Entrer pleinement dans qui je suis : une exploration créative de la ménopause autistique

Titre original en anglais : Stepping into Who I Fully Am: A Creative Exploration of Autistic Menopause

Sources de métadonnées utilisées pour cette référence

OpenAlex Crossref OpenCitations
En savoir plus sur les sources utilisées

Matthews, R., Jenkins, C. A., Rensburg, M. J. v., Brady, M. J., Moseley, R., & Gamble-Turner, J. (2025). Stepping into Who I Fully Am: A Creative Exploration of Autistic Menopause. International Journal of Disability and Social Justice, 5(1). https://doi.org/10.13169/intljofdissocjus.5.1.0004

Date de publication: 01/01/2025 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
Source OpenAlex Source éditeur (DOI) Texte intégral

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
6
Auteur·ices de la publication identifié·es comme autistes
3 / 6 (50,0 %)
  1. Rose Matthews *
  2. Christine A. Jenkins *
  3. Margaret Janse van Rensburg
  1. Miranda J. Brady
  2. Rachel Moseley *
  3. Julie Gamble-Turner

Résumé

Les recherches suggèrent que la périménopause peut aggraver les difficultés existantes chez certaines personnes autistes, avec des conséquences potentiellement catastrophiques. Les obstacles à l'expression de soi dus aux différences de communication sont également bien documentés. En reconnaissance de cela, notre équipe de recherche neurodiverse a invité des contributions créatives sur le thème des expériences autistes de la ménopause, recevant des œuvres de six participant·es autistes, notamment des peintures, de la poésie et des œuvres graphiques. En s'engageant avec les six contributions créatives, les chercheur·euses communautaires autistes de notre équipe ont produit des œuvres de réponse réflexives et polytextuelles. L'exploration créative de la ménopause autistique a encouragé la catharsis émotionnelle, la compréhension de soi et l'activisme/artivisme. Les chercheur·euses communautaires autistes ont relevé des dimensions transcendantes, presque « magiques », du lien avec les expériences vécues d'autres personnes autistes. Notre approche créative émancipatrice a permis des réponses autistes et multimédias que les méthodes de recherche traditionnelles n'auraient pas suscitées. À notre connaissance, aucune autre étude à ce jour n'a utilisé la recherche fondée sur les arts pour explorer les expériences de la ménopause chez les personnes autistes et les pratiques de recherche inclusives.

