Une revue systématique et méta-synthèse des perspectives de jeunes personnes autistes et de leurs parents sur le bien-être psychologique

Auteurs

Résumé

Les adolescents autistes présentent un risque accru de développer des problèmes de santé mentale. L'amélioration du bien-être psychologique pourrait réduire la probabilité que de tels problèmes se développent. La recherche a eu tendance à privilégier les voix des personnes non autistes et a négligé de consulter les jeunes personnes autistes elles-mêmes. Notre méta-synthèse visait à examiner systématiquement la recherche qualitative sur les perspectives des jeunes personnes autistes et de leurs parents concernant l'expérience vécue du bien-être psychologique. Nous avons effectué une recherche systématique planifiée à l'avance, qui a identifié 2552 articles, dont 37 répondaient à l'ensemble des critères d'inclusion. Les articles inclus ont été publiés entre 2008 et 2023, les trois quarts ayant été publiés depuis 2018. Nous avons extrait de chaque article des données qualitatives relatives à l'expérience vécue du bien-être psychologique chez les jeunes personnes autistes et avons réalisé une synthèse thématique. Nous avons identifié trois thèmes : Marcher sur une corde raide : le besoin de grandir face au ressourcement par le repos et la familiarité ; Développer une perception positive de soi dans le monde social ; Sources de bonheur motivées de l'intérieur. Les interventions psychologiques visant à améliorer le bien-être des jeunes personnes autistes devraient respecter leur autonomie et leur besoin de repos tout en encourageant la croissance et le développement des compétences, offrir des possibilités de comprendre les besoins et les différences sociaux, et favoriser les possibilités de profiter d'intérêts particuliers.

1. Christophe Maïano , Claude L Normand , Marie‐Claude Salvas , Grégory Moullec , Annie Aimé (2016). Prevalence of School Bullying Among Youth with Autism Spectrum Disorders: A Systematic Review and Meta‐Analysis . Autism Research, 9(6), 601-615. Wiley.

   Type: Article DOI: 10.1002/aur.1568 OpenAlex: https://openalex.org/W1942667353

   Crossref OpenAlex OpenCitations
2. Joep van Agteren , Matthew Iasiello , Laura Lo , Jonathan Bartholomaeus , Zoe Kopsaftis , Marissa Carey et al. (2021). A systematic review and meta-analysis of psychological interventions to improve mental wellbeing . Nature Human Behaviour, 5(5), 631-652. Springer Science and Business Media LLC.

   Type: Article DOI: 10.1038/s41562-021-01093-w OpenAlex: https://openalex.org/W3153837393

   Crossref OpenAlex OpenCitations
3. Rachel Grove , Rosa A. Hoekstra , Marlies Wierda , Sander Begeer (2018). Special interests and subjective wellbeing in autistic adults . Autism Research, 11(5), 766-775. Wiley.

   Type: Article DOI: 10.1002/aur.1931 OpenAlex: https://openalex.org/W2789112474

   Crossref OpenAlex OpenCitations
4. Amanda Sullivan , Linda C. Caterino (2008). Addressing the Sexuality and Sex Education of Individuals with Autism Spectrum Disorders . Education and Treatment of Children, 31(1), 381-394. Project MUSE.

   Type: Article DOI: 10.1353/etc.0.0001 OpenAlex: https://openalex.org/W1999619269

   Crossref OpenAlex OpenCitations
5. American Psychological Association (2012). Diagnostic and Statistical Manual of Mental Disorders . SpringerReference, 5. Springer-Verlag.

   Type: Autre DOI: 10.1007/springerreference_121117 OpenAlex: https://openalex.org/W1604476085

   Crossref
6. James Thomas , Angela Harden (2008). Methods for the thematic synthesis of qualitative research in systematic reviews . BMC Medical Research Methodology, 8(1), 1. Springer Science and Business Media LLC.

   Type: Article DOI: 10.1186/1471-2288-8-45 OpenAlex: https://openalex.org/W2109305774

   Crossref OpenAlex OpenCitations
7. Eve Müller , Lynn Cannon (2016). Parent Perspectives on Outcomes and Satisfaction Levels of Young Adults With Autism and Cognitive Impairments . Focus on Autism and Other Developmental Disabilities, 31(2), 92-103. SAGE Publications.

   Type: Article DOI: 10.1177/1088357614528800 OpenAlex: https://openalex.org/W2010275228

   Crossref OpenAlex OpenCitations
8. Connie Anderson , Catherine Butt (2017). Young Adults on the Autism Spectrum at College: Successes and Stumbling Blocks . Journal of Autism and Developmental Disorders, 47(10), 3029-3039. Springer Science and Business Media LLC.

   Type: Article DOI: 10.1007/s10803-017-3218-x OpenAlex: https://openalex.org/W2734583549

   Crossref OpenAlex OpenCitations
9. Susan M Sawyer , Peter S Azzopardi , Dakshitha Wickremarathne , George C Patton (2018). The age of adolescence . The Lancet Child & Adolescent Health, 2(3), 223-228. Elsevier BV.

