Savoir quoi faire : exploration des significations du développement et du soutien par les pairs destinés aux personnes autistes

Titre original en anglais : Knowing what to do: exploring meanings of development and peer support aimed at people with autism

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Bertilsdotter Rosqvist, H. (2018). Knowing what to do: exploring meanings of development and peer support aimed at people with autism. International Journal of Inclusive Education, 23(2), 174-187. https://doi.org/10.1080/13603116.2018.1427807

Date de publication: 30/01/2018 Ajout dans AutiHub: 04/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
1
Auteur·ices de la publication identifié·es comme autistes
1 / 1 (100,0 %)
  1. Hanna Bertilsdotter Rosqvist *

Résumé

Les personnes non autistes sont fréquemment décrites comme étant les mieux placées pour apporter un soutien aux personnes autistes. Mais que pourrait signifier le soutien par les pairs autistes, où la personne apportant le soutien est une autre personne autiste ? L'objectif de cet article est d'explorer différentes significations du développement et du soutien par les pairs sur un lieu de travail réservé aux personnes autistes en Suède. Les analyses de cet article reposent sur des données issues d'un travail de terrain mené auprès d'un groupe d'autoreprésentants autistes en Suède. Le groupe travaille ensemble dans le cadre d'un projet de trois ans dirigé par des autistes, visant à soutenir de jeunes adultes autistes au moyen de stratégies de vie et d'un mentorat entre pairs, ainsi qu'à informer les employeurs sur les capacités autistes. Au sein du groupe, l'idée d'un développement autiste alternatif à cultiver et à soutenir par le soutien des pairs autistes est mise en avant. Le soutien aux personnes autistes doit reposer sur une compréhension du fonctionnement autiste et des manières de se développer et d'apprendre. Cela comprend un soutien des fonctions exécutives, la formulation d'objectifs et d'aspirations futures, un soutien pour apprendre à connaître ses capacités, accueillir et valoriser ses forces et ses intérêts, et apprendre à connaître ses difficultés, y compris les stratégies permettant de les gérer, sans renforcer un sentiment d'échec.

Non-autistic people is frequently described as best positioned to provide support to autistic people. But what could autistic peer support, where the support actor is another person with autism, mean? The aim of this paper is to explore different meanings of development and peer support at an autistic-only work place in Sweden. The analyses in this paper is based on data from a field work among a group of autistic self-advocates in Sweden. The group is working together in a three-year autist led project aiming at supporting young adults with autism with life strategies and with peer-to-peer mentoring as well as educating employers about autistic abilities. In the group ideas of an alternative autistic development to be nurtured and supported by autistic peer support is brought forward. Support to autistic people has to be based on understandings on autistic functionality and ways of developing and learning. This includes support in executive function, formulating goals and future aspirations, support in to get to know your abilities, embrace and cherish your strengths and interests, and get to know your difficulties including strategies to manage them, without reinforcing a sense of failure.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
51
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
3 / 51 (5,9 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
3 / 158 (1,9 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 3 / 13 (23,1 %). Auteurices cité·es distinct·es identifié·es comme autistes : 2 / 148 (1,4 %).
Occurrences citées rattachées à la base AutiHub
13 / 158 (8,2 %)
Auteurices cité·es distinct·es rattaché·es : 11 / 148 (7,4 %)
Occurrences rattachées, non identifiées comme autistes
10 / 13 (76,9 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 10 / 158 (6,3 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 9 / 11 (81,8 %).
  1. T G Haring , C G Breen , V Pitts-Conway , R Gaylord-Ross (1986). Use of differential reinforcement of other behavior during dyadic instruction to reduce stereotyped behavior of autistic students. American Journal of Mental Deficiency, 90(6), 694.
    Type: Article OpenAlex: https://openalex.org/W21561696
    Crossref OpenAlex
  2. Jill Aylott (2000). Autism in adulthood: the concepts of identity and difference . British Journal of Nursing, 9(13), 851-858. Mark Allen Group.
    Type: Article DOI: 10.12968/bjon.2000.9.13.5513 OpenAlex: https://openalex.org/W2123005811
    Crossref OpenAlex OpenCitations
  3. Andrea MacLeod (2010). ‘Welcome to my first rant!’ Report on a participatory pilot project to develop the ‘AS portal’, an online peer support network for higher education students on the autism spectrum . Journal of Assistive Technologies, 4(1), 14-24. Emerald.
