De la perturbation à la connexion : un modèle de pratique fondé sur la famille pour améliorer les relations dans les familles d'adolescents autistes

Titre original en anglais : From Disruption to Connection: A Family-Based Practice Model for Enhancing Relationships in Families of Autistic Adolescents

Sources de métadonnées utilisées pour cette référence

OpenAlex Crossref
En savoir plus sur les sources utilisées

Trew, S. & Lawson, W. (2026). From Disruption to Connection: A Family-Based Practice Model for Enhancing Relationships in Families of Autistic Adolescents. Child Psychiatry & Human Development. https://doi.org/10.1007/s10578-026-02021-7

Date de publication: 07/05/2026 Ajout dans AutiHub: 11/07/2026 Type: Article Langue de l’article: Anglais
Source OpenAlex Source éditeur (DOI) Texte intégral

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
2
Auteur·ices de la publication identifié·es comme autistes
1 / 2 (50,0 %)
  1. Sebastian Trew
  2. Wenn Lawson *

Résumé

Les recherches examinant les relations familiales dans les familles comptant des membres autistes demeurent limitées, et les cadres intégratifs qui traduisent les données probantes en pratiques centrées sur la famille sont rares. Les interventions existantes donnent souvent la priorité à la gestion des symptômes individuels plutôt qu'au renforcement des relations familiales et de la connexion. Cet article présente un modèle de pratique éclairé par les données probantes, conçu pour améliorer les relations et la connexion dans les familles d'adolescents autistes, fondé sur la théorie des systèmes. Le modèle s'appuie sur une recherche qualitative menée auprès de 44 participants issus de 18 familles, y compris des adolescents autistes, des parents et des frères et sœurs. Les expériences et dynamiques des relations familiales ont été explorées, sept résultats clés alimentant le cadre conceptuel et le modèle de pratique. Des facteurs perturbateurs tels que le stress, les conflits, la charge des aidants et les difficultés relationnelles ont contribué au repli et à la déconnexion, tandis que des facteurs de connexion, notamment la communication, le travail d'équipe, les routines et les expériences positives partagées, ont favorisé les liens. Le modèle de pratique comprend six éléments et est guidé par dix principes relatifs à la structure familiale, aux rôles, à la communication et aux schémas adaptatifs. Ce modèle comble des lacunes en matière de soutien familial holistique et offre aux praticiens des stratégies centrées sur la famille, éclairées par les données probantes, qui s'appuient sur les forces tout en abordant les difficultés relationnelles.

Research examining family relationships in families with autistic members remains limited, and integrative frameworks that translate evidence into family focused practice are scarce. Existing interventions often prioritise individual symptom management rather than strengthening family relationships and connectedness. This article presents an evidence informed practice model designed to enhance relationships and connectedness in families of autistic adolescents, grounded in systems theory. The model draws on qualitative research with 44 participants from 18 families, including autistic adolescents, parents and siblings. Family relationship experiences and dynamics were explored, with seven key findings informing the conceptual framework and practice model. Disruptive factors such as stress, conflict, caregiver burden and challenges in relating contributed to withdrawal and disconnection, while connective factors including communication, teamwork, routines and shared positive experiences supported bonding. The practice model comprises six elements and is guided by ten principles across family structure, roles, communication and adaptive patterns. This model addresses gaps in holistic family support and offers practitioners evidence informed, family centred strategies that build on strengths while addressing relational challenges.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
121
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
11 / 121 (9,1 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
15 / 474 (3,2 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 15 / 103 (14,6 %). Auteurices cité·es distinct·es identifié·es comme autistes : 10 / 427 (2,3 %).
Occurrences citées rattachées à la base AutiHub
103 / 474 (21,7 %)
Auteurices cité·es distinct·es rattaché·es : 80 / 427 (18,7 %)
Occurrences rattachées, non identifiées comme autistes
88 / 103 (85,4 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 88 / 474 (18,6 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 70 / 80 (87,5 %).
12 entrées de bibliographie citée n’ont pas pu être entièrement enrichies à partir des métadonnées DOI.
Crossref: introuvable (6) · DataCite: introuvable (6)
  1. Leché Kapp , Ottilia Brown (2011). Resilience in Families Adapting to Autism Spectrum Disorder . Journal of Psychology in Africa, 21(3), 459-463. Tech Science Press.
    Type: Article DOI: 10.1080/14330237.2011.10820482 OpenAlex: https://openalex.org/W304382720
    Crossref OpenAlex
  2. Alexander Almendingen , Pamela Pilkington (2024). Parenting Self-Efficacy and Psychological Distress in Parents of Children with an Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 54(7), 2604-2614. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-023-05939-2 OpenAlex: https://openalex.org/W4368373991
    Crossref OpenAlex
  3. Rebecca Brewer , Francesca Happé , Richard Cook , Geoffrey Bird (2015). Commentary on “Autism, oxytocin and interoception”: Alexithymia, not Autism Spectrum Disorders, is the consequence of interoceptive failure . Neuroscience & Biobehavioral Reviews, 56, 348-353. Elsevier BV.
    Type: Article DOI: 10.1016/j.neubiorev.2015.07.006 OpenAlex: https://openalex.org/W864274930
    Crossref OpenAlex
  4. Barbara M. Altman (2001). Definitions, Models, Classifications, Schemes, and Applications . Dans Handbook of disability studies (pp. 97-122). SAGE Publications, Inc..
