Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders

Metadata sources used for this reference

OpenAlex Crossref PubMed OpenCitations
Learn more about the sources used

Frazier, T., Dawson, G., Murray, D. S., Shih, A., Sachs, J. S., & Geiger, A. (2018). Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders. Journal of Autism and Developmental Disorders, 48(11), 3965-3971. https://doi.org/10.1007/s10803-018-3642-6

Publication date: 15 Jun 2018 Added to AutiHub: 18 Jul 2026 Type: Article Article language: English
OpenAlex source Publisher source (DOI)

This publication is integrated into AutiHub through:

Authors

Publication authors
6
Publication authors identified as autistic
0 / 6 (0.0%)
  1. Thomas Frazier
  2. Géraldine Dawson
  3. Donna S. Murray
  1. Andy Shih
  2. Jessica Snyder Sachs
  3. Angela Geiger

Abstract

Inclusion of stakeholder voices in the allocation of research funding can increase the relevance of results and improve community engagement in research. We describe the results of an online survey that gathered input from community stakeholders regarding autism research priorities. A demographically diverse sample of respondents (N = 6004; 79.1% female; 72.5% ages 30-59; 86.4% USA) completed the survey. Results indicated a preference for applied relative to basic science topics, though both basic and applied science areas were rated as important. Respondents gave their highest ratings to research focused on co-occurring conditions, health and well-being, adult transition, and lifespan issues. These results can guide decision-making by public and private funders when developing science funding priorities and engaging in science dissemination activities.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

  1. Pathways in ASD Study Team , Stelios Georgiades , Michael Boyle , Peter Szatmari , Steven Hanna , Eric Duku et al. (2014). Modeling the Phenotypic Architecture of Autism Symptoms from Time of Diagnosis to Age 6 . Journal of Autism and Developmental Disorders, 44(12), 3045-3055. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-014-2167-x OpenAlex: https://openalex.org/W2015975017
    Crossref OpenAlex OpenCitations
  2. AppFT: Patent Application and Full-Text Image Database (2017). http://appft.uspto.gov/netahtml/PTO/search-adv.html . Accessed 28 Dec 2017.
    Type: Other
    Crossref
  3. Simon Baron-Cohen (2017). Editorial Perspective: Neurodiversity – a revolutionary concept for autism and psychiatry . Journal of Child Psychology and Psychiatry, 58(6), 744-747. Wiley.
    Type: Article DOI: 10.1111/jcpp.12703 OpenAlex: https://openalex.org/W2614229743
    Crossref OpenAlex OpenCitations
  5. Luis de la Torre-Ubieta , Hyejung Won , Jason L Stein , Daniel H Geschwind (2016). Advancing the understanding of autism disease mechanisms through genetics . Nature Medicine, 22(4), 345-361. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/nm.4071 OpenAlex: https://openalex.org/W2316811866
    Crossref OpenAlex OpenCitations
  6. D. L. Wheeler (2004). Database resources of the National Center for Biotechnology Information: update . Nucleic Acids Research, 32(90001), 35D-40. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/nar/gkh073 OpenAlex: https://openalex.org/W2096525273
    OpenAlex
  8. Sue Fletcher‐Watson , Fabio Apicella , Bonnie Auyeung , Stepanka Beranova , Frederique Bonnet-Brilhault , Ricardo Canal‐Bedia et al. (2017). Attitudes of the autism community to early autism research . Autism, 21(1), 61-74. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315626577 OpenAlex: https://openalex.org/W2339741724
    Crossref OpenAlex OpenCitations
  10. Sue Fletcher‐Watson , Kenneth Larsen , Erica Salomone , Members of the COST ESSEA Working Groups (2019). What do parents of children with autism expect from participation in research? A community survey about early autism studies . Autism, 23(1), 175-186. SAGE Publications.
    Type: Article DOI: 10.1177/1362361317728436 OpenAlex: https://openalex.org/W2767510311
    Crossref OpenAlex OpenCitations
  11. Afiqah Yusuf , Mayada Elsabbagh (2015). At the cross-roads of participatory research and biomarker discovery in autism: the need for empirical data . BMC Medical Ethics, 16(1), 88. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s12910-015-0082-0 OpenAlex: https://openalex.org/W2208511062
    Crossref OpenAlex OpenCitations
  12. NCBI Resource Coordinators (2017). Database Resources of the National Center for Biotechnology Information . Nucleic Acids Research, 45(D1), D12-D17. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/nar/gkw1071 OpenAlex: https://openalex.org/W4234797890
    Crossref OpenAlex OpenCitations
  13. Interagency Autism Coordinating Committee (IACC). (2017). 2016–2017 Interagency Autism Coordinating Committee Strategic Plan For Autism Spectrum Disorder. Retreived from the U. S. Department of Health and Human Services Interagency Autism Coordinating Committee website https://iacc.hhs.gov/publications/strategic-plan/2017/ .
    Type: Other
    Crossref
  14. Tristram Smith , Suzannah Iadarola , David S. Mandell , Robin Harwood , Connie Kasari (2017). Community-Partnered Research With Urban School Districts That Serve Children With Autism Spectrum Disorder . Academic Pediatrics, 17(6), 614-619. Elsevier BV.
    Type: Article DOI: 10.1016/j.acap.2017.04.017 OpenAlex: https://openalex.org/W2609782646
    Crossref OpenAlex OpenCitations
  15. National Institutes of Health. (2017). Research portfolio online reporting tools (RePORT): RePORTER manual. (12/19/2017 ed., Vol. 7. 24. 0).
    Type: Other
    Crossref