Chapter 4. A future made together: new directions in the ethics of autism research

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1. Elizabeth Pellicano , Adam Dinsmore , Tony Charman (2013). A future made together: shaping autism research in the UK . IOE EPrints.

   Type: Article OpenAlex: https://openalex.org/W150421255

   OpenAlex
2. Syed M. Ahmed , Ann-Gel S. Palermo (2010). Community Engagement in Research: Frameworks for Education and Peer Review . American Journal of Public Health, 100(8), 1380-1387. American Public Health Association.

   Type: Article DOI: 10.2105/ajph.2009.178137 OpenAlex: https://openalex.org/W2089325366

   Crossref OpenAlex OpenCitations
3. Gillian Baird , Emily Simonoff , Andrew Pickles , Susie Chandler , Tom Loucas , David Meldrum et al. (2006). Prevalence of disorders of the autism spectrum in a population cohort of children in South Thames: the Special Needs and Autism Project (SNAP) . The Lancet, 368(9531), 210-215. Elsevier BV.

   Type: Article DOI: 10.1016/s0140-6736(06)69041-7 OpenAlex: https://openalex.org/W2151524361

   Crossref OpenAlex OpenCitations
4. Victor Lotter (1966). Epidemiology of autistic conditions in young children . Social Psychiatry, 1(3), 124-135. Springer Science and Business Media LLC.

   Type: Article DOI: 10.1007/bf00584048 OpenAlex: https://openalex.org/W1547319025

   Crossref OpenAlex OpenCitations
5. Sherry R. Arnstein (1969). A Ladder Of Citizen Participation . Journal of the American Institute of Planners, 35(4), 216-224. Informa UK Limited.

   Type: Article DOI: 10.1080/01944366908977225 OpenAlex: https://openalex.org/W2008251417

   Crossref OpenAlex OpenCitations
6. Iain Chalmers (2004). Well informed uncertainties about the effects of treatments . BMJ, 328(7438), 475-476. BMJ.

   Type: Article DOI: 10.1136/bmj.328.7438.475 OpenAlex: https://openalex.org/W2047544265

   Crossref OpenAlex OpenCitations
7. Barbara A. Israel , Edith A. Parker , Zachary Rowe , Alicia Salvatore , Meredith Minkler , Jesús López et al. (2005). Community-Based Participatory Research: Lessons Learned from the Centers for Children’s Environmental Health and Disease Prevention Research . Environmental Health Perspectives, 113(10), 1463-1471. American Chemical Society (ACS).

   Type: Article DOI: 10.1289/ehp.7675 OpenAlex: https://openalex.org/W1968759223

   Crossref OpenAlex OpenCitations
8. Elizabeth Pellicano , Ari Ne'eman *Autistic author. Learn more… , Marc Stears (2011). Engaging, not excluding: a response to Walsh et al. Nature Reviews Neuroscience, 12(12), 769-769. Springer Science and Business Media LLC.

   Type: Article DOI: 10.1038/nrn3113-c1 OpenAlex: https://openalex.org/W1969906100

   Crossref OpenAlex OpenCitations
9. Traolach Brugha , Sally McManus , John Bankart , Fiona Scott , Susan Purdon , Jane Smith et al. (2011). Epidemiology of Autism Spectrum Disorders in Adults in the Community in England . Archives of General Psychiatry, 68(5), 459. American Medical Association (AMA).

   Type: Article DOI: 10.1001/archgenpsychiatry.2011.38 OpenAlex: https://openalex.org/W2138372369

   Crossref OpenAlex OpenCitations
10. Craig J. Newschaffer , Laura Kresch Curran (2003). Autism: an emerging public health problem . Public Health Reports, 118(5), 393-399. SAGE Publications.

    Type: Article DOI: 10.1093/phr/118.5.393 OpenAlex: https://openalex.org/W1975987715

    OpenAlex
11. Éric Fombonne (2009). Epidemiology of Pervasive Developmental Disorders . Pediatric Research, 65(6), 591-598. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1203/pdr.0b013e31819e7203 OpenAlex: https://openalex.org/W2143333975

    Crossref OpenAlex OpenCitations
12. Scott O. Lilienfeld , Hal Arkowitz (2007). Is There Really an Autism Epidemic? Scientific American sp, 17(4), 58-61. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1038/scientificamerican1207-58sp OpenAlex: https://openalex.org/W1999592775

    OpenAlex OpenCitations
13. Géraldine Dawson (2013). Dramatic Increase in Autism Prevalence Parallels Explosion of Research Into Its Biology and Causes . JAMA Psychiatry, 70(1), 9. American Medical Association (AMA).