    Type: Chapitre de livre DOI: 10.4135/9781412976251.n4 OpenAlex: https://openalex.org/W2495046692
    Crossref OpenAlex
  5. Cara E. Pugliese , Laura G. Anthony , John F. Strang , Katerina Dudley , Gregory L. Wallace , Daniel Q. Naiman et al. (2016). Longitudinal Examination of Adaptive Behavior in Autism Spectrum Disorders: Influence of Executive Function . Journal of Autism and Developmental Disorders, 46(2), 467-477. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-015-2584-5 OpenAlex: https://openalex.org/W1433440055
    Crossref OpenAlex
  6. Tatiane Geralda André , Laura Marques Prizantelli , Milena de Lucca , Marcos Venicio Esper , Giovanna Cristina Machado‐Kayzuka , Manoela Henriques Pinto et al. (2026). Fathers' Experiences in Parenting Autistic Children: A Qualitative Study . Child & Family Social Work, 31(1), 324-334. Wiley.
    Type: Article DOI: 10.1111/cfs.13277 OpenAlex: https://openalex.org/W4407371072
    Crossref OpenAlex
  7. Debbie Spain , Jacqueline Sin , Eleni Paliokosta , Marie Furuta , Jonathan E Prunty , Trudie Chalder et al. (2017). Family therapy for autism spectrum disorders . Cochrane Database of Systematic Reviews, 2017(5), CD011894-CD011894. Wiley.
    Type: Article DOI: 10.1002/14651858.cd011894.pub2 OpenAlex: https://openalex.org/W1916582953
    Crossref OpenAlex
  8. Brian K. Barber , Cheryl Buehler (1996). Family Cohesion and Enmeshment: Different Constructs, Different Effects . Journal of Marriage and the Family, 58(2), 433. JSTOR.
    Type: Article DOI: 10.2307/353507 OpenAlex: https://openalex.org/W1983546771
    Crossref OpenAlex
  10. M. Bayat (2007). Evidence of resilience in families of children with autism . Journal of Intellectual Disability Research, 51(9), 702-714. Wiley.
    Type: Article DOI: 10.1111/j.1365-2788.2007.00960.x OpenAlex: https://openalex.org/W2104916848
    Crossref OpenAlex
  11. Paul R. Benson (2010). Coping, distress, and well-being in mothers of children with autism . Research in Autism Spectrum Disorders, 4(2), 217-228. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2009.09.008 OpenAlex: https://openalex.org/W1977685818
    Crossref OpenAlex
  12. Karen Bearss , Cynthia Johnson , Tristram Smith , Luc Lecavalier , Naomi Swiezy , Michael Aman et al. (2015). Effect of Parent Training vs Parent Education on Behavioral Problems in Children With Autism Spectrum Disorder . JAMA, 313(15), 1524. American Medical Association (AMA).
    Type: Article DOI: 10.1001/jama.2015.3150 OpenAlex: https://openalex.org/W2162520210
    Crossref OpenAlex
  13. AT Beck (1995). Cognitive therapy: Basics and beyond . Cognitive therapy: Basics and beyond.
    Type: Autre
    Crossref
  14. Sara Ryan (2010). ‘Meltdowns’, surveillance and managing emotions; going out with children with autism . Health & Place, 16(5), 868-875. Elsevier BV.
    Type: Article DOI: 10.1016/j.healthplace.2010.04.012 OpenAlex: https://openalex.org/W2002305902
    Crossref OpenAlex
  15. Nathan B. Epstein , Lawrence M. Baldwin , Duane S. Bishop (1983). THE McMASTER FAMILY ASSESSMENT DEVICE* . Journal of Marital and Family Therapy, 9(2), 171-180. Wiley.
    Type: Article DOI: 10.1111/j.1752-0606.1983.tb01497.x OpenAlex: https://openalex.org/W2005184890
    Crossref OpenAlex
  16. Angela J. Huebner , Jay A. Mancini , Ryan M. Wilcox , Saralyn R. Grass , Gabriel A. Grass (2007). Parental Deployment and Youth in Military Families: Exploring Uncertainty and Ambiguous Loss* . Family Relations, 56(2), 112-122. Wiley.
    Type: Article DOI: 10.1111/j.1741-3729.2007.00445.x OpenAlex: https://openalex.org/W2121226728
    Crossref OpenAlex
  18. G Bird , R Cook (2013). Mixed emotions: the contribution of alexithymia to the emotional symptoms of autism . Translational Psychiatry, 3(7), e285-e285. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/tp.2013.61 OpenAlex: https://openalex.org/W2098593065
    Crossref OpenAlex
  19. Richard G. Tedeschi , Lawrence G. Calhoun (2004). TARGET ARTICLE: "Posttraumatic Growth: Conceptual Foundations and Empirical Evidence" . Psychological Inquiry, 15(1), 1-18. Informa UK Limited.
    Type: Article DOI: 10.1207/s15327965pli1501_01 OpenAlex: https://openalex.org/W2033002423
    Crossref OpenAlex
  20. Susan Dickerson Mayes , Susan L. Calhoun , Daniel A. Waschbusch , Rosanna P. Breaux , Raman Baweja (2017). Reactive attachment/disinhibited social engagement disorders: Callous-unemotional traits and comorbid disorders . Research in Developmental Disabilities, 63, 28-37. Elsevier BV.
