Doing it differently: emancipatory autism studies within a neurodiverse academic space

This publication is included in the Autistic Autism Scholarship Project. three authors of this publication are identified as autistic in the project.

About the autistic author marker

Metadata sources used for this reference

OpenAlex Crossref OpenCitations
Learn more about the sources used

Bertilsdotter Rosqvist, H., Kourti, M., Jackson‐Perry, D., Brownlow, C., Fletcher, K., Bendelman, D., & O’Dell, L. (2019). Doing it differently: emancipatory autism studies within a neurodiverse academic space. Disability & Society, 34(7-8), 1082-1101. https://doi.org/10.1080/09687599.2019.1603102

Publication date: 28 May 2019 Added to AutiHub: 4 Jul 2026 Type: Article Article language: English
Publisher source (DOI) OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
7
Publication authors identified as autistic
3 / 7 (42.9%)
  1. Hannah Bertilsdotter Rosqvist *
  2. Marianthi Kourti *
  3. David Jackson‐Perry
  4. Charlotte Brownlow
  1. Kirsty Fletcher
  2. Daniel Bendelman *
  3. Lindsay O’Dell

Abstract

In the current research climate, in which many autistic and autism communities are increasingly calling for a move towards collaborative forms of research, we consider how a loosely formed epistemological community may serve to challenge ‘business as usual’ in the academy. Mindful of the need to move beyond theory, we use this experience to concretely consider how knowledge about autism and neurotypicality can be meaningfully (co)-produced, and made available both to the research community and also to autistic and autism communities. Here, we use our own co-production of this article to explore how autistic experience may trouble normative meanings of academic knowledge production. We also consider the limits and possibilities of a neurodiverse research collaboration to reflect on ways in which a loose epistemological space may serve to contribute to knowledge about both autism and neurotypicality, adding to debate around collaborative research.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 01:35.

