Mindshift in autism: a call to professionals in research, clinical, and educational settings
McVey, A. J., Jones, D. R., Waisman, T., Raymaker, D. M., Nicolaidis, C., & Maddox, B. B. (2023). Mindshift in autism: a call to professionals in research, clinical, and educational settings. Frontiers in Psychiatry, 14, 1251058-1251058. https://doi.org/10.3389/fpsyt.2023.1251058
Authors
Abstract
Autistic people often have poor outcomes over the life course, including in health, education, employment, and community inclusion. Many professionals working with Autistic adults in research, clinical, and educational settings devote their careers to trying to improve such outcomes. However, we maintain that real progress cannot happen without a fundamental mindshift. The status quo for professionals is to view autism as an illness. Instead, the neurodiversity movement encourages us to value and embrace autism as an aspect of human diversity and asks us to view Autistic people as a marginalized group that experiences significant disparities. While some professionals may be adopting language and concepts from the neurodiversity movement, we argue that making this mindshift fundamentally changes our practice across research, clinical, and educational settings. In this perspective, we call on professionals to embrace this mindshift to reduce discrimination and stigma, halt the spread of harmful ideologies, and help Autistic adults live fulfilling lives.
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-
Michel Foucault , Colin Gordon (1980). Power/Knowledge: Selected Interviews and Other Writings 1972-1977 .Type: Book OpenAlex: https://openalex.org/W1597750586Crossref OpenAlex
-
Monique Botha *Autistic author. Learn more… , Bridget Dibb , David M. Frost (2022). "Autism is me": an investigation of how autistic individuals make sense of autism and stigma . Disability & Society, 37(3), 427-453. Informa UK Limited.
-
Connor Tom Keating , Lydia Hickman , Joan Leung , Ruth Monk *Autistic author. Learn more… , Alicia Montgomery , Hannah Heath et al. (2023). Autism‐related language preferences of English ‐speaking individuals across the globe: A mixed methods investigation . Autism Research, 16(2), 406-428. Wiley.
-
Jennifer Spratt , Lani Florian (2015). Inclusive pedagogy: From learning to action. Supporting each individual in the context of ‘everybody’ . Teaching and Teacher Education, 49, 89-96. Elsevier BV.Crossref OpenAlex OpenCitations
-
Monique Botha *Autistic author. Learn more… , David M. Frost (2020). Extending the Minority Stress Model to Understand Mental Health Problems Experienced by the Autistic Population . Society and Mental Health, 10(1), 20-34. SAGE Publications.
-
Amanda Taboas , Karla Doepke , Corinne Zimmerman (2023). Preferences for identity-first versus person-first language in a US sample of autism stakeholders . Autism, 27(2), 565-570. SAGE Publications.Crossref OpenAlex OpenCitations
-
Kristen Gillespie-Lynch , Patricia J. Brooks , Fumio Someki , Rita Obeid , Christina Shane‐Simpson , Steven K. Kapp *Autistic author. Learn more… et al. (2015). Changing College Students’ Conceptions of Autism: An Online Training to Increase Knowledge and Decrease Stigma . Journal of Autism and Developmental Disorders, 45(8), 2553-2566. Springer Science and Business Media LLC.
-
Monique Botha *Autistic author. Learn more… (2021). Academic, Activist, or Advocate? Angry, Entangled, and Emerging: A Critical Reflection on Autism Knowledge Production . Frontiers in Psychology, 12(6), 727542-727542. Frontiers Media SA.
-
Christina Nicolaidis , Clarissa Kripke , Dora M Raymaker *Autistic author. Learn more… (2014). Primary Care for Adults on the Autism Spectrum . Medical Clinics of North America, 98(5), 1169-1191. Elsevier BV.
-
Christina Nicolaidis , Dora M Raymaker *Autistic author. Learn more… , Elesia Ashkenazy *Autistic author. Learn more… , Katherine McDonald , Sebastian Dern , Amelia E.V. Baggs et al. (2015). “Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum . Autism, 19(7), 824-831. SAGE Publications.
-
Lisa A. Croen , Ousseny Zerbo , Yinge Qian , Maria L Massolo , Steve Rich , Stephen Sidney et al. (2015). The health status of adults on the autism spectrum . Autism, 19(7), 814-823. SAGE Publications.Crossref OpenAlex OpenCitations
-
Heather M. Brown *Autistic author. Learn more… , Aubyn C. Stahmer , Patrick Dwyer *Autistic author. Learn more… , Susan M. Rivera (2021). Changing the story: How diagnosticians can support a neurodiversity perspective from the start . Autism, 25(5), 1171-1174. SAGE Publications.
