Resources on autistic participation in autism science

Ellie Horton, Laura A. Brownhill, Daniel Tones, Anita Z Goldschmied, Max J. Knops, Emine Gurbuz, Eleanor Dommett, Wilkinson Lauren, Jackie Taylor, Carla T Toro, Jagjeet Jutley-Neilson (2026). Developing an Evaluation Framework to Promote Meaningful Participation of Autistic People in Research: The Evaluating Levels of Participation in Autism Research Tool and Participatory Action Research Group Checklist. Autism in Adulthood.

Teal W. Benevides, Stephen Mark Shore, Julia Heinly, Daylin Delgado, Reid Caplan, Becca Lory Hector, Liane Holliday-Willey, Lindsey Nebeker, Karl Wittig, Danielle Roubinov, Brenna Maddox, Shari Jager-Hyman (2025). Short Take: An Approach to Decision-making in Community-based Participatory Research to Foster Co-ownership and Trust. Field Methods, 38(1), 76-84.

Heidi Kristiina Kaljusto, Emma Wilson, Sue Fletcher-Watson (2025). Do Influential Articles on the Genetics of Autism Show Evidence of Engagement With the Autistic Community? American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, 198(6), 46-61.

Damian Milton, Allison Moore, Nicola Martin (2025). From humble beginnings: Reflections on 10 years of the Participatory Autism Research Collective. Autism, 29(4), 827-828.

Amanda Timmerman, Vasiliki Totsika, Valerie Lye, Laura Crane, Audrey Linden, Elizabeth Pellicano (2024). Quality-of-life measurement in randomised controlled trials of mental health interventions for autistic adults: A systematic review. Autism, 29(3), 579-595.

Ellie Horton, Anita Z Goldschmied, Max J. Knops, Laura A. Brownhill, Alice Bycroft, Anthony Lloyd, Daniel Tones, Beth Wiltshire, Carla T Toro, Jagjeet Jutley-Neilson (2024). Empowering Voices: Fostering Reflective Dialogue and Redefining Research Dynamics in Participatory Approaches With the Autistic Community. Journal of Participatory Research Methods, 5(3).

Diana Tan, Laura Crane, Tori Haar, Melanie Heyworth, Rebecca E. Poulsen, Elizabeth Pellicano (2024). Reporting community involvement in autism research: Findings from the journal Autism. Autism, 29(2), 490-503.

Sue Fletcher-Watson (2024). Reporting participatory methods and author positionality in autism. Autism, 28(8), 1869-1871.

Gemma Williams, Rebecca Ellis, Willow Holloway, Selena Caemawr, Monique Craine, Kathryn Williams, Aimee Grant (2024). ‘Building our own house’ as an insider-only Community-Partnered Participatory Research Council: Co-creating a safe space for Autistic knowledge production. Autism, 29(9), 2205-2215.

Tori Haar, Charlotte Brownlow, Gabrielle Hall, Melanie Heyworth, Wenn Lawson, Rebecca E. Poulsen, Tamara Reinisch, Elizabeth Pellicano (2024). ‘We have so much to offer’: Community members’ perspectives on autism research. Autism, 29(9), 2254-2267.

Sahar Hammoud, Laith Alsabek, Lisa Rogers, Éilish McAuliffe (2024). Systematic review on the frequency and quality of reporting patient and public involvement in patient safety research. BMC Health Services Research, 24(1), 532-532.

A. Park, Jenna van Draanen (2024). Community-Partnered Research appraisal tool for conducting, reporting and assessing community-based research. BMJ Open, 14(4), e081625.

Jessica Dark (2024). Eight principles of neuro-inclusion; an autistic perspective on innovating inclusive research methods. Frontiers in Psychology, 15, 1326536-1326536.

