Explorer la musique dans la vie quotidienne des femmes autistes : une analyse phénoménologique interprétative

Titre original en anglais : Exploring music in the everyday lives of autistic women: An Interpretative Phenomenological Analysis

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Shalit, L., Elefant, C., & Roginsky, E. (2024). Exploring music in the everyday lives of autistic women: An Interpretative Phenomenological Analysis. Nordic Journal of Music Therapy, 34(3), 225-244. https://doi.org/10.1080/08098131.2024.2396105

Publication date: 05/09/2024 Ajout dans AutiHub: 17/09/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
3
Auteur·ices de la publication identifié·es comme autistes
1 / 3 (33,3 %)
  1. Lital Shalit *
  2. Cochavit Elefant
  3. Efrat Roginsky

Résumé

Introduction Cette étude qualitative a examiné les perceptions et la contribution de la musique à la vie quotidienne des femmes autistes. Elle s'appuie sur le paradigme de la neurodiversité et les théories féministes du handicap. L'expérience vécue autiste de la première autrice a pu influencer ces perspectives, mais elle fournit également une compréhension plus profonde et nuancée des expériences et de la culture de ces femmes. Méthode Un paradigme qualitatif constructiviste approprié à la recherche impliquant des populations sensibles ou peu explorées a été mis en œuvre. Des entretiens approfondis semi-structurés ont été menés auprès de neuf femmes autistes israéliennes âgées de 25 à 55 ans et issues de divers milieux sociaux. Les données ont été analysées selon l'approche de l'analyse phénoménologique interprétative (IPA). Résultats Quatre thèmes principaux ont été élaborés à partir de l'analyse des données : la musique tout au long de la vie, la musique comme facilitateur de la participation à la société, la musique comme expression de la diversité et de la normalisation, le camouflage autistique et la perte de l'identité musicale. Discussion Les résultats suggèrent que les participantes percevaient la musique comme très importante, car elle catalysait l'expression de soi et la résilience. Toutefois, ils ont également révélé des difficultés découlant des normes sociétales et de la stigmatisation associée à l'autisme, qui ont potentiellement conduit à des conflits identitaires et à des comportements de camouflage ayant compromis la contribution de la musique à leur vie. L'étude met en évidence l'interaction complexe entre les identités musicales, autistes et sociales des participantes, et illustre en outre comment la musique sert de moyen d'exprimer ces aspects croisés de leur identité.

Introduction This qualitative study examined the perceptions and contribution of music to the everyday lives of autistic women. It draws on the neurodiversity paradigm and feminist theories of disability. The first author’s autistic lived experience may have influenced these perspectives, but it also provides a more profound and nuanced understanding of these women’s experiences and culture.Method A constructivist qualitative paradigm appropriate for research involving sensitive or underexplored populations was implemented. Semi-structured in-depth interviews were conducted with nine Israeli autistic women aged 25–55 from various social backgrounds. The data were analyzed according to the Interpretative Phenomenological Analysis (IPA) approach.Findings Four superordinate themes were developed from the data analysis: music throughout life, music as a facilitator of participation in society, music as an expression of diversity and normalization, autistic masking and the loss of musical identity.Discussion The findings suggest that the participants perceived music as highly significant, as it catalyzed self-expression and resilience. Yet, they also revealed challenges stemming from societal norms and the stigma associated with autism that potentially led to identity conflicts and masking behaviors that undermined music’s contribution to their lives. The study highlights the complex interplay between the participants’ musical, autistic and social identities, and further illustrates how music serves as a medium for expressing these intersecting aspects of their identity.

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 19/09/2026 07:57.

Références citées
88
Avec un DOI
82
Sans DOI, à partir du texte brut de la bibliographie
6
13 / 88 (14,8 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
3 / 88 (3,4 %)
Références avec noms d’auteurices détectés
85 / 88 (96,6 %)
Sans nom d’auteurice détecté
3
Sans titre structuré
0
Sans identifiant stable
6
Références avec noms bruts d’auteurices restant à vérifier
0
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
252
À partir du DOI ou de métadonnées externes
252
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
0
131 / 252 (52,0 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 121 / 252 (48,0 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
18 / 252 (7,1 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 18 / 131 (13,7 %). Personnes distinctes identifiées comme autistes : 14 / 225 (6,2 %).
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