Inclusion, exclusion et isolement des personnes autistes : attitudes de la communauté et expériences des personnes autistes

Titre original en anglais : Inclusion, Exclusion and Isolation of Autistic People: Community Attitudes and Autistic People’s Experiences

Thom-Jones, S., Gordon, C. S., Akram, M., Murphy, N., & Sharkie, F. (2021). Inclusion, Exclusion and Isolation of Autistic People: Community Attitudes and Autistic People’s Experiences. Journal of Autism and Developmental Disorders, 52(3), 1131-1142. https://doi.org/10.1007/s10803-021-04998-7

Date de publication: 21/04/2021 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)

Résumé

Les recherches examinant l’inclusion des personnes autistes dans leurs communautés locales sont limitées. Cet article rend compte de deux études australiennes qui ont exploré cette lacune, en se concentrant à la fois sur les expériences des personnes autistes et sur les attitudes des personnes non autistes envers les personnes autistes. L’étude 1 a été menée auprès de personnes principalement non autistes (n = 2 383), et l’étude 2 auprès principalement de parents et d’aidants de personnes autistes (n = 1 297 personnes). La majorité des adultes non autistes percevaient une discrimination à l’encontre des personnes autistes dans la communauté, ce qui concordait avec les expériences des personnes autistes et de leurs aidants. Les attitudes et les expériences plus négatives à l’égard des adultes autistes étaient particulièrement préoccupantes. Il est urgent d’améliorer l’acceptation et l’inclusion, par la société, des personnes autistes de tous âges.

