Qu'est-ce que l'autisme ? L'identité en péril et la voie collaborative à suivre

Titre original en anglais : What is autism? Identity in jeopardy and the collaborative way ahead

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

À propos de la mention auteur·ice autiste

Alexandrovsky, M., Frayne, M., & Lai, M. C. (2025). What is autism? Identity in jeopardy and the collaborative way ahead. Autism, 29(10), 2371-2378. https://doi.org/10.1177/13623613251371485

Date de publication: 30/08/2025 Ajout dans AutiHub: 04/07/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
3
Auteur·ices de la publication identifié·es comme autistes
1 / 3 (33,3 %)

Résumé

Aucun résumé structuré enregistré pour cette référence.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 17:07.

Références citées
87
Avec un DOI
80
Sans DOI, à partir du texte brut de la bibliographie
7
23 / 87 (26,4 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
4 / 87 (4,6 %)
Références avec noms d’auteurices détectés
83 / 87 (95,4 %)
Sans nom d’auteurice détecté
4
Sans titre structuré
4
Sans identifiant stable
4
Références avec noms bruts d’auteurices restant à vérifier
4
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
404
À partir du DOI ou de métadonnées externes
404
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
5
225 / 404 (55,7 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 179 / 404 (44,3 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
58 / 404 (14,4 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 58 / 225 (25,8 %). Personnes distinctes identifiées comme autistes : 44 / 358 (12,3 %).
  1. Hans Asperger (1991). ‘Autistic psychopathy’ in childhood . Dans Autism and Asperger syndrome (pp. 37-92). Cambridge University Press.
    Type: Chapitre de livre DOI: 10.1017/cbo9780511526770.002 OpenAlex: https://openalex.org/W1600568800
    Crossref OpenAlex OpenCitations
  2. Gail A Alvares , Keely Bebbington , Dominique Cleary , Kiah Evans , Emma J. Glasson , Murray Maybery et al. (2020). The misnomer of ‘high functioning autism’: Intelligence is an imprecise predictor of functional abilities at diagnosis . Autism, 24(1), 221-232. SAGE Publications.
    Crossref OpenAlex OpenCitations
  3. J Leask (2005). Evidence for autism in folklore? Archives of Disease in Childhood, 90(3), 271-271. BMJ.
    Crossref OpenAlex OpenCitations
  4. Uta Frith (1991). Asperger and his syndrome . Dans Autism and Asperger Syndrome (pp. 1-36). Cambridge University Press.
    Type: Chapitre de livre DOI: 10.1017/cbo9780511526770.001 OpenAlex: https://openalex.org/W1859294918
    Crossref OpenAlex OpenCitations
  5. Catherine Lord , Tony Charman , Alexandra Havdahl , Paul Carbone , Evdokia Anagnostou , Brian Boyd et al. (2022). The Lancet Commission on the future of care and clinical research in autism . The Lancet, 399(10321), 271-334. Elsevier BV.
    Crossref OpenAlex OpenCitations
  6. Duncan E. Astle , Joni Holmes , Rogier Kievit , Susan E. Gathercole (2022). Annual Research Review: The transdiagnostic revolution in neurodevelopmental disorders . Journal of Child Psychology and Psychiatry, 63(4), 397-417. Wiley.
    Crossref OpenAlex OpenCitations
  7. K. S. Kendler , P. Zachar , C. Craver (2011). What kinds of things are psychiatric disorders? Psychological Medicine, 41(6), 1143-1150. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  8. Gray Atherton , Yuko Morimoto , Satoshi Nakashima , Liam Cross (2023). Does the Study of Culture Enrich Our Understanding of Autism? A Cross-Cultural Exploration of Life on the Spectrum in Japan and the West . Journal of Cross-Cultural Psychology, 54(5), 610-634. SAGE Publications.
    Crossref OpenAlex OpenCitations
  9. John N. Constantino (2013). Social Responsiveness Scale . Dans Social responsiveness scale (pp. 2919-2929). Springer New York.
    Type: Chapitre de livre DOI: 10.1007/978-1-4419-1698-3_296 OpenAlex: https://openalex.org/W4232252309
    Crossref OpenAlex OpenCitations
  10. Uta Frith (2012). The 38th Sir Frederick Bartlett Lecture Why we need cognitive explanations of autism . Quarterly Journal of Experimental Psychology, 65(11), 2073-2092. SAGE Publications.
    Crossref OpenAlex OpenCitations
  11. Autism Research Centre. (2024). What the Spectrum 10K consultation taught us. https://www.autismresearchcentre.com/what-the-spectrum-10k-consultation-taught-us/
    Type: Autre
    Crossref
  12. Samuele Cortese , Marco Solmi , Giorgia Michelini , Alessio Bellato , Christina Blanner , Andrea Canozzi et al. (2023). Candidate diagnostic biomarkers for neurodevelopmental disorders in children and adolescents: a systematic review . World Psychiatry, 22(1), 129-149. Wiley.