   Type: Article DOI: 10.1016/s2352-4642(18)30022-1 OpenAlex: https://openalex.org/W2784244485

   Crossref OpenAlex OpenCitations
10. Corey L. M. Keyes , Satvinder S. Dhingra , Eduardo J. Simoes (2010). Change in Level of Positive Mental Health as a Predictor of Future Risk of Mental Illness . American Journal of Public Health, 100(12), 2366-2371. American Public Health Association.

    Type: Article DOI: 10.2105/ajph.2010.192245 OpenAlex: https://openalex.org/W2037695402

    Crossref OpenAlex OpenCitations
11. Kristy A. Anderson , Collette Sosnowy , Alice A. Kuo , Paul Shattuck (2018). Transition of Individuals With Autism to Adulthood: A Review of Qualitative Studies . Pediatrics, 141(Supplement_4), S318-S327. American Academy of Pediatrics (AAP).

    Type: Article DOI: 10.1542/peds.2016-4300i OpenAlex: https://openalex.org/W2796352845

    Crossref OpenAlex OpenCitations
12. Aneta Lew-Koralewicz (2022). Psychosocial Functioning and the Educational Experiences of Students with ASD during the COVID-19 Pandemic in Poland . International Journal of Environmental Research and Public Health, 19(15), 9468. MDPI AG.

    Type: Article DOI: 10.3390/ijerph19159468 OpenAlex: https://openalex.org/W4289519841

    Crossref OpenAlex OpenCitations
13. Fred B. Bryant , Colette M. Smart , Scott P. King (2005). Using the Past to Enhance the Present: Boosting Happiness Through Positive Reminiscence . Journal of Happiness Studies, 6(3), 227-260. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10902-005-3889-4 OpenAlex: https://openalex.org/W2071786961

    Crossref OpenAlex OpenCitations
14. Morgane Aubineau , Teresa Blicharska (2020). High-Functioning Autistic Students Speak About Their Experience of Inclusion in Mainstream Secondary Schools . School Mental Health, 12(3), 537-555. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s12310-020-09364-z OpenAlex: https://openalex.org/W3015668440

    Crossref OpenAlex OpenCitations
15. Judith Hebron , Neil Humphrey (2014). Mental health difficulties among young people on the autistic spectrum in mainstream secondary schools: a comparative study . Journal of Research in Special Educational Needs, 14(1), 22-32. Wiley.

    Type: Article DOI: 10.1111/j.1471-3802.2012.01246.x OpenAlex: https://openalex.org/W2125463549

    Crossref OpenAlex OpenCitations
16. June L. Chen , Geraldine Leader , Connie Sung , Michael Leahy (2015). Trends in Employment for Individuals with Autism Spectrum Disorder: a Review of the Research Literature . Review Journal of Autism and Developmental Disorders, 2(2), 115-127. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s40489-014-0041-6 OpenAlex: https://openalex.org/W2085992067

    Crossref OpenAlex OpenCitations
17. Michelle S. Ballan , Molly Burke Freyer (2017). Autism Spectrum Disorder, Adolescence, and Sexuality Education: Suggested Interventions for Mental Health Professionals . Sexuality and Disability, 35(2), 261-273. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s11195-017-9477-9 OpenAlex: https://openalex.org/W2583683374

    Crossref OpenAlex OpenCitations
18. Christina Nicolaidis , Dora M. Raymaker *Auteur·ice autiste. En savoir plus… , Steven Kapp *Auteur·ice autiste. En savoir plus… , Mel Baggs *Auteur·ice autiste. En savoir plus… , Elesia Ashkenazy *Auteur·ice autiste. En savoir plus… , Katherine McDonald et al. (2019). The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants . Autism, 23(8), 2007-2019. SAGE Publications.

    Type: Article DOI: 10.1177/1362361319830523 OpenAlex: https://openalex.org/W2926826419

    AutiHub · Contributions académiques de personnes autistes sur l’autisme AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
19. Coralie Chevallier , Gregor Kohls , Vanessa Troiani , Edward S. Brodkin , Robert T. Schultz (2012). The social motivation theory of autism . Trends in Cognitive Sciences, 16(4), 231-239. Elsevier BV.

    Type: Article DOI: 10.1016/j.tics.2012.02.007 OpenAlex: https://openalex.org/W2091028497

    Crossref OpenAlex OpenCitations
20. Jamie B. Bernhardt , Gary Yu Hin Lam , Toni Thomas , Joseph F. Cubells , Kelsey Bohlke , Morganne Reid et al. (2020). Meaning in Measurement: Evaluating Young Autistic Adults' Active Engagement and Expressed Interest in Quality-of-Life Goals . Autism in Adulthood, 2(3), 227-242. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2019.0081 OpenAlex: https://openalex.org/W3022265836

    Crossref OpenAlex OpenCitations
21. Ru Ying Cai , Amanda Richdale , Cheryl Dissanayake , Julian Trollor , Mirko Uljarevic (2019). Emotion regulation in autism: Reappraisal and suppression interactions . Autism, 23(3), 737-749. SAGE Publications.

