim , Jane Askeland Hellerud et al. (2021). Preliminary Findings From a Nationwide, Multicenter Mental Health Service for Adults and Older Adolescents With Autism Spectrum Disorder and ID . Journal of Policy and Practice in Intellectual Disabilities, 18(2), 162-173. Wiley.Crossref OpenAlex OpenCitations
-
Dinah Murray *Autistic author. Learn more… , Mike Lesser *Autistic author. Learn more… , Wenn Lawson *Autistic author. Learn more… (2005). Attention, monotropism and the diagnostic criteria for autism . Autism, 9(2), 139-156. SAGE Publications.
-
(n.d.). Van den Bosch K Weve D. Report of the Autism Research Agenda: Mapping research needs of three interest groups the field of autism: adults parents and legal representatives [in Dutch]. Project Onderzoeksagenda Autisme the Netherlands Nijmegen The Hague. https://onderzoeksagenda-autisme.nl/rapport.pdf Accessed January27 2022.Type: OtherCrossref
-
Kate Cooper , Laura G. E. Smith , Ailsa Russell (2017). Social identity, self‐esteem, and mental health in autism . European Journal of Social Psychology, 47(7), 844-854. Wiley.Crossref OpenAlex OpenCitations
-
Kristen Gillespie-Lynch , Patricia J. Brooks , Fumio Someki , Rita Obeid , Christina Shane‐Simpson , Steven K. Kapp *Autistic author. Learn more… et al. (2015). Changing College Students’ Conceptions of Autism: An Online Training to Increase Knowledge and Decrease Stigma . Journal of Autism and Developmental Disorders, 45(8), 2553-2566. Springer Science and Business Media LLC.
-
(n.d.). The National Autistic Taskforce. The National Autistic Taskforce. https://nationalautistictaskforce.org.uk/ Accessed February1 2022.Type: OtherCrossref
-
Laura Spinney (2007). Therapy for autistic children causes outcry in France . The Lancet, 370(9588), 645-646. Elsevier BV.Crossref OpenAlex OpenCitations
-
(n.d.). Adventor. Naše cíle [Our goals]. https://www.adventor.org/o-nas/nase-cile Accessed February1 2022.Type: OtherCrossref
-
Jean Mercer (2014). International Concerns About Holding Therapy . Research on Social Work Practice, 24(2), 188-191. SAGE Publications.Crossref OpenAlex OpenCitations
-
(n.d.). A4A Ontario. Guides & Policy Papers. https://a4aontario.com/policy-statements-reports/ Accessed February1 2022.Type: OtherCrossref
-
Laura Crane , Caroline Hearst *Autistic author. Learn more… , Maria Ashworth , Jade Davies , Elisabeth L. Hill (2021). Supporting Newly Identified or Diagnosed Autistic Adults: An Initial Evaluation of an Autistic-Led Programme . Journal of Autism and Developmental Disorders, 51(3), 892-905. Springer Science and Business Media LLC.
-
Svend Erik Mouridsen , Henrik Brønnum-Hansen , Bente Rich , Torben Isager (2008). Mortality and causes of death in autism spectrum disorders . Autism, 12(4), 403-414. SAGE Publications.Crossref OpenAlex OpenCitations
-
(n.d.). Sinclair J. Autism Network International: The development of a community and its culture. https://www.autismnetworkinternational.org/History_of_ANI.html Accessed January27 2022.Type: OtherCrossref
-
Christine Holyfield , Kathryn D. R. Drager , Jennifer M. D. Kremkow , Janice Light (2017). Systematic review of AAC intervention research for adolescents and adults with autism spectrum disorder . Augmentative and Alternative Communication, 33(4), 201-212. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Christina Nicolaidis , Dora M Raymaker *Autistic author. Learn more… , Katherine McDonald , Sebastian Dern , Elesia Ashkenazy *Autistic author. Learn more… , W. Cody Boisclair *Autistic author. Learn more… et al. (2011). Collaboration Strategies in Nontraditional Community-Based Participatory Research Partnerships: Lessons From an Academic–Community Partnership With Autistic Self-Advocates . Progress in Community Health Partnerships: Research, Education, and Action, 5(2), 143-150. Project MUSE.
