Reporting community involvement in autism research: Findings from the journal Autism

This publication is included in the Autistic Autism Scholarship Project. three authors of this publication are identified as autistic in the project.

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Tan, D., Crane, L., Haar, T., Heyworth, M., Poulsen, R. E., & Pellicano, E. (2024). Reporting community involvement in autism research: Findings from the journal Autism. Autism, 29(2), 490-503. https://doi.org/10.1177/13623613241275263

Publication date: 6 Sep 2024 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
6
Publication authors identified as autistic
3 / 6 (50.0%)
  1. Diana Tan
  2. Laura Crane
  3. Tori Haar *
  1. Melanie Heyworth *
  2. Rebecca E. Poulsen *
  3. Elizabeth Pellicano

Abstract

Participatory methods are having sweeping effects on research across the globe. To facilitate transparency around these methods, Autism introduced mandatory reporting of community involvement in January 2021. Here, we sought to determine the impact of this policy. To do so, we – a team of Autistic and non-autistic researchers – searched for articles published in Autism in 2019, 2 years before policy implementation, and in 2022, 1 year after. We read 283 eligible articles and double coded each article for general information and details of community involvement. We found a fivefold increase (10.3% pre-implementation vs 54.5% post-implementation) in the reporting of community involvement. Most articles reported involving community members distally, in consulting roles, with researchers retaining full decision-making power. Furthermore, most community involvement was reported in more applied than basic research. A significant minority of papers (17%), however, could not be coded, owing to insufficient or vague information. While this increase in the reporting of community involvement is encouraging, more efforts need to be directed towards (1) improving the transparency in the reporting of community involvement and (2) increasing the frequency with which community members, especially Autistic people, share decision-making power equally with researchers – or even assume control of the research process. Lay abstract There has been a growing push for the Autistic and autism communities to be more actively involved in autism research. From January 2021, the journal Autism made it a rule for authors to report whether they involved community members in their work; and if they did, how they had done so. In this study, we wanted to see how this new rule has changed things. Our team of Autistic and non-autistic researchers read all 283 articles published in Autism in 2019, about 2 years before the rule was in place, and in 2022, about 1 year after. We recorded what each article was about and how the community was involved. We found there was an increase in how often articles talked about community involvement – from about 10% before the rule to over 50% after. Most of these studies, however, only involved community members giving advice, with the researchers making most decisions about the research. This was especially true for applied research (like wellbeing) rather than basic science (like causes of autism). Also, some of these articles were unclear or did not give enough information for us to understand how the community was involved. This tells us that while it is promising that more community involvement is reported, researchers need to describe this involvement more clearly. It is also important for community members to have a bigger say in research by sharing power with the researchers or even leading the research themselves.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 11:54.

Cited references
65
With a DOI
58
Without a DOI, from raw bibliography text
7
18 / 65 (27.7%) cited references include at least one author identified as autistic.
References with data to complete
5 / 65 (7.7%)
References with detected author names
60 / 65 (92.3%)
Without detected author names
5
Without a structured title
4
Without a stable identifier
7
References with raw author names still to review
4
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
258
From DOI or external metadata
258
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
4
195 / 258 (75.6%) names are linked to an author already present in AutiHub. 63 / 258 (24.4%) names are not yet linked.
Names linked to a person identified as autistic
40 / 258 (15.5%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 40 / 195 (20.5%). Distinct people identified as autistic: 29 / 218 (13.3%).
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