From tokenism to full participation

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Milton, D. (2020). From tokenism to full participation. In The Routledge Handbook of Service User Involvement in Human Services Research and Education (1st ed., pp. 440-445). Routledge. https://doi.org/10.4324/9780429433306-45 · ISBN : 9780429433306

Publication date: 22 Jul 2020 Added to AutiHub: 6 Jul 2026 Type: Book chapter Article language: English
Publisher source (DOI) OpenAlex source

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  1. Damian Milton *

Abstract

As autistic self-advocacy and rights groups have grown over recent decades, there has also been a growing conflict between the autistic community ‘voice’ often championing the concept of neurodiversity and a social model of disability and a discourse based in an individualised medical model of dysfunction, deficiency and dependency. In this chapter, an overview will be given to numerous participatory projects based primarily in the context of work happening in the United Kingdom, including the Participatory Autism Research Collective (PARC) and the National Autistic Taskforce (NAT). While such efforts are to be applauded, they remain somewhat on the periphery of autism discourse and practice. Further work is also needed on the inclusion of autistic people with significant learning/intellectual disability and with regard to the intersection between autism and gender.

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Calculated across all author names detected in the cited bibliography. No detected author names are currently linked to an author already present in AutiHub. Distinct people identified as autistic: 0 / 0 (0.0%).
  1. Autism Arts Festival. (2019). Accessed online at: https://autismartsfestival.org/ , 29/11/19.
    Type: Other
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