    Type: Article DOI: 10.1177/1362361318774558 OpenAlex: https://openalex.org/W2803278370

    Crossref OpenAlex OpenCitations
22. Wendy Duggleby , Lorraine Holtslander , Jari Kylma , Vicky Duncan , Chad Hammond , Allison Williams (2010). Metasynthesis of the Hope Experience of Family Caregivers of Persons With Chronic Illness . Qualitative Health Research, 20(2), 148-158. SAGE Publications.

    Type: Article DOI: 10.1177/1049732309358329 OpenAlex: https://openalex.org/W2095669895

    Crossref OpenAlex OpenCitations
23. Roy Bhaskar (2013). A realist theory of science . Routledge.

    Type: Livre DOI: 10.4324/9780203090732 OpenAlex: https://openalex.org/W2101234667

    Crossref OpenAlex
24. Amy Epstein , Andrew Whitehouse , Katrina Williams , Nada Murphy , Helen Leonard , Elise Davis et al. (2019). Parent-observed thematic data on quality of life in children with autism spectrum disorder . Autism, 23(1), 71-80. SAGE Publications.

    Type: Article DOI: 10.1177/1362361317722764 OpenAlex: https://openalex.org/W2766532281

    Crossref OpenAlex OpenCitations
25. Sarah-Jayne Blakemore , Kathryn L. Mills (2014). Is Adolescence a Sensitive Period for Sociocultural Processing? Annual Review of Psychology, 65(1), 187-207. Annual Reviews.

    Type: Article DOI: 10.1146/annurev-psych-010213-115202 OpenAlex: https://openalex.org/W2103167256

    Crossref OpenAlex OpenCitations
26. Monique Botha *Auteur·ice autiste. En savoir plus… , Eilidh Cage (2022). “Autism research is in crisis”: A mixed method study of researcher’s constructions of autistic people and autism research . Frontiers in Psychology, 13, 7397. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyg.2022.1050897 OpenAlex: https://openalex.org/W4309855376

    AutiHub · Contributions académiques de personnes autistes sur l’autisme AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
27. Scott Robertson *Auteur·ice autiste. En savoir plus… (2009). Neurodiversity, Quality of Life, and Autistic Adults: Shifting Research and Professional Focuses onto Real-Life Challenges . Disability Studies Quarterly, 30(1). The Ohio State University Libraries.

    Type: Article DOI: 10.18061/dsq.v30i1.1069 OpenAlex: https://openalex.org/W2103314478

    AutiHub · Contributions académiques de personnes autistes sur l’autisme AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
28. Monique Botha *Auteur·ice autiste. En savoir plus… , Bridget Dibb , David M. Frost (2022). ‘It’s being a part of a grand tradition, a grand counter-culture which involves communities’: A qualitative investigation of autistic community connectedness . Autism, 26(8), 2151-2164. SAGE Publications.

    Type: Article DOI: 10.1177/13623613221080248 OpenAlex: https://openalex.org/W4221109625

    AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
29. Sara Scardera , Léa C. Perret , Isabelle Ouellet-Morin , Geneviève Gariépy , Robert-Paul Juster , Michel Boivin et al. (2020). Association of Social Support During Adolescence With Depression, Anxiety, and Suicidal Ideation in Young Adults . JAMA Network Open, 3(12), e2027491. American Medical Association (AMA).

    Type: Article DOI: 10.1001/jamanetworkopen.2020.27491 OpenAlex: https://openalex.org/W3106826928

    Crossref OpenAlex OpenCitations
30. Corey L. M. Keyes , Dov Shmotkin , Carol D. Ryff (2002). Optimizing well-being: The empirical encounter of two traditions. Journal of Personality and Social Psychology, 82(6), 1007-1022. American Psychological Association (APA).

    Type: Article DOI: 10.1037//0022-3514.82.6.1007 OpenAlex: https://openalex.org/W2106343304

    Crossref OpenAlex OpenCitations
31. Bethany Jackson Brewin , Rebecca Renwick , Ann Fudge Schormans (2008). Parental Perspectives of the Quality of Life in School Environments for Children With Asperger Syndrome . Focus on Autism and Other Developmental Disabilities, 23(4), 242-252. SAGE Publications.

    Type: Article DOI: 10.1177/1088357608322997 OpenAlex: https://openalex.org/W2115841758

    Crossref OpenAlex OpenCitations
32. Adriana Galván (2020). The Need for Sleep in the Adolescent Brain . Trends in Cognitive Sciences, 24(1), 79-89. Elsevier BV.

    Type: Article DOI: 10.1016/j.tics.2019.11.002 OpenAlex: https://openalex.org/W2990490381

    Crossref OpenAlex OpenCitations
33. J. S. House , D. Umberson , K. R. Landis (1988). Structures and Processes of Social Support . Annual Review of Sociology, 14(1), 293-318. Annual Reviews.