-
Dekker M. (2020). From exclusion to acceptance: Independent living on the autistic spectrum . In: Kapp S, ed. Autistic Community and the Neurodiversity Movement: Stories from the Frontline. Republic of Singapore, Singapore: Springer Nature Singapore,, 41.Type: OtherCrossref
-
Noah J. Sasson , Daniel J. Faso , Jack Nugent , Sarah Lovell , Daniel P. Kennedy , Ruth B. Grossman (2017). Neurotypical Peers are Less Willing to Interact with Those with Autism based on Thin Slice Judgments . Scientific Reports, 7(1), 40700-40700. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Eric V. Larsson , Scott D. Wright (2011). In Memoriam . The Behavior Analyst, 34(1), 111-114. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Nick Walker *Autistic author. Learn more… , Dora M Raymaker *Autistic author. Learn more… (2021). Toward a Neuroqueer Future: An Interview with Nick Walker . Autism in Adulthood, 3(1), 5-10. SAGE Publications.Crossref OpenAlex OpenCitations
-
Kristen Bottema‐Beutel , Steven K. Kapp *Autistic author. Learn more… , Jessica Nina Lester , Noah J. Sasson , Brittany N. Hand (2021). Avoiding Ableist Language: Suggestions for Autism Researchers . Autism in Adulthood, 3(1), 18-29. SAGE Publications.
-
Christina Nicolaidis (2012). What Can Physicians Learn from the Neurodiversity Movement? AMA Journal of Ethics, 14(6), 503-510. American Medical Association (AMA).Type: Article DOI: 10.1001/virtualmentor.2012.14.6.oped1-1206 OpenAlex: https://openalex.org/W2142098199
-
(n.d.). Fletcher-Watson S. Merging psychological theory with a neurodiversity framework for better autism interventions. The 31st European Academy of Childhood Disability (EACD) Conference. May 23–25 2019. Paris France. https://edu.eacd.org/node/697 Accessed January27 2022.Type: OtherCrossref
-
Kristen Bottema‐Beutel , Shannon Crowley , Micheal Sandbank , Tiffany G. Woynaroski (2021). Research Review: Conflicts of Interest (COIs) in autism early intervention research – a meta‐analysis of COI influences on intervention effects . Journal of Child Psychology and Psychiatry, 62(1), 5-15. Wiley.Crossref OpenAlex OpenCitations
-
Daniel A Rossignol , James J Bradstreet , Kyle Van Dyke , Cindy Schneider , Stuart H Freedenfeld , Nancy O’Hara et al. (2012). Hyperbaric oxygen treatment in autism spectrum disorders . Medical Gas Research, 2(1), 16. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Melissa Chapple , Philip Davis , Josie Billington , Joe Anthony Myrick , Cassie Ruddock , Rhiannon Corcoran (2021). Overcoming the Double Empathy Problem Within Pairs of Autistic and Non-autistic Adults Through the Contemplation of Serious Literature . Frontiers in Psychology, 12(July), 1. Frontiers Media SA.Crossref OpenAlex OpenCitations
-
Rachel Moseley *Autistic author. Learn more… , Julie Gamble-Turner , Chandler M. Spahr , Grant S. Shields , George M. Slavich (2021). Lifetime and perceived stress, social support, loneliness, and health in autistic adults. Health Psychology, 40(8), 556-568. American Psychological Association (APA).
