Addressing Stigma-Related Health Disparities for Autistic Individuals Through Cultural Competemility: Insights from Research and Lived Experience

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Hotez, E., Phan, J. M., & Truong, D. M. (2024). Addressing Stigma-Related Health Disparities for Autistic Individuals Through Cultural Competemility: Insights from Research and Lived Experience. Current Psychiatry Reports, 26(12), 761-770. https://doi.org/10.1007/s11920-024-01551-y

Publication date: 26 Oct 2024 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English
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Authors

Publication authors
3
Publication authors identified as autistic
1 / 3 (33.3%)
  1. Emily Hotez
  2. Jenny Mai Phan *
  3. Dieu M. Truong

Abstract

PURPOSE OF REVIEW: Autistic individuals experience disproportionate stigma across the life course in interpersonal, healthcare, and educational contexts. These experiences contribute to negative health and healthcare outcomes for this population. This paper seeks to describe autistic individuals' experiences of stigma and marginalization; discuss frameworks such as Campinha-Bacote's innovative concept of cultural competemility and its relevance to autistic populations; offer recommendations to healthcare providers based on this framework; and apply theory to practice in a case study. RECENT FINDINGS: Autistic individuals increasingly understand autism as an important aspect of their identity. There are, however, few culturally informed healthcare efforts that reflect this understanding. As a result, efforts to address stigma-related health disparities for this population have limited effectiveness. In this manuscript, we highlight opportunities within clinical encounters, medical training, healthcare offices and systems, and research to provide higher quality culturally informed care to autistic populations and address stigma-related health disparities.

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Cited references
82
Total cited references integrated for this publication.
Cited references with an identified autistic author
14 / 82 (17.1%)
Cited author occurrences identified as autistic
28 / 294 (9.5%)
Among occurrences linked to AutiHub author records: 28 / 98 (28.6%). Distinct cited authors identified as autistic: 20 / 279 (7.2%).
Cited author occurrences linked to AutiHub author records
98 / 294 (33.3%)
Distinct linked cited authors: 87 / 279 (31.2%)
Linked cited-author occurrences not identified as autistic
70 / 98 (71.4%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 70 / 294 (23.8%). Distinct linked cited authors not identified as autistic: 67 / 87 (77.0%).
2 cited bibliography entries could not be fully enriched from DOI metadata.
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