Cited references
67
With a DOI
51
Without a DOI, from raw bibliography text
14
10 / 67 (14.9%) cited references include at least one author identified as autistic.
References with data to complete
5 / 67 (7.5%)
References with detected author names
63 / 67 (94.0%)
Without detected author names
4
Without a structured title
4
Without a stable identifier
12
References with raw author names still to review
3
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
137
From DOI or external metadata
137
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
3
56 / 137 (40.9%) names are linked to an author already present in AutiHub. 81 / 137 (59.1%) names are not yet linked.
Names linked to a person identified as autistic
23 / 137 (16.8%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 23 / 56 (41.1%). Distinct people identified as autistic: 19 / 124 (15.3%).
  1. Garland Thomson R (1997). Freakery: cultural spectacles of the extraordinary body . Choice Reviews Online, 34(08), 34-4369-34-4369. American Library Association.
    Type: Article DOI: 10.5860/choice.34-4369 OpenAlex: https://openalex.org/W625465060
    Crossref OpenAlex
  2. (n.d.). Arnold L. 2016. The Application of Video in the Education of Autistic Adults (Doctoral dissertation University of Birmingham).
    Type: Other
    Crossref
  3. Janette Dinishak (2016). The Deficit View and Its Critics . Disability Studies Quarterly, 36(4). The Ohio State University Libraries.
    Type: Article DOI: 10.18061/dsq.v36i4.5236 OpenAlex: https://openalex.org/W2559516930
    Crossref OpenAlex OpenCitations
  4. Petra Meier , Emanuela Lombardo (2010). Towards a New Theory on the Symbolic Representation of Women . SSRN Electronic Journal.
    Type: Preprint OpenAlex: https://openalex.org/W1560289414
    OpenAlex
  5. Len Barton (2005). Emancipatory research and disabled people: some observations and questions . Educational Review, 57(3), 317-327. Informa UK Limited.
    Type: Article DOI: 10.1080/00131910500149325 OpenAlex: https://openalex.org/W2140638992
    Crossref OpenAlex OpenCitations
  6. Mike Oliver (1992). Changing the Social Relations of Research Production? Disability, Handicap and Society, 7(2), 101. Informa UK Limited.
    Type: Article DOI: 10.1080/02674649266780141 OpenAlex: https://openalex.org/W2052592348
    Crossref OpenAlex OpenCitations
  7. Jim Sinclair * (2010). Being Autistic Together . Disability Studies Quarterly, 30(1). The Ohio State University Libraries.
    Type: Article DOI: 10.18061/dsq.v30i1.1075 OpenAlex: https://openalex.org/W1565875767
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  8. Kirstin Marie Bone (2017). Trapped behind the glass: crip theory and disability identity . Disability & Society, 32(9), 1297-1314. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599.2017.1313722 OpenAlex: https://openalex.org/W2606421781
    Crossref OpenAlex OpenCitations
  9. Ardha Danieli , Carol Woodhams (2005). Emancipatory Research Methodology and Disability: A Critique . International Journal of Social Research Methodology, 8(4), 281-296. Informa UK Limited.
    Type: Article DOI: 10.1080/1364557042000232853 OpenAlex: https://openalex.org/W2171725488
    Crossref OpenAlex OpenCitations
  10. Audre Lorde (1984). Sister Outsider: Essays and Speeches .
    Type: Book OpenAlex: https://openalex.org/W1598372787
    OpenAlex
  11. FRAN BRANFIELD (1998). What Are You Doing Here? 'Non-disabled' people and the disability movement: A response to Robert F. Drake . Disability & Society, 13(1), 143-144. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599826966 OpenAlex: https://openalex.org/W2105994815
    Crossref OpenAlex OpenCitations
  12. Evan Chaloupka (2015). Imagining Cognitive Disability: Recursive Reading and Viewing Processes in Henry H. Goddard’s The Kallikak Family: A Study in the Heredity of Feeblemindedness . CEA Critic, 77(3), 269-277. Project MUSE.
    Type: Article DOI: 10.1353/cea.2015.0026 OpenAlex: https://openalex.org/W2242009270
    Crossref OpenAlex OpenCitations
  13. Jane Seale , Melanie Nind , Liz Tilley , Rohhss Chapman (2015). Negotiating a third space for participatory research with people with learning disabilities: an examination of boundaries and spatial practices . Innovation: The European Journal of Social Science Research, 28(4), 483-497. Informa UK Limited.