-
Desiree R. Jones , Kilee M. DeBrabander , Noah J. Sasson (2021). Effects of autism acceptance training on explicit and implicit biases toward autism . Autism, 25(5), 1246-1261. SAGE Publications.Crossref OpenAlex OpenCitations
-
Brandon K. Ashinoff , Ahmad Abu-Akel (2021). Hyperfocus: the forgotten frontier of attention . Psychological Research, 85(1), 1-19. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Rachael Davis , Jacquiline den Houting *Autistic author. Learn more… , Anders Nordahl-Hansen , Sue Fletcher‐Watson (2021). Helping autistic children . Center for Open Science.AutiHub · Autistic Scholars Crossref
-
Lydia A Stewart , Li-Ching Lee (2017). Screening for autism spectrum disorder in low- and middle-income countries: A systematic review . Autism, 21(5), 527-539. SAGE Publications.Crossref OpenAlex OpenCitations
-
Ella Perry , Will Mandy , Laura Hull , Eilidh Cage (2022). Understanding Camouflaging as a Response to Autism-Related Stigma: A Social Identity Theory Approach . Journal of Autism and Developmental Disorders, 52(2), 800-810. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Edmund Sonuga-Barke , Anita Thapar (2021). The neurodiversity concept: is it helpful for clinicians and scientists? The Lancet Psychiatry, 8(7), 559-561. Elsevier BV.Crossref OpenAlex
-
Jack Price (2020). Cell therapy approaches to autism: a review of clinical trial data . Molecular Autism, 11(1), 37-37. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Nicholas Chown *Autistic author. Learn more… , Jackie Robinson , Luke Beardon , Jillian Downing , Elizabeth Hughes , Julia Leatherland et al. (2017). Improving research about us, with us: a draft framework for inclusive autism research . Disability & Society, 32(5), 720-734. Informa UK Limited.
-
Elizabeth Pellicano , Jacquiline den Houting *Autistic author. Learn more… (2022). Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science . Journal of Child Psychology and Psychiatry, 63(4), 381-396. Wiley.
-
Laura Hull , Lily Levy , Meng-Chuan Lai , K. V. Petrides , Simon Baron-Cohen , Carrie Allison et al. (2021). Is social camouflaging associated with anxiety and depression in autistic adults? Molecular Autism, 12(1), 13-13. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Jo Bervoets *Autistic author. Learn more… , Kristien Hens (2020). Going Beyond the Catch-22 of Autism Diagnosis and Research. The Moral Implications of (Not) Asking “What Is Autism?” . Frontiers in Psychology, 11, 529193-529193. Frontiers Media SA.
-
Sue Fletcher‐Watson , Jonathan Adams *Autistic author. Learn more… , Kabie Brook *Autistic author. Learn more… , Tony Charman , Laura Crane , James Cusack *Autistic author. Learn more… et al. (2019). Making the future together: Shaping autism research through meaningful participation . Autism, 23(4), 943-953. SAGE Publications.
-
(n.d.). Williams K. The fallacy of functioning labels. The National Centre for Mental Health. 2019. https://www.ncmh.info/2019/04/04/fallacy-functioning-labels/ Accessed February1 2022.Type: OtherCrossref
-
Anne V. Kirby , Amanda V. Bakian , Yue Zhang , Deborah A. Bilder , Brooks R. Keeshin , Hilary Coon (2019). A 20‐year study of suicide death in a statewide autism population . Autism Research, 12(4), 658-666. Wiley.Crossref OpenAlex OpenCitations
-
Pierre Delion , Julien Labreuche , Dominique Deplanque , David Cohen , Alain Duhamel , Céline Lallié et al. (2018). Therapeutic body wraps (TBW) for treatment of severe injurious behaviour in children with autism spectrum disorder (ASD): A 3-month randomized controlled feasibility study . PLOS ONE, 13(6), e0198726. Public Library of Science (PLoS).Crossref OpenAlex OpenCitations
-
Silke Lipinski *Autistic author. Learn more… , Elisabeth S. Blanke , Ulrike Suenkel , Isabel Dziobek (2019). Outpatient Psychotherapy for Adults with High-Functioning Autism Spectrum Condition: Utilization, Treatment Satisfaction, and Preferred Modifications . Journal of Autism and Developmental Disorders, 49(3), 1154-1168. Springer Science and Business Media LLC.
-
Rachel Holden , Joanne Mueller , John McGowan , Jyoti Sanyal , Maxim Kikoler , Emily Simonoff et al. (2020). Investigating Bullying as a Predictor of Suicidality in a Clinical Sample of Adolescents with Autism Spectrum Disorder . Autism Research, 13(6), 988-997. Wiley.Crossref OpenAlex OpenCitations
-
Christina Nicolaidis , Dora M Raymaker *Autistic author. Learn more… , Steven K. Kapp *Autistic author. Learn more… , Amelia E.V. Baggs , Elesia Ashkenazy *Autistic author. Learn more… , Katherine McDonald et al. (2019). The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants . Autism, 23(8), 2007-2019. SAGE Publications.
