Des relations étroites malgré les difficultés : les relations fraternelles et l'autisme

Titre original en anglais : Close Relationships Despite the Challenges: Sibling Relationships and Autism

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Trew, S. (2024). Close Relationships Despite the Challenges: Sibling Relationships and Autism. Journal of Autism and Developmental Disorders, 55(9), 2989-3001. https://doi.org/10.1007/s10803-024-06412-4

Publication date: 10/06/2024 Ajout dans AutiHub: 16/09/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
1
Auteur·ices de la publication identifié·es comme autistes
1 / 1 (100,0 %)
  1. Sebastian Trew *

Résumé

Résumé Cette étude explore les expériences des frères et sœurs d'adolescents autistes au sein des familles. Sans les nouvelles connaissances générées par l'engagement auprès des frères et sœurs d'adolescents autistes dans un cadre qualitatif, il peut être difficile d'élaborer des stratégies pour intervenir efficacement auprès de ce groupe ou de structurer des interventions auprès de ces familles. En utilisant une approche constructiviste sociale et une méthodologie participative qualitative, l'étude exploratoire a été menée au moyen d'entretiens approfondis avec dix frères et sœurs non autistes, analysés par une méthode d'analyse thématique. Les résultats révèlent un sentiment commun d'incertitude et d'appréhension dans les relations, conduisant les frères et sœurs à une prise de distance physique et émotionnelle vis-à-vis de leurs frères ou sœurs autistes. La recherche souligne les rôles d'aidant principalement assumés par les sœurs, en particulier lorsque le frère ou la sœur autiste est un frère présentant une déficience intellectuelle. Ces rôles imposent des exigences considérables, et leurs limites peu claires suggèrent une possible confusion des rôles. Les résultats ont des implications importantes pour la pratique auprès des familles, nécessitant de traiter les conflits de rôles et de favoriser la clarté des rôles. Ils soulignent également la nature genrée de l'aide, préconisant un soutien aux sœurs dans ces rôles. Cette étude a révélé la complexité des relations fraternelles dans les familles comptant un membre qui est un frère ou une sœur adolescent autiste. L'étude suggère des interventions favorisant des dialogues familiaux ouverts afin d'adopter une approche équilibrée des rôles familiaux, en fournissant des orientations précieuses aux praticiens pour améliorer le bien-être des frères et sœurs et de la famille.

Abstract This study explores the experiences of siblings of autistic adolescents within families. Without the novel insights generated from engaging with siblings of autistic adolescents within a qualitative framework, it can be challenging to develop strategies for practicing effectively with this group or structuring interventions with these families. Using a social constructivist approach and qualitative participatory methodology, the exploratory study was conducted using in-depth interviews with ten non-autistic siblings, analyzed via a thematic analysis method. The results reveal a common feeling of uncertainty and apprehension in the relationships, leading siblings to physical and emotional detachment from their autistic brothers or sisters. The research emphasizes the caregiving roles predominantly taken up by sisters, especially when the autistic sibling is a brother with intellectual disability. These roles exert substantial demands, with unclear boundaries suggesting potential role confusion. The findings have important implications for family practice, necessitating the need to address role conflict and promote role clarity. They also underscore the gendered nature of caregiving, advocating for support to sister-siblings in these roles. This study revealed the complexities of sibling relationships in families with a member who is an autistic adolescent sibling. The study suggests interventions that promote open family dialogues for a balanced approach to family roles, providing valuable guidance to practitioners to enhance siblings and family well-being.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 20/09/2026 01:01.

Références citées
128
Avec un DOI
101
Sans DOI, à partir du texte brut de la bibliographie
23
5 / 128 (3,9 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
13 / 128 (10,2 %)
Références avec noms d’auteurices détectés
118 / 128 (92,2 %)
Sans nom d’auteurice détecté
10
Sans titre structuré
13
Sans identifiant stable
20
Références avec noms bruts d’auteurices restant à vérifier
10
Références avec problème de récupération des métadonnées externes
1
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
366
À partir du DOI ou de métadonnées externes
366
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
16
45 / 366 (12,3 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 321 / 366 (87,7 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
5 / 366 (1,4 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 5 / 45 (11,1 %). Personnes distinctes identifiées comme autistes : 3 / 337 (0,9 %).
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