« Nous devons au monde notre perfection » : auto-perception, masquage et identité des femmes autistes dans le cadre du paradigme de la neurodiversité

Titre original en anglais : “We Owe the World Our Perfection”: Autistic women’s self-perception, masking, and identity within the neurodiversity paradigm

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Adamo, K., Morgan, J., Bengochea, A., Slicker, G., & Hilpert, J. (2026). “We Owe the World Our Perfection”: Autistic women’s self-perception, masking, and identity within the neurodiversity paradigm. Research in Neurodiversity, 2, Article 100022. https://doi.org/10.1016/j.rin.2026.100022

Date de publication: 03/04/2026 Ajout dans AutiHub: 16/10/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Source OpenAlex

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)
  1. Katybeth Adamo *
  2. Joseph Morgan
  3. Alain Bengochea
  4. Gerilyn Slicker
  5. Jonathan Hilpert

Résumé

Aucun résumé structuré enregistré pour cette référence.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 17/10/2026 01:28.

Références citées
63
Avec un DOI
52
Sans DOI, à partir du texte brut de la bibliographie
11
13 / 63 (20,6 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
1 / 63 (1,6 %)
Références avec noms d’auteurices détectés
62 / 63 (98,4 %)
Sans nom d’auteurice détecté
1
Sans titre structuré
1
Sans identifiant stable
11
Références avec noms bruts d’auteurices restant à vérifier
1
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
214
À partir du DOI ou de métadonnées externes
214
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
1
107 / 214 (50,0 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 107 / 214 (50,0 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
23 / 214 (10,7 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 23 / 107 (21,5 %). Personnes distinctes identifiées comme autistes : 22 / 199 (11,1 %).
  1. Fritz-Georg Lehnhardt , Christine Michaela Falter , Astrid Gawronski , Kathleen Pfeiffer , Ralf Tepest , Jeremy Franklin et al. (2016). Sex-related cognitive profile in autism spectrum disorders diagnosed late in life: Implications for the female autistic phenotype . Journal of Autism and Developmental Disorders, 46(1), 139. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-015-2558-7 OpenAlex: https://openalex.org/W1164101963
    Crossref OpenAlex
  3. Meng-Chuan Lai , S. Baron-Cohen , Joseph D Buxbaum (2015). Understanding autism in the light of sex/gender . Molecular Autism, 6(1), 1. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-015-0021-4 OpenAlex: https://openalex.org/W1521593204
    Crossref OpenAlex
  5. Éric Fombonne (2003). Epidemiological surveys of autism and other pervasive developmental disorders: An update . Journal of Autism and Developmental Disorders, 33(4), 365. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1023/a:1025054610557 OpenAlex: https://openalex.org/W1555175985
    Crossref OpenAlex
  6. Andrew J. Barnhart , Kris Dierickx (2021). Cultures and cures: Neurodiversity and brain organoids . BMC Medical Ethics, 22(1), 1. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s12910-021-00627-1 OpenAlex: https://openalex.org/W3160932166
    Crossref OpenAlex
  7. Katherine Runswick-Cole (2014). us’ and ‘them’: The limits and possibilities of a ‘Politics of Neurodiversity’ in Neoliberal Times . Disability & Society, 29(7), 1117. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599.2014.910107 OpenAlex: https://openalex.org/W1994467306
    Crossref OpenAlex
  8. Jonathan S Beck , Rebecca A Lundwall , Terisa P. Gabrielsen , Jonathan C Cox , Mikle South (2020). Looking good but feeling bad: “Camouflaging” behaviors and mental health in women with autistic traits . Autism, 24(4), 809-821. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320912147 OpenAlex: https://openalex.org/W3028258828
    Crossref OpenAlex