    Type: Article DOI: 10.1016/j.ridd.2017.02.012 OpenAlex: https://openalex.org/W2591805555
    Crossref OpenAlex
  21. Hedda Meadan , Julia B. Stoner , Maureen E. Angell (2010). Review of Literature Related to the Social, Emotional, and Behavioral Adjustment of Siblings of Individuals with Autism Spectrum Disorder . Journal of Developmental and Physical Disabilities, 22(1), 83-100. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10882-009-9171-7 OpenAlex: https://openalex.org/W2040477142
    Crossref OpenAlex
  23. Koa Whittingham , Kate Sofronoff , Jeanie Sheffield , Matthew R. Sanders (2009). Stepping Stones Triple P: An RCT of a Parenting Program with Parents of a Child Diagnosed with an Autism Spectrum Disorder . Journal of Abnormal Child Psychology, 37(4), 469-480. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10802-008-9285-x OpenAlex: https://openalex.org/W2046801521
    Crossref OpenAlex
  24. Joan F. Robertson (1977). Grandmotherhood: A Study of Role Conceptions . Journal of Marriage and the Family, 39(1), 165. JSTOR.
    Type: Article DOI: 10.2307/351072 OpenAlex: https://openalex.org/W2093385089
    Crossref OpenAlex
  25. Pauline Boss , Barbara A. Couden (2002). Ambiguous loss from chronic physical illness: Clinical interventions with individuals, couples, and families . Journal of Clinical Psychology, 58(11), 1351-1360. Wiley.
    Type: Article DOI: 10.1002/jclp.10083 OpenAlex: https://openalex.org/W2048114639
    Crossref OpenAlex
  26. P Boss (1999). Ambiguous loss: Learning to live with unresolved grief . Ambiguous loss: Learning to live with unresolved grief.
    Type: Autre
    Crossref
  27. Nathan B. Epstein , Duane S. Bishop , Sol Levin (1978). The McMaster Model of Family Functioning . Journal of Marital and Family Therapy, 4(4), 19-31. Wiley.
    Type: Article DOI: 10.1111/j.1752-0606.1978.tb00537.x OpenAlex: https://openalex.org/W2050312946
    Crossref OpenAlex
  28. Boss P. (2006) Loss, trauma, and resilience: Therapeutic work with ambiguous loss. W. W. Norton.
    Type: Autre
    Crossref
  29. Rahul Khanna , S. Suresh Madhavan , Michael J. Smith , Julie H. Patrick , Cindy Tworek , Barbara Becker-Cottrill (2011). Assessment of Health-Related Quality of Life Among Primary Caregivers of Children with Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 41(9), 1214-1227. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-010-1140-6 OpenAlex: https://openalex.org/W2054705851
    Crossref OpenAlex
  30. Sheldon Cohen , Thomas A. Wills (1985). Stress, social support, and the buffering hypothesis. Psychological Bulletin, 98(2), 310-357. American Psychological Association (APA).
    Type: Article DOI: 10.1037/0033-2909.98.2.310 OpenAlex: https://openalex.org/W2055461003
    Crossref OpenAlex
  31. PAULINE BOSS , JAN GREENBERG (1984). Family Boundary Ambiguity: A New Variable in Family Stress Theory . Family Process, 23(4), 535-546. Wiley.
    Type: Article DOI: 10.1111/j.1545-5300.1984.00535.x OpenAlex: https://openalex.org/W2101264275
    Crossref OpenAlex
  34. M.F. Casanova , I. van Kooten , A.E. Switala , H. van Engeland , H. Heinsen , H.W.M. Steinbusch et al. (2006). Abnormalities of cortical minicolumnar organization in the prefrontal lobes of autistic patients . Clinical Neuroscience Research, 6(3-4), 127-133. Elsevier BV.
    Type: Article DOI: 10.1016/j.cnr.2006.06.003 OpenAlex: https://openalex.org/W2079486558
    Crossref OpenAlex
  35. Bowlby J. (1973) Attachment and loss, Vol. 2: Separation. Basic Books, UK.
    Type: Autre
    Crossref
  36. Tamar Heller , John Kramer (2009). Involvement of Adult Siblings of Persons With Developmental Disabilities in Future Planning . Intellectual and Developmental Disabilities, 47(3), 208-219. Informa UK Limited.
    Type: Article DOI: 10.1352/1934-9556-47.3.208 OpenAlex: https://openalex.org/W2080373636
    Crossref OpenAlex
  38. Alan Carr (2019). Family therapy and systemic interventions for child‐focused problems: the current evidence base . Journal of Family Therapy, 41(2), 153-213. Wiley.
    Type: Article DOI: 10.1111/1467-6427.12226 OpenAlex: https://openalex.org/W2799621435
    Crossref OpenAlex
  39. M. Ariel Cascio (2012). Neurodiversity: Autism Pride Among Mothers of Children with Autism Spectrum Disorders . Intellectual and Developmental Disabilities, 50(3), 273-283. Informa UK Limited.
