Mindshift in autism: a call to professionals in research, clinical, and educational settings

This publication is included in the Autistic Autism Scholarship Project. two authors of this publication are identified as autistic in the project.

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McVey, A. J., Jones, D. R., Waisman, T., Raymaker, D. M., Nicolaidis, C., & Maddox, B. (2023). Mindshift in autism: a call to professionals in research, clinical, and educational settings. Frontiers in Psychiatry, 14, 1251058-1251058. https://doi.org/10.3389/fpsyt.2023.1251058

Publication date: 31 Aug 2023 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
6
Publication authors identified as autistic
2 / 6 (33.3%)
  1. Alana J. McVey
  2. Desiree R Jones
  3. TC Waisman *
  1. Dora M. Raymaker *
  2. Christina Nicolaidis
  3. Brenna Maddox

Abstract

Autistic people often have poor outcomes over the life course, including in health, education, employment, and community inclusion. Many professionals working with Autistic adults in research, clinical, and educational settings devote their careers to trying to improve such outcomes. However, we maintain that real progress cannot happen without a fundamental mindshift. The status quo for professionals is to view autism as an illness. Instead, the neurodiversity movement encourages us to value and embrace autism as an aspect of human diversity and asks us to view Autistic people as a marginalized group that experiences significant disparities. While some professionals may be adopting language and concepts from the neurodiversity movement, we argue that making this mindshift fundamentally changes our practice across research, clinical, and educational settings. In this perspective, we call on professionals to embrace this mindshift to reduce discrimination and stigma, halt the spread of harmful ideologies, and help Autistic adults live fulfilling lives.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 13:58.

Cited references
68
With a DOI
55
Without a DOI, from raw bibliography text
13
27 / 68 (39.7%) cited references include at least one author identified as autistic.
References with data to complete
6 / 68 (8.8%)
References with detected author names
65 / 68 (95.6%)
Without detected author names
3
Without a structured title
4
Without a stable identifier
10
References with raw author names still to review
0
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
219
From DOI or external metadata
219
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
137 / 219 (62.6%) names are linked to an author already present in AutiHub. 82 / 219 (37.4%) names are not yet linked.
Names linked to a person identified as autistic
53 / 219 (24.2%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 53 / 137 (38.7%). Distinct people identified as autistic: 27 / 168 (16.1%).
  1. Michel Foucault , Colin Gordon (1980). Power/Knowledge: Selected Interviews and Other Writings 1972-1977 .
    Type: Book OpenAlex: https://openalex.org/W1597750586
    Crossref OpenAlex
  4. Jennifer Spratt , Lani Florian (2015). Inclusive pedagogy: From learning to action. Supporting each individual in the context of ‘everybody’ . Teaching and Teacher Education, 49, 89-96. Elsevier BV.
    Type: Article DOI: 10.1016/j.tate.2015.03.006 OpenAlex: https://openalex.org/W1967951107
    Crossref OpenAlex OpenCitations
  6. Amanda Taboas , Karla Doepke , Corinne Zimmerman (2023). Preferences for identity-first versus person-first language in a US sample of autism stakeholders . Autism, 27(2), 565-570. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221130845 OpenAlex: https://openalex.org/W4306157884
    Crossref OpenAlex OpenCitations
  11. Lisa A. Croen , Ousseny Zerbo , Yinge Qian , Maria L Massolo , Steve Rich , Stephen Sidney et al. (2015). The health status of adults on the autism spectrum . Autism, 19(7), 814-823. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315577517 OpenAlex: https://openalex.org/W2108322879
    Crossref OpenAlex OpenCitations
  13. Patricia Howlin (2021). Adults with Autism: Changes in Understanding Since DSM-111 . Journal of Autism and Developmental Disorders, 51(12), 4291-4308. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04847-z OpenAlex: https://openalex.org/W3122062158
    Crossref OpenAlex OpenCitations
  15. Steven K. Kapp * , Kristen Gillespie-Lynch , Lauren E. Sherman , Ted Hutman (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59-71. American Psychological Association (APA).
    Type: Article DOI: 10.1037/a0028353 OpenAlex: https://openalex.org/W2124715426
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  16. Steven K. Kapp * (2018). Social Support, Well-being, and Quality of Life Among Individuals on the Autism Spectrum . Pediatrics, 141(Supplement_4), S362-S368. American Academy of Pediatrics (AAP).
