Expériences des adultes autistes en matière de bien-être financier : partie II

Titre original en anglais : Autistic adults’ experiences of financial wellbeing: Part II

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Pellicano, E., Hall, G., & Cai, R. Y. (2023). Autistic adults’ experiences of financial wellbeing: Part II. Autism, 28(5), 1090-1106. https://doi.org/10.1177/13623613231191594

Date de publication: 05/10/2023 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
3
Auteur·ices de la publication identifié·es comme autistes
1 / 3 (33,3 %)
  1. Elizabeth Pellicano
  2. Gabrielle Hall *
  3. Ru Ying Cai

Résumé

Le bien-être financier est une composante importante du bien-être global des personnes, reflétant la capacité de mener une vie confortable et épanouissante. Pourtant, pratiquement rien n'est connu sur ce sujet pour les personnes autistes. Cette étude a comblé cette lacune en utilisant un plan séquentiel en deux phases à méthodes mixtes. Nous rapportons ici les résultats de l'étude qualitative de la phase 2. Dans cette étude, 21 participants autistes ont été sélectionnés de manière raisonnée sur la base de leur niveau de bien-être financier, dont 12 personnes ayant un bien-être financier élevé et 9 un bien-être financier faible, et ont été interrogés par un chercheur autiste. Nous avons identifié quatre thèmes grâce à une analyse thématique réflexive. Le fait d'avoir accès à un revenu stable faisait une énorme différence pour le bien-être financier des personnes. Les participants ont souligné la manière dont leurs soutiens sociaux plus larges, en particulier le soutien familial, façonnaient leur bien-être financier. Cependant, la planification financière était souvent difficile, en particulier pour les personnes qui n'avaient pas suffisamment d'argent pour satisfaire leurs besoins fondamentaux. Néanmoins, nos participants ont rapporté une forte volonté de garder le contrôle et d'éviter les risques inutiles. Nos résultats ont révélé à quel point l'argent compte dans la vie des personnes autistes. Les recherches futures devraient examiner les moyens par lesquels les personnes autistes pourraient obtenir des revenus plus fiables et identifier les moyens les plus efficaces de les aider à atteindre une résilience financière. Résumé en langage courant L'argent compte dans la vie des personnes. Il aide à satisfaire les besoins fondamentaux des personnes (nourriture, vêtements, logement) et à mener la vie qu'elles souhaitent. Lorsque les personnes parlent de « bien-être financier », elles désignent à quel point elles se sentent en contrôle de leurs finances quotidiennes et quelle liberté elles ont de faire des choix pour profiter de la vie. Nous ne savons pas ce que les personnes autistes pensent de ces choses. C'est pourquoi nous avons réalisé notre étude. Nous avons parlé à 21 adultes autistes (24-69 ans) de ce qu'ils ressentaient à propos de leur situation financière. Nous avons délibérément parlé à des personnes qui nous avaient dit auparavant qu'elles se sentaient « financièrement bien » ou « financièrement mal » afin de pouvoir entendre un éventail d'opinions. Les personnes autistes nous ont dit que le bien-être financier signifiait avoir assez d'argent pour payer leurs besoins fondamentaux, disposer d'un filet de sécurité pour les factures imprévues et ne pas avoir à s'inquiéter de l'argent maintenant ou à l'avenir. Mais beaucoup estimaient qu'un bon bien-être financier n'était pas possible pour elles. Elles n'avaient souvent pas de revenu stable pour couvrir les dépenses quotidiennes. Cela limitait les choix qu'elles pouvaient faire. Malgré ces difficultés, les personnes autistes nous ont dit qu'elles travaillaient dur pour établir un budget et économiser de l'argent lorsqu'elles le pouvaient, car se sentir en insécurité financière était tout simplement trop stressant, en particulier lorsqu'elles ne pouvaient pas compter sur leur famille ou leurs amis pour obtenir du soutien. Cela les faisait se sentir mal sur le plan mental. Notre étude montre que de nombreux facteurs influencent le bien-être financier des personnes autistes. Nous avons besoin de davantage de recherches pour nous aider à comprendre comment les personnes autistes peuvent être soutenues afin d'atteindre une sécurité financière.

Financial wellbeing is an important component of people’s overall wellbeing, reflecting the capacity to live a comfortable and fulfilling life. Yet virtually nothing is known about this topic for autistic people. This study addressed this gap using a two-phase sequential mixed-methods design. Here, we report on findings from the Phase 2 qualitative study. In this study, 21 autistic participants were purposively selected based on the status of their financial wellbeing, including 12 people with high, and 9 with low, financial wellbeing, and interviewed by an autistic researcher. We identified four themes through reflective thematic analysis. Having access to a stable income made an enormous difference to people’s financial wellbeing. Participants emphasised how their broader social supports, especially family support, shaped their financial wellbeing. Yet, planning financially was often challenging, especially for people who had insufficient money to meet their basic needs. Nevertheless, our participants reported a strong drive to stay in control and avoid unnecessary risk. Our findings revealed how much money matters in autistic people’s lives. Future research should investigate the ways in which autistic people could secure more reliable incomes and identify the most effective ways to support them to achieve financial resilience. Lay abstract Money matters in people’s lives. It helps to meet people’s basic needs (food, clothes, shelter) and live the lives they want to. When people talk about ‘financial wellbeing’, they mean how much you feel in control over day-to-day finances and how much freedom you have to make choices to enjoy life. We don’t know what autistic people think about these things. That’s why we did our study. We spoke to 21 autistic adults (24–69 years) about how they felt about their financial situation. We deliberately spoke to people who had told us previously they felt ‘financially well’ or ‘financially unwell’ so we could hear a range of opinions. Autistic people told us financial wellbeing meant having enough money to pay for their basics needs, to have a safety net for unexpected bills and not having to worry about money now or in the future. But many felt that good financial wellbeing was not possible for them. They often did not have a stable income to cover day-to-day expenses. This limited the choices they could make. Despite these challenges, autistic people told us they worked hard to budget and save money when they could – because feeling financial insecure was just too stressful, especially when they could not rely on family or friends for support. It made them feel mentally unwell. Our study shows there are many factors that influence autistic people’s financial wellbeing. We need more research to help us understand how autistic people can be supported to achieve financial security.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 08:02.

Références citées
108
Avec un DOI
77
Sans DOI, à partir du texte brut de la bibliographie
29
10 / 108 (9,3 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
28 / 108 (25,9 %)
Références avec noms d’auteurices détectés
83 / 108 (76,9 %)
Sans nom d’auteurice détecté
25
Sans titre structuré
27
Sans identifiant stable
29
Références avec noms bruts d’auteurices restant à vérifier
24
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
318
À partir du DOI ou de métadonnées externes
318
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
70
130 / 318 (40,9 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 188 / 318 (59,1 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
22 / 318 (6,9 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 22 / 130 (16,9 %). Personnes distinctes identifiées comme autistes : 15 / 283 (5,3 %).
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