    Type: Article DOI: 10.1352/1934-9556-50.3.273 OpenAlex: https://openalex.org/W2135560058
    Crossref OpenAlex
  40. K Charmaz (2014). Constructing grounded theory . Constructing grounded theory.
    Type: Autre
    Crossref
  41. Howard Goldstein (2002). Communication Intervention for Children with Autism: A Review of Treatment Efficacy . Journal of Autism and Developmental Disorders, 32(5), 373-396. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1023/a:1020589821992 OpenAlex: https://openalex.org/W2111601289
    Crossref OpenAlex
  42. Laura Crane , James W Chester , Lorna Goddard , Lucy A Henry , Elisabeth L. Hill (2016). Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom . Autism, 20(2), 153-162. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315573636 OpenAlex: https://openalex.org/W2118478153
    Crossref OpenAlex
  43. Gael I. Orsmond , Marsha Mailick Seltzer (2007). Siblings of individuals with autism spectrum disorders across the life course . Mental Retardation and Developmental Disabilities Research Reviews, 13(4), 313-320. Wiley.
    Type: Article DOI: 10.1002/mrdd.20171 OpenAlex: https://openalex.org/W2121719878
    Crossref OpenAlex
  45. Leann E. Smith , Marsha Mailick Seltzer , Helen Tager-Flusberg , Jan S. Greenberg , Alice S. Carter (2008). A Comparative Analysis of Well-Being and Coping among Mothers of Toddlers and Mothers of Adolescents with ASD . Journal of Autism and Developmental Disorders, 38(5), 876-889. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-007-0461-6 OpenAlex: https://openalex.org/W2123921631
    Crossref OpenAlex
  46. Emily D’Arcy , Tayah Burnett , Emily Capstick , Catherine Elder , Olivia Slee , Sonya Girdler et al. (2024). The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children . Journal of Autism and Developmental Disorders, 54(5), 1857-1869. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-023-05910-1 OpenAlex: https://openalex.org/W4319656933
    Crossref OpenAlex
  48. Anne de Leeuw , Francesca Happé , Rosa A. Hoekstra (2020). A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe . Autism Research, 13(7), 1029-1050. Wiley.
    Type: Article DOI: 10.1002/aur.2276 OpenAlex: https://openalex.org/W3006691882
    Crossref OpenAlex
  49. June Luong , Marian K. Yoder , Daryl Canham (2009). Southeast Asian Parents Raising a Child With Autism: A Qualitative Investigation of Coping Styles . The Journal of School Nursing, 25(3), 222-229. SAGE Publications.
    Type: Article DOI: 10.1177/1059840509334365 OpenAlex: https://openalex.org/W2124823831
    Crossref OpenAlex
  50. D de Natris (2018). Living well with a disability . Living well with a disability, 15.
    Type: Autre
    Crossref
  51. David Olson (2011). FACES IV and the Circumplex Model: Validation Study . Journal of Marital and Family Therapy, 37(1), 64-80. Wiley.
    Type: Article DOI: 10.1111/j.1752-0606.2009.00175.x OpenAlex: https://openalex.org/W2132747405
    Crossref OpenAlex
  52. Gwendoline DESQUENNE GODFREY , Naomi DOWNES , Emilie CAPPE (2024). A Systematic Review of Family Functioning in Families of Children on the Autism Spectrum . Journal of Autism and Developmental Disorders, 54(3), 1036-1057. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-022-05830-6 OpenAlex: https://openalex.org/W4315435172
    Crossref OpenAlex
  53. Marion O’Brien (2007). Ambiguous Loss in Families of Children With Autism Spectrum Disorders* . Family Relations, 56(2), 135-146. Wiley.
    Type: Article DOI: 10.1111/j.1741-3729.2007.00447.x OpenAlex: https://openalex.org/W2133652908
    Crossref OpenAlex
  54. Alison Jayne Doherty , Helen Atherton , Paul Boland , Richard P. Hastings , Lucy Hives , Kerry Hood et al. (2020). Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review . BJGP Open, 4(3), bjgpopen20X101030. Royal College of General Practitioners.
    Type: Article DOI: 10.3399/bjgpopen20x101030 OpenAlex: https://openalex.org/W2989625113
    Crossref OpenAlex
  55. Gonzalo Durán-Pacheco , Mariabeth Silkey , Michelle Johnson , Chuang Liu , Susanne Clinch , Kiely Law et al. (2023). Effect of Children’s Autism Spectrum Disorder Severity on Family Strain and Sleep Quality: A Cross-Sectional Online Survey in the U.S. Journal of Autism and Developmental Disorders, 53(5), 1795-1808. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-022-05457-7 OpenAlex: https://openalex.org/W4210448446
    Crossref OpenAlex
  56. David H. Olson (2000). Circumplex Model of Marital and Family Systems . Journal of Family Therapy, 22(2), 144-167. Wiley.
    Type: Article DOI: 10.1111/1467-6427.00144 OpenAlex: https://openalex.org/W2145432309
    Crossref OpenAlex
  57. Jennifer Harrison Elder , Susan Brasher , Beverly Alexander (2016). Identifying the Barriers to Early Diagnosis and Treatment in Underserved Individuals with Autism Spectrum Disorders (ASD) and Their Families: A Qualitative Study . Issues in Mental Health Nursing, 37(6), 412-420. Informa UK Limited.