    Type: Article DOI: 10.1146/annurev.so.14.080188.001453 OpenAlex: https://openalex.org/W2114062643

    Crossref OpenAlex OpenCitations
34. Ru Ying Cai , Gabrielle Hall *Auteur·ice autiste. En savoir plus… , Elizabeth Pellicano (2024). Predicting the Financial Wellbeing of Autistic Adults: Part I . Autism, 28(5), 1203-1215. SAGE Publications.

    Type: Article DOI: 10.1177/13623613231196085 OpenAlex: https://openalex.org/W4386407147

    AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex
35. Lucinda M. Sisk , Dylan G. Gee (2022). Stress and adolescence: vulnerability and opportunity during a sensitive window of development . Current Opinion in Psychology, 44, 286-292. Elsevier BV.

    Type: Article DOI: 10.1016/j.copsyc.2021.10.005 OpenAlex: https://openalex.org/W3209393208

    Crossref OpenAlex OpenCitations
36. Gary Yu Hin Lam , Emily Holden , Megan Fitzpatrick , Linda Raffaele Mendez , Karen Berkman (2020). “Different but connected”: Participatory action research using Photovoice to explore well-being in autistic young adults . Autism, 24(5), 1246-1259. SAGE Publications.

    Type: Article DOI: 10.1177/1362361319898961 OpenAlex: https://openalex.org/W3002469440

    Crossref OpenAlex OpenCitations
37. Leann E. Smith , Matthew J. Maenner , Marsha Mailick Seltzer (2012). Developmental Trajectories in Adolescents and Adults With Autism: The Case of Daily Living Skills . Journal of the American Academy of Child & Adolescent Psychiatry, 51(6), 622-631. Elsevier BV.

    Type: Article DOI: 10.1016/j.jaac.2012.03.001 OpenAlex: https://openalex.org/W2117211144

    Crossref OpenAlex OpenCitations
38. Sue Casement , Carmen Carpio de los Pinos , Rachel Forrester‐Jones (2017). Experiences of university life for students with Asperger’s Syndrome: a comparative study between Spain and England . International Journal of Inclusive Education, 21(1), 73-89. Informa UK Limited.

    Type: Article DOI: 10.1080/13603116.2016.1184328 OpenAlex: https://openalex.org/W2401426480

    Crossref OpenAlex OpenCitations
39. Serena Cribb , Lorcan Kenny , Elizabeth Pellicano (2019). ‘I definitely feel more in control of my life’: The perspectives of young autistic people and their parents on emerging adulthood . Autism, 23(7), 1765-1781. SAGE Publications.

    Type: Article DOI: 10.1177/1362361319830029 OpenAlex: https://openalex.org/W2918237446

    Crossref OpenAlex OpenCitations
40. L. Tavernor , E. Barron , Jacqui Rodgers , H. McConachie (2013). Finding out what matters: validity of quality of life measurement in young people with ASD . Child: Care, Health and Development, 39(4), 592-601. Wiley.

    Type: Article DOI: 10.1111/j.1365-2214.2012.01377.x OpenAlex: https://openalex.org/W2119468181

    Crossref OpenAlex OpenCitations
41. Farid Chakhssi , Jannis T. Kraiss , Marion Sommers-Spijkerman , Ernst T. Bohlmeijer (2018). The effect of positive psychology interventions on well-being and distress in clinical samples with psychiatric or somatic disorders: a systematic review and meta-analysis . BMC Psychiatry, 18(1), 1. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s12888-018-1739-2 OpenAlex: https://openalex.org/W2810325845

    Crossref OpenAlex OpenCitations
42. Matthew Iasiello , Joseph van Agteren , Corey L.M. Keyes , Eimear Muir Cochrane (2019). Positive mental health as a predictor of recovery from mental illness . Journal of Affective Disorders, 251, 227-230. Elsevier BV.

    Type: Article DOI: 10.1016/j.jad.2019.03.065 OpenAlex: https://openalex.org/W2928008442

    Crossref OpenAlex OpenCitations
43. Nancy Cheak-Zamora , Andrew Tait , Ann Coleman (2022). Assessing and Promoting Independence in Young Adults with Autism Spectrum Disorder . Journal of Developmental & Behavioral Pediatrics, 43(3), 130-139. Ovid Technologies (Wolters Kluwer Health).

    Type: Article DOI: 10.1097/dbp.0000000000001021 OpenAlex: https://openalex.org/W3205157466

    Crossref OpenAlex OpenCitations
44. Richard M. Ryan , Edward L. Deci (2000). Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. American Psychologist, 55(1), 68-78. American Psychological Association (APA).

    Type: Article DOI: 10.1037/0003-066x.55.1.68 OpenAlex: https://openalex.org/W4242883546

    Crossref OpenAlex OpenCitations
45. Allison Tong , Kate Flemming , Elizabeth McInnes , Sandy Oliver , Jonathan Craig (2012). Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ . BMC Medical Research Methodology, 12(1), 1. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/1471-2288-12-181 OpenAlex: https://openalex.org/W2135572748

    Crossref OpenAlex OpenCitations
46. Nancy Cheak-Zamora , Michelle Teti , Anna Maurer-Batjer (2018). Capturing Experiences of Youth With ASD via Photo Exploration: Challenges and Resources Becoming an Adult . Journal of Adolescent Research, 33(1), 117-145. SAGE Publications.

