« Un soutien constant est bon pour ma santé mentale » — Exploration de l'expérience vécue de la santé mentale chez les personnes autistes

Titre original en anglais : “Consistent Support Is Good for My Mental Health”—Exploring the Lived Experience of Autistic Mental Health

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Browne, K., Lawson, W., McGarry, S., Scott, M., Girdler, S., & Milbourn, B. (2024). “Consistent Support Is Good for My Mental Health”—Exploring the Lived Experience of Autistic Mental Health. Autism in Adulthood, 8(3), 443-456. https://doi.org/10.1089/aut.2024.0141

Date de publication: 10/10/2024 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
6
Auteur·ices de la publication identifié·es comme autistes
1 / 6 (16,7 %)
  1. Katherine Browne
  2. Wenn Lawson *
  3. Sarah McGarry
  1. Melissa Scott
  2. Sonya Girdler
  3. Ben Milbourn

Résumé

Contexte : La littérature indique que la santé mentale des personnes autistes est considérablement moins bonne que celle de la population générale. Les maladies mentales, telles que la dépression et l'anxiété, qui contribuent à des taux élevés de suicide, occupent une place importante dans la recherche. Cependant, peu d'études ont examiné l'expérience vécue de la santé mentale tout au long de la vie, qui inclut l'expérience d'une santé mentale positive. Cette recherche a examiné l'expérience vécue de la santé mentale chez des adultes autistes. Méthode : Nous avons utilisé une analyse thématique réflexive, étayée par un cadre de coproduction, afin d'explorer les expériences de santé mentale. Grâce à une coproduction avec un groupe de pilotage composé d'adultes autistes afin d'éclairer les questions, nous avons mené des entretiens semi-structurés avec 20 adultes autistes australiens, diagnostiqués à l'adolescence ou à l'âge adulte. Résultats : L'analyse thématique a identifié quatre thèmes principaux, notamment la découverte de l'identité autiste, le corps et l'esprit, les liens avec la famille et la communauté, ainsi que le choix et le contrôle. Les participants ont rapporté des expériences de vie très hétérogènes, avec des expériences intenses de santé mentale, tant positives que négatives. Tous les participants ont connu des difficultés de santé mentale, et la plupart avaient connu une maladie mentale diagnostiquée. Les facteurs de protection qui atténuaient les risques de maladie mentale comprenaient des environnements favorables, des relations et des attitudes sociétales positives. Conclusion : Bien que certains des thèmes soient universels, certains sous-thèmes, tels que l'importance des stimulations sensorielles et le morphing adaptatif visant à dissimuler les traits autistiques, n'apparaissent pas dans la littérature sur la santé mentale des personnes non autistes. Ces facteurs, qui sont fréquemment liés entre eux, peuvent être négligés par les prestataires de soins de santé mentale. Les résultats de cette recherche soulignent que, afin de favoriser des résultats positifs en matière de santé mentale, il est fortement nécessaire que les thérapies et les soutiens liés au handicap soient ciblés et conçus sur mesure pour chaque personne.

Background: Literature indicates that mental health of autistic individuals is substantially poorer than that of the general population. Mental illnesses, such as depression and anxiety, which contribute to high suicide rates, feature prominently in research. Few studies, however, have considered the lived experience of mental health across the lifespan, which includes the experience of positive mental health. This research investigated the lived experience of mental health of autistic adults. Method: We used reflexive thematic analysis, underpinned by a coproduction framework, to explore mental health experiences. Through coproduction with a steering group of autistic adults to inform the questions, we conducted semi-structured interviews with 20 Australian autistic adults, diagnosed in adolescence or adulthood. Results: The thematic analysis identified four main themes, including discovering autistic identity, body and mind, connections to family and community, and choice and control. Participants reported highly heterogenous life experiences, with intense experiences of mental health, both positive and negative. All participants experienced mental health challenges, and most had experienced a diagnosed mental illness. Protective factors that mitigated against mental illness included supportive environments, relationships, and positive societal attitudes. Conclusion: While some of the themes are universal, some of the subthemes, such as the significance of sensory input and adaptive morphing to hide autistic traits, do not feature in non-autistic mental health literature. These factors, which frequently interrelate, may be overlooked by mental health care providers. The findings of this research emphasize that in order to support positive mental health outcomes, there is a strong need for therapies and disability supports to be targeted and tailor-made to the individual.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
100
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
15 / 100 (15,0 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
22 / 401 (5,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 22 / 199 (11,1 %). Auteurices cité·es distinct·es identifié·es comme autistes : 15 / 338 (4,4 %).
Occurrences citées rattachées à la base AutiHub
199 / 401 (49,6 %)
Auteurices cité·es distinct·es rattaché·es : 139 / 338 (41,1 %)
Occurrences rattachées, non identifiées comme autistes
177 / 199 (88,9 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 177 / 401 (44,1 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 124 / 139 (89,2 %).
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