    Type: Article DOI: 10.1542/peds.2016-4300n OpenAlex: https://openalex.org/W2796366587
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  17. Katherine McDonald , Dora M. Raymaker * (2013). Paradigm Shifts in Disability and Health: Toward More Ethical Public Health Research . American Journal of Public Health, 103(12), 2165-2173. American Public Health Association.
    Type: Article DOI: 10.2105/ajph.2013.301286 OpenAlex: https://openalex.org/W2134344619
    Crossref OpenAlex OpenCitations
  18. Barbara FC van Heijst , Hilde M. Geurts (2015). Quality of life in autism across the lifespan: A meta-analysis . Autism, 19(2), 158-167. SAGE Publications.
    Type: Article DOI: 10.1177/1362361313517053 OpenAlex: https://openalex.org/W2150681219
    Crossref OpenAlex OpenCitations
  19. Christina Nicolaidis (2012). What Can Physicians Learn from the Neurodiversity Movement? AMA Journal of Ethics, 14(6), 503-510. American Medical Association (AMA).
    Type: Article DOI: 10.1001/virtualmentor.2012.14.6.oped1-1206 OpenAlex: https://openalex.org/W2142098199
    AutiHub · Documentation center Crossref OpenAlex OpenCitations
  21. Riley Buijsman , Sander Begeer , Anke Scheeren (2023). ‘Autistic person’ or ‘person with autism’? Person-first language preference in Dutch adults with autism and parents . Autism, 27(3), 788-795. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221117914 OpenAlex: https://openalex.org/W4291165536
    Crossref OpenAlex OpenCitations
  25. Laura I. Rendón Linares , Susana M. Muñoz , Amaury Nora , Angela Urick , Patricia D. Quijada , Cerecer et al. (2011). Revisiting Validation Theory: Theoretical Foundations, Applications, and Extensions . Enroll Manage J, 2, 12.
    Type: Article OpenAlex: https://openalex.org/W2186321096
    Crossref OpenAlex
  26. Emeline Han , Katrina Scior , Katerina Avramides , Laura Crane (2022). A systematic review on autistic people's experiences of stigma and coping strategies . Autism Research, 15(1), 12-26. Wiley.
    Type: Article DOI: 10.1002/aur.2652 OpenAlex: https://openalex.org/W4200200179
    Crossref OpenAlex OpenCitations
  27. Lani Florian (2015). Conceptualising Inclusive Pedagogy: The Inclusive Pedagogical Approach in Action . In Inclusive pedagogy across the curriculum. International perspectives on inclusive education (pp. 11-24). Emerald Group Publishing Limited.
    Type: Book chapter DOI: 10.1108/s1479-363620150000007001 OpenAlex: https://openalex.org/W2489786013
    Crossref OpenAlex OpenCitations
  28. Mike Slade (2017). Implementing shared decision making in routine mental health care . World Psychiatry, 16(2), 146-153. Wiley.
    Type: Article DOI: 10.1002/wps.20412 OpenAlex: https://openalex.org/W2360961725
    Crossref OpenAlex OpenCitations
  29. Alice Turnock , Kate Langley , Catherine RG Jones (2022). Understanding stigma in autism: a narrative review and theoretical model . Autism Adulthood, 4(1), 76. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2021.0005 OpenAlex: https://openalex.org/W4214570045
    Crossref OpenAlex OpenCitations
  30. Christina Nicolaidis (2019). What Does Inclusion Mean in Research and Scholarship on Autism in Adulthood? Autism in Adulthood, 1(2), 79-81. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2019.29001.cjn OpenAlex: https://openalex.org/W2936219164
    Crossref OpenAlex OpenCitations
  32. Nick Walker * , Dora M. Raymaker * (2021). Toward a Neuroqueer Future: An Interview with Nick Walker . Autism in Adulthood, 3(1), 5-10. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2020.29014.njw OpenAlex: https://openalex.org/W3106097568
    Crossref OpenAlex OpenCitations
  33. Kristen Gillespie-Lynch , Dennis Bublitz , Annemarie Donachie , Vincent Wong , Patricia J. Brooks , Joanne D’Onofrio (2017). “For a Long Time Our Voices have been Hushed”: Using Student Perspectives to Develop Supports for Neurodiverse College Students . Frontiers in Psychology, 8(1), 544. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2017.00544 OpenAlex: https://openalex.org/W2606961386
    Crossref OpenAlex OpenCitations
  34. (2012). Leverage Points—Places to Intervene in a System . In Thinking in Systems (pp. 152-172). Routledge.