    Type: Article DOI: 10.1080/13511610.2015.1081558 OpenAlex: https://openalex.org/W1890741310
    Crossref OpenAlex OpenCitations
  14. FRAN BRANFIELD (1999). The Disability Movement: A movement of disabled people - a response to Paul S. Duckett . Disability & Society, 14(3), 399-403. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599926226 OpenAlex: https://openalex.org/W2128106507
    Crossref OpenAlex OpenCitations
  15. Emma Stone , Mark Priestley (1996). Parasites, Pawns and Partners: Disability Research and the Role of Non-Disabled Researchers . The British Journal of Sociology, 47(4), 699. JSTOR.
    Type: Article DOI: 10.2307/591081 OpenAlex: https://openalex.org/W2119823228
    Crossref OpenAlex OpenCitations
  17. Kathleen A. Bratton , Leonard P. Ray (2002). Descriptive Representation, Policy Outcomes, and Municipal Day-Care Coverage in Norway . American Journal of Political Science, 46(2), 428. JSTOR.
    Type: Article DOI: 10.2307/3088386 OpenAlex: https://openalex.org/W2317193965
    Crossref OpenAlex OpenCitations
  19. Francesca Happé (1993). Communicative competence and theory of mind in autism: A test of relevance theory . Cognition, 48(2), 101-119. Elsevier BV.
    Type: Article DOI: 10.1016/0010-0277(93)90026-r OpenAlex: https://openalex.org/W1976589030
    Crossref OpenAlex OpenCitations
  20. Elizabeth Brewer , Cynthia L. Selfe , M. Remi Yergeau * (2014). Creating a Culture of Access in Composition Studies. Composition Studies, 422(2), 151.
    Type: Article OpenAlex: https://openalex.org/W2463215525
    Crossref OpenAlex
  22. K. Celis , S. Childs (2008). Introduction: The Descriptive and Substantive Representation of Women: New Directions . Parliamentary Affairs, 61(3), 419-425. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/pa/gsn006 OpenAlex: https://openalex.org/W1977599662
    Crossref OpenAlex OpenCitations
  24. Andrea MacLeod , Ann Lewis , Christopher Robertson (2014). ‘CHARLIE: PLEASE RESPOND!’ Using a participatory methodology with individuals on the autism spectrum . International Journal of Research & Method in Education, 37(4), 407-420. Informa UK Limited.
    Type: Article DOI: 10.1080/1743727x.2013.776528 OpenAlex: https://openalex.org/W1980457794
    Crossref OpenAlex OpenCitations
  25. Leda Cooks , John T. Warren (2011). SomeBodies(') in School: Introduction . Text and Performance Quarterly, 31(3), 211-216. Informa UK Limited.
    Type: Article DOI: 10.1080/10462937.2011.573183 OpenAlex: https://openalex.org/W1984761462
    Crossref OpenAlex OpenCitations
  26. Karen Celis , Sarah Childs , Johanna Kantola , Mona Lena Krook (2008). RETHINKING WOMEN'S SUBSTANTIVE REPRESENTATION . Representation, 44(2), 99-110. Informa UK Limited.
    Type: Article DOI: 10.1080/00344890802079573 OpenAlex: https://openalex.org/W2096867215
    Crossref OpenAlex OpenCitations
  27. Mark Blasius , David M. Halperin (1997). Saint Foucault: Towards a Gay Hagiography . Contemporary Sociology, 26(4), 533. SAGE Publications.
    Type: Article DOI: 10.2307/2655150 OpenAlex: https://openalex.org/W1995697583
    OpenAlex
  28. Elizabeth Pellicano , Will Mandy , Sven Bölte , Aubyn C. Stahmer , Julie Lounds Taylor , DAVID S. MANDELL (2018). A new era for autism research, and for our journal . Autism, 22(2), 82-83. SAGE Publications.
    Type: Article DOI: 10.1177/1362361317748556 OpenAlex: https://openalex.org/W2786011392
    Crossref OpenAlex OpenCitations
  29. Hernan Vera , Michel Foucault (1979). The History of Sexuality, Volume 1: An Introduction. Contemporary Sociology, 8(4), 589. SAGE Publications.
    Type: Article DOI: 10.2307/2065177 OpenAlex: https://openalex.org/W2007179619
    OpenAlex
  30. Childs S. (2013). The Oxford Handbook of Gender and Politics . The Oxford Handbook of Gender and Politics.
    Type: Other
    Crossref
  32. Gerry Zarb (1992). On the Road to Damascus: First Steps towards Changing the Relations of Disability Research Production . Disability, Handicap & Society, 7(2), 125-138. Informa UK Limited.