    Type: Article DOI: 10.1177/0743558416653218 OpenAlex: https://openalex.org/W2412611565

    Crossref OpenAlex OpenCitations
47. Choo Ting Siew , Trevor G. Mazzucchelli , Rosanna Rooney , Sonya Girdler (2017). A specialist peer mentoring program for university students on the autism spectrum: A pilot study . PLOS ONE, 12(7), e0180854. Public Library of Science (PLoS).

    Type: Article DOI: 10.1371/journal.pone.0180854 OpenAlex: https://openalex.org/W2736079395

    Crossref OpenAlex OpenCitations
48. W. Andrew Collins , Brett Laursen (2004). Changing Relationships, Changing Youth . The Journal of Early Adolescence, 24(1), 55-62. SAGE Publications.

    Type: Article DOI: 10.1177/0272431603260882 OpenAlex: https://openalex.org/W2167595018

    Crossref OpenAlex OpenCitations
49. Stephanie J. Howe , Jessica Baraskewich , Carly A. McMorris (2023). Anxiety in Autistic Youth: Understanding the Impact on Child, Caregiver, and Family Quality of Life . Journal of Child and Family Studies, 32(3), 892-907. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10826-022-02277-2 OpenAlex: https://openalex.org/W4220869452

    Crossref OpenAlex OpenCitations
50. Megan L. E. Clark , Dawn Adams (2020). Parent-Reported Barriers and Enablers of Strengths in their Children with Autism . Journal of Child and Family Studies, 29(9), 2402-2415. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10826-020-01741-1 OpenAlex: https://openalex.org/W3035676460

    Crossref OpenAlex OpenCitations
51. Andres Roman-Urrestarazu , Robin van Kessel , C. Allison , Fiona E. Matthews , Carol Brayne , S. Baron-Cohen (2021). Association of Race/Ethnicity and Social Disadvantage With Autism Prevalence in 7 Million School Children in England . JAMA Pediatrics, 175(6), e210054. American Medical Association (AMA).

    Type: Article DOI: 10.1001/jamapediatrics.2021.0054 OpenAlex: https://openalex.org/W3148807712

    Crossref OpenAlex OpenCitations
52. Michelle Teti , Nancy Cheak-Zamora , Bridget Lolli , Anna Maurer-Batjer (2016). Reframing Autism: Young Adults With Autism Share Their Strengths Through Photo-Stories . Journal of Pediatric Nursing, 31(6), 619-629. Elsevier BV.

    Type: Article DOI: 10.1016/j.pedn.2016.07.002 OpenAlex: https://openalex.org/W2477645722

    Crossref OpenAlex OpenCitations
53. Marie K Deserno , Denny Borsboom , Sander Begeer , Hilde M. Geurts (2017). Multicausal systems ask for multicausal approaches: A network perspective on subjective well-being in individuals with autism spectrum disorder . Autism, 21(8), 960-971. SAGE Publications.

    Type: Article DOI: 10.1177/1362361316660309 OpenAlex: https://openalex.org/W2518496052

    Crossref OpenAlex OpenCitations
54. Anna Cook , Jane Ogden , Naomi Winstone (2016). The experiences of learning, friendship and bullying of boys with autism in mainstream and special settings: a qualitative study . British Journal of Special Education, 43(3), 250-271. Wiley.

    Type: Article DOI: 10.1111/1467-8578.12143 OpenAlex: https://openalex.org/W2529179800

    Crossref OpenAlex OpenCitations
55. Kate Cooper , Ailsa Russell , Jiedi Lei , Laura GE Smith (2023). The impact of a positive autism identity and autistic community solidarity on social anxiety and mental health in autistic young people . Autism, 27(3), 848-857. SAGE Publications.

    Type: Article DOI: 10.1177/13623613221118351 OpenAlex: https://openalex.org/W4294605745

    Crossref OpenAlex OpenCitations
56. Rainart Fayette , Caroline Bond (2018). A systematic literature review of qualitative research methods for eliciting the views of young people with ASD about their educational experiences . European Journal of Special Needs Education, 33(3), 349-365. Informa UK Limited.

    Type: Article DOI: 10.1080/08856257.2017.1314111 OpenAlex: https://openalex.org/W2610686780

    Crossref OpenAlex OpenCitations
57. Joanne Danker , Iva Strnadová , Therese M. Cumming (2019). Picture my well-being: Listening to the voices of students with autism spectrum disorder . Research in Developmental Disabilities, 89, 130-140. Elsevier BV.