    Type: Article DOI: 10.5042/jat.2010.0041 OpenAlex: https://openalex.org/W2019842821
    Crossref OpenAlex OpenCitations
  4. Kristin K. Higgins , Lynn C. Koch , Erica M. Boughfman , Courtney Vierstra (2008). School-to-work transition and Asperger Syndrome . WORK: A Journal of Prevention, Assessment & Rehabilitation, 31(3), 291-298. SAGE Publications.
    Type: Article DOI: 10.3233/wor-2008-00783 OpenAlex: https://openalex.org/W21578635
    Crossref OpenAlex
  5. Angela B. Barber , Rachel W. Saffo , Ansley T. Gilpin , Lydia D. Craft , Howard Goldstein (2016). Peers as clinicians: Examining the impact of Stay Play Talk on social communication in young preschoolers with autism . Journal of Communication Disorders, 59, 1-15. Elsevier BV.
    Type: Article DOI: 10.1016/j.jcomdis.2015.06.009 OpenAlex: https://openalex.org/W1191115934
    Crossref OpenAlex OpenCitations
  6. Amy L. Weiss , Pamela Rohland (2015). Implementing a Communication Coaching Program for Students with Autism Spectrum Disorders in Postsecondary Education . Topics in Language Disorders, 35(4), 345-361. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/tld.0000000000000071 OpenAlex: https://openalex.org/W2463721171
    Crossref OpenAlex OpenCitations
  7. Gerard Goggin , Christopher Newell (2005). Disability Studies Quarterly .
    Type: Article OpenAlex: https://openalex.org/W183375648
    OpenAlex
  8. S. Benaroya , S. Wesley , H. Ogilvie , L. S. Klein , M. Meaney (1977). Sign language and multisensory input training of children with communication and related developmental disorders . Journal of Autism and Childhood Schizophrenia, 7(1), 23-31. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/bf01531112 OpenAlex: https://openalex.org/W4323966158
    Crossref OpenAlex OpenCitations
  9. Marjorie H. Charlop , Janice P. Milstein (1989). TEACHING AUTISTIC CHILDREN CONVERSATIONAL SPEECH USING VIDEO MODELING . Journal of Applied Behavior Analysis, 22(3), 275-285. Wiley.
    Type: Article DOI: 10.1901/jaba.1989.22-275 OpenAlex: https://openalex.org/W2015808160
    Crossref OpenAlex OpenCitations
  11. Kelly A. Carlile , Sharon A. Reeve , Kenneth F. Reeve , Ruth M. DeBar (2013). Using Activity Schedules on the iPod touch to Teach Leisure Skills to Children with Autism . Education and Treatment of Children, 36(2), 33-57. Project MUSE.
    Type: Article DOI: 10.1353/etc.2013.0015 OpenAlex: https://openalex.org/W2013357654
    Crossref OpenAlex OpenCitations
  12. Sara Freitag , Sandra Dunsmuir (2015). The Inclusion of Children with ASD: Using the Theory of Planned Behaviour as a Theoretical Framework to Explore Peer Attitudes . International Journal of Disability, Development and Education, 62(4), 405-421. Informa UK Limited.
    Type: Article DOI: 10.1080/1034912x.2015.1046818 OpenAlex: https://openalex.org/W1491815360
    Crossref OpenAlex OpenCitations
  13. Maureen Black , B. J. Freeman , Joanne Montgomery (1975). Systematic observation of play behavior in autistic children . Journal of Autism and Childhood Schizophrenia, 5(4), 363-371. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/bf01540682 OpenAlex: https://openalex.org/W2092139943
    Crossref OpenAlex OpenCitations
  14. Mathias Lasgaard , Annette Nielsen , Mette E. Eriksen , Luc Goossens (2010). Loneliness and Social Support in Adolescent Boys with Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 40(2), 218-226. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-009-0851-z OpenAlex: https://openalex.org/W2101718074
    Crossref OpenAlex OpenCitations
  15. E. Amanda Boutot (2007). Fitting In . Intervention in School and Clinic, 42(3), 156-161. SAGE Publications.
    Type: Article DOI: 10.1177/10534512070420030401 OpenAlex: https://openalex.org/W2136715277
    Crossref OpenAlex OpenCitations
  16. Neil Humphrey , Judith Hebron (2015). Bullying of children and adolescents with autism spectrum conditions: a ‘state of the field’ review . International Journal of Inclusive Education, 19(8), 845-862. Informa UK Limited.