Eilidh Cage, Catherine J. Crompton, Sarah Dantas, Khiah Strachan, Rachel Birch, Mark Robinson, Stasa Morgan-Appel, Charlie MacKenzie-Nash, Aaron Gallagher, Monique Botha (2024). What are the autism research priorities of autistic adults in Scotland? Autism, 28(9), 2179-2190.

Flora Oswald (2024). Positionality statements should not force us to ‘out’ ourselves. Nature Human Behaviour, 8(2), 185-185.

Joke Struyf, Cecilia Ingard, Hannah Bertilsdotter Rosqvist (2024). Neurodiverse Research Collaboration Within a European Biomedical Project: Limits and Possibilities. In The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies (pp. 81-97). Springer Nature Switzerland.

Marjorie Désormeaux-Moreau, Isabelle Courcy (2024). Neuromixed Participatory Action Research: A Dialogical Method. In The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies (pp. 141-159). Springer Nature Switzerland.

Rozanna Lilley, Hannah Rapaport, Rebecca E. Poulsen, Michael Yudell, Elizabeth Pellicano (2023). Contributing to an autism biobank: Diverse perspectives from autistic participants, family members and researchers. Autism, 28(7), 1719-1731.

Alana J. McVey, Desiree R Jones, TC Waisman, Dora M. Raymaker, Christina Nicolaidis, Brenna Maddox (2023). Mindshift in autism: a call to professionals in research, clinical, and educational settings. Frontiers in Psychiatry, 14, 1251058-1251058.

Kathryn Lewis, Lorna G. Hamilton, Jonathan Vincent (2023). Author response for "Exploring the experiences of autistic pupils through creative research methods: Reflections on a participatory approach". Wiley.

Elizabeth A. Kaplan-Kahn, Reid Caplan (2023). Combating stigma in autism research through centering autistic voices: a co-interview guide for qualitative research. Frontiers in Psychiatry, 14, 1248247-1248247.

Elizabeth Pellicano, Melanie Heyworth (2023). The Foundations of Autistic Flourishing. Current Psychiatry Reports, 25(9), 419-427.

Heini Natri, Carolyn Riley Chapman, Siofra Heraty, Patrick Dwyer, Nick Walker, Steven K. Kapp, Heather Armstrong Dron, Julian A. Martinez-Agosto, Lea Mikkola, Mary Doherty (2023). Ethical challenges in autism genomics: Recommendations for researchers. European Journal of Medical Genetics, 66(9), 104810.

Hannah Hobson, Audrey Linden, Laura Crane, Tamara Kalandadze (2023). Towards reproducible and respectful autism research: Combining open and participatory autism research practices. Research in Autism Spectrum Disorders, 106, 102196.

Flora Cornish, Nancy Nyutsem Breton, Ulises Moreno-Tabarez, Jenna Delgado, Mohi Rua, Ama de‐Graft Aikins, Darrin Hodgetts (2023). Participatory action research. Nature Reviews Methods Primers, 3(1).

Heini Natri, Oluwatobi Abubakare, Kassiane Asasumasu, Abha Basargekar, Flavien Beaud, Monique Botha, Kristen Bottema-Beutel, Maria Rosa Brea, Ly Xīnzhèn M. Zhǎngsūn Brown, Daisy A. Burr, Laurence Cobbaert, Christopher R. Dabbs, Donnie Denome, Shannon des Roches Rosa, Mary Doherty, Beth Edwards, Chris Edwards, Síle Ekaterin Liszk, Freya Elise, Sue Fletcher-Watson, Rebecca L. Flower, Stephanie Fuller, Dena L. Gassner, Morénike Giwa Onaiwu, Judith Good, Aimee Grant, Vicki L. Haddix, Siofra Heraty, Andrew Hundt, Steven K. Kapp, Nathan Keates, Trayle Kulshan, Andrew J Lampi, Oswin Latimer, Kathy Leadbitter, Jennifer Litton Tidd, Marie Manalili, Menelly Martin, Anna Millichamp, Hannah E. Morton, Vishnu KK Nair, Georgia Pavlopoulou, Amy Pearson, Elizabeth Pellicano, Hattie Porter, Rebecca E. Poulsen, Zoë S. Robertson, Kayla Rodriguez, Anne M. Roux, Mary C. Russell, Jacalyn G. Ryan, Noah Sasson, Holly Smith Grier, Mark Somerville, Cole Sorensen, Kayden M. Stockwell, Tauna Szymanski, Sandra Hodgetts, Martine Van Driel, Victoria VanUitert, Krysia Emily Waldock, Nick Walker, Courtney Watts, Zachary J. Williams, Richard Woods, Betty Yu, Meghan Zadow, Jordyn Zimmerman, Alyssa Hillary Zisk (2023). Anti‐ableist language is fully compatible with high‐quality autism research: Response to S inger et al. (2023). Autism Research, 16(4), 673-676.