    Type: Article DOI: 10.1001/jamapsychiatry.2013.488 OpenAlex: https://openalex.org/W2119714091

    Crossref OpenAlex
14. Christina Nicolaidis , Dora M Raymaker *Autistic author. Learn more… , Katherine McDonald , Sebastian Dern , Elesia Ashkenazy *Autistic author. Learn more… , W. Cody Boisclair *Autistic author. Learn more… et al. (2011). Collaboration Strategies in Nontraditional Community-Based Participatory Research Partnerships: Lessons From an Academic–Community Partnership With Autistic Self-Advocates . Progress in Community Health Partnerships: Research, Education, and Action, 5(2), 143-150. Project MUSE.

    Type: Article DOI: 10.1353/cpr.2011.0022 OpenAlex: https://openalex.org/W2112020878

    AutiHub · Autistic Scholars AutiHub · Documentation center Crossref OpenAlex OpenCitations
15. Anna Laura van der Laan , Marianne Boenink (2015). Beyond Bench and Bedside: Disentangling the Concept of Translational Research . Health Care Analysis, 23(1), 32-49. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10728-012-0236-x OpenAlex: https://openalex.org/W2000811679

    Crossref OpenAlex
16. Patricia Howlin , Philippa Moss , Sarah Savage , Michael Rutter (2013). Social Outcomes in Mid- to Later Adulthood Among Individuals Diagnosed With Autism and Average Nonverbal IQ as Children . Journal of the American Academy of Child & Adolescent Psychiatry, 52(6), 572-581.e1. Elsevier BV.

    Type: Article DOI: 10.1016/j.jaac.2013.02.017 OpenAlex: https://openalex.org/W2005094520

    Crossref OpenAlex OpenCitations
17. Morton Ann Gernsbacher , Michelle Dawson *Autistic author. Learn more… , H. Hill Goldsmith (2005). Three Reasons Not to Believe in an Autism Epidemic . Current Directions in Psychological Science, 14(2), 55-58. SAGE Publications.

    Type: Article DOI: 10.1111/j.0963-7214.2005.00334.x OpenAlex: https://openalex.org/W2019171480

    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
18. Patricia Howlin , Susan Goode , Jane Hutton , Michael Rutter (2004). Adult outcome for children with autism . Journal of Child Psychology and Psychiatry, 45(2), 212-229. Wiley.

    Type: Article DOI: 10.1111/j.1469-7610.2004.00215.x OpenAlex: https://openalex.org/W2046265374

    Crossref OpenAlex OpenCitations
19. Craig J. Newschaffer , Laura Kresch Curran (2003). Autism: an emerging public health problem . Public Health Reports, 118(5), 393-399. SAGE Publications.

    Type: Article DOI: 10.1016/s0033-3549(04)50270-4 OpenAlex: https://openalex.org/W4236978730

    Crossref OpenAlex OpenCitations
20. Nick Partridge , John Scadding (2004). The James Lind Alliance: patients and clinicians should jointly identify their priorities for clinical trials . The Lancet, 364(9449), 1923-1924. Elsevier BV.

    Type: Article DOI: 10.1016/s0140-6736(04)17494-1 OpenAlex: https://openalex.org/W2015956617

    Crossref OpenAlex OpenCitations
21. Thomas R. Insel , Susan A. Daniels (2011). Future Directions: Setting Priorities to Guide the Federal Research Effort . In Autism Spectrum Disorders (pp. 1361-1368). Oxford University Press.

    Type: Book chapter DOI: 10.1093/med/9780195371826.003.0089 OpenAlex: https://openalex.org/W2479318535

    Crossref OpenAlex
22. Jennifer Singh , Judy Illes , Laura Lazzeroni , Joachim Hallmayer (2009). Trends in US Autism Research Funding . Journal of Autism and Developmental Disorders, 39(5), 788-795. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-008-0685-0 OpenAlex: https://openalex.org/W2042889075

    Crossref OpenAlex OpenCitations
23. INVOLVE(2012). INVOLVE Strategy 2012–2015: putting people first in research. National Institute for Health Research. (accessed 15 July 2013).