Research suggests that perimenopause can compound existing struggles for some Autistic people, with potentially catastrophic consequences. Barriers to self-expression due to communication differences are also well-documented. Acknowledging this, our neurodiverse research team invited creative submissions themed around Autistic experiences of menopause, receiving works from six Autistic participants including paintings, poetry, and graphic works. Engaging with the six creative submissions, Autistic Community Researchers on our team produced reflexive, polytextual response works. Creative exploration of Autistic menopause encouraged emotional catharsis, self-understanding, and activism/artivism. Autistic Community Researchers noted transcendent, almost “magical” dimensions of connecting with other Autistic people’s lived experiences. Our creative emancipatory approach enabled Autistic, multimedia responses which traditional research methods would not have elicited. To our knowledge, no other studies to date have used arts-based research to explore Autistic people’s experiences of menopause and inclusive research practices.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
77
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
17 / 77 (22,1 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
38 / 251 (15,1 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 38 / 140 (27,1 %). Auteurices cité·es distinct·es identifié·es comme autistes : 27 / 217 (12,4 %).
Occurrences citées rattachées à la base AutiHub
140 / 251 (55,8 %)
Auteurices cité·es distinct·es rattaché·es : 108 / 217 (49,8 %)
Occurrences rattachées, non identifiées comme autistes
102 / 140 (72,9 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 102 / 251 (40,6 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 81 / 108 (75,0 %).
  1. James C. Harris (2015). Autism Spectrum Disorder . Dans Neurobiology of Brain Disorders (pp. 78-97). Elsevier.
    Type: Chapitre de livre DOI: 10.1016/b978-0-12-398270-4.00006-9 OpenAlex: https://openalex.org/W124128099
    OpenAlex
  2. American Psychiatric Association. (APA) (2013). Autism spectrum disorder .
    Type: Autre
    Crossref
  3. Victoria Newell , Lucy Phillips , Chris Jones , Ellen Townsend , Caroline Richards , Sarah Cassidy (2023). A systematic review and meta-analysis of suicidality in autistic and possibly autistic people without co-occurring intellectual disability . Molecular Autism, 14(1), 12-12. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-023-00544-7 OpenAlex: https://openalex.org/W4324354182
    Crossref OpenAlex OpenCitations
  4. Eli Clare (2015). Exile and Pride . Duke University Press.
    Type: Livre DOI: 10.1215/9780822374879 OpenAlex: https://openalex.org/W1507665411
    OpenAlex
  5. Sheena K. Au‐Yeung , Louise Bradley , Ashley Robertson , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2019). Experience of mental health diagnosis and perceived misdiagnosis in autistic, possibly autistic and non-autistic adults . Autism, 23(6), 1508-1518. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318818167 OpenAlex: https://openalex.org/W2905534692
    Crossref OpenAlex OpenCitations
  6. Matthew de Broize , Kiah Evans , Andrew Whitehouse , John Wray , Valsamma Eapen , Anna Urbanowicz (2022). Exploring the Experience of Seeking an Autism Diagnosis as an Adult . Autism in Adulthood, 4(2), 130-140. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2021.0028 OpenAlex: https://openalex.org/W4200092124
    Crossref OpenAlex OpenCitations
  7. Rosie McLaren (1999). The Discourses of Hysteria: Menopause, Art and the Body . Hecate, 25(2), 107.
    Type: Article OpenAlex: https://openalex.org/W1583568951
    Crossref OpenAlex
  11. Michael Oliver (1983). Social Work with Disabled People . Macmillan Education UK.
    Type: Livre DOI: 10.1007/978-1-349-86058-6 OpenAlex: https://openalex.org/W4299557921
    Crossref OpenAlex OpenCitations
  13. Butler (1990). Gender trouble: Feminism and the subversion of identity . Gender trouble: Feminism and the subversion of identity.
    Type: Autre
    Crossref
  14. Judith Sergeant , Rosemary Rizq (2017). ‘Its all part of the big CHANGE’: a grounded theory study of women’s identity during menopause . Journal of Psychosomatic Obstetrics & Gynecology, 38(3), 189-201. Informa UK Limited.
    Type: Article DOI: 10.1080/0167482x.2016.1270937 OpenAlex: https://openalex.org/W2568236861
    Crossref OpenAlex OpenCitations
  15. John Swain , Sally French (2000). Towards an Affirmation Model of Disability . Disability & Society, 15(4), 569-582. Informa UK Limited.