Yulin Cheng, Bethlehem Tekola, Anand Balasubramanian, Laura Crane, Kathy Leadbitter (2023). Neurodiversity and community-led rights-based movements: Barriers and opportunities for global research partnerships. Autism, 27(3), 573-577.

Anne‐Laure Le Cunff, Poppy Ellis Logan, Rhian M. Ford, Brandon-Lee Martis, Iris Mousset, Jane Sekibo, Eleanor Dommett, Vincent Giampietro (2023). Co-Design for Participatory Neurodiversity Research: Collaborating With a Community Advisory Board to Design a Research Study. Journal of Participatory Research Methods, 4(1).

Sarah Weschke, Delwen Franzen, Anna Sierawska, Lea-Sophie Bonde, Daniel Strech, Susanne Gabriele Schorr (2023). Reporting of patient involvement: a mixed-methods analysis of current practice in health research publications using a targeted search strategy. BMJ Open, 13(1), e064170.

Monique Botha, Eilidh Cage (2022). “Autism research is in crisis”: A mixed method study of researcher’s constructions of autistic people and autism research. Frontiers in Psychology, 13, 1050897-1050897.

Hannah Bertilsdotter Rosqvist, Monique Botha, Kristien Hens, Sarinah O’Donoghue, Amy Pearson, Anna Stenning (2022). Cutting our own keys: New possibilities of neurodivergent storying in research. Autism, 27(5), 1235-1244.

Elizabeth Pellicano, Unsa Fatima, Gabrielle Hall, Melanie Heyworth, Wenn Lawson, Rozanna Lilley, Joanne Mahony, Marc Stears (2022). A capabilities approach to understanding and supporting autistic adulthood. Nature Reviews Psychology, 1(11), 624-639.

Jacquiline den Houting, Julianne M. Higgins, Kathy Isaacs, Joanne Mahony, Elizabeth Pellicano (2022). From ivory tower to inclusion: Stakeholders’ experiences of community engagement in Australian autism research. Frontiers in Psychology, 13, 876990-876990.

Hannah Hobson, Daniel Poole, Amy Pearson, Sue Fletcher-Watson (2022). Opening up autism research: Bringing open research methods to our field. Autism, 26(5), 1011-1013.

Heta Pukki, Jorn Bettin, Avery Grey Outlaw, Joshua Hennessy, Kabie Brook, Martijn Dekker, Mary Doherty, Sebastian C.K. Shaw, Jo Bervoets, Silke Rudolph, Thibault Corneloup, Kylieanne Derwent, Onemoo Lee, Yadira Garcia Rojas, Wenn Lawson, Monica Vidal Gutierrez, Kosjenka Petek, Myria Tsiakkirou, Annikka Suoninen, Jo Minchin, Rainer Dohle, S Lipinski, Heini Natri, Emma Reardon, Giovanna Villarreal Estrada, Ovidiu Platon, Nicholas Chown, Satsuki Ayaya, Damian Milton, Nick Walker, Ondrej Roldan, Bárbara Herrán, Citlali Limón Cañedo, Sue McCowan, Mona Johnson, Eleanor Jane Turner, Jessy Lammers, wn-ho Yoon (2022). Autistic Perspectives on the Future of Clinical Autism Research. Autism in Adulthood, 4(2), 93-101.