    Type: Article DOI: 10.1080/13603116.2014.981602 OpenAlex: https://openalex.org/W2036366806
    Crossref OpenAlex OpenCitations
  17. Jim Sinclair * (2010). Being Autistic Together . Disability Studies Quarterly, 30(1). The Ohio State University Libraries.
    Type: Article DOI: 10.18061/dsq.v30i1.1075 OpenAlex: https://openalex.org/W1565875767
    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
  18. Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.
    Type: Article DOI: 10.1191/1478088706qp063oa OpenAlex: https://openalex.org/W1979290264
    Crossref OpenAlex OpenCitations
  19. Erik W. Carter , Lynn G. Sisco , Lissa Brown , Dana Brickham , Zainab A. Al-Khabbaz (2008). Peer Interactions and Academic Engagement of Youth With Developmental Disabilities in Inclusive Middle and High School Classrooms . American Journal on Mental Retardation, 113(6), 479-494. Informa UK Limited.
    Type: Article DOI: 10.1352/2008.113:479-494 OpenAlex: https://openalex.org/W2154904412
    Crossref OpenAlex OpenCitations
  20. Lynn Kern Koegel , Kristen Ashbaugh , Robert L. Koegel , Whitney J. Detar , April Regester (2013). INCREASING SOCIALIZATION IN ADULTS WITH ASPERGER'S SYNDROME . Psychology in the Schools, 50(9), 899-909. Wiley.
    Type: Article DOI: 10.1002/pits.21715 OpenAlex: https://openalex.org/W1596684077
    Crossref OpenAlex OpenCitations
  21. Gary B. Mesibov , Victoria Shea (1996). Full inclusion and students with autism . Journal of Autism and Developmental Disorders, 26(3), 337-346. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/bf02172478 OpenAlex: https://openalex.org/W1964429689
    Crossref OpenAlex OpenCitations
  22. Olga Solomon (2015). “But-He’ll Fall!”: Children with Autism, Interspecies Intersubjectivity, and the Problem of ‘Being Social’ . Culture, Medicine, and Psychiatry, 39(2), 323-344. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11013-015-9446-7 OpenAlex: https://openalex.org/W1989832530
    Crossref OpenAlex OpenCitations
  23. Brenda Smith Myles , Richard L. Simpson , Christine K. Ormsbee , Courtney Erickson (1993). Integrating Preschool Children with Autism with Their Normally Developing Peers . Focus on Autistic Behavior, 8(5), 1-19. SAGE Publications.
    Type: Article DOI: 10.1177/108835769300800501 OpenAlex: https://openalex.org/W1966219174
    Crossref OpenAlex
  24. Marissa L. Diener , Cheryl A. Wright , Louise Dunn , Scott D. Wright , Laura Linnell Anderson , Katherine Newbold Smith (2016). A Creative 3D Design Programme: Building on Interests and Social Engagement for Students with Autism Spectrum Disorder (ASD) . International Journal of Disability, Development and Education, 63(2), 181-200. Informa UK Limited.
    Type: Article DOI: 10.1080/1034912x.2015.1053436 OpenAlex: https://openalex.org/W2125413516
    Crossref OpenAlex OpenCitations
  25. Ronald B. Leaf , Mitchell T. Taubman , John J. McEachin , Justin B. Leaf , Kathleen H. Tsuji (2011). A Program Description of a Community-Based Intensive Behavioral Intervention Program for Individuals with Autism Spectrum Disorders . Education and Treatment of Children, 34(2), 259-285. Project MUSE.
    Type: Article DOI: 10.1353/etc.2011.0012 OpenAlex: https://openalex.org/W1967067333
    Crossref OpenAlex OpenCitations
  26. Marjorie H. Charlop , Laura Schreibman , Adeline S. Tryon (1983). Learning through observation: The effects of peer modeling on acquisition and generalization in autistic children . Journal of Abnormal Child Psychology, 11(3), 355-366. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/bf00914244 OpenAlex: https://openalex.org/W2025595513
    Crossref OpenAlex OpenCitations
  27. Ashleigh Hillier , Tom Fish , Patricia Cloppert , David Q. Beversdorf (2007). Outcomes of a Social and Vocational Skills Support Group for Adolescents and Young Adults on the Autism Spectrum . Focus on Autism and Other Developmental Disabilities, 22(2), 107-115. SAGE Publications.