    Crossref OpenAlex OpenCitations
  13. Berend Verhoeff (2015). Fundamental challenges for autism research: the science–practice gap, demarcating autism and the unsuccessful search for the neurobiological basis of autism . Medicine, Health Care and Philosophy, 18(3), 443-447. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  14. (s. d.). Autistic Self Advocacy Network. (2022 February 14). Open letter to the Lancet Commission on the future of care and clinical research in autism. https://autisticadvocacy.org/2022/02/open-letter-to-the-lancet-commission-on-the-future-of-care-and-clinical-research-in-autism/
    Type: Autre
    Crossref
  15. Michael Lombardo (2021). Prototyping as subtyping strategy for studying heterogeneity in autism . Autism Research, 14(10), 2224-2227. Wiley.
    Type: Article DOI: 10.1002/aur.2535 OpenAlex: https://openalex.org/W3165084545
    Crossref OpenAlex OpenCitations
  16. Marion Quirici (2015). Geniuses without Imagination . Journal of Literary & Cultural Disability Studies, 9(1), 71-88. Liverpool University Press.
    Crossref OpenAlex OpenCitations
  17. Andrea Blomkvist , David F. Marks (2023). Defining and ‘diagnosing’ aphantasia: Condition or individual difference? Cortex, 169, 220-234. Elsevier BV.
    Crossref OpenAlex OpenCitations
  18. Vasiliki Kentrou , Lucy A Livingston , Rachel Grove , Rosa A. Hoekstra , Sander Begeer (2024). Perceived misdiagnosis of psychiatric conditions in autistic adults . eClinicalMedicine, 71, 102586. Elsevier BV.
    Crossref OpenAlex OpenCitations
  19. LEON EISENBERG (1956). THE AUTISTIC CHILD IN ADOLESCENCE . American Journal of Psychiatry, 112(8), 607-612. American Psychiatric Association Publishing.
    Crossref OpenAlex OpenCitations
  20. Brigitte Chamak , Beatrice Bonniau , Emmanuel Jaunay , David Cohen (2008). What Can We Learn about Autism from Autistic Persons? Psychotherapy and Psychosomatics, 77(5), 271-279. S. Karger AG.
    Crossref OpenAlex OpenCitations
  21. Michelle Cleary , Sancia West , Rachel Kornhaber , Catherine Hungerford (2023). Autism, Discrimination and Masking: Disrupting a Recipe for Trauma . Issues in Mental Health Nursing, 44(9), 799-808. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  22. Pat Walsh , Mayada Elsabbagh , Patrick Bolton , Ilina Singh (2011). In search of biomarkers for autism: scientific, social and ethical challenges . Nature Reviews Neuroscience, 12(10), 603-612. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/nrn3113 OpenAlex: https://openalex.org/W2087640603
    Crossref OpenAlex OpenCitations
  23. Mara Parellada , Álvaro Andreu-Bernabeu , Mónica Burdeus , Antonia San José Cáceres , Elena Urbiola , Linda L. Carpenter et al. (2023). In Search of Biomarkers to Guide Interventions in Autism Spectrum Disorder: A Systematic Review . American Journal of Psychiatry, 180(1), 23-40. American Psychiatric Association Publishing.
    Crossref OpenAlex OpenCitations
  24. Robert S. P. Jones , Jaci C. Huws , Gerhard Beck (2013). ‘I’m not the only person out there’: insider and outsider understandings of autism . International Journal of Developmental Disabilities, 59(2), 134-144. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  25. Ada J. S. Chan , Worrawat Engchuan , Miriam S. Reuter , Zhuozhi Wang , Bhooma Thiruvahindrapuram , Brett Trost et al. (2022). Genome-wide rare variant score associates with morphological subtypes of autism spectrum disorder . Nat Commun, 13(1), 6463. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  26. So Hyun Kim (2020). Decomposing Heterogeneity in Autism Spectrum Disorder Through Neurosubtyping . Biological Psychiatry, 87(12), e37-e38. Elsevier BV.
    Crossref OpenAlex OpenCitations
  27. Boaz Keysar , Shuhong Lin , Dale J Barr (2003). Limits on theory of mind use in adults . Cognition, 89(1), 25-41. Elsevier BV.
    Crossref OpenAlex OpenCitations
  28. K. S. Kendler (2009). An historical framework for psychiatric nosology . Psychological Medicine, 39(12), 1935-1941. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  29. Kate O’Connor , Ian Kirk (2008). Brief Report: Atypical Social Cognition and Social Behaviours in Autism Spectrum Disorder: A Different Way of Processing Rather than an Impairment . Journal of Autism and Developmental Disorders, 38(10), 1989-1997. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  30. Laurent Mottron (2021). A radical change in our autism research strategy is needed: Back to prototypes . Autism Research, 14(10), 2213-2220. Wiley.