    Type: Article DOI: 10.1016/j.ridd.2019.04.005 OpenAlex: https://openalex.org/W2939616925

    Crossref OpenAlex OpenCitations
58. Audrey Linden , Lawrence MJ Best , Freya Elise *Auteur·ice autiste. En savoir plus… , Danielle Roberts , Aoife Branagan , Yong Boon Ernest Tay et al. (2023). Benefits and harms of interventions to improve anxiety, depression, and other mental health outcomes for autistic people: A systematic review and network meta-analysis of randomised controlled trials . Autism, 27(1), 7-30. SAGE Publications.

    Type: Article DOI: 10.1177/13623613221117931 OpenAlex: https://openalex.org/W4291158558

    AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
59. William Mandy (2022). Six ideas about how to address the autism mental health crisis . Autism, 26(2), 289-292. SAGE Publications.

    Type: Article DOI: 10.1177/13623613211067928 OpenAlex: https://openalex.org/W4210731441

    Crossref OpenAlex OpenCitations
60. Patrick Jachyra , Rebecca Renwick , Brenda Gladstone , Evdokia Anagnostou , Barbara E Gibson (2021). Physical activity participation among adolescents with autism spectrum disorder . Autism, 25(3), 613-626. SAGE Publications.

    Type: Article DOI: 10.1177/1362361320949344 OpenAlex: https://openalex.org/W3086153604

    Crossref OpenAlex OpenCitations
61. Billy Fitzgerald , Christopher McCusker , Maria Dempsey , Audrey Dunn Galvin (2025). Family processes and the emotional and behavioural well-being of autistic Children and youth: A systematic review of prospective studies . Review Journal of Autism and Developmental Disorders, 12(2), 1. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s40489-023-00385-3 OpenAlex: https://openalex.org/W4383909169

    Crossref OpenAlex
62. Sara C. Folta , Linda G. Bandini , Aviva Must , Jessica Pelletier , Kate Ryan , Carol Curtin (2022). Exploring leisure time use and impact on well-being among transition-age autistic youth . Research in Autism Spectrum Disorders, 96, 101996. Elsevier BV.

    Type: Article DOI: 10.1016/j.rasd.2022.101996 OpenAlex: https://openalex.org/W4281634172

    Crossref OpenAlex OpenCitations
63. Steven Kapp *Auteur·ice autiste. En savoir plus… (2018). Social Support, Well-being, and Quality of Life Among Individuals on the Autism Spectrum . Pediatrics, 141(Supplement_4), S362-S368. American Academy of Pediatrics (AAP).

    Type: Article DOI: 10.1542/peds.2016-4300n OpenAlex: https://openalex.org/W2796366587

    AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
64. Samantha Friedman , Roan Noble *Auteur·ice autiste. En savoir plus… , Stephanie Archer , Jenny Gibson , Claire Hughes (2023). Respite and Connection: Autistic Adults' Reflections Upon Nature and Well-Being During the Covid-19 Pandemic . Autism, 27(8), 136236132311664. SAGE Publications.

    Type: Article DOI: 10.1177/13623613231166462 OpenAlex: https://openalex.org/W4367320381

    AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex
65. Jingyi Wang , Farhana Mann , Brynmor Lloyd-Evans , Ruimin Ma , Sonia Johnson (2018). Associations between loneliness and perceived social support and outcomes of mental health problems: a systematic review . BMC Psychiatry, 18(1), 1. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s12888-018-1736-5 OpenAlex: https://openalex.org/W2805201924

    Crossref OpenAlex OpenCitations
66. Jessica L. Greenlee , Claire Stelter *Auteur·ice autiste. En savoir plus… , Emily Hickey , Casey Burton , Megan Carlson , Marcia A. Winter (2024). Using the three-minute speech sample to examine the parent-adolescent relationship in autistic youth: A qualitative analysis . Journal of Autism and Developmental Disorders, 54(6), 1. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-023-05942-7 OpenAlex: https://openalex.org/W4362658096

    AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex
67. Vikram K. Jaswal , Nameera Akhtar (2019). Being versus appearing socially uninterested: Challenging assumptions about social motivation in autism . Behavioral and Brain Sciences, 42, 1. Cambridge University Press (CUP).

    Type: Article DOI: 10.1017/s0140525x18001826 OpenAlex: https://openalex.org/W2809138493

    Crossref OpenAlex OpenCitations
68. Lorna Hamilton , Laura Beth Kelly , Sue Mesa (2023). “I’m able to function better when I know there's a beginning and an end time”: Autistic adolescents’ experiences of lockdowns during the COVID-19 pandemic . Autism & Developmental Language Impairments, 8. SAGE Publications.

    Type: Article DOI: 10.1177/23969415231159552 OpenAlex: https://openalex.org/W4322746717

    Crossref OpenAlex OpenCitations
69. Ewelina Rydzewska , Laura A Hughes-McCormack , Christopher Gillberg , Angela Henderson , Cecilia MacIntyre , Julie Rintoul et al. (2019). Prevalence of sensory impairments, physical and intellectual disabilities, and mental health in children and young people with self/proxy-reported autism: Observational study of a whole country population . Autism, 23(5), 1201-1209. SAGE Publications.