Daniel Masterson, Kristina Areskoug Josefsson, Glenn Robert, Elisabeth Nylander, Sofia Kjellström (2022). Mapping definitions of co‐production and co‐design in health and social care: A systematic scoping review providing lessons for the future. Health Expectations, 25(3), 902-913.

Debra Costley, Anne Emerson, Danielle Ropar, Elizabeth Sheppard, A. McCubbing, Simon Bass, Samuel Dent, Rebecca Ellis, S. Limer, Sophie Phillips, J. Ward Penny (2022). Trying to solve the ‘worst situation’ together: participatory autism research. Educational Action Research, 31(4), 691-708.

Rebecca E. Poulsen, Charlotte Brownlow, Wenn Lawson, Elizabeth Pellicano (2022). Meaningful research for autistic people? Ask autistics! Autism, 26(1), 3-5.

Elizabeth Pellicano, Wenn Lawson, Gabrielle Hall, Joanne Mahony, Rozanna Lilley, Melanie Heyworth, Hayley Clapham, Michael Yudell (2021). “I Knew She'd Get It, and Get Me”: Participants' Perspectives of a Participatory Autism Research Project. Autism in Adulthood, 4(2), 120-129.

Aimee Grant, Helen Kara (2021). Considering the Autistic advantage in qualitative research: the strengths of Autistic researchers. Contemporary Social Science, 16(5), 589-603.

Elizabeth Pellicano, Jacquiline den Houting (2021). Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science. Journal of Child Psychology and Psychiatry, 63(4), 381-396.

Monique Botha (2021). Academic, Activist, or Advocate? Angry, Entangled, and Emerging: A Critical Reflection on Autism Knowledge Production. Frontiers in Psychology, 12, 727542-727542.

Patrick Dwyer, Sara M. Acevedo, Heather M. Brown, Jordan Grapel, Sandra C. Jones, Brett Ranon Nachman, Dora M. Raymaker, Zachary J. Williams (2021). An Expert Roundtable Discussion on Experiences of Autistic Autism Researchers. Autism in Adulthood, 3(3), 209-220.

Sue Fletcher-Watson, Sven Bölte, Catherine J. Crompton, Desiree R Jones, Meng-Chuan Lai, Will Mandy, Elizabeth Pellicano, Aubyn C. Stahmer, Julie Lounds Taylor, DAVID S. MANDELL (2021). Publishing standards for promoting excellence in autism research. Autism, 25(6), 1501-1504.

Julia Jones, Marion Cowe, Sue Anne Marks, Tony McAllister, Alex Mendoza, Carole Ponniah, Helena Wythe, Elspeth Mathie (2021). Reporting on patient and public involvement (PPI) in research publications: using the GRIPP2 checklists with lay co-researchers. Research Involvement and Engagement, 7(1), 52-52.

Hannah Pickard, Elizabeth Pellicano, Jacquiline den Houting, Laura Crane (2021). Participatory autism research: Early career and established researchers’ views and experiences. Autism, 26(1), 75-87.

Amandine Catala, Luc Faucher, Pierre Poirier (2021). Autism, epistemic injustice, and epistemic disablement: a relational account of epistemic agency. Synthese, 199(3-4), 9013-9039.

Kathy Leadbitter, Karen Leneh Buckle, Ceri Ellis, Martijn Dekker (2021). Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice. Frontiers in Psychology, 12, 635690-635690.

Sue Fletcher-Watson, Kabie Brook, Sonny Hallett, Fergus Murray, Catherine J. Crompton (2021). Inclusive Practices for Neurodevelopmental Research. Current Developmental Disorders Reports, 8(2), 88-97.