    Type: Article DOI: 10.1002/aur.2494 OpenAlex: https://openalex.org/W3164845480
    Crossref OpenAlex OpenCitations
  31. Berend Verhoeff (2012). What is this thing called autism? A critical analysis of the tenacious search for autism's essence . BioSocieties, 7(4), 410-432. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  32. Léo Kanner (1943). Autistic disturbances of affective contact . The Nervous Child, 2(3), 217.
    Type: Article OpenAlex: https://openalex.org/W2255119171
    Crossref OpenAlex
  33. John N. Constantino (2021). Response to “A Radical Change in Our Autism Research Strategy is Needed: Back to Prototypes” by Mottron et al. (2021) . Autism Research, 14(10), 2221-2223. Wiley.
    Type: Article DOI: 10.1002/aur.2529 OpenAlex: https://openalex.org/W3164532338
    Crossref OpenAlex OpenCitations
  34. Berend Verhoeff (2013). Autism in flux: a history of the concept from Leo Kanner to DSM-5 . History of Psychiatry, 24(4), 442-458. SAGE Publications.
    Crossref OpenAlex OpenCitations
  35. Rosalind Cooper , Kate Cooper , Ailsa Russell , Laura G. E. Smith (2021). “I’m Proud to be a Little Bit Different”: The Effects of Autistic Individuals’ Perceptions of Autism and Autism Social Identity on Their Collective Self-esteem . Journal of Autism and Developmental Disorders, 51(2), 704-714. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  36. Berend Verhoeff (2015). Autism's anatomy: A dissection of the structure and development of a psychiatric concept . Data Archiving and Networked Services (DANS).
    Type: Article OpenAlex: https://openalex.org/W2580339358
    Crossref OpenAlex
  37. Heather Thomas , Tom Boellstorff (2017). Beyond the Spectrum: Rethinking Autism . Disability Studies Quarterly, 37(1). The Ohio State University Libraries.
    Crossref OpenAlex OpenCitations
  38. Laurent Mottron , David Gagnon (2023). Prototypical autism: New diagnostic criteria and asymmetrical bifurcation model . Acta Psychologica, 237, 103938. Elsevier BV.
    Crossref OpenAlex OpenCitations
  39. Rachael PS John , Fiona J Knott , Kate N Harvey (2018). Myths about autism: An exploratory study using focus groups . Autism, 22(7), 845-854. SAGE Publications.
    Crossref OpenAlex OpenCitations
  40. Michael C. W. English , Gilles E. Gignac , Troy A. W. Visser , Andrew Whitehouse , James T. Enns , Murray Maybery (2021). The Comprehensive Autistic Trait Inventory (CATI): development and validation of a new measure of autistic traits in the general population . Molecular Autism, 12(1), 37. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  41. Hannah Hobson , Stephanie Petty (2021). Moving forwards not backwards: heterogeneity in autism spectrum disorders . Molecular Psychiatry, 26(12), 7100-7101. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  42. S. Wolff (1996). The first account of the syndrome Asperger described? European Child & Adolescent Psychiatry, 5(3), 119-132. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  43. Ania M. Fiksinski , Gil D. Hoftman , Jacob A. S. Vorstman , Carrie E. Bearden (2023). A genetics-first approach to understanding autism and schizophrenia spectrum disorders: the 22q11.2 deletion syndrome . Molecular Psychiatry, 28(1), 341-353. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  44. Charlotte Tye , Abigail K. Runicles , Andrew Whitehouse , Gail A Alvares (2019). Characterizing the interplay between autism spectrum disorder and comorbid medical conditions: an integrative review . Front Psychiatry, 9, 751. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  45. Sue Fletcher-Watson (2024). What’s in a name? The costs and benefits of a formal autism diagnosis . Autism, 28(2), 257-262. SAGE Publications.
    Crossref OpenAlex OpenCitations
  46. Ginny Russell , Will Mandy , Daisy Elliott , Rhianna White , Tom Pittwood , Tamsin Ford (2019). Selection bias on intellectual ability in autism research: a cross-sectional review and meta-analysis . Molecular Autism, 10(1), 9. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  47. Aviya Litman , Natalie Sauerwald , LeeAnne Green Snyder , Jennifer H. Foss‐Feig , Christopher Y. Park , Yun Hao et al. (2025). Decomposition of phenotypic heterogeneity in autism reveals underlying genetic programs . Nature Genetics, 57(7), 1611-1619. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  48. Troy Vargason , Richard Eugene Frye , Deborah L. McGuinness , Juergen Hahn (2019). Clustering of co‐occurring conditions in autism spectrum disorder during early childhood: A retrospective analysis of medical claims data . Autism Research, 12(8), 1272-1285. Wiley.