  9. Martin V. Covington (1984). The self-worth theory of achievement motivation: Findings and implications . The Elementary School Journal, 85(1), 5. University of Chicago Press.
    Type: Article DOI: 10.1086/461388 OpenAlex: https://openalex.org/W2007563658
    Crossref OpenAlex
  11. Rosemarie Garland-Thomson (2002). Integrating disability, Transforming Feminist theory . NWSA Journal, 14(3), 1. JSTOR.
    Type: Article DOI: 10.2979/nws.2002.14.3.1 OpenAlex: https://openalex.org/W2007817087
    Crossref OpenAlex
  12. Eilidh Cage , Jessica Di Monaco , Victoria Newell (2018). Experiences of autism acceptance and Mental Health in Autistic Adults . Journal of Autism and Developmental Disorders, 48(2), 473. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3342-7 OpenAlex: https://openalex.org/W2766434912
    Crossref OpenAlex
  13. Meng-Chuan Lai , Michael Lombardo , Bonnie Auyeung , Bhismadev Chakrabarti , S. Baron-Cohen (2015). Sex/gender differences and autism: Setting the scene for future research . Journal of the American Academy of Child & Adolescent Psychiatry, 54(1), 11. Elsevier BV.
    Type: Article DOI: 10.1016/j.jaac.2014.10.003 OpenAlex: https://openalex.org/W2069328123
    Crossref OpenAlex
  15. Éric Fombonne (2005). The changing epidemiology of autism . Journal of Applied Research in Intellectual Disabilities, 18(4), 281. Wiley.
    Type: Article DOI: 10.1111/j.1468-3148.2005.00266.x OpenAlex: https://openalex.org/W2074062819
    Crossref OpenAlex
  17. Sophie E. Lind (2010). Memory and the self in autism . Autism, 14(5), 430. SAGE Publications.
    Type: Article DOI: 10.1177/1362361309358700 OpenAlex: https://openalex.org/W2111291642
    Crossref OpenAlex
  19. Susann M. Laverty (2003). Hermeneutic phenomenology and phenomenology: A comparison of historical and methodological considerations . International Journal of Qualitative Methods, 2(3), 21. SAGE Publications.
    Type: Article DOI: 10.1177/160940690300200303 OpenAlex: https://openalex.org/W2146203034
    Crossref OpenAlex
  21. Chapman (2023). Empire of normality: Neurodiversity and capitalism .
    Type: Autre
    Crossref
  22. Jorieke Duvekot , Jan van der Ende , Frank C Verhulst , Geerte Slappendel , Emma van Daalen , Athanasios Maras et al. (2017). Factors influencing the probability of a diagnosis of autism spectrum disorder in girls versus boys . Autism, 21(6), 646. SAGE Publications.
    Type: Article DOI: 10.1177/1362361316672178 OpenAlex: https://openalex.org/W2560811518
    Crossref OpenAlex
  23. Samuel J. R. A. Chawner , Michael J. Owen (2022). Autism: A model of neurodevelopmental diversity informed by Genomics . Frontiers in Psychiatry, 13, 1. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyt.2022.981691 OpenAlex: https://openalex.org/W4294243323
    Crossref OpenAlex
  24. Rachel Loomes , Laura Hull , William Mandy (2017). What is the male-to-female ratio in autism spectrum disorder? A systematic review and meta-analysis . Journal of the American Academy of Child & Adolescent Psychiatry, 56(6), 466. Elsevier BV.
    Type: Article DOI: 10.1016/j.jaac.2017.03.013 OpenAlex: https://openalex.org/W2604697269
    Crossref OpenAlex
  25. Rosalind Cooper , Kate Cooper , Ailsa Russell , Laura G. E. Smith (2021). I’m proud to be a little bit different”: The effects of autistic individuals’ perceptions of autism and autism social identity on their collective self-esteem . Journal of Autism and Developmental Disorders, 51(2), 704. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04575-4 OpenAlex: https://openalex.org/W3036418460
    Crossref OpenAlex
  26. Romain Coutelle , Marc-André Goltzene , Eric Bizet , Marie Schoenberger , Fabrice Berna , Jean-Marie Danion (2020). Self-concept clarity and autobiographical memory functions in adults with autism spectrum disorder without intellectual deficiency . Journal of Autism and Developmental Disorders, 50(11), 3874. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04447-x OpenAlex: https://openalex.org/W3009057206