Doreen Tembo, Gary Hickey, Cristián Montenegro, David Chandler, Erica Nelson, Katie Porter, Lisa Dikomitis, Mary Chambers, Moses John Chimbari, Noni Mumba, Peter Beresford, Peter O. Ekiikina, Rosemary Musesengwa, Sophie Staniszewska, Tina Coldham, Una Rennard (2021). Effective engagement and involvement with community stakeholders in the co-production of global health research. BMJ, 372, n178.

Laura Roche, Dawn Adams, Megan L. E. Clark (2020). Research priorities of the autism community: A systematic review of key stakeholder perspectives. Autism, 25(2), 336-348.

Jill Russell, Nina Fudge, Trisha Greenhalgh (2020). The impact of public involvement in health research: what are we measuring? Why are we measuring it? Should we stop measuring it? Research Involvement and Engagement, 6(1), 63-63.

Jacquiline den Houting, Julianne M. Higgins, Kathy Isaacs, Joanne Mahony, Elizabeth Pellicano (2020). ‘I’m not just a guinea pig’: Academic and community perceptions of participatory autism research. Autism, 25(1), 148-163.

Damian Milton (2020). From tokenism to full participation. In The Routledge Handbook of Service User Involvement in Human Services Research and Education (pp. 440-445). Routledge.

Oli Williams, Sophie Sarre, Constantina Papoulias, Sarah Knowles, Glenn Robert, Peter Beresford, Diana Rose, Sarah Carr, Meerat Kaur, Victoria Palmer (2020). Lost in the shadows: reflections on the dark side of co-production. Health Research Policy and Systems, 18(1), 43-43.

Teal W. Benevides, Stephen Mark Shore, Kate Palmer, Patricia Duncan, Alex Plank, May-Lynn Andresen, Reid Caplan, Barb Cook, Dena L. Gassner, Becca Lory Hector, Lisa Morgan, Lindsey Nebeker, Yenn Purkis, Brigid Rankowski, Karl Wittig, Steven S. Coughlin (2020). Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project. Autism, 24(4), 822-833.

Dora M. Raymaker, Alan R. Teo, Nicole A. Steckler, Brandy Lentz, Mirah Scharer, Austin Delos Santos, Steven K. Kapp, Morrigan Hunter, Andrea Joyce, Christina Nicolaidis (2020). “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew”: Defining Autistic Burnout. Autism in Adulthood, 2(2), 132-143.

Elizabeth Pellicano (2020). Commentary: Broadening the research remit of participatory methods in autism science – a commentary on Happé and Frith (2020). Journal of Child Psychology and Psychiatry, 61(3), 233-235.

Esther Turnhout, Tamara Metze, Carina Wyborn, Nicole Klenk, Elena Louder (2019). The politics of co-production: participation, power, and transformation. Current Opinion in Environmental Sustainability, 42, 15-21.

Elizabeth Pellicano, Marc Stears (2019). Commentary 1: Weksler-Derri et al.’s “Ethical Challenges in Participatory Research with Autistic Adults in Israel”. Journal of Empirical Research on Human Research Ethics, 14(5), 452-454.

Diana Rose, Jayasree Kalathil (2019). Power, Privilege and Knowledge: the Untenable Promise of Co-production in Mental “Health”. Frontiers in Sociology, 4, 57-57.

Dan Weksler-Derri, Uri Shwed, Nadav Davidovitch (2019). Ethical Challenges in Participatory Research With Autistic Adults in Israel. Journal of Empirical Research on Human Research Ethics, 14(5), 447-451.

Sarah Parsons, Nicola Yuill, Judith Good, M. Brosnan (2019). ‘Whose agenda? Who knows best? Whose voice?’ Co-creating a technology research roadmap with autism stakeholders. Disability & Society, 35(2), 201-234.