    Type: Article DOI: 10.1080/09687590050058189 OpenAlex: https://openalex.org/W2033816883
    Crossref OpenAlex OpenCitations
  16. Sarah Cassidy , Sheena K. Au‐Yeung , Ashley Robertson , Heather Cogger-Ward , Gareth Richards , Carrie Allison et al. (2022). Autism and autistic traits in those who died by suicide in England . The British Journal of Psychiatry, 221(5), 683-691. Royal College of Psychiatrists.
    Type: Article DOI: 10.1192/bjp.2022.21 OpenAlex: https://openalex.org/W4213221258
    Crossref OpenAlex OpenCitations
  17. Elizabeth Pellicano , Melanie Heyworth * (2023). The Foundations of Autistic Flourishing . Current Psychiatry Reports, 25(9), 419-427. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11920-023-01441-9 OpenAlex: https://openalex.org/W4385663119
    AutiHub · Chercheur·euses autistes AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
  18. Mary McIntosh , Judith Butler (1991). Gender Trouble: Feminism and the Subversion of Identity . Feminist Review, (38), 113. JSTOR.
    Type: Article DOI: 10.2307/1395391 OpenAlex: https://openalex.org/W2038600245
    OpenAlex
  20. Richard Furman (2007). Poetry and Narrative as Qualitative Data: Explorations into Existential Theory . Indo-Pacific Journal of Phenomenology, 7(1), 1-9. Informa UK Limited.
    Type: Article DOI: 10.1080/20797222.2007.11433939 OpenAlex: https://openalex.org/W2146027106
    Crossref OpenAlex OpenCitations
  22. Samuel Tromans , Verity Chester , Eli Gemegah , Kristian Roberts , Zoe Morgan , Guiqing Lily Yao et al. (2021). Autism identification across ethnic groups: a narrative review . Advances in Autism, 7(3), 241-255. Emerald.
    Type: Article DOI: 10.1108/aia-03-2020-0017 OpenAlex: https://openalex.org/W3039573567
    Crossref OpenAlex OpenCitations
  23. Laura Foran Lewis (2016). Realizing a diagnosis of autism spectrum disorder as an adult . International Journal of Mental Health Nursing, 25(4), 346-354. Wiley.
    Type: Article DOI: 10.1111/inm.12200 OpenAlex: https://openalex.org/W2290256687
    Crossref OpenAlex OpenCitations
  24. Clare (2015). Exile and pride: Disability, queerness, and liberation . Exile and pride: Disability, queerness, and liberation.
    Type: Autre
    Crossref
  25. Laura Foran Lewis (2016). Exploring the Experience of Self-Diagnosis of Autism Spectrum Disorder in Adults . Archives of Psychiatric Nursing, 30(5), 575-580. Elsevier BV.
    Type: Article DOI: 10.1016/j.apnu.2016.03.009 OpenAlex: https://openalex.org/W2326293265
    Crossref OpenAlex OpenCitations
  26. J Davidson (2013). Worlds of Autism . University of Minnesota Press.
    Type: Livre DOI: 10.5749/minnesota/9780816688883.001.0001 OpenAlex: https://openalex.org/W2478659999
    Crossref OpenAlex OpenCitations
  27. Nick Walker * , Dora M Raymaker * (2021). Toward a Neuroqueer Future: An Interview with Nick Walker . Autism in Adulthood, 3(1), 5-10. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2020.29014.njw OpenAlex: https://openalex.org/W3106097568
    Crossref OpenAlex OpenCitations
  28. Suzanne Nossel (2016). Introduction: On “Artivism,” or Art’s Utility in Activism . Social Research: An International Quarterly, 83(1), 103-105. Project MUSE.
    Type: Article DOI: 10.1353/sor.2016.0023 OpenAlex: https://openalex.org/W2422646611
    Crossref OpenAlex OpenCitations
  29. Jade Davies , Kate Cooper , Estelle Killick , Evelyn Sam , Molly Healy , Grace Thompson * et al. (2023). Autistic identity: A systematic review of quantitative research . Autism Research, 1. Center for Open Science.
    Type: Prépublication DOI: 10.31219/osf.io/74k6m OpenAlex: https://openalex.org/W4388137235
    Crossref OpenAlex
  30. Catherine Frazee (2023). Dispatches from Disabled Country . University of British Columbia Press.
    Type: Livre DOI: 10.59962/9780774868693 OpenAlex: https://openalex.org/W4385893306
    Crossref OpenAlex OpenCitations
  31. Shari E. Goldstein (2017). Reflexivity in narrative research: Accessing meaning through the participant-researcher relationship. Qualitative Psychology, 4(2), 149-164. American Psychological Association (APA).
    Type: Article DOI: 10.1037/qup0000035 OpenAlex: https://openalex.org/W2545097181
    Crossref OpenAlex OpenCitations
  32. Isabel de Salis , Amanda Owen-Smith , Jenny L. Donovan , Debbie A. Lawlor (2018). Experiencing menopause in the UK: The interrelated narratives of normality, distress, and transformation . Journal of Women & Aging, 30(6), 520-540. Informa UK Limited.