-
Patricia Howlin (2021). Adults with Autism: Changes in Understanding Since DSM-111 . Journal of Autism and Developmental Disorders, 51(12), 4291-4308. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Romy Hume (2022). Show Me the Real You: Enhanced Expression of Rogerian Conditions in Therapeutic Relationship Building with Autistic Adults . Autism in Adulthood, 4(2), 151-163. SAGE Publications.Crossref OpenAlex OpenCitations
-
Steven K. Kapp *Autistic author. Learn more… , Kristen Gillespie-Lynch , Lauren E. Sherman , Ted Hutman (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59-71. American Psychological Association (APA).
-
Steven K. Kapp *Autistic author. Learn more… (2018). Social Support, Well-being, and Quality of Life Among Individuals on the Autism Spectrum . Pediatrics, 141(Supplement_4), S362-S368. American Academy of Pediatrics (AAP).
-
Katherine McDonald , Dora M Raymaker *Autistic author. Learn more… (2013). Paradigm Shifts in Disability and Health: Toward More Ethical Public Health Research . American Journal of Public Health, 103(12), 2165-2173. American Public Health Association.Crossref OpenAlex OpenCitations
-
Barbara FC van Heijst , Hilde M. Geurts (2015). Quality of life in autism across the lifespan: A meta-analysis . Autism, 19(2), 158-167. SAGE Publications.Crossref OpenAlex OpenCitations
-
Christina Nicolaidis (2012). What Can Physicians Learn from the Neurodiversity Movement? AMA Journal of Ethics, 14(6), 503-510. American Medical Association (AMA).Type: Article DOI: 10.1001/virtualmentor.2012.14.6.oped1-1206 OpenAlex: https://openalex.org/W2142098199
-
Monique Botha *Autistic author. Learn more… , Eilidh Cage (2022). Autism research is in crisis: A mixed method study of researcher’s constructions of autistic people and autism research. Front. Psychol., 13.Type: Other DOI: 10.3389/fpsyg.2022f.1050897 OpenAlex: https://openalex.org/W4309855376 Crossref: not found DataCite: not found
-
Riley Buijsman , Sander Begeer , Anke Scheeren (2023). ‘Autistic person’ or ‘person with autism’? Person-first language preference in Dutch adults with autism and parents . Autism, 27(3), 788-795. SAGE Publications.Crossref OpenAlex OpenCitations
-
Ruth Monk *Autistic author. Learn more… , Andrew Whitehouse , Hannah Waddington (2022). The use of language in autism research . Trends in Neurosciences, 45(11), 791-793. Elsevier BV.
-
Monique Botha *Autistic author. Learn more… , Jacqueline Hanlon , Gemma Williams *Autistic author. Learn more… (2023). Does Language Matter? Identity-First Versus Person-First Language Use in Autism Research: A Response to Vivanti . Journal of Autism and Developmental Disorders, 53(2), 870-878. Springer Science and Business Media LLC.
-
Kristen Bottema‐Beutel , Steven K. Kapp *Autistic author. Learn more… , Jessica Nina Lester , Noah J. Sasson , Brittany N. Hand (2021). Avoiding Ableist Language: Suggestions for Autism Researchers . Autism in Adulthood, 3(1), 18-29. SAGE Publications.
-
Laura I. Rendón Linares , Susana M. Muñoz , Amaury Nora , Angela Urick , Patricia D. Quijada , Cerecer et al. (2011). Revisiting Validation Theory: Theoretical Foundations, Applications, and Extensions . Enroll Manage J, 2, 12.Type: Article OpenAlex: https://openalex.org/W2186321096Crossref OpenAlex
-
Emeline Han , Katrina Scior , Katerina Avramides , Laura Crane (2022). A systematic review on autistic people's experiences of stigma and coping strategies . Autism Research, 15(1), 12-26. Wiley.Crossref OpenAlex OpenCitations
-
Lani Florian (2015). Conceptualising Inclusive Pedagogy: The Inclusive Pedagogical Approach in Action . In Inclusive pedagogy across the curriculum. International perspectives on inclusive education (pp. 11-24). Emerald Group Publishing Limited.Crossref OpenAlex OpenCitations
-
Mike Slade (2017). Implementing shared decision making in routine mental health care . World Psychiatry, 16(2), 146-153. Wiley.Crossref OpenAlex OpenCitations
-
Alice Turnock , Kate Langley , Catherine R.G. Jones (2022). Understanding Stigma in Autism: A Narrative Review and Theoretical Model . Autism in Adulthood, 4(1), 76-91. SAGE Publications.Crossref OpenAlex OpenCitations
-
Christina Nicolaidis (2019). What Does Inclusion Mean in Research and Scholarship on Autism in Adulthood? Autism in Adulthood, 1(2), 79-81. SAGE Publications.Crossref OpenAlex OpenCitations
-
Christina Nicolaidis , Dora M Raymaker *Autistic author. Learn more… , Katherine McDonald , Steven K. Kapp *Autistic author. Learn more… , Michael Weiner , Elesia Ashkenazy *Autistic author. Learn more… et al. (2016). The Development and Evaluation of an Online Healthcare Toolkit for Autistic Adults and their Primary Care Providers . Journal of General Internal Medicine, 31(10), 1180-1189. Springer Science and Business Media LLC.
