Addressing Stigma-Related Health Disparities for Autistic Individuals Through Cultural Competemility: Insights from Research and Lived Experience

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Hotez, E., Phan, J. M., & Truong, D. M. (2024). Addressing Stigma-Related Health Disparities for Autistic Individuals Through Cultural Competemility: Insights from Research and Lived Experience. Current Psychiatry Reports, 26(12), 761-770. https://doi.org/10.1007/s11920-024-01551-y

Publication date: 26 Oct 2024 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English
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Authors

Publication authors
3
Publication authors identified as autistic
1 / 3 (33.3%)
  1. Emily Hotez
  2. Jenny Mai Phan *
  3. Dieu M. Truong

Abstract

PURPOSE OF REVIEW: Autistic individuals experience disproportionate stigma across the life course in interpersonal, healthcare, and educational contexts. These experiences contribute to negative health and healthcare outcomes for this population. This paper seeks to describe autistic individuals' experiences of stigma and marginalization; discuss frameworks such as Campinha-Bacote's innovative concept of cultural competemility and its relevance to autistic populations; offer recommendations to healthcare providers based on this framework; and apply theory to practice in a case study. RECENT FINDINGS: Autistic individuals increasingly understand autism as an important aspect of their identity. There are, however, few culturally informed healthcare efforts that reflect this understanding. As a result, efforts to address stigma-related health disparities for this population have limited effectiveness. In this manuscript, we highlight opportunities within clinical encounters, medical training, healthcare offices and systems, and research to provide higher quality culturally informed care to autistic populations and address stigma-related health disparities.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 01:40.

Cited references
82
With a DOI
65
Without a DOI, from raw bibliography text
17
14 / 82 (17.1%) cited references include at least one author identified as autistic.
References with data to complete
17 / 82 (20.7%)
References with detected author names
72 / 82 (87.8%)
Without detected author names
10
Without a structured title
17
Without a stable identifier
17
References with raw author names still to review
10
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
295
From DOI or external metadata
295
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
15
108 / 295 (36.6%) names are linked to an author already present in AutiHub. 187 / 295 (63.4%) names are not yet linked.
Names linked to a person identified as autistic
31 / 295 (10.5%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 31 / 108 (28.7%). Distinct people identified as autistic: 23 / 279 (8.2%).
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