Améliorer l’identification de l’autisme et le soutien aux personnes assignées de sexe féminin à la naissance : suggestions cliniques et priorités de recherche
Titre original en anglais : Improving autism identification and support for individuals assigned female at birth: clinical suggestions and research priorities
Lai, M. C., Amestoy, A., Bishop, S., Brown, H. M., Giwa Onaiwu, M., Halladay, A., Harrop, C., Hotez, E., Huerta, M., Kelly, A., Miller, D., Nordahl, C. W., Ratto, A. B., Saulnier, C. A., Siper, P. M., Sohl, K., Zwaigenbaum, L., & Goldman, S. (2023). Improving autism identification and support for individuals assigned female at birth: clinical suggestions and research priorities. The Lancet Child & Adolescent Health, 7(12), 897-908. https://doi.org/10.1016/s2352-4642(23)00221-3
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Résumé
Des données émergentes suggèrent que la prévalence plus élevée de l’autisme chez les personnes assignées de sexe masculin plutôt que féminin à la naissance résulte à la fois de facteurs biologiques et de biais d’identification. Les personnes autistes assignées de sexe féminin à la naissance (AFAB) et les personnes de genres divers connaissent des disparités de santé et des inégalités cliniques, notamment un diagnostic tardif ou manqué et un soutien insuffisant. Dans ce point de vue, un panel international de cliniciens, de scientifiques et de membres de la communauté ayant une expérience vécue de l’autisme a examiné les difficultés liées à l’identification de l’autisme chez les personnes AFAB et a proposé des orientations cliniques et de recherche afin de promouvoir la santé, le développement et le bien-être des personnes autistes AFAB. Les difficultés de reconnaissance découlent de l’interaction entre les différences cognitives et les présentations nuancées ou différentes de l’autisme chez certaines personnes AFAB ; les biais liés aux attentes, au genre et à l’autisme chez les cliniciens ; et les déterminants sociaux. Nous recommandons que le développement professionnel des cliniciens soit soutenu par les systèmes de soins de santé, les sociétés professionnelles et les organismes de gouvernance afin d’améliorer l’accès équitable à l’évaluation et l’identification plus précoce de l’autisme chez les personnes AFAB. Les personnes autistes AFAB devraient bénéficier d’un soutien adapté dans l’éducation, le développement identitaire, les soins de santé et le sentiment d’appartenance sociale et professionnelle.
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