-
Nick Walker *Autistic author. Learn more… , Dora M Raymaker *Autistic author. Learn more… (2021). Toward a Neuroqueer Future: An Interview with Nick Walker . Autism in Adulthood, 3(1), 5-10. SAGE Publications.Crossref OpenAlex OpenCitations
-
Kristen Gillespie-Lynch , Dennis Bublitz , Annemarie Donachie , Vincent Wong , Patricia J. Brooks , Joanne D’Onofrio (2017). “For a Long Time Our Voices have been Hushed”: Using Student Perspectives to Develop Supports for Neurodiverse College Students . Frontiers in Psychology, 8(1), 544. Frontiers Media SA.Crossref OpenAlex OpenCitations
-
(2012). Leverage Points—Places to Intervene in a System . In Thinking in Systems (pp. 152-172). Routledge.OpenAlex
-
Steven K. Kapp *Autistic author. Learn more… (2020). Introduction . In Autistic community and the neurodiversity movement (pp. 1-19). Springer Singapore.Crossref OpenAlex OpenCitations
-
Kristen Bottema‐Beutel , Shannon Crowley , Micheal Sandbank , Tiffany G. Woynaroski (2021). Research Review: Conflicts of Interest (COIs) in autism early intervention research – a meta‐analysis of COI influences on intervention effects . Journal of Child Psychology and Psychiatry, 62(1), 5-15. Wiley.Crossref OpenAlex OpenCitations
-
Kristen Gillespie-Lynch , Steven K. Kapp *Autistic author. Learn more… , Patricia J. Brooks , Jonathan Pickens , Ben Schwartzman (2017). Whose Expertise Is It? Evidence for Autistic Adults as Critical Autism Experts . Frontiers in Psychology, 8, 438-438. Frontiers Media SA.
-
Hughes (2016). ref16Type: OtherCrossref
-
Amy S. Walker (2014). Neurodiversity: some basic terms & definitions . Neurodiversity: Some basic terms & definitions.Type: OtherCrossref
-
Alexandra Sewell , Anastasia Kennett , Victoria Pugh (2022). Universal Design for Learning as a theory of inclusive practice for use by educational psychologists . Educational Psychology in Practice, 38(4), 364-378. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Matthew James Capp (2017). The effectiveness of universal design for learning: a meta-analysis of literature between 2013 and 2016 . International Journal of Inclusive Education, 21(8), 791-807. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… , Monique Botha *Autistic author. Learn more… , Kristien Hens , Sarinah O’Donoghue *Autistic author. Learn more… , Amy Pearson *Autistic author. Learn more… , Anna Stenning *Autistic author. Learn more… (2023). Cutting our own keys: New possibilities of neurodivergent storying in research . Autism, 27(5), 1235-1244. SAGE Publications.
-
Michael Lyman , Mark E. Beecher , Derek Griner , Michael Brooks , John M. Call , Aaron P. Jackson (2016). What Keeps Students with Disabilities from Using Accommodations in Postsecondary Education? A Qualitative Review. J Postsecondary Educ Disabil, 29(2), 123.Type: Article OpenAlex: https://openalex.org/W2726210230Crossref OpenAlex
-
Patricia Berne , Aurora Levins Morales , David Langstaff , Sins Invalid (2018). Ten Principles of Disability Justice . WSQ: Women's Studies Quarterly, 46(1-2), 227-230. Project MUSE.Crossref OpenAlex OpenCitations
-
Anna Urbanowicz , Christina Nicolaidis , Jacquiline den Houting *Autistic author. Learn more… , Stephen M. Shore , Katie Gaudion , Sonya Girdler et al. (2019). An Expert Discussion on Strengths-Based Approaches in Autism . Autism in Adulthood, 1(2), 82-89. SAGE Publications.
-
Christina Nicolaidis , Dora M Raymaker *Autistic author. Learn more… , Steven K. Kapp *Autistic author. Learn more… , Amelia E.V. Baggs , Elesia Ashkenazy *Autistic author. Learn more… , Katherine McDonald et al. (2019). The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants . Autism, 23(8), 2007-2019. SAGE Publications.