    Type: Article DOI: 10.1080/02674649266780161 OpenAlex: https://openalex.org/W2014014680
    Crossref OpenAlex OpenCitations
  34. Alyssa A. Samek , Theresa A. Donofrio (2013). “Academic Drag” and the Performance of the Critical Personae: An Exchange on Sexuality, Politics, and Identity in the Academy . Women's Studies in Communication, 36(1), 28-55. Informa UK Limited.
    Type: Article DOI: 10.1080/07491409.2012.754388 OpenAlex: https://openalex.org/W2021420319
    Crossref OpenAlex OpenCitations
  35. Frans Cilliers , Henk Greyvenstein (2012). The impact of silo mentality on team identity: An organisational case study . SA Journal of Industrial Psychology, 38(2). AOSIS.
    Type: Article DOI: 10.4102/sajip.v38i2.993 OpenAlex: https://openalex.org/W2159251007
    Crossref OpenAlex OpenCitations
  36. Anders Odenstedt (2005). Gadamer on the Limits of Reflection . Journal of the British Society for Phenomenology, 36(1), 39-54. Informa UK Limited.
    Type: Article DOI: 10.1080/00071773.2005.11007463 OpenAlex: https://openalex.org/W2037733030
    Crossref OpenAlex OpenCitations
  37. Mitzi Waltz (2014). Worlds of autism: across the spectrum of neurological difference . Disability & Society, 29(8), 1337-1338. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599.2014.934064 OpenAlex: https://openalex.org/W2047908406
    OpenAlex
  38. Susan Leigh Star (2010). This is Not a Boundary Object: Reflections on the Origin of a Concept . Science, Technology, & Human Values, 35(5), 601-617. SAGE Publications.
    Type: Article DOI: 10.1177/0162243910377624 OpenAlex: https://openalex.org/W2162237094
    Crossref OpenAlex OpenCitations
  39. PAUL S. DUCKETT (1998). What Are You Doing Here? 'Non disabled' people and the disability movement: A response to Fran Branfield . Disability & Society, 13(4), 625-628. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599826641 OpenAlex: https://openalex.org/W2124280177
    Crossref OpenAlex OpenCitations
  40. Ann Folwell , Rosemarie Garland Thomson (1998). Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature . American Literature, 70(1), 187. JSTOR.
    Type: Article DOI: 10.2307/2902469 OpenAlex: https://openalex.org/W2067886807
    OpenAlex
  41. Anthony J Steinbock (1997). Back to the Things Themselves . Human Studies, 20(2), 127-135. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1023/a:1005350727295 OpenAlex: https://openalex.org/W2083085139
    Crossref OpenAlex OpenCitations
  42. Foucault M (1979). The History of Sexuality Volume 1: An Introduction . The History of Sexuality Volume 1: An Introduction.
    Type: Other
    Crossref
  43. Michel Foucault , Jay Miskowiec (1986). Of Other Spaces . Diacritics, 16(1), 22. JSTOR.
    Type: Article DOI: 10.2307/464648 OpenAlex: https://openalex.org/W2316739529
    Crossref OpenAlex OpenCitations
  44. Joshua Gamson , Michael Warner (1994). Fear of a Queer Planet: Queer Politics and Social Theory. Contemporary Sociology, 23(6), 905. SAGE Publications.
    Type: Article DOI: 10.2307/2076123 OpenAlex: https://openalex.org/W2091532283
    OpenAlex
  45. David M Halperin (1995). Saint Foucault . Oxford University PressNew York, NY.
    Type: Book DOI: 10.1093/oso/9780195093711.001.0001 OpenAlex: https://openalex.org/W4388399549
    Crossref OpenAlex OpenCitations
  46. Lisa Hall (2014). ‘With’ not ‘about’ – emerging paradigms for research in a cross-cultural space . International Journal of Research & Method in Education, 37(4), 376-389. Informa UK Limited.
    Type: Article DOI: 10.1080/1743727x.2014.909401 OpenAlex: https://openalex.org/W2091980351
    Crossref OpenAlex OpenCitations
  47. Elizabeth Pellicano (2014). Chapter 4. A future made together: new directions in the ethics of autism research . Journal of Research in Special Educational Needs, 14(3), 200-204. Wiley.
    Type: Article DOI: 10.1111/1471-3802.12070_5 OpenAlex: https://openalex.org/W2108837557
    AutiHub · Documentation center Crossref OpenAlex OpenCitations
  48. Garland Thomson R (1997). Extraordinary bodies: figuring physical disability in American culture and literature . Choice Reviews Online, 34(11), 34-6147-34-6147. American Library Association.
