Avec nos propres mots : utiliser le dialogue participatif pour réfléchir aux expériences de santé mentale des étudiants autistes à l'université

Titre original en anglais : In our own words: Using participatory dialogue to reflect on the mental health experiences of autistic students in university

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». La publication indique que des personnes autistes en sont auteur·ices ou co-auteur·ices, sans préciser leur nombre ni divulguer leur identité.

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Horton, E., Brownhill, L. A., Bycroft, A., Goldschmied, A. Z., Knops, M. J., Lloyd, A., Tones, D., Wiltshire, B., Toro, C. T., & Jutley-Neilson, J. (2025). In our own words: Using participatory dialogue to reflect on the mental health experiences of autistic students in university. Neurodiversity, 3. https://doi.org/10.1177/27546330241310372

Publication date: 01/01/2025 Ajout dans AutiHub: 17/09/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

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Auteurs

Auteur·ices des publications
10
Auteur·ices autistes mentionné·es dans la publication
Nombre non précisé
  1. Ellie Horton
  2. Laura A. Brownhill *
  3. Alice Bycroft
  4. Anita Z Goldschmied *
  5. Max J. Knops
  1. Anthony Lloyd
  2. Daniel Tones *
  3. Beth Wiltshire *
  4. Carla T Toro
  5. Jagjeet Jutley-Neilson

Résumé

La santé mentale des étudiants universitaires autistes est une question essentielle à traiter, comme en témoignent la prévalence accrue des problèmes de santé mentale au sein de la communauté autiste et le nombre croissant d'étudiants universitaires autistes. Les étudiants autistes confrontés à des problèmes de santé mentale présentent les taux de maintien et de progression les plus faibles de tous les groupes de personnes handicapées. Cette recherche a adopté une approche novatrice : sept coauteurs et membres du groupe participatif, tous étudiants actuels ou récents, ont identifié, au moyen de discussions réflexives, 10 thèmes reflétant leurs expériences de santé mentale à l'université, permettant ainsi aux personnes autistes de diriger la recherche et de remédier aux déséquilibres de pouvoir inhérents à la recherche sur l'autisme. Ils ont présenté ces thèmes lors d'un webinaire, auquel ont assisté plus de 200 membres du personnel d'universités britanniques, offrant aux étudiants autistes une plateforme pour influencer les pratiques. Les dix thèmes identifiés, conformément aux expériences des déclencheurs et des facteurs de risque pour la santé mentale à l'université, étaient : la routine, vivre de manière indépendante, les adaptations raisonnables, le travail de groupe, les problèmes sensoriels, l'assiduité et un éventail d'options d'apprentissage, la divulgation du diagnostic, les problèmes sociaux, l'épuisement et la prise en compte de la situation dans son ensemble. Nous avons examiné le soutien que nous avons jugé utile et élaboré des recommandations à l'intention des universités afin de favoriser le bien-être positif des étudiants autistes. Nous soulignons la nécessité pour les universités de coproduire des services et du soutien avec les étudiants autistes.

The mental health of autistic university students is a key issue to address, evidenced by increased prevalence of mental health issues within the autistic community and growing numbers of autistic university students. Autistic students experiencing mental health issues have the lowest retention and progression rates of any disability group. This research took a novel approach, with seven co-authors and members of the participatory group (all current/recent students) identifying 10 themes reflecting their mental health experiences at university through reflective discussions, enabling autistic people to lead research and address power imbalances inherent in autism research. They presented these themes at a webinar, attended by over 200 staff from UK universities, providing a platform for autistic students to influence practice. Ten themes identified in line with experiences of the triggers and risk factors for mental health at university were; Routine, living independently, reasonable adjustments, group work, sensory issues, attendance and a range of learning options, disclosing diagnosis, social issues, burnout and seeing the bigger picture. We discussed the support that we found to be useful and developed recommendations for universities to support the positive well-being of autistic students. We outline the need for universities to co-produce services and support with autistic students.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 20/09/2026 01:01.

Références citées
86
Avec un DOI
66
Sans DOI, à partir du texte brut de la bibliographie
20
12 / 86 (14,0 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
12 / 86 (14,0 %)
Références avec noms d’auteurices détectés
82 / 86 (95,3 %)
Sans nom d’auteurice détecté
4
Sans titre structuré
12
Sans identifiant stable
19
Références avec noms bruts d’auteurices restant à vérifier
4
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
272
À partir du DOI ou de métadonnées externes
272
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
4
122 / 272 (44,9 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 150 / 272 (55,1 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
20 / 272 (7,4 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 20 / 122 (16,4 %). Personnes distinctes identifiées comme autistes : 16 / 241 (6,6 %).
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