    Type: Article DOI: 10.1002/aur.2128 OpenAlex: https://openalex.org/W2947642158
    Crossref OpenAlex OpenCitations
  49. Joaquin Fuentes , Amaia Hervás , Patricia Howlin , (ESCAP ASD Working Party) (2021). ESCAP practice guidance for autism: a summary of evidence-based recommendations for diagnosis and treatment . European Child & Adolescent Psychiatry, 30(6), 961-984. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  50. Laura Fusar-Poli , Natascia Brondino , Pierluigi Politi , Eugenio Aguglia (2022). Missed diagnoses and misdiagnoses of adults with autism spectrum disorder . European Archives of Psychiatry and Clinical Neuroscience, 272(2), 187-198. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  51. Nicholas Silins (2021). The evil demon in the lab: skepticism, introspection, and introspection of introspection . Synthese, 198(10), 9763-9785. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  52. Michael Lombardo , Meng-Chuan Lai , Simon Baron-Cohen (2019). Big data approaches to decomposing heterogeneity across the autism spectrum . Molecular Psychiatry, 24(10), 1435-1450. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  53. Sami Timimi , Damian Milton *Auteur·ice autiste. En savoir plus… , Virginia Bovell , Steven K. Kapp *Auteur·ice autiste. En savoir plus… , Ginny Russell (2019). Deconstructing Diagnosis: Four Commentaries on a Diagnostic Tool to Assess Individuals for Autism Spectrum Disorders. Autonomy (Birm), 1(6), 26.
    Type: Article OpenAlex: https://openalex.org/W2958492418
    Crossref OpenAlex
  54. Jonathan Green (2022). Autism as emergent and transactional . Frontiers in Psychiatry, 13, 988755-988755. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  55. Charlotte Simmonds , G. E. Sukhareva (2020). The first account of the syndrome Asperger described? Part 2: the girls . European Child & Adolescent Psychiatry, 29(4), 549-564. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  56. Francesca Happé , Uta Frith (2021). Dimensional or Categorical Approaches to Autism? Both are Needed. A Reply to Nick Chown and Julia Leatherland . Journal of Autism and Developmental Disorders, 51(2), 752-753. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  57. Margaret Danielle Weiss , Peter T. Daniolos , Kevin Coughlin , Norah Mulvaney-Day , Benjamin Cook , Debra Rosenblum (2024). A Scoping Review of the Intersectionality of Autism and Intellectual and Developmental Disability with Social Inequity on Diagnosis and Treatment of Youth . Journal of Child and Adolescent Psychopharmacology, 34(7), 292-301. SAGE Publications.
    Crossref OpenAlex OpenCitations
  58. Catherine A. Ziats , Wesley G. Patterson , Michael Friez (2021). Syndromic Autism Revisited: Review of the Literature and Lessons Learned . Pediatric Neurology, 114, 21-25. Elsevier BV.
    Crossref OpenAlex OpenCitations
  59. Jake Pyne (2020). “Building a Person”: Legal and Clinical Personhood for Autistic and Trans Children in Ontario . Canadian Journal of Law and Society / Revue Canadienne Droit et Société, 35(2), 341-365. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  60. Veronica Mandelli , Ines Severino , Lisa Eyler , Karen Pierce , Eric Courchesne , Michael Lombardo (2024). A 3D approach to understanding heterogeneity in early developing autisms . Molecular Autism, 15(1), 41-41. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  61. Meng-Chuan Lai (2023). Mental health challenges faced by autistic people . Nat. Hum. Behav., 7(10), 1620. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  62. Katharine Sanderson (2021). High-profile autism genetics project paused amid backlash . Nature, 598(7879), 17-18. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  63. Itai Yanai , Martin J. Lercher (2024). It takes two to think . Nature Biotechnology, 42(1), 18-19. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  64. Sinclair J. (1993). Don’t mourn for us. Our Voice 1(3). https://www.autreat.com/dont_mourn.html
    Type: Autre
    Crossref
  65. Kyle Sterrett , Elaine Clarke , Jane Nofer , Joseph Piven , Catherine Lord (2024). Toward a functional classification for autism in adulthood . Autism Research, 17(10), 2105-2119. Wiley.
    Type: Article DOI: 10.1002/aur.3201 OpenAlex: https://openalex.org/W4400829953
    Crossref OpenAlex OpenCitations
  66. Sukhareva G. E. Wolff S. (1996). The first account of the syndrome Asperger described? Translation of a paper entitled "Die schizoiden Psychopathien im Kindesalter" by Dr. G. E. Ssucharewa
    Type: Autre
    Crossref