    Type: Article DOI: 10.1080/08952841.2018.1396783 OpenAlex: https://openalex.org/W2749788165
    Crossref OpenAlex OpenCitations
  34. H. Dillaway (2021). intljofdissocjus. 5. 1. 0004-b14 Musings on perimenopause and menopause: Identity, experience, transition.
    Type: Autre
    Crossref
  35. Tania Glyde (2022). LGBTQIA+ menopause: room for improvement . The Lancet, 400(10363), 1578-1579. Elsevier BV.
    Type: Article DOI: 10.1016/s0140-6736(22)01935-3 OpenAlex: https://openalex.org/W4306694976
    Crossref OpenAlex OpenCitations
  37. Silvana Unigwe , Carole Buckley , Laura Crane , Lorcan Kenny , Anna Remington , Elizabeth Pellicano (2017). GPs’ confidence in caring for their patients on the autism spectrum: an online self-report study . British Journal of General Practice, 67(659), e445-e452. Royal College of General Practitioners.
    Type: Article DOI: 10.3399/bjgp17x690449 OpenAlex: https://openalex.org/W2614102167
    Crossref OpenAlex OpenCitations
  38. A. Dokumaci (2023). Activist affordances: How disabled people improvise more habitable worlds . Activist affordances: How disabled people improvise more habitable worlds.
    Type: Autre
    Crossref
  40. Justine E. Egner (2019). “The Disability Rights Community was Never Mine”: Neuroqueer Disidentification . Gender & Society, 33(1), 123-147. SAGE Publications.
    Type: Article DOI: 10.1177/0891243218803284 OpenAlex: https://openalex.org/W2899276242
    Crossref OpenAlex OpenCitations
  42. Ousseny Zerbo , Yinge Qian , Thomas Ray , Steve Sidney , Steve Rich , Maria L Massolo et al. (2019). Health Care Service Utilization and Cost Among Adults with Autism Spectrum Disorders in a U.S. Integrated Health Care System . Autism in Adulthood, 1(1), 27-36. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2018.0004 OpenAlex: https://openalex.org/W2802980590
    Crossref OpenAlex OpenCitations
  43. Jane M. Ussher , Alexandra J. Hawkey , Janette Perz (2019). ‘Age of despair’, or ‘when life starts’: migrant and refugee women negotiate constructions of menopause . Culture, Health & Sexuality, 21(7), 741-756. Informa UK Limited.
    Type: Article DOI: 10.1080/13691058.2018.1514069 OpenAlex: https://openalex.org/W2895767698
    Crossref OpenAlex OpenCitations
  44. K. Gleeson (2021). Polytextual thematic analysis for visual data: Analysing visual images .
    Type: Autre
    Crossref
  45. Fiona J. Moola , Ron Buliung , Stephanie Posa , Nivatha Moothathamby , Roberta L. Woodgate , Nancy Hansen et al. (2022). Behind the Paintbrush: Understanding the Impact of Visual Arts-Based Research (ABR) in the Lives of Disabled Children and Youth as well as Methodological Insights in ABR Application . Canadian Journal of Disability Studies, 11(2), 119-160. University of Waterloo.
    Type: Article DOI: 10.15353/cjds.v11i2.891 OpenAlex: https://openalex.org/W4291010314
    Crossref OpenAlex OpenCitations
  46. Aimi Hamraie , Kelly Fritsch (2019). Crip Technoscience Manifesto . Catalyst: Feminism, Theory, Technoscience, 5(1), 1-33. University of Toronto Libraries - UOTL.
    Type: Article DOI: 10.28968/cftt.v5i1.29607 OpenAlex: https://openalex.org/W2944785538
    Crossref OpenAlex OpenCitations
  47. Kana Grace , Anna Remington , Brynmor Lloyd‐Evans , Jade Davies , Laura Crane (2022). Loneliness in autistic adults: A systematic review . Autism, 26(8), 2117-2135. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221077721 OpenAlex: https://openalex.org/W4220790656
    Crossref OpenAlex OpenCitations
  48. Meng-Chuan Lai , Natasha R. Saunders , Anjie Huang , Azmina Artani , Andrew S. Wilton , Juveria Zaheer et al. (2023). Self-Harm Events and Suicide Deaths Among Autistic Individuals in Ontario, Canada . JAMA Network Open, 6(8), e2327415. American Medical Association (AMA).
    Type: Article DOI: 10.1001/jamanetworkopen.2023.27415 OpenAlex: https://openalex.org/W4385666843
    Crossref OpenAlex OpenCitations
  49. D. Gray-Hammond (2022). Neuroqueer: An introduction to theory .
    Type: Autre
    Crossref
  50. Marianna Karavidas , Richard de Visser (2022). “It's Not Just in My Head, and It's Not Just Irrelevant”: Autistic Negotiations of Menopausal Transitions . Journal of Autism and Developmental Disorders, 52(3), 1143-1155. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-05010-y OpenAlex: https://openalex.org/W3154308695
    Crossref OpenAlex OpenCitations
  52. Annabeth P Groenman , Carolien Torenvliet , Tulsi A Radhoe , Joost A Agelink van Rentergem , Hilde M. Geurts (2022). Menstruation and menopause in autistic adults: Periods of importance? Autism, 26(6), 1563-1572. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211059721 OpenAlex: https://openalex.org/W3166746716