-
Sarah Cassidy , Ashley Robertson , Ellen Townsend , Rory C. O’Connor , Jacqui Rodgers (2020). Advancing Our Understanding of Self-harm, Suicidal Thoughts and Behaviours in Autism . Journal of Autism and Developmental Disorders, 50(10), 3445-3449. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Leann Smith DaWalt , Jinkuk Hong , Jan S Greenberg , Marsha R Mailick (2019). Mortality in individuals with autism spectrum disorder: Predictors over a 20-year period . Autism, 23(7), 1732-1739. SAGE Publications.Crossref OpenAlex OpenCitations
-
Damian Milton *Autistic author. Learn more… , Susy Ridout , Marianthi Kourti *Autistic author. Learn more… , Gillian Loomes , Nicola Martin (2019). A critical reflection on the development of the Participatory Autism Research Collective (PARC) . Tizard Learning Disability Review, 24(2), 82-89. Emerald.
-
Inês Hipólito , Daniel D. Hutto , Nicholas Chown *Autistic author. Learn more… (2020). Understanding autistic individuals . In Neurodiversity Studies (pp. 193-209). Routledge.Crossref OpenAlex OpenCitations
-
Lipinski S (n.d.). Präferenzen erwachsener Autist_innen bei Teilnahme an wissenschaftlichen Studien . Präferenzen erwachsener Autist_innen bei Teilnahme an wissenschaftlichen Studien.Type: OtherCrossref
-
Aileen Herlinda Sandoval-Norton , Gary Shkedy , Dalia Shkedy (2019). How much compliance is too much compliance: Is long-term ABA therapy abuse? Cogent Psychology, 6(1), 1641258. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Elizabeth Pellicano (n.d.). Pellicano E.,, Lawson W,, Hall G, et al. “I Knew She'd Get It, and Get Me”: Participants' perspectives of a Participatory Autism Research Project. Autism Adulthood. 2021 [Epub ahead of print]; DOI:10. 1089/aut. 2021. 0039 Autism Adulthood.Type: OtherCrossref
-
Robert Chapman *Autistic author. Learn more… (2020). Defining neurodiversity for research and practice . In Neurodiversity Studies (pp. 218-220). Routledge.
-
Alison Jayne Doherty , Helen Atherton , Paul Boland , Richard P. Hastings , Lucy Hives , Kerry Hood et al. (2020). Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review . BJGP Open, 4(3), bjgpopen20X101030. Royal College of General Practitioners.Crossref OpenAlex OpenCitations
-
Clair Haydon , Mary Doherty *Autistic author. Learn more… , I. A. Davidson (2021). Autism: making reasonable adjustments in healthcare . British Journal of Hospital Medicine, 82(12), 1-11. IMR Press.
-
Mary Doherty *Autistic author. Learn more… , Stuart Neilson , Jane O’Sullivan , Laura Carravallah *Autistic author. Learn more… , Mona Johnson *Autistic author. Learn more… , Walter Cullen et al. (2022). Barriers to healthcare and self-reported adverse outcomes for autistic adults: a cross-sectional study . BMJ Open, 12(2), e056904. BMJ.
-
Karen Leneh Buckle *Autistic author. Learn more… , Kathy Leadbitter , Ellen Poliakoff , Emma Gowen (2021). “No Way Out Except From External Intervention”: First-Hand Accounts of Autistic Inertia . Frontiers in Psychology, 12, 631596-631596. Frontiers Media SA.