Hannah Bertilsdotter Rosqvist, Marianthi Kourti, David Jackson‐Perry, Charlotte Brownlow, Kirsty Fletcher, Daniel Bendelman, Lindsay O’Dell (2019). Doing it differently: emancipatory autism studies within a neurodiverse academic space. Disability & Society, 34(7-8), 1082-1101.

David Mason, Barry Ingham, Anna Urbanowicz, Cos Michael, Heather Birtles, Marc Woodbury-Smith, Toni Brown, Ian A James, Clare Scarlett, Christina Nicolaidis, Jeremy R. Parr (2019). A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults. Journal of Autism and Developmental Disorders, 49(8), 3387-3400.

Andrea MacLeod (2019). Interpretative Phenomenological Analysis (IPA) as a tool for participatory research within Critical Autism Studies: A systematic review. Research in Autism Spectrum Disorders, 64, 49-62.

Christina Nicolaidis, Dora M. Raymaker, Steven K. Kapp, Mel Baggs, Elesia Ashkenazy, Katherine McDonald, Michael Weiner, Joelle Maslak, Morrigan Hunter, Andrea Joyce (2019). The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants. Autism, 23(8), 2007-2019.

Damian Milton, Susy Ridout, Marianthi Kourti, Gillian Loomes, Nicola Martin (2019). A critical reflection on the development of the Participatory Autism Research Collective (PARC). Tizard Learning Disability Review, 24(2), 82-89.

Gregory Hollin, Warren Pearce (2018). Autism Scientists’ Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis. Journal of Autism and Developmental Disorders, 49(3), 809-818.

Unknown authors (2018). The best research is produced when researchers and communities work together. Nature, 562(7725), 7-7.

Sue Fletcher-Watson, Jonathan Adams, Kabie Brook, Tony Charman, Laura Crane, James Cusack, Susan Leekam, Damian Milton, Jeremy R. Parr, Elizabeth Pellicano (2018). Making the future together: Shaping autism research through meaningful participation. Autism, 23(4), 943-953.

Morton Ann Gernsbacher (2018). Rewarding Research Transparency. Trends in Cognitive Sciences, 22(11), 953-956.

Victoria Palmer, Wayne Weavell, Rosemary Callander, Donella Piper, Lauralie Richard, Lynne Maher, Hilary Boyd, Helen Herrman, John Furler, Jane Gunn, Rick Iedema, Glenn Robert (2018). The Participatory Zeitgeist: an explanatory theoretical model of change in an era of coproduction and codesign in healthcare improvement. Medical Humanities, 45(3), 247-257.

Thomas W Frazier, Géraldine Dawson, Donna S. Murray, Andy J. Shih, Jessica Snyder Sachs, Angela Geiger (2018). Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders. Journal of Autism and Developmental Disorders, 48(11), 3965-3971.

Amy Price, Sara Schroter, Rosamund Snow, Melissa Hicks, Rebecca Harmston, Sophie Staniszewska, Sam Parker, Tessa Richards (2018). Frequency of reporting on patient and public involvement (PPI) in research studies published in a general medical journal: a descriptive study. BMJ Open, 8(3), e020452.

Sophie Staniszewska, Jo Brett, Iveta Simera, Kate Seers, Carole Mockford, Susan Goodlad, Doug Altman, David Moher, Rosemary Barber, Simon Denegri, Andrew Entwistle, Peter Littlejohns, Christopher Morris, Rashida Suleman, Victoria Thomas, Colin Tysall (2017). GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ, 358, j3453.

Nicholas Chown, Jackie Robinson, Luke Beardon, Jillian Downing, Elizabeth Hughes, Julia Leatherland, Katrina Fox, Laura Hickman, Duncan MacGregor (2017). Improving research about us, with us: a draft framework for inclusive autism research. Disability & Society, 32(5), 720-734.

Helen Kara (2017). Identity and power in co-produced activist research. Qualitative Research, 17(3), 289-301.