    Crossref OpenAlex OpenCitations
  55. Gunter (2021). The menopause manifesto . The menopause manifesto.
    Type: Autre
    Crossref
  56. Jane M. Ussher (2006). Managing the Monstrous Feminine . Routledge.
    Type: Livre DOI: 10.4324/9780203328422 OpenAlex: https://openalex.org/W4242648176
    Crossref OpenAlex OpenCitations
  57. Charlotte Henson , Didier Truchot , Amy Canevello (2021). What promotes post traumatic growth? A systematic review . European Journal of Trauma & Dissociation, 5(4), 100195. Elsevier BV.
    Type: Article DOI: 10.1016/j.ejtd.2020.100195 OpenAlex: https://openalex.org/W3115978352
    Crossref OpenAlex OpenCitations
  58. Miriam Harmens , Felicity Sedgewick , Hannah Hobson (2022). Autistic women’s diagnostic experiences: Interactions with identity and impacts on well-being . Women's Health, 18, 17455057221137477-17455057221137477. SAGE Publications.
    Type: Article DOI: 10.1177/17455057221137477 OpenAlex: https://openalex.org/W4309363025
    Crossref OpenAlex
  59. Yunhe Huang , Samuel R. C. Arnold , Kitty‐Rose Foley , Julian N Trollor (2022). Choose your Own Adventure: Pathways to Adulthood Autism Diagnosis in Australia . Journal of Autism and Developmental Disorders, 52(7), 2984-2996. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-05169-4 OpenAlex: https://openalex.org/W3178785782
    Crossref OpenAlex OpenCitations
  60. Kara (2020). Creative research methods: A practical guide . Creative research methods: A practical guide.
    Type: Autre
    Crossref
  61. Francisco M. Olmos-Vega , Renée E. Stalmeijer , Lara Varpio , Renate Kahlke (2023). A practical guide to reflexivity in qualitative research: AMEE Guide No. 149 . Medical Teacher, 45(3), 241-251. Informa UK Limited.
    Type: Article DOI: 10.1080/0142159x.2022.2057287 OpenAlex: https://openalex.org/W4225944184
    Crossref OpenAlex OpenCitations
  62. Magdalena Szubielska (2024). Art-based way of telling the world I am autistic and trying sense-making of this experience . Disability & Society, 39(1), 260-264. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599.2023.2227333 OpenAlex: https://openalex.org/W4381888478
    Crossref OpenAlex OpenCitations
  63. Mendes (2019). Gender identity, sexuality and autism: voices from across the spectrum . Gender identity, sexuality and autism: voices from across the spectrum.
    Type: Autre
    Crossref
  64. Damian Milton * , Emine Gürbüz , Beatriz López (2022). The ‘double empathy problem’: Ten years on . Autism, 26(8), 1901-1903. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221129123 OpenAlex: https://openalex.org/W4306860573
    Crossref OpenAlex OpenCitations
  65. Luna L. Wattel , Reubs J Walsh , Lydia Krabbendam (2024). Theories on the Link Between Autism Spectrum Conditions and Trans Gender Modality: a Systematic Review . Review Journal of Autism and Developmental Disorders, 11(2), 275-295. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-022-00338-2 OpenAlex: https://openalex.org/W4292332388
    Crossref OpenAlex
  66. Elizabeth O’Nions , Irene Petersen , Joshua E.J. Buckman , Rebecca A. Charlton , Claudia Cooper , Anne Corbett et al. (2023). Autism in England: assessing underdiagnosis in a population-based cohort study of prospectively collected primary care data . The Lancet Regional Health - Europe, 29, 100626. Elsevier BV.
    Type: Article DOI: 10.1016/j.lanepe.2023.100626 OpenAlex: https://openalex.org/W4362579857
    Crossref OpenAlex
  67. P. Reavey (2021). Visual data .
    Type: Autre
    Crossref
  69. Julia Sinclair (1993). Don’t mourn for us . Our Voice, 1(3).
    Type: Autre
    Crossref
  70. (2020). Disability visibility: First person stories from the twenty-first century . Disability visibility: First person stories from the twenty-first century.
    Type: Autre
    Crossref
  71. K. Forbes (2024). We are proud autistic women .
    Type: Autre
    Crossref
  72. L. Harding (1997). “Onion Girl” sung by Holly Cole on Dark Dear Heart .
    Type: Autre
    Crossref
  73. H. Mead (2020). Period pantones .
    Type: Autre
    Crossref
  74. Pirner (1992). Runaway train .
    Type: Autre
    Crossref
  75. K. Ross (2022). Blood, bone, crone: The menopause experience from the inside out .
    Type: Autre
    Crossref
  76. B. Shannon (2023). Rewilding social care . Rewriting Social Care.
    Type: Autre
    Crossref
  77. D. Stewart (2000). intljofdissocjus. 5. 1. 0004-b73 Power to the Meek.
    Type: Autre
    Crossref