-
Natasha Malik-Soni , Andrew Shaker , Helen Luck , Anne E. Mullin , Ryan E. Wiley , M. E. Suzanne Lewis et al. (2022). Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood . Pediatric Research, 91(5), 1028-1035. Springer Science and Business Media LLC.OpenAlex OpenCitations
-
Jim Sinclair *Autistic author. Learn more… (2010). Being Autistic Together . Disability Studies Quarterly, 30(1). The Ohio State University Libraries.AutiHub · Autistic Scholars Crossref
-
Connor Tom Keating (2021). Participatory Autism Research: How Consultation Benefits Everyone . Frontiers in Psychology, 12, 713982-713982. Frontiers Media SA.Crossref OpenAlex OpenCitations
-
Fulton R (2020). Sensory Trauma—Autism Sensory Difference and the Daily Experience of Fear . Sensory Trauma: Autism, Sensory Difference and the Daily Experience of Fear.Type: OtherCrossref
-
(n.d.). Bettin J. Nurturing good company one trusted relationship at a time. 2021. https://autcollab.org/2021/07/25/nurturing-good-company-one-trusted-relationship-at-a-time/ Accessed January27 2022.Type: OtherCrossref
-
Kathy Leadbitter , Karen Leneh Buckle *Autistic author. Learn more… , Ceri Ellis , Martijn Dekker *Autistic author. Learn more… (2021). Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice . Frontiers in Psychology, 12(635690), 635690-635690. Frontiers Media SA.
-
Dawn Adams , Kate Young (2021). A Systematic Review of the Perceived Barriers and Facilitators to Accessing Psychological Treatment for Mental Health Problems in Individuals on the Autism Spectrum . Review Journal of Autism and Developmental Disorders, 8(4), 436-453. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Malik-Soni N (n.d.). Malik-Soni N,, Shaker A,, Luck H, et al. Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood. Pediatr Res. 2021 [Epub ahead of print]; DOI:10. 1038/s41390-021-01465-y Pediatr Res.Type: OtherCrossref
-
Arianna Manzini , Emily J.H. Jones , Tony Charman , Mayada Elsabbagh , Mark H. Johnson , Ilina Singh (2021). Ethical dimensions of translational developmental neuroscience research in autism . Journal of Child Psychology and Psychiatry, 62(11), 1363-1373. Wiley.Crossref OpenAlex OpenCitations
-
Silke Lipinski *Autistic author. Learn more… , Katharina Boegl , Elisabeth S. Blanke , Ulrike Suenkel , Isabel Dziobek (2022). A blind spot in mental healthcare? Psychotherapists lack education and expertise for the support of adults on the autism spectrum . Autism, 26(6), 1509-1521. SAGE Publications.
-
Elizabeth Pellicano , Wenn Lawson *Autistic author. Learn more… , Gabrielle Hall *Autistic author. Learn more… , Joanne Mahony , Rozanna Lilley , Melanie Heyworth *Autistic author. Learn more… et al. (2022). “I Knew She'd Get It, and Get Me”: Participants' Perspectives of a Participatory Autism Research Project . Autism in Adulthood, 4(2), 120-129. SAGE Publications.
-
Kathleen Bauer , Kristi L. Morin , Theodore E. Renz , Sinenhlanhla Zungu (2022). Autism Assessment in Low- and Middle-Income Countries: Feasibility and Usability of Western Tools . Focus on Autism and Other Developmental Disabilities, 37(3), 179-188. SAGE Publications.OpenAlex OpenCitations
-
A4A and the Campaign Against Phony Autism Cures (2021): Canadian Govt Consulting Document: Combating Phony Autism Treatments. https://a4aontario.com/2021/05/31/canadian-govt-consulting-document-combating-phony-autism-treatments/ Accessed January27 2022.Type: OtherCrossref
-
Autistic Self Advocacy Network (2020): ASAN leads letter on supporters in hospitals. https://autisticadvocacy.org/2020/05/asan-leads-letter-on-supporters/ Accessed February1 2022Type: OtherCrossref
-
Brian Reichow , Kara Hume , Erin E Barton , Brian A Boyd (2018). Early intensive behavioral intervention (EIBI) for young children with autism spectrum disorders (ASD) . Cochrane Database of Systematic Reviews, 2018(10). Wiley.Crossref OpenAlex
-