    Type: Article DOI: 10.1177/10883576070220020201 OpenAlex: https://openalex.org/W2143795275
    Crossref OpenAlex OpenCitations
  28. P. Kern , D. Aldridge (2006). Using Embedded Music Therapy Interventions to Support Outdoor Play of Young Children with Autism in an Inclusive Community-Based Child Care Program . Journal of Music Therapy, 43(4), 270-294. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/jmt/43.4.270 OpenAlex: https://openalex.org/W2124328214
    Crossref OpenAlex OpenCitations
  29. Carolyn Hughes , Melissa Golas , Joseph Cosgriff , Nicolette Brigham , Caitlin Edwards , Kelly Cashen (2011). Effects of a Social Skills Intervention among High School Students with Intellectual Disabilities and Autism and Their General Education Peers . Research and Practice for Persons with Severe Disabilities, 36(1-2), 46-61. SAGE Publications.
    Type: Article DOI: 10.2511/rpsd.36.1-2.46 OpenAlex: https://openalex.org/W1980489907
    Crossref OpenAlex OpenCitations
  30. Andrew L. Egel , Gina S. Richman , Robert L. Koegel (1981). NORMAL PEER MODELS AND AUTISTIC CHILDREN'S LEARNING . Journal of Applied Behavior Analysis, 14(1), 3-12. Wiley.
    Type: Article DOI: 10.1901/jaba.1981.14-3 OpenAlex: https://openalex.org/W2089422073
    Crossref OpenAlex OpenCitations
  31. James Laffey , Janine Stichter , Matthew Schmidt (2010). Social Orthotics for Youth with ASD to Learn in a Collaborative 3D VLE . Dans Handbook of Research on Human Cognition and Assistive Technology: Design, Accessibility and Transdisciplinary Perspectives (pp. 76-95). IGI Global.
    Type: Chapitre de livre DOI: 10.4018/978-1-61520-817-3.ch005 OpenAlex: https://openalex.org/W2506508758
    Crossref OpenAlex OpenCitations
  32. Marita Falkmer , Katie Anderson , Annette Joosten , Torbjörn Falkmer (2015). Parents’ Perspectives on Inclusive Schools for Children with Autism Spectrum Conditions . International Journal of Disability, Development and Education, 62(1), 1-23. Informa UK Limited.
    Type: Article DOI: 10.1080/1034912x.2014.984589 OpenAlex: https://openalex.org/W2042263926
    Crossref OpenAlex OpenCitations
  33. Eileen Klein Feldman , Rosy Matos (2013). Training Paraprofessionals to Facilitate Social Interactions Between Children With Autism and Their Typically Developing Peers . Journal of Positive Behavior Interventions, 15(3), 169-179. SAGE Publications.
    Type: Article DOI: 10.1177/1098300712457421 OpenAlex: https://openalex.org/W2160625785
    Crossref OpenAlex OpenCitations
  34. Gail G. McGee , Patricia J. Krantz , Lynn E. McClannahan (1984). Conversational skills for autistic adolescents: Teaching assertiveness in naturalistic game settings . Journal of Autism and Developmental Disorders, 14(3), 319-330. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/bf02409582 OpenAlex: https://openalex.org/W2013225121
    Crossref OpenAlex OpenCitations
  35. Joshua K. Harrower , Glen Dunlap (2001). Including Children with Autism in General Education Classrooms . Behavior Modification, 25(5), 762-784. SAGE Publications.
    Type: Article DOI: 10.1177/0145445501255006 OpenAlex: https://openalex.org/W2148110866
    Crossref OpenAlex OpenCitations
  36. Michelle R. Haney (2012). After School Care for Children on the Autism Spectrum . Journal of Child and Family Studies, 21(3), 466-473. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10826-011-9500-1 OpenAlex: https://openalex.org/W2085988943
    Crossref OpenAlex OpenCitations
  37. Christena Blauvelt Harper , Jennifer B. G. Symon , William D. Frea (2008). Recess is Time-in: Using Peers to Improve Social Skills of Children with Autism . Journal of Autism and Developmental Disorders, 38(5), 815-826. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-007-0449-2 OpenAlex: https://openalex.org/W2074310343
    Crossref OpenAlex OpenCitations
  38. S. Benaroya , S. Wesley , H. Ogilvie , L. S. Klein , E. Clarke (1979). Sign language and multisensory input training of children with communication and related developmental disorders: Phase II . Journal of Autism and Developmental Disorders, 9(2), 219-220. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/bf01531535 OpenAlex: https://openalex.org/W2033021350
    OpenAlex
  39. Frank W. Kohler , Phillip S. Strain , Marilyn Hoyson , Lisa Davis , Wendy M. Donina , Nancy Rapp (1995). Using a Group-Oriented Contingency to Increase Social Interactions between Children with Autism and Their Peers . Behavior Modification, 19(1), 10-32. SAGE Publications.