-
(1990). ref24Type: OtherCrossref
-
Qais I. Almeqdad , Ali M. Alodat , Mahmoud F. Alquraan , Mohammad A. Mohaidat , Alaa K. Al-Makhzoomy (2023). The effectiveness of universal design for learning: A systematic review of the literature and meta-analysis . Cogent Education, 10(1), 2218191. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Dora M Raymaker *Autistic author. Learn more… (2020). Shifting the System: AASPIRE and the Loom of Science and Activism . In Autistic community and the neurodiversity movement: stories from the frontline (pp. 133-145). Springer Singapore.
-
Maria Strömberg , Lina Liman , Peter Bang , Kajsa Igelström (2022). Experiences of Sensory Overload and Communication Barriers by Autistic Adults in Health Care Settings . Autism in Adulthood, 4(1), 66-75. SAGE Publications.Crossref OpenAlex OpenCitations
-
Robert Chapman *Autistic author. Learn more… , Monique Botha *Autistic author. Learn more… (2023). Neurodivergence‐informed therapy . Developmental Medicine & Child Neurology, 65(3), 310-317. Wiley.
-
Anabel Moriña , Inmaculada Orozco (2020). Planning and implementing actions for students with disabilities: Recommendations from faculty members who engage in inclusive pedagogy . International Journal of Educational Research, 103, 101639. Elsevier BV.Crossref OpenAlex OpenCitations
-
Westley James , Caroline Bustamante , Kamryn Lamons , Erin Scanlon , Jacquelyn J. Chini (2020). Disabling barriers experienced by students with disabilities in postsecondary introductory physics . Physical Review Physics Education Research, 16(2), 020111. American Physical Society (APS).Crossref OpenAlex OpenCitations
-
Desiree R. Jones , Kilee M. DeBrabander , Noah J. Sasson (2021). Effects of autism acceptance training on explicit and implicit biases toward autism . Autism, 25(5), 1246-1261. SAGE Publications.Crossref OpenAlex OpenCitations
-
Jacquiline den Houting *Autistic author. Learn more… , Julianne M. Higgins *Autistic author. Learn more… , Kathy Isaacs *Autistic author. Learn more… , Joanne Mahony , Elizabeth Pellicano (2021). ‘I’m not just a guinea pig’: Academic and community perceptions of participatory autism research . Autism, 25(1), 148-163. SAGE Publications.
-
Desiree R. Jones , Kerrianne E. Morrison , Kilee M. DeBrabander , Robert A. Ackerman , Amy E. Pinkham , Noah J. Sasson (2021). Greater Social Interest Between Autistic and Non-autistic Conversation Partners Following Autism Acceptance Training for Non-autistic People . Frontiers in Psychology, 12, 739147. Frontiers Media SA.Crossref OpenAlex OpenCitations
-
Juuso Henrik Nieminen (2023). Unveiling ableism and disablism in assessment: a critical analysis of disabled students’ experiences of assessment and assessment accommodations . Higher Education, 85(3), 613-636. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Meyer (2014). CAST: universal design for learning: theory & practice . CAST: universal design for learning: theory & practice.Type: OtherCrossref
-
Almudena Cotán , Arecia Aguirre , Beatriz Morgado , Noelia Melero (2021). Methodological Strategies of Faculty Members: Moving toward Inclusive Pedagogy in Higher Education . Sustainability, 13(6), 3031. MDPI AG.Crossref OpenAlex OpenCitations
-
Milton (2016). Beyond reasonable adjustment: autistic-friendly spaces and universal design . Autism and intellectual disabilities in adults Vol. 1, 81.Type: OtherCrossref
-
Yvonne Mbaki , Eli Todorova , Pamela Hagan (2021). Diversifying the medical curriculum as part of the wider decolonising effort: A proposed framework and self‐assessment resource toolbox . The Clinical Teacher, 18(5), 459-466. Wiley.Crossref OpenAlex OpenCitations
-
Sri Craven (2020). A Pedagogy of Community . Transformations: The Journal of Inclusive Scholarship and Pedagogy, 30(2), 127-140. The Pennsylvania State University Press.Crossref OpenAlex OpenCitations
-
Lukes (2021). Power: a radical view . Power: a radical view.Type: OtherCrossref
-
Jo Hall , Joanna MacDonnell , Catherine McConnell , Jennie Jones (2022). Student–staff partnerships for diversifying and decolonising the higher education curriculum . Equity in Education & Society, 1(3), 327-341. SAGE Publications.Crossref OpenAlex OpenCitations
-
Shore (2018). ref45Type: OtherCrossref
-
Crenshaw (1989). ref47Type: OtherCrossref
-
(2022). Diagnostic and statistical manual of mental disorders . Diagnostic and statistical manual of mental disorders.Type: OtherCrossref
-
Meadows (1999). Leverage points: places to intervene in a system . Leverage points: places to intervene in a system.Type: OtherCrossref