    Type: Article DOI: 10.5860/choice.34-6147 OpenAlex: https://openalex.org/W4300330042
    Crossref OpenAlex
  49. Francesca Happé , J. Briskman , Uta Frith (2001). Exploring the Cognitive Phenotype of Autism: Weak “Central Coherence” in Parents and Siblings of Children with Autism: I. Experimental Tests . Journal of Child Psychology and Psychiatry, 42(3), 299-307. Wiley.
    Type: Article DOI: 10.1111/1469-7610.00723 OpenAlex: https://openalex.org/W2132975336
    Crossref OpenAlex OpenCitations
  50. Interagency Autism Coordinating Committee. (2013). IACC/OARC Autism Spectrum Disorder Publications Analysis: The Global Landscape of Autism Research . IACC/OARC Autism Spectrum Disorder Publications Analysis: The Global Landscape of Autism Research.
    Type: Other
    Crossref
  51. Lorde A. (2012). Lorde, A. 2012. Sister outsider: Essays and speeches. Crossing Press. Sister outsider: Essays and speeches.
    Type: Other
    Crossref
  52. Robin Nelson (2013). Practice as Research in the Arts . Palgrave Macmillan UK.
    Type: Book DOI: 10.1057/9781137282910 OpenAlex: https://openalex.org/W2483324850
    Crossref OpenAlex OpenCitations
  53. (n.d.). Meier P. and E. Lombardo. 2010. “Towards a New Theory on the Symbolic Representation of Women.” Paper Presented at the American Political Science Association Annual Meeting Washington DC September 2–5
    Type: Other
    Crossref
  54. Warner Panellists , Neal Benowitz , George Bigelow , Robert Robinson , Frank Vocci , K Warner (1993). Introduction . Tobacco Control, 2(Suppl 1), S54-S62. BMJ.
    Type: Article DOI: 10.1136/tc.2.suppl1.s54 OpenAlex: https://openalex.org/W4240003471
    Crossref OpenAlex OpenCitations
  55. Damian Milton * , Michael Bracher (2013). Autistics speak but are they heard? Med Sociol online, 7(2), 61.
    Type: Article OpenAlex: https://openalex.org/W2337764906
    Crossref
  57. Mitchell C. J. (2012). Access All Areas: Live Art and Disability . Access All Areas: Live Art and Disability.
    Type: Other
    Crossref
  58. Nelson L. H. (1993). Feminist Epistemologies . Feminist Epistemologies, 121.
    Type: Other
    Crossref
  60. Ronald Chenail (2016). Making Phenomenological Inquiry Accessible: A Review of Jonathan A. Smith, Paul Flowers, and Michael Larkin’s Interpretive Phenomenological Analysis: Theory, Method, and Research . The Qualitative Report. Nova Southeastern University.
    Type: Article DOI: 10.46743/2160-3715/2009.2841 OpenAlex: https://openalex.org/W2385001887
    OpenAlex
  61. Elizabeth Pellicano (2017). Participatory Autism Research: A Starter Pack . Participatory Autism Research: A Starter Pack.
    Type: Other
    Crossref
  62. Raymaker D (2013). Worlds of Autism: Across the Spectrum of Neurological Difference . Worlds of Autism: Across the Spectrum of Neurological Difference, 169.
    Type: Other
    Crossref
  63. Eva Silfver , Maritha Jacobsson , Linda Arnell , Hannah Bertilsdotter Rosqvist * , Maria Härgestam , Magdalena Sjöberg et al. (2020). Classroom bodies: affect, body language, and discourse when schoolchildren encounter national tests in mathematics . Gender and Education, 32(5), 682-696. Informa UK Limited.
    Type: Article DOI: 10.1080/09540253.2018.1473557 OpenAlex: https://openalex.org/W2803646201
    Crossref OpenAlex
  64. (2013). The Oxford Handbook of Gender and Politics . Oxford University Press.
    Type: Book DOI: 10.1093/oxfordhb/9780199751457.001.0001 OpenAlex: https://openalex.org/W2888601957
    OpenAlex
  65. Smith A. J. (2009). Interpretive Phenomenological Analysis: Theory, Method and Research . Interpretive Phenomenological Analysis: Theory, Method and Research.
    Type: Other
    Crossref
  66. Kathleen Lennon , Society for Women in Philosophy UK (1993). Feminist Epistemologies . Women’s Philosophy Review, (10), 15-16. Philosophy Documentation Center.
    Type: Article DOI: 10.5840/wpr1993107 OpenAlex: https://openalex.org/W4237991934
    OpenAlex
  67. (n.d.). Waltz M. 2009. “Participatory and Emancipatory Autism Research: What’s the Problem?” Presented at Autism 2006 Virtual Conference. http://www.awares.org/conferences/print_paper.asp?section=000100010001&conferenceCode=000200020009&id=82
    Type: Other
    Crossref