    Type: Book chapter DOI: 10.4324/9781849773386-15 OpenAlex: https://openalex.org/W2517199338
    OpenAlex
  35. Steven K. Kapp * (2020). Introduction . In Autistic community and the neurodiversity movement (pp. 1-19). Springer Singapore.
    Type: Book chapter DOI: 10.1007/978-981-13-8437-0_1 OpenAlex: https://openalex.org/W4252451406
    Crossref OpenAlex OpenCitations
  36. Kristen Bottema-Beutel , Shannon Crowley LaPoint , Micheal Sandbank , Tiffany G. Woynaroski (2021). Research Review: Conflicts of Interest (COIs) in autism early intervention research – a meta‐analysis of COI influences on intervention effects . Journal of Child Psychology and Psychiatry, 62(1), 5-15. Wiley.
    Type: Article DOI: 10.1111/jcpp.13249 OpenAlex: https://openalex.org/W3021450028
    Crossref OpenAlex OpenCitations
  38. Hughes (2016). ref16
    Type: Other
    Crossref
  39. Amy S. Walker * (2014). Neurodiversity: Some basic terms & definitions . Neurodiversity: Some basic terms & definitions.
    Type: Other
    Crossref
  40. Alexandra Sewell , Anastasia Kennett , Victoria Pugh (2022). Universal Design for Learning as a theory of inclusive practice for use by educational psychologists . Educational Psychology in Practice, 38(4), 364-378. Informa UK Limited.
    Type: Article DOI: 10.1080/02667363.2022.2111677 OpenAlex: https://openalex.org/W4294192130
    Crossref OpenAlex OpenCitations
  41. Matthew James Capp (2017). The effectiveness of universal design for learning: a meta-analysis of literature between 2013 and 2016 . International Journal of Inclusive Education, 21(8), 791-807. Informa UK Limited.
    Type: Article DOI: 10.1080/13603116.2017.1325074 OpenAlex: https://openalex.org/W2613305305
    Crossref OpenAlex OpenCitations
  43. Michael Lyman , Mark E. Beecher , Derek Griner , Michael Brooks , John M. Call , Aaron P. Jackson (2016). What keeps students with disabilities from using accommodations in postsecondary education? A qualitative review . Journal of Postsecondary Education and Disability, 29(2), 123.
    Type: Article OpenAlex: https://openalex.org/W2726210230
    Crossref OpenAlex
  44. Patricia Berne , Aurora Levins Morales , David Langstaff , Sins Invalid (2018). Ten Principles of Disability Justice . WSQ: Women's Studies Quarterly, 46(1-2), 227-230. Project MUSE.
    Type: Article DOI: 10.1353/wsq.2018.0003 OpenAlex: https://openalex.org/W2800367486
    Crossref OpenAlex OpenCitations
  47. (1990). ref24
    Type: Other
    Crossref
  48. Qais I. Almeqdad , Ali M. Alodat , Mahmoud F. Alquraan , Mohammad A. Mohaidat , Alaa K. Al-Makhzoomy (2023). The effectiveness of universal design for learning: A systematic review of the literature and meta-analysis . Cogent Education, 10(1), 2218191. Informa UK Limited.
    Type: Article DOI: 10.1080/2331186x.2023.2218191 OpenAlex: https://openalex.org/W4381568947
    Crossref OpenAlex OpenCitations
  49. Dora M. Raymaker * (2020). Shifting the System: AASPIRE and the Loom of Science and Activism . In Autistic community and the neurodiversity movement: stories from the frontline (pp. 133-145). Springer Singapore.
    Type: Book chapter DOI: 10.1007/978-981-13-8437-0_10 OpenAlex: https://openalex.org/W2984890013
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  50. Maria Strömberg , Lina Liman , Peter Bang , Kajsa Igelström (2022). Experiences of Sensory Overload and Communication Barriers by Autistic Adults in Health Care Settings . Autism in Adulthood, 4(1), 66-75. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2020.0074 OpenAlex: https://openalex.org/W3205684935
    Crossref OpenAlex OpenCitations
  51. Robert Chapman * , Monique Botha * (2023). Neurodivergence‐informed therapy . Developmental Medicine & Child Neurology, 65(3), 310-317. Wiley.
