Anti‐ableist language is fully compatible with high‐quality autism research: Response to S inger et al. (2023)

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Natri, H. M., Abubakare, O., Asasumasu, K., Basargekar, A., Beaud, F., Botha, M., Bottema‐Beutel, K., Brea, M. R., Brown, L. X. M. Z., Burr, D. A., Cobbaert, L., Dabbs, C. R., Denome, D., Rosa, S. D. R., Doherty, M., Edwards, B., Edwards, C., Liszk, S. E., Elise, F.,..., & Zisk, A. H. (2023). Anti‐ableist language is fully compatible with high‐quality autism research: Response to S inger et al. (2023). Autism Research, 16(4), 673-676. https://doi.org/10.1002/aur.2928

Publication date: 1 Apr 2023 Added to AutiHub: 4 Jul 2026 Type: Article Article language: English
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Authors

Publication authors
69
Publication authors identified as autistic
34 / 69 (49.3%)
  1. Heini M Natri *
  2. Oluwatobi Abubakare *
  3. Kassiane Asasumasu *
  4. Abha Basargekar
  5. Flavien Beaud
  6. Monique Botha *
  7. Kristen Bottema‐Beutel
  8. Maria Rosa Brea
  9. Ly Xīnzhèn M. Zhǎngsūn Brown *
  10. Daisy A. Burr *
  11. Laurence Cobbaert *
  12. Christopher R. Dabbs *
  13. Donnie Denome *
  14. Shannon Des Roches Rosa
  15. Mary Doherty *
  16. Beth Edwards *
  17. Chris Edwards *
  18. Síle Ekaterin Liszk
  19. Freya Elise
  20. Sue Fletcher‐Watson
  21. Rebecca L. Flower
  22. Stephanie Fuller *
  23. Dena L. Gassner *
  1. Morénike Giwa Onaiwu *
  2. Judith Good
  3. Aimee Grant *
  4. Vicki L. Haddix
  5. Síofra Heraty
  6. Andrew Hundt
  7. Steven K. Kapp *
  8. Nathan Keates
  9. Trayle Kulshan
  10. Andrew J. Lampi
  11. Oswin Latimer *
  12. Kathy Leadbitter
  13. Jennifer Litton Tidd
  14. Marie Manalili *
  15. Menelly Martin
  16. Anna Millichamp
  17. Hannah E. Morton *
  18. Vishnu KK Nair
  19. Georgia Pavlopoulou
  20. Amy Pearson *
  21. Elizabeth Pellicano
  22. Hattie Porter *
  23. Rebecca Poulsen *
  1. Zoë S. Robertson
  2. Kayla Rodriguez
  3. Anne M. Roux
  4. Mary C. Russell *
  5. Jacalyn G. Ryan *
  6. Noah J. Sasson
  7. Holly Smith Grier
  8. Mark Somerville
  9. Cole Sorensen
  10. Kayden M. Stockwell
  11. Tauna Szymanski
  12. Sandy Thompson-Hodgetts
  13. Martine van Driel *
  14. Victoria J. VanUitert *
  15. Krysia Emily Waldock *
  16. Nick Walker *
  17. Courtney Watts *
  18. Zachary J. Williams *
  19. Richard Woods *
  20. Betty Yu
  21. Meghan Zadow
  22. Jordyn Zimmerman *
  23. Alyssa Hillary Zisk *