    Type: Article DOI: 10.1177/1362361318791279 OpenAlex: https://openalex.org/W2890709960

    Crossref OpenAlex OpenCitations
70. Jan Louise Hastie , Christine Stephens (2019). Vicarious Futurity: Parents' Perspectives on Locating Strengths in Adolescents with Autism. Aotearoa New Zealand Social Work, 31(1), 89-100. University of Otago Library.

    Type: Article DOI: 10.11157/anzswj-vol31iss1id505 OpenAlex: https://openalex.org/W2941771358

    Crossref OpenAlex OpenCitations
71. Megan K. Hatfield , Emma Ashcroft , Siobhan Maguire , Lauren Kershaw , Marina Ciccarelli (2023). “Stop and just breathe for a minute”: Perspectives of children on the autism Spectrum and their caregivers on a mindfulness group . Journal of Autism and Developmental Disorders, 53(9), 1. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-022-05542-x OpenAlex: https://openalex.org/W4283736004

    Crossref OpenAlex
72. Julianne M. Higgins *Auteur·ice autiste. En savoir plus… , Samuel R. C. Arnold , Janelle Weise , Elizabeth Pellicano , Julian Trollor (2021). Defining autistic burnout through experts by lived experience: Grounded Delphi method investigating #AutisticBurnout . Autism, 25(8), 2356-2369. SAGE Publications.

    Type: Article DOI: 10.1177/13623613211019858 OpenAlex: https://openalex.org/W3164838173

    AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
73. Meng-Chuan Lai , Caroline Kassee , Richard Besney , Sarah Bonato , Laura Hull , William Mandy et al. (2019). Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis . The Lancet Psychiatry, 6(10), 819-829. Elsevier BV.

    Type: Article DOI: 10.1016/s2215-0366(19)30289-5 OpenAlex: https://openalex.org/W2936336589

    Crossref OpenAlex OpenCitations
74. Amy Pearson *Auteur·ice autiste. En savoir plus… , Jon Rees *Auteur·ice autiste. En savoir plus… , Samantha Forster (2022). “This Was Just How This Friendship Worked”: Experiences of Interpersonal Victimization Among Autistic Adults . Autism in Adulthood, 4(2), 141-150. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2021.0035 OpenAlex: https://openalex.org/W4211001393

    AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
75. C. Hill , Saskia Keville , Amanda K. Ludlow (2023). Inclusivity for children with autism spectrum disorders: Parent’s reflections of the school learning environment versus home learning during COVID-19 . International Journal of Developmental Disabilities, 1–9(4), 546-554. Informa UK Limited.

    Type: Article DOI: 10.1080/20473869.2021.1975253 OpenAlex: https://openalex.org/W3201121816

    Crossref OpenAlex
76. Gary Yu Hin Lam , Sujay V. Sabnis , María Migueliz Valcarlos , Jennifer R. Wolgemuth (2021). A Critical Review of Academic Literature Constructing Well-Being in Autistic Adults . Autism in Adulthood, 3(1), 61-71. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2020.0053 OpenAlex: https://openalex.org/W3129551381

    Crossref OpenAlex OpenCitations
77. Eloise Stark *Auteur·ice autiste. En savoir plus… , Dorota Ali *Auteur·ice autiste. En savoir plus… , Annalise Ayre *Auteur·ice autiste. En savoir plus… , Naomi Schneider , Sophia Parveen , Keith Marais *Auteur·ice autiste. En savoir plus… et al. (2021). Coproduction with Autistic Adults: Reflections from the Authentistic Research Collective . Autism in Adulthood, 3(2), 195-203. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2020.0050 OpenAlex: https://openalex.org/W3112143438

    AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
78. den Houting (2021). Participatory And Inclusive Autism Research Practice Guides . Participatory and Inclusive Autism Research Practice Guides.

    Type: Autre

    Crossref
79. Elizabeth Pellicano , Serena Cribb , Lorcan Kenny (2020). Patterns of Continuity and Change in the Psychosocial Outcomes of Young Autistic People: a Mixed-Methods Study . Journal of Abnormal Child Psychology, 48(2), 301-313. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10802-019-00602-w OpenAlex: https://openalex.org/W2993303969

    Crossref OpenAlex OpenCitations
80. Miriam Raquel Wachholz Strelhow , Jorge Castellá Sarriera , Ferran Casas (2020). Evaluation of Well-Being in Adolescence: Proposal of an Integrative Model with Hedonic and Eudemonic Aspects . Child Indicators Research, 13(4), 1439-1452. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s12187-019-09708-5 OpenAlex: https://openalex.org/W2996324542

    Crossref OpenAlex OpenCitations
81. Rackeb Tesfaye , Valérie Courchesne , Pat Mirenda , Wendy Mitchell , David Nicholas , Ilina Singh et al. (2023). Autism voices: Perspectives of the needs, challenges, and hopes for the future of autistic youth . Autism, 27(4), 1142-1156. SAGE Publications.

