A systematic review and meta-synthesis on perspectives of autistic young people and their parents on psychological well-being

This publication is included in the Autistic Autism Scholarship Project. The publication reports one autistic author, without identifying them by name.

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Cooper, K., Kumarendran, S., & Barona, M. (2024). A systematic review and meta-synthesis on perspectives of autistic young people and their parents on psychological well-being. Clinical Psychology Review, 109, Article 102411. https://doi.org/10.1016/j.cpr.2024.102411

Publication date: 20 Feb 2024 Added to AutiHub: 22 Oct 2026 Type: Article Article language: English
Publisher source (DOI) OpenAlex source

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Authors

Publication authors
3
Autistic authors reported by the publication
1
  1. Kate Cooper
  2. Sanjay Kumarendran
  3. Manuela Barona

Abstract

Autistic adolescents are at increased risk of developing mental health problems. Improving psychological well-being could reduce the likelihood of such problems developing. Research has tended to prioritise the voices of non-autistic people and has neglected to consult autistic young people themselves. Our meta-synthesis aimed to systematically review qualitative research on the perspectives of autistic young people and their parents on the lived experience of psychological well-being. We conducted a pre-planned systematic search which identified 2552 papers, with 37 of those meeting full inclusion criteria. Included papers were published between 2008 and 2023, with three-quarters published since 2018. We extracted qualitative data from each paper pertaining to the lived experience of psychological well-being in autistic young people and conducted a thematic synthesis. We identified three themes; Walking a tightrope: the need for growth versus recharging through rest and familiarity; Developing a positive sense of self in the social world; Internally driven sources of happiness. Psychological interventions aiming to improve well-being in autistic young people should respect their autonomy and need for rest whilst encouraging growth and skills development, provide opportunities to understand social needs and differences, and promote opportunities to enjoy special interests.

Bibliography cited by this reference

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Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 23 Oct 2026 08:00.

Cited references
95
With a DOI
92
Without a DOI, from raw bibliography text
3
15 / 95 (15.8%) cited references include at least one author identified as autistic.
References with data to complete
1 / 95 (1.1%)
References with detected author names
95 / 95 (100.0%)
Without detected author names
0
Without a structured title
1
Without a stable identifier
3
References with raw author names still to review
0
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
366
From DOI or external metadata
366
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
154 / 366 (42.1%) names are linked to an author already present in AutiHub. 212 / 366 (57.9%) names are not yet linked.
Names linked to a person identified as autistic
31 / 366 (8.5%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 31 / 154 (20.1%). Distinct people identified as autistic: 27 / 341 (7.9%).
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