Abstract

Singer et al. (2023) argue that the current lexical shift within autism research towards more neutral terminology hinders accurate scientific description of the wide range of autistic experiences, particularly within clinical and medical contexts. We disagree with these claims. Semantic guidelines for referring to disability, gender, race, and ethnicity are established components of research dissemination (e.g., Clauss-Ehlers et al., 2019), and are more, not less, scientifically precise. Recommendations informed by self-advocates are widely recognized as vital tools for mitigating societal biases—reflected and reinforced by language choices—that harm marginalized communities, including disabled individuals (Scully, 2008). Examples include the American Psychological Association's bias-free and inclusive language guidelines (APA, 2021) and the National Institute of Mental Health's ​​Stigma and Discrimination Research Toolkit (NIMH, n.d.). The language guidelines for autism research that Singer et al. object to were developed through diverse collaborations of autistic and nonautistic researchers, clinicians, scholars, and caregivers, informed by decades of intersectional, multidisciplinary autistic and disability rights scholarship. Specific recommendations, such as replacing terms like “risk” and “co-morbid” with the accurate equivalents “likelihood” and “co-occurring” offer a more inclusive alternative to the deficit construals that predominate most published autism research (Botha & Cage, 2022). Practical and inclusive terminology enables discussion of heterogeneity in autism presentation, is less likely to reinforce bias, and is more respectful than terminology with negative connotations. Importantly, these suggestions align with guidance from autistic people designated “profoundly autistic” (Whitty, 2020; Zimmerman, 2023) as well as broader autistic preferences (Keating et al., 2022). In contrast, the terms “required” by Singer et al. (e.g., “profound autism,” “severe,” and “challenging behavior”) are limited in their validity, utility, and specificity, are inconsistently defined, and dehumanizing to many autistic people (Kapp, 2023; Pukki et al., 2022). Specific descriptors of cognitive functioning, support needs, or other characteristics of autistic people are more precise and scientifically accurate than ambiguous terms like “profound” and “severe,” which gloss over strengths and the contexts in which impairments can become significantly disabling. Language consistent with existing guidelines can be used to describe differences that are disabling or impairing and their impact. Moreover, Singer et al. mischaracterize the guidelines' more nuanced engagement with difference and disability as describing “a simple ‘difference’.” Singer et al. assert that some autism researchers have been denied funding and have experienced heckling at public presentations due to language choices, citing a handful of tweets out of their original context. We do not condone harassment and would hope that feedback is delivered respectfully and with the intent to educate, not harm. Still, nonautistic people hold nearly all the power in autism research, including funding and publishing decisions. Members of the public have few opportunities to engage with researchers, and open platforms such as social media enable direct engagement between researchers and communities. Autism researchers should expect their work to be consumed and critiqued by the public, including autistic people affected by their research. Such critique is not bullying or weaponization, but feedback that offers autism researchers an opportunity for reflection and dialogue with the wider autistic community they purport​​ to serve. Autism researchers with concerns about how their work will be received should proactively seek guidance and consultation from autistic scholars and self-advocates. Further, Singer et al. claim that language guidelines “should not be dictated by mostly white, non-Hispanic individuals.” This statement reflects an ignorance of the scholarship of autistic people of color who have contributed to language guidance, including those designated as “profoundly autistic” and their families (Malone et al., 2022; McGann, 2021). These contributions have been made despite the significant barriers and discrimination that contribute to the pervasive underrepresentation of marginalized perspectives in the field. This includes autistic researchers (including minimally or nonspeaking), Indigenous and those representing the Global Majority, and others who endure the ongoing and disparate consequences of biased language and research agendas (Jones, 2022; Jones & Mandell, 2020). Tackling this power imbalance and increasing accountability is essential for improving autism research. Lastly, we extend an invitation for everyone to engage with respectful terminology to create more inclusive, representative, scientifically rigorous, and beneficial research for the entirety of the spectrum. This letter is authored and co-signed by a diverse group of autistic researchers, scholars, clinicians, and self-advocates with a wide range of clinical presentation and support needs, as well as nonautistic researchers, scholars, clinicians, and loved ones of autistic people. Data sharing is not applicable to this article as no new data were created or analyzed in this study.

Bibliography cited by this reference

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Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.