There is limited research examining the inclusion of autistic people in their local communities. This paper reports on two Australian studies which explored this gap, focusing on both autistic people's experiences and non-autistic people's attitudes towards autistic individuals. Study One was conducted with primarily non-autistic people (n = 2,383), and Study Two with primarily parents and carers of autistic people (n = 1,297 people). The majority of non-autistic adults perceived discrimination against autistic people in the community; consistent with the experiences of autistic people and their carers. Of particular concern was more negative attitudes towards, and experiences of, autistic adults. There is an urgent need to improve society's acceptance and inclusion of autistic people of all ages.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
40
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
1 / 40 (2,5 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
1 / 118 (0,8 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 1 / 39 (2,6 %). Auteurices cité·es distinct·es identifié·es comme autistes : 1 / 114 (0,9 %).
Occurrences citées rattachées à la base AutiHub
39 / 118 (33,1 %)
Auteurices cité·es distinct·es rattaché·es : 36 / 114 (31,6 %)
Occurrences rattachées, non identifiées comme autistes
38 / 39 (97,4 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 38 / 118 (32,2 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 35 / 36 (97,2 %).
  1. Hong Mei Tong , Daniel W. L. Lai , Qun Zeng , Wen Yan Xu (2011). Effects of Social Exclusion on Depressive Symptoms: Elderly Chinese Living Alone in Shanghai, China . Journal of Cross-Cultural Gerontology, 26(4), 349-364. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  2. ABS. (2015). Autism in Australia https://www.abs.gov.au/ausstats/abs@.nsf/Lookup/4430 . 0Main%20Features752015
    Type: Autre
    Crossref
  3. Christina N. Marsack , Preethy S. Samuel (2017). Mediating Effects of Social Support on Quality of Life for Parents of Adults with Autism . Journal of Autism and Developmental Disorders, 47(8), 2378-2389. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  4. Rozanna Lilley (2013). It’s an absolute nightmare: maternal experiences of enrolling children diagnosed with autism in primary school in Sydney, Australia . Disability & Society, 28(4), 514-526. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  5. ABS. (2012). Autism in Australia 2012, Autism and Education. https://www.abs.gov.au/ausstats/abs@.nsf/Latestproducts/4428 . 0Main%20Features52012
    Type: Autre
    Crossref
  6. Clare Sarah Allely (2019). Understanding and recognising the female phenotype of autism spectrum disorder and the “camouflage” hypothesis: a systematic PRISMA review . Advances in Autism, 5(1), 14-37. Emerald.
    Crossref OpenAlex OpenCitations
  7. Nicholas Gelbar , Isaac C. Smith , Brian Reichow (2014). Systematic Review of Articles Describing Experience and Supports of Individuals with Autism Enrolled in College and University Programs . Journal of Autism and Developmental Disorders, 44(10), 2593-2601. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  8. ABS (2018). 2018 Survey of Disabiltiy . 2018 Survey of Disabiltiy.
    Type: Autre
    Crossref
  9. Andriy Yur’yev , Peeter Värnik , Merike Sisask , Lauri Leppik , Kaur Lumiste , Airi Värnik (2013). Some aspects of social exclusion: Do they influence suicide mortality? International Journal of Social Psychiatry, 59(3), 232-238. SAGE Publications.
    Crossref OpenAlex OpenCitations
  10. Natalie A. Henninger , Julie Lounds Taylor (2013). Outcomes in adults with autism spectrum disorders: a historical perspective . Autism, 17(1), 103-116. SAGE Publications.
    Crossref OpenAlex OpenCitations
  11. Kerrianne E Morrison , Kilee M. DeBrabander , Desiree R. Jones , Daniel J Faso , Robert A. Ackerman , Noah J. Sasson (2020). Outcomes of real-world social interaction for autistic adults paired with autistic compared to typically developing partners . Autism, 24(5), 1067-1080. SAGE Publications.
    Crossref OpenAlex OpenCitations
  12. K. G. Gray , A. Piccinin , C. M. Keating , J. Taffe , T. R. Parmenter , S. Hofer et al. (2014). Outcomes in young adulthood: are we achieving community participation and inclusion? Journal of Intellectual Disability Research, 58(8), 734-745. Wiley.
    Crossref OpenAlex OpenCitations
  13. Angela Novak Amado , Roger J. Stancliffe , Mary McCarron , Philip McCallion (2013). Social Inclusion and Community Participation of Individuals with Intellectual/Developmental Disabilities . Intellectual and Developmental Disabilities, 51(5), 360-375. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  14. Julie Lounds Taylor , Ryan E. Adams , Somer Bishop (2017). Social participation and its relation to internalizing symptoms among youth with autism spectrum disorder as they transition from high school . Autism Research, 10(4), 663-672. Wiley.
    Type: Article DOI: 10.1002/aur.1709 OpenAlex: https://openalex.org/W2552400229
    Crossref OpenAlex OpenCitations
  15. Anastasia H. Anderson , Jennifer Stephenson , Mark Carter (2017). A systematic literature review of the experiences and supports of students with autism spectrum disorder in post-secondary education . Research in Autism Spectrum Disorders, 39(1), 33-53. Elsevier BV.
    Crossref OpenAlex OpenCitations
  16. Tiffany D. Johnson , Aparna Joshi (2016). Dark clouds or silver linings? A stigma threat perspective on the implications of an autism diagnosis for workplace well-being. Journal of Applied Psychology, 101(3), 430-449. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  17. Christine Bigby , Ilan Wiesel (2019). Using the concept of encounter to further the social inclusion of people with intellectual disabilities: what has been learned? Research and Practice in Intellectual and Developmental Disabilities, 6(1), 39-51. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  18. Femmianne Bredewold , Evelien Tonkens , Margo Trappenburg (2016). Urban encounters limited: The importance of built-in boundaries in contacts between people with intellectual or psychiatric disabilities and their neighbours . Urban Studies, 53(16), 3371-3387. SAGE Publications.