    Type: Article DOI: 10.3109/01612840.2016.1153174 OpenAlex: https://openalex.org/W2337350690
    Crossref OpenAlex
  58. Elizabeth A. Laugeson , Fred Frankel , Catherine Mogil , Ashley R. Dillon (2009). Parent-Assisted Social Skills Training to Improve Friendships in Teens with Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 39(4), 596-606. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-008-0664-5 OpenAlex: https://openalex.org/W2151539518
    Crossref OpenAlex
  59. Abraham P. Greeff , Kerry-Jan Van Der Walt (2010). Resilience in Families with an Autistic Child . Education and Training in Autism and Developmental Disabilities, 45(3), 347-355. SAGE Publications.
    Type: Article DOI: 10.1177/215416471004500304 OpenAlex: https://openalex.org/W2154446885
    Crossref OpenAlex
  60. Froma Walsh (2003). Family Resilience: A Framework for Clinical Practice . Family Process, 42(1), 1-18. Wiley.
    Type: Article DOI: 10.1111/j.1545-5300.2003.00001.x OpenAlex: https://openalex.org/W2159276518
    Crossref OpenAlex
  61. Manuel Fernańdez-Alcántara , Mª Paz García-Caro , Mª Nieves Pérez-Marfil , Cesar Hueso-Montoro , Carolina Laynez-Rubio , Francisco Cruz-Quintana (2016). Feelings of loss and grief in parents of children diagnosed with autism spectrum disorder (ASD) . Research in Developmental Disabilities, 55, 312-321. Elsevier BV.
    Type: Article DOI: 10.1016/j.ridd.2016.05.007 OpenAlex: https://openalex.org/W2401492517
    Crossref OpenAlex
  62. Laura Foran Lewis , Kailey Stevens (2023). The lived experience of meltdowns for autistic adults . Autism, 27(6), 1817-1825. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221145783 OpenAlex: https://openalex.org/W4315754207
    Crossref OpenAlex
  63. Mahmoud Gharaibeh , Mohammad Nayef Ayasrah , Ayoub Hamdan Al‐Rousan , Yusra Jadallah Abed Khasawneh , Mohamad Ahmad Saleem Khasawneh (2025). Parental Stress and Coping in Autism Spectrum Disorder: A Network Analysis of Internalizing and Externalizing Symptoms in Children With Autism Spectrum Disorder . Clinical Psychology & Psychotherapy, 32(3), e70100-e70100. Wiley.
    Type: Article DOI: 10.1002/cpp.70100 OpenAlex: https://openalex.org/W4411307859
    Crossref OpenAlex
  64. Gladding S. T. (2009) Family therapy: History theory and practice (5th ed.). Pearson.
    Type: Autre
    Crossref
  65. Nicola Mount , Gayle Dillon (2014). Parents’ experiences of living with an adolescent diagnosed with an autism spectrum disorder . Educational and Child Psychology, 31(4), 72-81. British Psychological Society.
    Type: Article DOI: 10.53841/bpsecp.2014.31.4.72 OpenAlex: https://openalex.org/W2527764232
    Crossref OpenAlex
  66. E Goffman (1969). The presentation of self in everyday life . The presentation of self in everyday life.
    Type: Autre
    Crossref
  67. Froma Walsh (2016). Applying a Family Resilience Framework in Training, Practice, and Research: Mastering the Art of the Possible . Family Process, 55(4), 616-632. Wiley.
    Type: Article DOI: 10.1111/famp.12260 OpenAlex: https://openalex.org/W2567201875
    Crossref OpenAlex
  68. González MJ, Gelman CR (2015). Clinical social work. In J. D. Wright (Ed.), International encyclopedia of the social & behavioral sciences (2nd ed., Vol. 3, pp. 257–262). Elsevier. https://doi.org/10 . 1016/B978-0-08-097086-8. 28025-9
    Type: Autre DOI: 10.1016/b978-0-08-097086-8.28025-9 Crossref: introuvable DataCite: introuvable
    Crossref
  69. Giacomo Vivanti , Peter A. J. Fanning , Darren R. Hocking , Stephanie Sievers , Cheryl Dissanayake (2017). Social Attention, Joint Attention and Sustained Attention in Autism Spectrum Disorder and Williams Syndrome: Convergences and Divergences . Journal of Autism and Developmental Disorders, 47(6), 1866-1877. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3106-4 OpenAlex: https://openalex.org/W2602031977
    Crossref OpenAlex
  70. Sarah Khan , Gemma Delgar Farrés , Jaume-Miquel March-Amengual (2026). L’ús de les llengües a la Universitat de Vic-Universitat Central de Catalunya: PDI, PAS i estudiants de grau . Revista de Llengua i Dret, 5(1), 219-244. Escola d'Administració Pública de Catalunya.
    Type: Article DOI: 10.58992/rld.i85.2026.4562 OpenAlex: https://openalex.org/W2605514476
    OpenAlex
  71. Amy L. Gunty (2021). Rethinking resilience in families of children with autism spectrum disorders. Couple and Family Psychology: Research and Practice, 10(2), 87-102. American Psychological Association (APA).
    Type: Article DOI: 10.1037/cfp0000155 OpenAlex: https://openalex.org/W3096874676
    Crossref OpenAlex
  72. Anders L. Sønderlund , Thomas A. Morton , Michelle K. Ryan (2017). Multiple Group Membership and Well-Being: Is There Always Strength in Numbers? Frontiers in Psychology, 8, 1038-1038. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2017.01038 OpenAlex: https://openalex.org/W2642954181
    Crossref OpenAlex
  73. Ruby Hake (2025). Autistic trans camouflaging: an early phenomenological exploration . Philosophical Psychology, 38(1), 150-167. Informa UK Limited.