    Type: Article DOI: 10.1177/13623613221132108 OpenAlex: https://openalex.org/W4308183720

    Crossref OpenAlex OpenCitations
82. Michelle Kersten , Kristy Coxon , Hoe Lee , Nathan J. Wilson (2020). “In Their Own Time”: Parents Gently Push Their Autistic Youth Towards Independent Community Mobility and Participation . Journal of Autism and Developmental Disorders, 50(8), 2806-2818. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-020-04384-9 OpenAlex: https://openalex.org/W3004453723

    Crossref OpenAlex OpenCitations
83. Jane Park , Judith Mortell (2020). Using the Grid Elaboration Method (GEM) to investigate transition experiences of young autistic adults . Educational Psychology in Practice, 36(2), 193-207. Informa UK Limited.

    Type: Article DOI: 10.1080/02667363.2020.1731429 OpenAlex: https://openalex.org/W3011970918

    Crossref OpenAlex OpenCitations
84. Georgia Pavlopoulou , Claire J. Usher , Amy Pearson *Auteur·ice autiste. En savoir plus… (2022). ‘I can actually do it without any help or someone watching over me all the time and giving me constant instruction’: Autistic adolescent boys' perspectives on engagement in online video gaming . British Journal of Developmental Psychology, 40(4), 557-571. Wiley.

    Type: Article DOI: 10.1111/bjdp.12424 OpenAlex: https://openalex.org/W4281741350

    AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
85. Georgia Pavlopoulou (2020). A good night's sleep: Learning about sleep from autistic adolescents' personal accounts . Frontiers in Psychology, 11(2020), 3597. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyg.2020.583868 OpenAlex: https://openalex.org/W3115088354

    Crossref OpenAlex
86. Jack McKinlay , Claire Wilson , Gillian Hendry , Carrie Ballantyne (2022). “It feels like sending your children into the lions’ den” – A qualitative investigation into parental attitudes towards ASD inclusion, and the impact of mainstream education on their child . Research in Developmental Disabilities, 120, 104128. Elsevier BV.

    Type: Article DOI: 10.1016/j.ridd.2021.104128 OpenAlex: https://openalex.org/W3212696044

    Crossref OpenAlex OpenCitations
87. Marco Solmi , Joaquim Radua , Miriam Olivola , Enrico Croce , Livia Soardo , Gonzalo Salazar de Pablo et al. (2022). Age at onset of mental disorders worldwide: large-scale meta-analysis of 192 epidemiological studies . Molecular Psychiatry, 27(1), 281-295. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1038/s41380-021-01161-7 OpenAlex: https://openalex.org/W3164324796

    Crossref OpenAlex OpenCitations
88. Suzanne Mukherjee , Bryony Beresford (2023). Factors Influencing The Mental Health of Autistic Children and Teenagers: Parents' Observations and Experiences . Autism, 27(8), 136236132311589. SAGE Publications.

    Type: Article DOI: 10.1177/13623613231158959 OpenAlex: https://openalex.org/W4327615256

    Crossref OpenAlex
89. Nussbaum (2011). Creating Capabilities .

    Type: Autre

    Crossref
90. Maxine O'Connor , Sandra Thom-Jones *Auteur·ice autiste. En savoir plus… , Chloe S. Gordon , Annette Joosten (2024). Exploring environmental barriers and facilitators to inclusion on a university campus for autistic students . Autismin Adulthood, 6(1), 36-46. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2022.0053 OpenAlex: https://openalex.org/W4311844366

    AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex
91. Elizabeth Pellicano , Unsa Fatima , Gabrielle Hall *Auteur·ice autiste. En savoir plus… , Melanie Heyworth *Auteur·ice autiste. En savoir plus… , Wenn Lawson *Auteur·ice autiste. En savoir plus… , Rozanna Lilley et al. (2022). A capabilities approach to understanding and supporting autistic adulthood . Nature Reviews Psychology, 1(11), 624-639. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1038/s44159-022-00099-z OpenAlex: https://openalex.org/W4294631565

    AutiHub · Contributions académiques de personnes autistes sur l’autisme AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
92. Martha C. Nussbaum (2011). Creating Capabilities . Harvard University Press.

    Type: Livre DOI: 10.4159/harvard.9780674061200 OpenAlex: https://openalex.org/W4240580964

    OpenAlex
93. Anna Ridderinkhof , Esther I. de Bruin , René Blom , Nirbhay N. Singh , Susan M. Bögels (2019). Mindfulness-Based Program for Autism Spectrum Disorder: a Qualitative Study of the Experiences of Children and Parents . Mindfulness, 10(9), 1936-1951. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s12671-019-01202-x

    Crossref OpenCitations
94. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders, 5th Edition: DSM-5 . American Psychiatric Association.

    Type: Livre DOI: 10.1176/appi.books.9780890425596 OpenAlex: https://openalex.org/W4247665917

    OpenAlex
95. Warner (s. d.). 10. 1016/j.cpr. 2024. 102411_bb0460

    Type: Autre

    Crossref