Examen des expériences de soutien des jeunes autistes ayant de multiples identités marginalisées au Royaume-Uni

Titre original en anglais : Examining the Support Experiences of Autistic Young People with Multiple Marginalized Identities in the United Kingdom

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Davies, J., Islaam, L., Carter, S., Redmayne, B. J. M., Cooper, K., Mandy, W., & Crane, L. (2024). Examining the Support Experiences of Autistic Young People with Multiple Marginalized Identities in the United Kingdom. Autism in Adulthood, 8(3), 385-397. https://doi.org/10.1089/aut.2024.0059

Date de publication: 28/10/2024 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
7
Auteur·ices de la publication identifié·es comme autistes
2 / 7 (28,6 %)
  1. Jade Davies
  2. Labeebah Islaam *
  3. Susannah Carter *
  4. Benjamin Jack Michael Redmayne
  1. Kate Cooper
  2. Will Mandy
  3. Laura Crane

Résumé

Contexte : Les difficultés auxquelles les jeunes autistes sont confrontés lorsqu'ils accèdent à du soutien ont été bien documentées. Toutefois, ces problèmes peuvent être exacerbés chez les jeunes autistes ayant d'autres identités marginalisées (p. ex., appartenir à un groupe ethnique minoritaire ou à un genre minoritaire), par rapport aux jeunes autistes n'ayant pas d'autres identités marginalisées. Méthodes : Nous avons adopté une approche participative qui incluait des jeunes autistes ayant de multiples identités marginalisées à chaque étape du processus de recherche. Notre équipe a interrogé 13 jeunes autistes (âgés de 16 à 25 ans) qui s'identifiaient également à d'autres identités marginalisées. Nous avons analysé les données au moyen d'une analyse thématique réflexive. Résultats : Nous avons dégagé un thème général, qui reflétait la perception selon laquelle l'accès au soutien était difficile pour tous les jeunes autistes, mais particulièrement pour ce groupe ayant de multiples identités marginalisées. Au sein du thème général, nous avons dégagé trois sous-thèmes qui fournissent des exemples de la manière dont les difficultés courantes étaient ressenties comme exacerbées pour nos participants. Premièrement, nos participants ont signalé des difficultés à obtenir des diagnostics en temps opportun, ce qui entravait l'accès à des services de soutien appropriés. Deuxièmement, ils ont exprimé un sentiment d'exclusion des structures de soutien existantes, les services ne répondant souvent pas à leurs besoins particuliers. Enfin, des barrières culturelles et linguistiques faisaient que les parents et les aidants de nos participants ne savaient pas toujours comment les aider à obtenir du soutien. Par conséquent, certains de nos participants ont dû défendre eux-mêmes leurs intérêts. Conclusion : Nos résultats soulignent la nécessité de services de soutien plus inclusifs et accessibles qui répondent aux besoins divers de tous les jeunes autistes, y compris ceux ayant de multiples identités marginalisées. Les recommandations comprennent l'offre d'une variété d'options de soutien afin de tenir compte des préférences individuelles et la mise à disposition de moyens permettant à toutes les personnes autistes de défendre leurs besoins en matière de soutien.

Background: The challenges that autistic young people face when accessing support have been well documented. However, such issues may be exacerbated for autistic young people who have additional marginalized identities (e.g., being from a minority ethnic group or minority gender) compared with autistic young people who do not have additional marginalized identities. Methods: We took a participatory approach that included autistic young people with multiple marginalized identities at every stage of the research process. Our team interviewed 13 autistic young people (aged 16–25 years) who also identified with other marginalized identities. We analyzed the data using reflexive thematic analysis. Results: We generated one superordinate theme, which reflected how accessing support was perceived to be challenging for all autistic young people but especially so for this group with multiple marginalized identities. Within the superordinate theme, we generated three subthemes that provide examples of how common challenges were felt to be exacerbated for our participants. First, our participants reported difficulties in obtaining timely diagnoses, which hindered access to appropriate support services. Second, they expressed a sense of exclusion from existing support structures, with services often failing to address their unique needs. Finally, cultural and linguistic barriers meant that our participants’ parents and caregivers did not always know how to help them get support. As a result, some of our participants had to advocate for themselves. Conclusion: Our findings highlight the need for more inclusive and accessible support services that meet the diverse needs of all autistic young people, including those with multiple marginalized identities. Recommendations include offering a variety of support options to accommodate individual preferences and providing ways to empower all autistic people to advocate for their support needs.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
59
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
11 / 59 (18,6 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
25 / 248 (10,1 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 25 / 142 (17,6 %). Auteurices cité·es distinct·es identifié·es comme autistes : 17 / 208 (8,2 %).
Occurrences citées rattachées à la base AutiHub
142 / 248 (57,3 %)
Auteurices cité·es distinct·es rattaché·es : 105 / 208 (50,5 %)
Occurrences rattachées, non identifiées comme autistes
117 / 142 (82,4 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 117 / 248 (47,2 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 88 / 105 (83,8 %).
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