Cited references
17
Total cited references integrated for this publication.
Cited references with an identified autistic author
6 / 17 (35.3%)
Cited author occurrences identified as autistic
62 / 105 (59.0%)
Among occurrences linked to AutiHub author records: 62 / 87 (71.3%). Distinct cited authors identified as autistic: 34 / 71 (47.9%).
Cited author occurrences linked to AutiHub author records
87 / 105 (82.9%)
Distinct linked cited authors: 53 / 71 (74.6%)
Linked cited-author occurrences not identified as autistic
25 / 87 (28.7%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 25 / 105 (23.8%). Distinct linked cited authors not identified as autistic: 19 / 53 (35.8%).
2 cited bibliography entries could not be fully enriched from DOI metadata.
Crossref: not found (1) · DataCite: not found (1)
  1. Scully J. L. (2009). Disability bioethics: moral bodies, moral difference . Choice Reviews Online, 46(09), 46-5067-46-5067. American Library Association.
    Type: Article DOI: 10.5860/choice.46-5067 OpenAlex: https://openalex.org/W592288789
    Crossref OpenAlex
  2. American Psychological Association. (2021). Inclusive language guidelines. https://www.apa.org/about/apa/equity-diversity-inclusion/language-guidelines.pdf
    Type: Other
    Crossref
  4. Caroline S. Clauss-Ehlers , David A. Chiriboga , Scott J. Hunter , Gargi Roysircar , Pratyusha Tummala-Narra (2019). APA Multicultural Guidelines executive summary: Ecological approach to context, identity, and intersectionality. American Psychologist, 74(2), 232-244. American Psychological Association (APA).
    Type: Article DOI: 10.1037/amp0000382 OpenAlex: https://openalex.org/W2911326334
    Crossref OpenAlex OpenCitations
  6. Alison Singer , Amy Lutz , Jill Escher , Alycia Halladay (2023). A full semantic toolbox is essential for autism research and practice to thrive . Autism Research, 16(3), 497-501. Wiley.
    Type: Article DOI: 10.1002/aur.2876 OpenAlex: https://openalex.org/W4311202441
    Crossref OpenAlex OpenCitations
  7. Desiree R. Jones , David S. Mandell (2020). To address racial disparities in autism research, we must think globally, act locally . Autism, 24(7), 1587-1589. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320948313 OpenAlex: https://openalex.org/W3090890396
    Crossref OpenAlex OpenCitations
  9. Heta Pukki * , Jorn Bettin * , Avery Outlaw , Joshua Hennessy * , Kabie Brook * , Martijn Dekker * et al. (2022). Autistic perspectives on the future of clinical autism research . Center for Open Science.
    Type: Preprint DOI: 10.31234/osf.io/qw5h2 OpenAlex: https://openalex.org/W4214497072
    OpenAlex
  10. (2008). National Institute of Mental Health (NIMH) . Encyclopedia of Global Health. SAGE Publications, Inc..
    Type: Other DOI: 10.4135/9781412963855.n834 OpenAlex: https://openalex.org/W4231865654
    OpenAlex
  13. Kayla M. Malone , Jamie N. Pearson , Kayla N. Palazzo , Lonnie D. Manns , Amelia Q. Rivera , DeVoshia L. Mason Martin (2022). The Scholarly Neglect of Black Autistic Adults in Autism Research . Autism in Adulthood, 4(4), 271-280. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2021.0086 OpenAlex: https://openalex.org/W4296701039
    Crossref OpenAlex OpenCitations
  14. McGann B. (2021). How ableism affects my life as a non‐speaking autistic . Think Inclusive.
    Type: Other
    Crossref
  15. National Institute of Mental Health (NIMH). (n.d.). Stigma and Discrimination Research Toolkit. https://www.nimh.nih.gov/about/organization/dar/stigma‐and‐discrimination‐research‐toolkit
    Type: Other
    Crossref
  16. (n.d.). Whitty D. (2020 September 17). Danny With Words. https://dannywithwords.com/fighting/
    Type: Other
    Crossref
  17. Zimmerman J. (2023). Jordyn Zimmerman's Remarks to the Interagency Autism Coordinating Committee. CommunicationFIRST. https://communicationfirst.org/jordyn‐zimmermans‐remarks‐to‐the‐interagency‐autism‐coordinating‐committee/
    Type: Other
    Crossref