Par des personnes autistes pour des personnes autistes : acceptabilité d'un service structuré de soutien par les pairs selon des parties prenantes clés

Titre original en anglais : For autistic persons by autistic persons: Acceptability of a structured peer support service according to key stakeholders

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Valderrama, A., Martínez, A., Charlebois, K., Guerrero, L., & d’Arc, B. F. (2022). For autistic persons by autistic persons: Acceptability of a structured peer support service according to key stakeholders. Health Expectations, 26(1), 463-475. https://doi.org/10.1111/hex.13680

Date de publication: 29/11/2022 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)
  1. Alena Valderrama
  2. Alejandra Martínez
  3. Kathleen Charlebois
  4. Lucila Guerrero *
  5. Baudouin Forgeot d’Arc

Résumé

INTRODUCTION : Le soutien social est un facteur de protection de la santé mentale des personnes autistes. En outre, les préjugés concernant les personnes autistes constituent une contrainte au développement de programmes de soutien social par des pairs autistes. MÉTHODES : L'objectif de cette étude est de décrire l'acceptabilité anticipée de programmes structurés de soutien par les pairs destinés aux personnes autistes et proposés par elles. Quinze parties prenantes clés (six adultes autistes, quatre aidants et cinq prestataires de services) ont participé à des entretiens approfondis semi-structurés. Une analyse thématique qualitative du contenu des verbatims a été réalisée. RÉSULTATS : Nous avons constaté que, bien qu'un programme structuré de soutien social par les pairs soit acceptable pour les personnes autistes et les aidants, aucun consensus n'a été observé parmi les prestataires de services. Ces derniers ont exprimé des doutes quant à la capacité des personnes autistes à offrir du soutien. L'encadrement des discussions entre pairs, la formation des aidants pairs, le soutien au leadership autiste et une organisation qui tient compte des caractéristiques communicationnelles et sensorielles des personnes autistes pourraient influencer l'adhésion à un tel programme. De plus, un espace sans prestataires de services est une condition importante de l'acceptabilité d'un programme de soutien par les pairs. CONCLUSION : Un service structuré de soutien par les pairs destiné aux personnes autistes et proposé par elles pourrait constituer une manière innovante de répondre aux besoins de soutien non satisfaits des personnes autistes. Il semble essentiel d'anticiper les obstacles et les facilitateurs potentiels et de communiquer entre professionnels de santé afin de promouvoir cette approche et de réduire les préjugés possibles concernant la capacité des personnes autistes à offrir du soutien à leurs pairs. Davantage d'études sont nécessaires. CONTRIBUTION DES PATIENTS OU DU PUBLIC : Quinze parties prenantes clés impliquées dans le parcours de services et de soutien des personnes autistes ont participé à cette recherche. Nous sommes une équipe de recherche composée de professionnels de santé et de chercheurs, dont un membre est un défenseur autiste et un mentor pair en santé mentale. Deux membres de notre équipe sont également parents d'enfants autistes. La compréhensibilité des questions de l'entretien a été examinée et discutée avec un défenseur autiste collaborateur.

INTRODUCTION: Social support is a protective factor in the mental health of autistic people. Furthermore, prejudice regarding autistic people is a constraint for the development of social support programmes by autistic peers. METHODS: The objective of this study is to describe the anticipated acceptability of structured peer support programmes for and by autistic persons. Fifteen key stakeholders (six autistic adults, four caregivers and five service providers) participated in in-depth semistructured interviews. A qualitative thematic analysis of the content of the verbatim was carried out. FINDINGS: We found that while a structured peer social support programme is acceptable to autistic people and caregivers, there was no consensus among service providers. The latter expressed doubts about the ability of autistic people to offer support. The framing of discussions between peers, the training of peer helpers, the support for autistic leadership and an organization that considers the communicational and sensory characteristics of autistic persons, could influence adherence to such a programme. Moreover, a space without service providers is an important condition for the acceptability of a peer support programme. CONCLUSION: A structured peer support service for and by autistic persons could be an innovative way to answer the unmet support needs of autistic people. It seems essential to anticipate potential barriers and facilitators and to communicate among health professionals to promote this approach and reduce possible prejudice about the ability of autistic people to offer support to their peers. More studies are necessary. PATIENT OR PUBLIC CONTRIBUTION: Fifteen key stakeholders who are involved in autistic people's trajectory of service and support participated in this research. We are a research team composed of healthcare professionals and researchers, in addition to one member of our team being an autistic advocate and a mental health peer-support mentor. Two members of our team are also parents of autistic children. The comprehensibility of the questions for the interview was consulted and discussed with one autistic advocate-collaborator.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
64
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
10 / 64 (15,6 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
13 / 245 (5,3 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 13 / 74 (17,6 %). Auteurices cité·es distinct·es identifié·es comme autistes : 11 / 234 (4,7 %).
Occurrences citées rattachées à la base AutiHub
74 / 245 (30,2 %)
Auteurices cité·es distinct·es rattaché·es : 65 / 234 (27,8 %)
Occurrences rattachées, non identifiées comme autistes
61 / 74 (82,4 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 61 / 245 (24,9 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 54 / 65 (83,1 %).
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