    Type: Article DOI: 10.1080/09515089.2024.2385056 OpenAlex: https://openalex.org/W4402567326
    Crossref OpenAlex
  74. Brett Heasman , Alex Gillespie (2018). Perspective-taking is two-sided: Misunderstandings between people with Asperger’s syndrome and their family members . Autism, 22(6), 740-750. SAGE Publications.
    Type: Article DOI: 10.1177/1362361317708287 OpenAlex: https://openalex.org/W2727105378
    Crossref OpenAlex
  75. E Hall (2019). The social model of disability . The social model of disability.
    Type: Autre
    Crossref
  76. Emeline Han , Melisa Mei Jin Tan , Laura Crane , Helena Legido-Quigley (2021). A qualitative study of autism services and supports in Singapore: Perspectives of service providers, autistic adults and caregivers . Autism, 25(8), 2279-2290. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211016112 OpenAlex: https://openalex.org/W3165307410
    Crossref OpenAlex
  77. Carolyn M. Shivers , Jeffrey B. Jackson , Casey M. McGregor (2019). Functioning Among Typically Developing Siblings of Individuals with Autism Spectrum Disorder: A Meta-Analysis . Clinical Child and Family Psychology Review, 22(2), 172-196. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10567-018-0269-2 OpenAlex: https://openalex.org/W2891029774
    Crossref OpenAlex
  78. Habib A (2019) Investigating working memory impairments in individuals with autism spectrum disorder. PhD thesis. http://theses.gla.ac.uk/76746/
    Type: Autre
    Crossref
  79. SA Haslam (2012). The social cure: Identity, health and well-being . The social cure: Identity, health and well-being, 157.
    Type: Autre
    Crossref
  80. Emma Kinnaird , Catherine Stewart , Kate Tchanturia (2019). Investigating alexithymia in autism: A systematic review and meta-analysis . European Psychiatry, 55, 80-89. Cambridge University Press (CUP).
    Type: Article DOI: 10.1016/j.eurpsy.2018.09.004 OpenAlex: https://openalex.org/W2899269258
    Crossref OpenAlex
  81. Reina S. Factor , Thomas H. Ollendick , Lee D. Cooper , Julie C. Dunsmore , Hannah M. Rea , Angela Scarpa (2019). All in the Family: A Systematic Review of the Effect of Caregiver-Administered Autism Spectrum Disorder Interventions on Family Functioning and Relationships . Clinical Child and Family Psychology Review, 22(4), 433-457. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10567-019-00297-x OpenAlex: https://openalex.org/W2966564697
    Crossref OpenAlex
  82. Hiranandani V (2005) Towards a critical theory of disability in social work. Critical Social Work, 6(1). https://doi.org/10 . 22329/csw.v6i1. 5672
    Type: Autre DOI: 10.22329/csw.v6i1.5672 Crossref: introuvable DataCite: introuvable
    Crossref
  83. Robert M. Hock , Aimee K. Rovane , Mark E. Feinberg , Damon E. Jones , Amy A. Holbert (2022). A Pilot Study of a Co-parenting Intervention for Parents of Children with Autism Spectrum Disorder . Journal of Child and Family Studies, 31(8), 2091-2107. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10826-022-02278-1 OpenAlex: https://openalex.org/W4214812650
    Crossref OpenAlex
  84. Cindy H. T. Hsiang , Linda Campbell , Meredith Tavener (2024). Clinicians' experiences and perceptions of family therapy in the context of autism . Journal of Family Therapy, 46(4), 423-441. Wiley.
    Type: Article DOI: 10.1111/1467-6427.12467 OpenAlex: https://openalex.org/W4400931085
    Crossref OpenAlex
  85. Varun Warrier , David M. Greenberg , Elizabeth M Weir , Clara Buckingham , Paula Smith , Meng-Chuan Lai et al. (2020). Elevated rates of autism, other neurodevelopmental and psychiatric diagnoses, and autistic traits in transgender and gender-diverse individuals . Nature Communications, 11(1), 3959-3959. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/s41467-020-17794-1 OpenAlex: https://openalex.org/W3048303946
    Crossref OpenAlex
  86. B Ingersoll (2019). Teaching social communication to children with autism and other developmental delays: The Project ImPACT manual for parents . Teaching social communication to children with autism and other developmental delays: The Project ImPACT manual for parents.
    Type: Autre
    Crossref
  87. Peter Mitchell , Elizabeth Sheppard , Sarah Cassidy (2021). Autism and the double empathy problem: Implications for development and mental health . British Journal of Developmental Psychology, 39(1), 1-18. Wiley.
