Lutter contre les disparités de santé liées à la stigmatisation chez les personnes autistes grâce à la competemilité culturelle : perspectives issues de la recherche et de l'expérience vécue

Titre original en anglais : Addressing Stigma-Related Health Disparities for Autistic Individuals Through Cultural Competemility: Insights from Research and Lived Experience

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Hotez, E., Phan, J. M., & Truong, D. M. (2024). Addressing Stigma-Related Health Disparities for Autistic Individuals Through Cultural Competemility: Insights from Research and Lived Experience. Current Psychiatry Reports, 26(12), 761-770. https://doi.org/10.1007/s11920-024-01551-y

Date de publication: 26/10/2024 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
3
Auteur·ices de la publication identifié·es comme autistes
1 / 3 (33,3 %)
  1. Emily Hotez
  2. Jenny Mai Phan *
  3. Dieu M. Truong

Résumé

OBJECTIF DE LA REVUE : Les personnes autistes subissent une stigmatisation disproportionnée tout au long de la vie dans les contextes interpersonnels, de soins de santé et éducatifs. Ces expériences contribuent à des résultats négatifs en matière de santé et de soins de santé pour cette population. Cet article vise à décrire les expériences de stigmatisation et de marginalisation des personnes autistes ; à examiner des cadres tels que le concept innovant de competemilité culturelle de Campinha-Bacote et sa pertinence pour les populations autistes ; à proposer des recommandations aux prestataires de soins de santé fondées sur ce cadre ; et à appliquer la théorie à la pratique dans une étude de cas. RÉSULTATS RÉCENTS : Les personnes autistes comprennent de plus en plus l'autisme comme un aspect important de leur identité. Il existe toutefois peu d'efforts de soins de santé culturellement informés qui reflètent cette compréhension. Par conséquent, les efforts visant à lutter contre les disparités de santé liées à la stigmatisation pour cette population ont une efficacité limitée. Dans ce manuscrit, nous mettons en évidence des possibilités, au sein des rencontres cliniques, de la formation médicale, des cabinets et systèmes de soins de santé, et de la recherche, d'offrir des soins culturellement informés de meilleure qualité aux populations autistes et de lutter contre les disparités de santé liées à la stigmatisation.

PURPOSE OF REVIEW: Autistic individuals experience disproportionate stigma across the life course in interpersonal, healthcare, and educational contexts. These experiences contribute to negative health and healthcare outcomes for this population. This paper seeks to describe autistic individuals' experiences of stigma and marginalization; discuss frameworks such as Campinha-Bacote's innovative concept of cultural competemility and its relevance to autistic populations; offer recommendations to healthcare providers based on this framework; and apply theory to practice in a case study. RECENT FINDINGS: Autistic individuals increasingly understand autism as an important aspect of their identity. There are, however, few culturally informed healthcare efforts that reflect this understanding. As a result, efforts to address stigma-related health disparities for this population have limited effectiveness. In this manuscript, we highlight opportunities within clinical encounters, medical training, healthcare offices and systems, and research to provide higher quality culturally informed care to autistic populations and address stigma-related health disparities.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
82
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
14 / 82 (17,1 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
28 / 294 (9,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 28 / 98 (28,6 %). Auteurices cité·es distinct·es identifié·es comme autistes : 20 / 279 (7,2 %).
Occurrences citées rattachées à la base AutiHub
98 / 294 (33,3 %)
Auteurices cité·es distinct·es rattaché·es : 87 / 279 (31,2 %)
Occurrences rattachées, non identifiées comme autistes
70 / 98 (71,4 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 70 / 294 (23,8 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 67 / 87 (77,0 %).
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