Ann C. Macaulay (2016). Participatory research: What is the history? Has the purpose changed? Family Practice, 34(3), cmw117.

Josephine Ocloo, Rachel Matthews (2016). From tokenism to empowerment: progressing patient and public involvement in healthcare improvement. BMJ Quality & Safety, 25(8), 626-632.

Dora M. Raymaker (2016). Reflections of a community-based participatory researcher from the intersection of disability advocacy, engineering, and the academy. Action Research, 15(3), 258-275.

Christina Nicolaidis, Dora M. Raymaker, Elesia Ashkenazy, Katherine McDonald, Sebastian Dern, Mel Baggs, Steven K. Kapp, Michael Weiner, W. Cody Boisclair (2015). “Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum. Autism, 19(7), 824-831.

Elizabeth Pellicano, Adam Dinsmore, Tony Charman (2014). Views on Researcher-Community Engagement in Autism Research in the United Kingdom: A Mixed-Methods Study. PLoS ONE, 9(10), e109946.

Jamil Jivraj, Lori‐Ann R. Sacrey, Amanda S. Newton, David Nicholas, Lonnie Zwaigenbaum (2014). Assessing the influence of researcher–partner involvement on the process and outcomes of participatory research in autism spectrum disorder and neurodevelopmental disorders: A scoping review. Autism, 18(7), 782-793.

Elizabeth Pellicano (2014). Chapter 4. A future made together: new directions in the ethics of autism research. Journal of Research in Special Educational Needs, 14(3), 200-204.

Elizabeth Pellicano, Adam Dinsmore, Tony Charman (2014). What should autism research focus upon? Community views and priorities from the United Kingdom. Autism, 18(7), 756-770.

Damian Milton (2014). Autistic expertise: A critical reflection on the production of knowledge in autism studies. Autism, 18(7), 794-802.

Joyce Davidson, Michael Orsini (2013). Participatory Research with Autistic Communities. In Worlds of Autism (pp. 169-188). University of Minnesota Press.

Kristin Z. Black, Christina Hardy, Molly De Marco, Alice S. Ammerman, Giselle Corbie‐Smith, Barbara Council, Danny Ellis, Eugenia Eng, Barbara Harris, M. R. Jackson, Jimmy Jean-Baptiste, William Kearney, Mac Legerton, Donald Parker, Mysha Wynn, Alexandra F. Lightfoot (2013). Beyond Incentives for Involvement to Compensation for Consultants: Increasing Equity in CBPR Approaches. Progress in Community Health Partnerships: Research, Education, and Action, 7(3), 263-270.

Christina Nicolaidis (2012). What Can Physicians Learn from the Neurodiversity Movement? AMA Journal of Ethics, 14(6), 503-510.

Christina Nicolaidis, Dora M. Raymaker, Katherine McDonald, Sebastian Dern, Elesia Ashkenazy, W. Cody Boisclair, Scott Robertson, Mel Baggs (2011). Collaboration Strategies in Nontraditional Community-Based Participatory Research Partnerships: Lessons From an Academic–Community Partnership With Autistic Self-Advocates. Progress in Community Health Partnerships: Research, Education, and Action, 5(2), 143-150.

Elizabeth Pellicano, Marc Stears (2011). Bridging autism, science and society: moving toward an ethically informed approach to autism research. Autism Research, 4(4), 271-282.

David Wright, Claire Foster, Ziv Amir, Jim Elliott, Roger Wilson (2010). Critical appraisal guidelines for assessing the quality and impact of user involvement in research. Health Expectations, 13(4), 359-368.

Scott Robertson (2009). Neurodiversity, Quality of Life, and Autistic Adults: Shifting Research and Professional Focuses onto Real-Life Challenges. Disability Studies Quarterly, 30(1).

Margaret Cargo, Shawna L. Mercer (2008). The Value and Challenges of Participatory Research: Strengthening Its Practice. Annual Review of Public Health, 29(1), 325-350.