    Type: Article DOI: 10.1177/01454455950191002 OpenAlex: https://openalex.org/W2163212098
    Crossref OpenAlex OpenCitations
  40. Nadine Trottier , Lorraine Kamp , Pat Mirenda (2011). Effects of Peer-Mediated Instruction to Teach Use of Speech-Generating Devices to Students with Autism in Social Game Routines . Augmentative and Alternative Communication, 27(1), 26-39. Informa UK Limited.
    Type: Article DOI: 10.3109/07434618.2010.546810 OpenAlex: https://openalex.org/W2155466641
    Crossref OpenAlex OpenCitations
  41. Allison Milley , Wendy Machalicek (2012). Decreasing Students’ Reliance on Adults . Intervention in School and Clinic, 48(2), 67-75. SAGE Publications.
    Type: Article DOI: 10.1177/1053451212449739 OpenAlex: https://openalex.org/W2078982345
    Crossref OpenAlex OpenCitations
  42. Fredric H. Jones , James Q. Simmons , Frederick Frankel (1974). An extinction procedure for eliminating self-destructive behavior in a 9-year-old autistic girl . Journal of Autism and Childhood Schizophrenia, 4(3), 241-250. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/bf02115230 OpenAlex: https://openalex.org/W2088574318
    Crossref OpenAlex OpenCitations
  43. Shunit Reiter , Taly Vitani (2007). Inclusion of pupils with autism . Autism, 11(4), 321-333. SAGE Publications.
    Type: Article DOI: 10.1177/1362361307078130 OpenAlex: https://openalex.org/W2158268798
    Crossref OpenAlex OpenCitations
  44. Kelle M. Laushey , L. Juane Heflin , Margaret Shippen , Paul A. Alberto , Laura Fredrick (2009). Concept Mastery Routines to Teach Social Skills to Elementary Children with High Functioning Autism . Journal of Autism and Developmental Disorders, 39(10), 1435-1448. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-009-0757-9 OpenAlex: https://openalex.org/W2094123148
    Crossref OpenAlex OpenCitations
  45. Eileen O'Connor (2016). The use of ‘Circle of Friends’ strategy to improve social interactions and social acceptance: a case study of a child with Asperger's Syndrome and other associated needs . Support for Learning, 31(2), 138-147. Wiley.
    Type: Article DOI: 10.1111/1467-9604.12122 OpenAlex: https://openalex.org/W2464803601
    Crossref OpenAlex OpenCitations
  46. Nathan J. Wilson , Christine Bigby , Roger J. Stancliffe , Susan Balandin , Diane Craig , Kate Anderson (2013). Mentors' experiences of using the Active Mentoring model to support older adults with intellectual disability to participate in community groups . Journal of Intellectual & Developmental Disability, 38(4), 344-355. Informa UK Limited.
    Type: Article DOI: 10.3109/13668250.2013.837155 OpenAlex: https://openalex.org/W2096917078
    Crossref OpenAlex OpenCitations
  47. Kathryn Stevenson , Katie Cornell , Vivian Hinchcliffe (2016). ‘Let's Talk Autism' –a school‐based project for students to explore and share their experiences of being autistic . Support for Learning, 31(3), 208-234. Wiley.
    Type: Article DOI: 10.1111/1467-9604.12130 OpenAlex: https://openalex.org/W2541841338
    Crossref OpenAlex OpenCitations
  49. Lindsay O’Dell (2018). Different Childhoods. Non/Normative Development and Transgressive Trajectories . Different Childhoods. Non/Normative Development and Transgressive Trajectories.
    Type: Autre
    Crossref
  50. Judith K. Voress (2008). Focus on Autism and Other Developmental Disabilities . Encyclopedia of Special Education, 905-905. Wiley.
    Type: Autre DOI: 10.1002/9780470373699.speced0842 OpenAlex: https://openalex.org/W2362300328
    OpenAlex
  51. Kristen Ashbaugh , Lynn Koegel , Robert Koegel , Whitney Detar , April Regester (2013). Increasing Socialization in Adults With Asperger's Syndrome . PsycEXTRA Dataset. American Psychological Association (APA).
    Type: Jeu de données DOI: 10.1037/e584262013-001 OpenAlex: https://openalex.org/W4245425690
    OpenAlex