    Type: Article DOI: 10.1111/dmcn.15384 OpenAlex: https://openalex.org/W4295008953
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  52. Anabel Moriña , Inmaculada Orozco (2020). Planning and implementing actions for students with disabilities: Recommendations from faculty members who engage in inclusive pedagogy . International Journal of Educational Research, 103, 101639. Elsevier BV.
    Type: Article DOI: 10.1016/j.ijer.2020.101639 OpenAlex: https://openalex.org/W3041318474
    Crossref OpenAlex OpenCitations
  53. Westley James , Caroline Bustamante , Kamryn Lamons , Erin Scanlon , Jacquelyn J. Chini (2020). Disabling barriers experienced by students with disabilities in postsecondary introductory physics . Physical Review Physics Education Research, 16(2), 020111. American Physical Society (APS).
    Type: Article DOI: 10.1103/physrevphyseducres.16.020111 OpenAlex: https://openalex.org/W3050600696
    Crossref OpenAlex OpenCitations
  54. Desiree R Jones , Kilee M. DeBrabander , Noah Sasson (2021). Effects of autism acceptance training on explicit and implicit biases toward autism . Autism, 25(5), 1246-1261. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320984896 OpenAlex: https://openalex.org/W3124162729
    Crossref OpenAlex OpenCitations
  56. Desiree R Jones , Kerrianne E. Morrison , Kilee M. DeBrabander , Robert A. Ackerman , Amy E. Pinkham , Noah Sasson (2021). Greater Social Interest Between Autistic and Non-autistic Conversation Partners Following Autism Acceptance Training for Non-autistic People . Frontiers in Psychology, 12, 739147. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2021.739147 OpenAlex: https://openalex.org/W3200462856
    Crossref OpenAlex OpenCitations
  57. Juuso Henrik Nieminen (2023). Unveiling ableism and disablism in assessment: a critical analysis of disabled students’ experiences of assessment and assessment accommodations . Higher Education, 85(3), 613-636. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10734-022-00857-1 OpenAlex: https://openalex.org/W4229332492
    Crossref OpenAlex OpenCitations
  58. Meyer (2014). CAST: universal design for learning: theory & practice . CAST: universal design for learning: theory & practice.
    Type: Other
    Crossref
  59. Almudena Cotán , Arecia Aguirre , Beatriz Morgado , Noelia Melero (2021). Methodological Strategies of Faculty Members: Moving toward Inclusive Pedagogy in Higher Education . Sustainability, 13(6), 3031. MDPI AG.
    Type: Article DOI: 10.3390/su13063031 OpenAlex: https://openalex.org/W3134360539
    Crossref OpenAlex OpenCitations
  60. Milton (2016). Beyond reasonable adjustment: autistic-friendly spaces and universal design . Autism and intellectual disabilities in adults Vol. 1, 81.
    Type: Other
    Crossref
  61. Yvonne Mbaki , Eli Todorova , Pamela Hagan (2021). Diversifying the medical curriculum as part of the wider decolonising effort: A proposed framework and self‐assessment resource toolbox . The Clinical Teacher, 18(5), 459-466. Wiley.
    Type: Article DOI: 10.1111/tct.13408 OpenAlex: https://openalex.org/W3197126372
    Crossref OpenAlex OpenCitations
  62. Sri Craven (2020). A Pedagogy of Community . Transformations: The Journal of Inclusive Scholarship and Pedagogy, 30(2), 127-140. The Pennsylvania State University Press.
    Type: Article DOI: 10.5325/trajincschped.30.2.0127 OpenAlex: https://openalex.org/W3143577473
    Crossref OpenAlex OpenCitations
  63. Lukes (2021). Power: a radical view . Power: a radical view.
    Type: Other
    Crossref
  64. Jo Hall , Joanna MacDonnell , Catherine McConnell , Jennie Jones (2022). Student–staff partnerships for diversifying and decolonising the higher education curriculum . Equity in Education & Society, 1(3), 327-341. SAGE Publications.
    Type: Article DOI: 10.1177/27526461221109870 OpenAlex: https://openalex.org/W4293055650
    Crossref OpenAlex OpenCitations
  65. Shore (2018). ref45
    Type: Other
    Crossref
  66. Crenshaw (1989). ref47
    Type: Other
    Crossref
  67. (2022). Diagnostic and statistical manual of mental disorders . Diagnostic and statistical manual of mental disorders.
    Type: Other
    Crossref
  68. Meadows (1999). Leverage points: places to intervene in a system . Leverage points: places to intervene in a system.
    Type: Other
    Crossref