    Type: Other

    Crossref
24. Martín Knapp , Renée Romeo , Jennifer Beecham (2009). Economic cost of autism in the UK . Autism, 13(3), 317-336. SAGE Publications.

    Type: Article DOI: 10.1177/1362361309104246 OpenAlex: https://openalex.org/W2099729797

    Crossref OpenAlex OpenCitations
25. Elizabeth Pellicano , Adam Dinsmore , Tony Charman (2014). Views on Researcher-Community Engagement in Autism Research in the United Kingdom: A Mixed-Methods Study . PLoS ONE, 9(10), e109946. Public Library of Science (PLoS).

    Type: Article DOI: 10.1371/journal.pone.0109946 OpenAlex: https://openalex.org/W2073740065

    AutiHub · Documentation center Crossref OpenAlex
26. Milton D. E. M. (2013). Autistic speak but are they heard? Medical Sociology Online, 7, 1.

    Type: Other

    Crossref
27. National Institute for Health and Care Excellence (NICE)(2011)Autism: recognition referral and diagnosis of children and young people on the autism spectrum. Clinical guidelines CG128. September 2011. (accessed 15 July 2013).

    Type: Other

    Crossref
28. National Institute for Health and Care Excellence (NICE)(2012)Autism spectrum conditions in adults. Clinical guidelines CG142. June 2012. (accessed 15 July 2013).

    Type: Other

    Crossref
29. Marianne Boenink (2012). Debating the Desirability of New Biomedical Technologies: Lessons from the Introduction of Breast Cancer Screening in the Netherlands . Health Care Analysis, 20(1), 84-102. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10728-011-0173-0 OpenAlex: https://openalex.org/W2115265854

    OpenAlex
30. National Institute for Health and Care Excellence (NICE)(2013)Autism: management of autism in children and young people: guideline consultation. March 2013. (accessed 15 July 2013).

    Type: Other

    Crossref
31. Office of Autism Research Coordination (OARC) National Institute of Mental Health and Thomson Reuters Inc. on behalf of the Interagency Autism Coordinating Committee (IACC)(2012a)IACC/OARC Autism Spectrum Disorder Research Publications Analysis Report: The Global Landscape of Autism Research. (accessed 24 April 2014).

    Type: Other

    Crossref
32. Office of Autism Research Coordination National Institute of Mental Health on behalf of the Interagency Autism Coordinating Committee (IACC)(2012b)2010 IACC Autism Spectrum Disorder Research Portfolio Analysis Report. (accessed 24 April 2014).

    Type: Other

    Crossref
33. Elizabeth Pellicano , Adam Dinsmore , Tony Charman (2014). What should autism research focus upon? Community views and priorities from the United Kingdom . Autism, 18(7), 756-770. SAGE Publications.

    Type: Article DOI: 10.1177/1362361314529627 OpenAlex: https://openalex.org/W2155427676

    AutiHub · Documentation center Crossref OpenAlex
34. Elizabeth Pellicano , Adam Dinsmore , Tony Charman (2014). What should autism research focus upon? Community views and priorities from the UK . IOE EPrints.

    Type: Article OpenAlex: https://openalex.org/W2293305607

    OpenAlex
35. Pellicano E. Dinsmore A.&Charman T. (2013)A Future Made Together: Shaping Autism Research in the UK. London: Institute of Education.

    Type: Other

    Crossref
36. Roithmayr M. (2012)Autism is a national epidemic that needs a national plan. The Huffington Post 4 April 2012. (accessed 15 July 2013).

    Type: Other

    Crossref
37. Lilienfeld S. O.&Arkowitz H. (2007)Autism: an epidemic?A closer look at the statistics suggests something more than a simple rise in incidence. Autism is a national epidemic that needs a national plan. Scientific American 6 December 2007. (accessed 15 July 2013).

    Type: Other

    Crossref
38. Sinclair J. (1993)Don't mourn for us. First published in the Autism Network International newsletter Our Voice 1. (accessed 5 August 2010).

    Type: Other

    Crossref
39. Simon Wallace (2013). One in a Hundred: Putting Families at the Heart of Autism Research . One in a Hundred: Putting Families at the Heart of Autism Research.

    Type: Other

    Crossref