    Type: Article DOI: 10.1111/bjdp.12350 OpenAlex: https://openalex.org/W3119501104
    Crossref OpenAlex
  88. Nicola Rudelli , Claudio Straccia , Geneviève Petitpierre (2021). Fathers of children with autism spectrum disorder: Their perceptions of paternal role a predictor of caregiving satisfaction, self-efficacy and burden . Research in Autism Spectrum Disorders, 83, 101744. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2021.101744 OpenAlex: https://openalex.org/W3129399168
    Crossref OpenAlex
  89. Anne Kazak , Alejandra Perez Ramirez , Michele A. Scialla , Melissa A. Alderfer , Carrie Sewell-Roberts , Diane Treadwell-Deering (2023). Adaptation and pilot implementation of the Psychosocial Assessment Tool for Autism Spectrum Disorders (PAT-ASD) . Journal of Autism and Developmental Disorders, 53(11), 4308-4317. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-022-05713-w OpenAlex: https://openalex.org/W4292883411
    Crossref OpenAlex
  90. Natasha Malik-Soni , Andrew Shaker , Helen Luck , Anne E. Mullin , Ryan E. Wiley , M. E. Suzanne Lewis et al. (2022). Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood . Pediatric Research, 91(5), 1028-1035. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/s41390-021-01465-y OpenAlex: https://openalex.org/W3136657450
    Crossref OpenAlex
  91. Sharmila Vaz , Allyson Thomson , Belinda Cuomo , Torbjorn Falkmer , Angela Chamberlain , Melissa H. Black (2021). Co-occurring intellectual disability and autism: Associations with stress, coping, time use, and quality of life in caregivers . Research in Autism Spectrum Disorders, 84, 101765. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2021.101765 OpenAlex: https://openalex.org/W3147134396
    Crossref OpenAlex
  92. R Kothari (2017). Autism spectrum disorders . Autism spectrum disorders, 259.
    Type: Autre
    Crossref
  93. Ella Perry , Will Mandy , Laura Hull , Eilidh Cage (2022). Understanding Camouflaging as a Response to Autism-Related Stigma: A Social Identity Theory Approach . Journal of Autism and Developmental Disorders, 52(2), 800-810. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-04987-w OpenAlex: https://openalex.org/W3150043110
    Crossref OpenAlex
  94. MC Lai (2020). Lai MC, Szatmari P (2020) Resilience in autism: research and practice prospects. Autism 24(3):730–732. https://doi.org/10 . 1177/1362361320913763 Autism, 24(3), 730.
    Type: Autre DOI: 10.1177/1362361320913763 Crossref: introuvable DataCite: introuvable
    Crossref
  95. WW Lai (2015). Lai WW, Goh TJ, Oei TP, Sung M (2015) Coping and well-being in parents of children with autism spectrum disorders. J Autism Dev Disord 45(8):2582–2593. https://doi.org/10 . 1007/s10803-015-2425-9 J Autism Dev Disord, 45(8), 2582.
    Type: Autre DOI: 10.1007/s10803-015-2425-9 Crossref: introuvable DataCite: introuvable
    Crossref
  96. Jeffrey McCrossin , Lucyna Lach , Patrick McGrath (2023). Content analysis of parent training programs for children with neurodisabilities and mental health or behavioral problems: a scoping review . Disability and Rehabilitation, 45(1), 154-169. Informa UK Limited.
    Type: Article DOI: 10.1080/09638288.2021.2017493 OpenAlex: https://openalex.org/W4205837689
    Crossref OpenAlex
  97. Wenn Lawson * , Brynn A. Dombroski (2017). Problems with Object Permanence: Rethinking Traditional Beliefs Associated with Poor Theory of Mind in Autism . Journal of Intellectual Disability - Diagnosis and Treatment, 5(1), 1-6. Lifescience Global.
    Type: Article DOI: 10.6000/2292-2598.2017.05.01.1
    Crossref
  98. Salvador MINUCHIN (1974). Families and Family Therapy . Harvard University Press.
    Type: Livre DOI: 10.4159/9780674041127 OpenAlex: https://openalex.org/W4213437221
    Crossref OpenAlex
  100. Sini Li , Yijing Yong , Yamin Li , Jianhe Li , Jiao Xie (2024). Cognitive-Based Interventions for Improving Psychological Health and Well-Being for Parents of Children with Developmental Disabilities: A Systematic Review and Meta-analysis . Journal of Autism and Developmental Disorders, 54(9), 3316-3335. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-023-06063-x OpenAlex: https://openalex.org/W4386438975
    Crossref OpenAlex
  101. Tiffany Hutchins , Giacomo Vivanti , Natasa Mateljevic , Roger J. Jou , Frederick Shic , Lauren Cornew et al. (2013). Multiplex-Simplex Comparisons . Dans Encyclopedia of Autism Spectrum Disorders (pp. 1960-1960). Springer New York.