    Crossref OpenAlex OpenCitations
  19. Noah J. Sasson , Daniel J. Faso , Jack Nugent , Sarah Lovell , Daniel P. Kennedy , Ruth B. Grossman (2017). Neurotypical Peers are Less Willing to Interact with Those with Autism based on Thin Slice Judgments . Scientific Reports, 7(1), 40700-40700. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  20. Gregory L. Wallace , Jessica Budgett , Rebecca A. Charlton (2016). Aging and autism spectrum disorder: Evidence from the broad autism phenotype . Autism Research, 9(12), 1294-1303. Wiley.
    Type: Article DOI: 10.1002/aur.1620 OpenAlex: https://openalex.org/W2296086899
    Crossref OpenAlex OpenCitations
  21. Sarah Cassidy , K. Gould , E. Townsend , Mirabel Pelton , Ashley Robertson , Jacqui Rodgers (2020). Is Camouflaging Autistic Traits Associated with Suicidal Thoughts and Behaviours? Expanding the Interpersonal Psychological Theory of Suicide in an Undergraduate Student Sample . Journal of Autism and Developmental Disorders, 50(10), 3638-3648. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  22. Rachel Peters , Rob Brooks (2016). Parental perspectives on the transition to secondary school for students with Asperger syndrome and high‐functioning autism: a pilot survey study . British Journal of Special Education, 43(1), 75-91. Wiley.
    Crossref OpenAlex OpenCitations
  23. Ana Hategan , James A. Bourgeois , Jeremy Goldberg (2017). Aging with autism spectrum disorder: an emerging public health problem . International Psychogeriatrics, 29(4), 695-697. Elsevier BV.
    Crossref OpenAlex OpenCitations
  24. Craig Goodall , Alison MacKenzie (2019). Title: what about my voice? Autistic young girls’ experiences of mainstream school . European Journal of Special Needs Education, 34(4), 499-513. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  25. Jenna M. Hodges , Jonathan S. Gore (2019). Social Connections and Well-Being: With Whom Do You Identify and Why? Psychological Studies, 64(4), 436-446. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  26. Haelle, T. (2018). The consequences of compensation in autism. https://www.neurologyadvisor.com/topics/autism-spectrum-disorder/the-consequences-of-compensation-in-autism/
    Type: Autre
    Crossref
  27. Donna Koller , Kevin P. Stoddart (2021). Approaches that Address Social Inclusion for Children with Disabilities: A Critical Review . Child & Youth Care Forum, 50(4), 679-699. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  28. Chantelle Makin , Vivian Hill , Elizabeth Pellicano (2017). The primary-to-secondary school transition for children on the autism spectrum: A multi-informant mixed-methods study . Autism & Developmental Language Impairments, 2, 1. SAGE Publications.
    Crossref OpenAlex OpenCitations
  29. Darren Hedley , Mirko Uljarević , Kitty‐Rose Foley , Amanda L. Richdale , Julian N Trollor (2018). Risk and protective factors underlying depression and suicidal ideation in Autism Spectrum Disorder . Depression and Anxiety, 35(7), 648-657. Wiley.
    Type: Article DOI: 10.1002/da.22759 OpenAlex: https://openalex.org/W2802741176
    Crossref OpenAlex OpenCitations
  30. Jennifer Sarrett (2017). Interviews, Disclosures, and Misperceptions: Autistic Adults' Perspectives on Employment Related Challenges . Disability Studies Quarterly, 37(2). The Ohio State University Libraries.
    Crossref OpenAlex OpenCitations
  31. Laura Hull , K. V. Petrides , Carrie Allison , Paula Smith , Simon Baron-Cohen , Meng-Chuan Lai et al. (2017). “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions . Journal of Autism and Developmental Disorders, 47(8), 2519-2534. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  32. Sandra Thom-Jones *Auteur·ice autiste. En savoir plus… , Muhammad Akram , Chloe S. Gordon , Nicole Murphy , Fiona Sharkie (2021). Autism in Australia: Community Knowledge and Autistic People’s Experiences . Journal of Autism and Developmental Disorders, 51(10), 3677-3689. Springer Science and Business Media LLC.
    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
  33. Jeromey B Temple , Margaret Kelaher (2018). Is disability exclusion associated with psychological distress? Australian evidence from a national cross-sectional survey . BMJ Open, 8(5), e020829. BMJ.
    Crossref OpenAlex OpenCitations
  34. Erica C. Jacoby , Katherine Walton , Joseph Guada (2019). Community Perspectives on Adults With Autism Spectrum Disorder . Occupational Therapy in Mental Health, 35(1), 72-91. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  35. Rachael PS John , Fiona J Knott , Kate N Harvey (2018). Myths about autism: An exploratory study using focus groups . Autism, 22(7), 845-854. SAGE Publications.
    Crossref OpenAlex OpenCitations
  36. Noah J. Sasson , Kerrianne E Morrison (2019). First impressions of adults with autism improve with diagnostic disclosure and increased autism knowledge of peers . Autism, 23(1), 50-59. SAGE Publications.
    Crossref OpenAlex OpenCitations
  37. Jill Cornelius Underhill , Victoria Ledford , Hillary Adams (2019). Autism stigma in communication classrooms: exploring peer attitudes and motivations toward interacting with atypical students . Communication Education, 68(2), 175-192. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  38. Amanda D. Lowe , Sami Bawazeer , David G. Watson , Suzanne McGill , Richard J. S. Burchmore , P. P Pomeroy et al. (2017). Rapid changes in Atlantic grey seal milk from birth to weaning – immune factors and indicators of metabolic strain . Scientific Reports, 7(1), 16093-16093. Springer Science and Business Media LLC.
    OpenAlex
  39. Jones, S. (2019). We need to stop perpetuating the myth that children grow out of autism https://theconversation.com/we-need-to-stop-perpetuating-the-myth-that-children-grow-out-of-autism-119540
    Type: Autre
    Crossref
  40. United Nations. (2016). Convention on the Rights of Persons with Disabilities, General comment No. 4 (2016), Article 24: Right to inclusive education https://www.ohchr.org/Documents/HRBodies/CRPD/GC/RighttoEducation/CRPD-C-GC-4.doc
    Type: Autre
    Crossref