Familles vivant avec un trouble du spectre de l'autisme

Titre original en anglais : Families Living With Autism Spectrum Disorder

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Cridland, E. K., Thom-Jones, S., Stoyles, G., Caputi, P., & Magee, C. (2015). Families Living With Autism Spectrum Disorder. Focus on Autism and Other Developmental Disabilities, 31(3), 196-207. https://doi.org/10.1177/1088357615583466

Date de publication: 22/04/2015 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)
  1. Elizabeth K. Cridland
  2. Sandra Thom-Jones *
  3. Gerard Stoyles
  4. Peter Caputi
  5. Chris Magee

Résumé

La compréhension actuelle des relations entre frères et sœurs adolescents lorsqu'un trouble du spectre de l'autisme (TSA) est présent est limitée. Cette lacune de recherche persiste malgré des résultats préliminaires suggérant que les frères et sœurs au développement neurotypique (NTD) assument des responsabilités supplémentaires de soins et font l'expérience d'un traitement différentiel de la part des membres de la famille. En utilisant une approche des systèmes familiaux, cette étude qualitative a examiné les rôles et responsabilités des sœurs adolescentes NTD envers leur frère adolescent plus jeune atteint de TSA, selon les perspectives de 11 membres de la famille (y compris les sœurs NTD, les frères atteints de TSA, les mères et les pères). Les résultats indiquent que les sœurs assumaient divers rôles et responsabilités de soins, particulièrement à l'école, ce qui avait des influences à la fois positives et négatives sur le système familial. De plus, les sœurs percevaient qu'elles assumaient des responsabilités domestiques injustes, recevaient moins d'attention parentale, et souhaitaient à la fois prendre leurs distances avec leurs familles et s'y engager. Ces perceptions variaient parmi les autres membres de la famille. Les implications de ces résultats et les stratégies permettant de soutenir au mieux les frères et sœurs adolescents NTD sont examinées.

There is currently a limited understanding of adolescent sibling relationships where Autism Spectrum Disorder (ASD) is present. This research gap remains despite preliminary findings suggesting that neurotypically developing (NTD) siblings undertake extra caregiving responsibilities and experience differential treatment from family members. Using a Family Systems approach, this qualitative study investigated NTD adolescent sisters’ roles and responsibilities for their younger adolescent brother with ASD from the perspectives of 11 family members (including NTD sisters, brothers with ASD, mothers, and fathers). Findings indicate the sisters undertook various caregiving roles and responsibilities, particularly at school, which had both positive and negative influences on the family system. Additionally, sisters perceived they undertook unfair household responsibilities, received reduced parental attention, and desired both distance from and engagement with their families. These perceptions varied amongst other family members. Implications of these findings and strategies for best supporting adolescent NTD siblings are discussed.

Bibliographie citée par cette référence

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Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
85
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
3 / 85 (3,5 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
3 / 173 (1,7 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 3 / 20 (15,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 1 / 150 (0,7 %).
Occurrences citées rattachées à la base AutiHub
20 / 173 (11,6 %)
Auteurices cité·es distinct·es rattaché·es : 10 / 150 (6,7 %)
Occurrences rattachées, non identifiées comme autistes
17 / 20 (85,0 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 17 / 173 (9,8 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 9 / 10 (90,0 %).
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