(n.d.). A4A Ontario. Letter to Public Health Ontario: Create uniform protocols for disabled patients' communication access. https://a4aontario.com/2020/05/05/letter-to-public-health-ontario-create-uniform-protocols-for-disabled-patients-communication-access-in-hospitals/ Accessed February1 2022.Type: OtherCrossref
-
Bauer K (2022). Bauer K,, Morin KL,, Renz TE,, Zungu S,. Autism assessment in low- and middle-income countries: Feasibility and usability of Western Tools. Focus Autism Other Dev Disabil. 2022 [Epub ahead of print]; DOI:10. 1177/10883576211073691 Focus Autism Other Dev Disabil.Type: OtherCrossref
-
Union of the Physically Impaired Against Segregation (1976): (1976). Fundamental Principles of Disability: Being a Summary of the Discussion Held on 22nd November, 1975 and Containing Commentaries from Each Organisation . Fundamental Principles of Disability: Being a Summary of the Discussion Held on 22nd November, 1975 and Containing Commentaries from Each Organisation.Type: OtherCrossref
-
Degener T. (2016). A human rights model of disability . In: Blanck P, Flynn E, eds.Routledge Handbook of Disability Law and Human Rights. Abingdon, UK: Routledge;, 31.Type: OtherCrossref
-
Sanz-Cervera P (2018). The effectiveness of TEACCH intervention in autism spectrum disorder: A review study . Papeles del Psicólogo, 39(1), 40.Type: OtherCrossref
-
(n.d.). Xinhua News Agency. China launches large-scale autism study using fecal transplant therapy. www.china.org.cn/china/Off_the_Wire/2022-01/22/content_78005649.htm Accessed January27 2022.Type: OtherCrossref
-
(n.d.). Suomen Autismikirjon Yhdistys Organiserade Aspergare Eesti Aspergerite Ühing. Response to the European Medicines Agency regarding’ Draft guideline on the clinical development of medicinal products for the treatment of Autism Spectrum Disorder’. 2016. https://asy.fi/response-to-ema-guideline/ Accessed January27 2022.Type: OtherCrossref
-
(n.d.). Corneloup T. L'urgence de la désinstitutionnalisation: L'évaluation de la France sur la CDPH/The urgency for deinstitutionalization: CRPD and the evaluation of France. Presentation at the Autistic Advocacy Across Europe online conference. November 27 2021. https://youtu.be/CV7ZBZXkyFE Accessed January27 2022.Type: OtherCrossref
-
(n.d.). United States Department of Defense. Report to the Committees on Armed Services of the Senate and House of Representatives: The Department of Defense Comprehensive Autism Care Demonstration Annual Report. 2020. https://health.mil/Reference-Center/Congressional-Testimonies/2020/06/25/Annual-Report-on-Autism-Care-Demonstration-Program Accessed January27 2022.Type: OtherCrossref
-
Elizabeth Pellicano (2017). Participatory Autism Research: A Starter Pack . Participatory autism research: A starter pack.Type: OtherCrossref
-
(n.d.). The National Autistic Taskforce. An Independent Guide to Quality Care for Autistic People. United Kingdom: The National Autistic Taskforce; 2019. https://nationalautistictaskforce.org.uk/an-independent-guide-to-quality-care-for-autistic-people/ Accessed January27 2022.Type: OtherCrossref
-
(n.d.). Lipinski S Suoninen A Weve D. EUCAP survey data as a means to support advocacy. Presentation at the Autistic Advocacy Across Europe Online Conference. 2021. https://youtu.be/EDWasd9MJ8o Accessed February1 2022.Type: OtherCrossref
-
(n.d.). Autistic Self-Advocacy Network. For whose benefit? Evidence ethics and effectiveness of autism interventions. https://autisticadvocacy.org/policy/briefs/intervention-ethics/ Accessed January27 2022.Type: OtherCrossref
-
(n.d.). Doherty M. Spectrum 10K and Cognitive Dissonance in Autism Research. 2021. www.thinkingautismguide.com/2021/10/spectrum-10k-and-cognitive-dissonance.html Accessed February6 2022.Type: OtherCrossref
-
Kumagaya S. (2017). Informational support design aiming for the accommodation of individuals with autism spectrum disorders based on the social model of disability . J Natl Inst Public Health, 66(5), 532.Type: OtherCrossref