    Type: Chapitre de livre DOI: 10.1007/978-1-4419-1698-3_1333 OpenAlex: https://openalex.org/W4229918663
    Crossref OpenAlex
  102. Mélina Rivard , Diane Morin , Patrick Coulombe , Marjorie Morin , Catherine Mello (2023). The Diagnostic Period for Autism: Risk and Protective Factors for Family Quality of Life in Early Childhood . Journal of Autism and Developmental Disorders, 53(10), 3755-3769. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-022-05686-w OpenAlex: https://openalex.org/W4289521763
    Crossref OpenAlex
  103. Andrew Austin McDonnell , Andrea Page , Stephanie Bews-Pugh , Karolina Anna Morgalla , Tarendeep Kaur-Johal , Mary Maher (2024). Families’ experiences of the Low Arousal Approach: a qualitative study . Frontiers in Psychology, 15, 1328825-1328825. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2024.1328825 OpenAlex: https://openalex.org/W4393035189
    Crossref OpenAlex
  104. Kristen T. MacKenzie , Mario J. Crown , Jessie B. Northrup , Elizabeth Rutenberg , Amy G. Hartman , Carla A. Mazefsky (2025). Correlates of Impairment and Growth in Families of Young Autistic Children . Journal of Autism and Developmental Disorders, 55(5), 1846-1856. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-024-06339-w OpenAlex: https://openalex.org/W4394849341
    Crossref OpenAlex
  105. Carla Wallace-Watkin , Jeff Sigafoos , Hannah Waddington (2023). Barriers and facilitators for obtaining support services among underserved families with an autistic child: A systematic qualitative review . Autism, 27(3), 588-601. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221123712 OpenAlex: https://openalex.org/W4295084596
    Crossref OpenAlex
  106. SK Marshall (2009). Social psychological foundations of clinical psychology . Social psychological foundations of clinical psychology, 272.
    Type: Autre
    Crossref
  107. Jeffrey McCrossin , Lucyna M. Lach (2023). Measuring family outcomes in parenting programs for children with neurodisabilities: a scoping review . Journal of Family Social Work, 26(2), 68-101. Informa UK Limited.
    Type: Article DOI: 10.1080/10522158.2023.2231986 OpenAlex: https://openalex.org/W4383817671
    Crossref OpenAlex
  108. Hillary K. Schiltz , Elaine Clarke , Nicole Rosen , Sofi Gomez De La Rosa , Nina Masjedi , Kourtney Christopher et al. (2024). A Longitudinal Mixed-Methods Characterization of Family Support from Adolescence to Young Adulthood in Autism and Other Developmental Disabilities . Journal of Autism and Developmental Disorders, 54(9), 3225-3241. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-023-06070-y OpenAlex: https://openalex.org/W4386438469
    Crossref OpenAlex
  110. Sebastian Trew (2024). Made to feel different: Families perspectives on external responses to autism and the impacts on family well-being and relationships . Autism, 28(8), 2120-2139. SAGE Publications.
    Type: Article DOI: 10.1177/13623613231221684 OpenAlex: https://openalex.org/W4391026872
    Crossref OpenAlex
  111. Sebastian Trew (2025). Close Relationships Despite the Challenges: Sibling Relationships and Autism . Journal of Autism and Developmental Disorders, 55(9), 2989-3001. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-024-06412-4 OpenAlex: https://openalex.org/W4399552267
    Crossref OpenAlex
  112. Sebastian Trew (2025). The experience of autism from the perspective of autistic adolescents . Disability & Society, 40(7), 1801-1831. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599.2024.2374484 OpenAlex: https://openalex.org/W4400649270
    Crossref OpenAlex
  113. Anthony Pennant (2025). SFT for ASD: A systemic intervention for neurodiverse families . Journal of Family Therapy, 47(1), 90. Wiley.
    Type: Article DOI: 10.1111/1467-6427.12475 OpenAlex: https://openalex.org/W4403808001
    Crossref OpenAlex
  114. CA Potter (2016). Potter CA (2016) “I received a leaflet and that was it”: father experiences of a diagnosis of autism. Br J Learn Disabil 45(2):95–105. https://doi.org/10 . 1111/bld. 12154 Br J Learn Disabil, 45(2), 95.
    Type: Autre DOI: 10.1111/bld.12154 Crossref: introuvable DataCite: introuvable
    Crossref
  115. Sebastian Trew (2025). Opportunities for growth in relationships: parents perceptions of their experiences of autism and impacts on partner relationships . Discover Psychology, 5(1). Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s44202-025-00411-x OpenAlex: https://openalex.org/W4413790632
    Crossref OpenAlex
  116. Sebastian Trew (2025). Our Challenges, Our Solutions: The Impact of Autism on Families . Journal of Autism and Developmental Disorders. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-025-07034-0 OpenAlex: https://openalex.org/W4414082512
    Crossref OpenAlex
  117. Z Rasheed (2023). Rasheed Z (2023) Autism in Australia: understanding, challenges, and support. Int J Health Sci 17(5):1–4 Int J Health Sci, 17(5), 1.
    Type: Autre
    Crossref
  118. CR Rogers (1961). On becoming a person: A therapist’s view of psychotherapy . On becoming a person: A therapist’s view of psychotherapy.
    Type: Autre
    Crossref
  119. H Tajfel (1979). The social psychology of intergroup relations . The social psychology of intergroup relations, 33.
    Type: Autre
    Crossref
  120. S Trew (2021). Family relationships and autism spectrum disorder: Lived experiences of young people with autism and their families . Family relationships and autism spectrum disorder: Lived experiences of young people with autism and their families.
    Type: Autre
    Crossref
  121. M Verghese (2020). Verghese M, Hutchinson L, Vamadevan V, Velleman R, Wittkowski A (2020) A systematic review and meta-analysis of family systems interventions for children and adolescents with autism. J Autism Dev Disord 50(7):2490–2502. https://doi.org/10 . 1007/s10803-019-03987-2 J Autism Dev Disord, 50(7), 2490.
    Type: Autre DOI: 10.1007/s10803-019-03987-2 Crossref: introuvable DataCite: introuvable
    Crossref