    Crossref OpenAlex
  28. H. Young , M.-J. Oreve , M. Speranza (2018). Clinical characteristics and problems diagnosing autism spectrum disorder in girls . Archives Délelőtt Pédiatrie, 25(6), 399. Elsevier BV.
    Type: Article DOI: 10.1016/j.arcped.2018.06.008 OpenAlex: https://openalex.org/W2888232445
    Crossref OpenAlex
  29. Creswell (2025). Qualitative inquiry & research design: Choosing among five approaches .
    Type: Autre
    Crossref
  30. Meng-Chuan Lai , Michael Lombardo , Bhismadev Chakrabarti , Amber Ruigrok , Edward T. Bullmore , J. Suckling et al. (2019). Neural self-representation in autistic women and association with ‘compensatory camouflaging . Autism, 23(5), 1210. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318807159 OpenAlex: https://openalex.org/W2892828630
    Crossref OpenAlex
  31. Julie Cumin , Sandra Pelaez , Laurent Mottron (2022). Positive and differential diagnosis of autism in verbal women of typical intelligence: A delphi study . Autism, 26(5), 1153. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211042719 OpenAlex: https://openalex.org/W3199578945
    Crossref OpenAlex
  32. Judith S. Miller , Suzanne Zivnuska , K. Michele Kacmar (2019). Self-perception and life satisfaction . Personality and Individual Differences, 139, 321. Elsevier BV.
    Type: Article DOI: 10.1016/j.paid.2018.12.003 OpenAlex: https://openalex.org/W2904640251
    Crossref OpenAlex
  33. Geraldine Dawson , Lauren Franz , Sam Brandsen * (2022). At a crossroads—reconsidering the goals of autism early behavioral intervention from a neurodiversity perspective . JAMA Pediatrics, 176(9), 839. American Medical Association (AMA).
    Type: Article DOI: 10.1001/jamapediatrics.2022.2299 OpenAlex: https://openalex.org/W4285024688
    Crossref OpenAlex
  34. Dori Zener (2019). Journey to diagnosis for women with autism . Advances in Autism, 5(1), 2. Emerald.
    Type: Article DOI: 10.1108/aia-10-2018-0041 OpenAlex: https://openalex.org/W2918185263
    Crossref OpenAlex
  35. Bethany Driver , Verity Chester (2021). The presentation, recognition and diagnosis of autism in women and girls . Advances in Autism, 7(3), 194. Emerald.
    Type: Article DOI: 10.1108/aia-12-2019-0050 OpenAlex: https://openalex.org/W3136524797
    Crossref OpenAlex
  36. Elizabeth Kock , Andre Strydom , Deirdre O’Brady , Digby Tantam (2019). Autistic women’s experience of intimate relationships: The impact of an adult diagnosis . Advances in Autism, 5(1), 38. Emerald.
    Type: Article DOI: 10.1108/aia-09-2018-0035 OpenAlex: https://openalex.org/W2920176009
    Crossref OpenAlex
  37. Diana Duong , Lauren Vogel (2022). Untapped potential: Embracing neurodiversity in medicine . Canadian Medical Association Journal, 194(27), E951-E952. CMA Impact Inc..
    Type: Article DOI: 10.1503/cmaj.1096006 OpenAlex: https://openalex.org/W4285732458
    Crossref OpenAlex
  38. Renée M. Green , Alyssa M. Travers , Yamini Howe , Christopher J. McDougle (2019). Women and autism spectrum disorder: Diagnosis and implications for treatment of adolescents and adults . Current Psychiatry Reports, 21(4), 22. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11920-019-1006-3 OpenAlex: https://openalex.org/W2920830522
    Crossref OpenAlex
  39. Alexandra Leedham , Andrew R. Thompson , Richard Smith , Megan Freeth (2020). ‘I was exhausted trying to figure it out’: The experiences of females receiving an autism diagnosis in middle to late adulthood . Autism, 24(1), 135-146. SAGE Publications.
    Type: Article DOI: 10.1177/1362361319853442 OpenAlex: https://openalex.org/W2947577397
    Crossref OpenAlex
  40. Georgia Lockwood Estrin , Victoria Milner , Debbie Spain , Francesca Happé , Emma Colvert (2021). Barriers to autism spectrum disorder diagnosis for young women and girls: A systematic review . Review Journal of Autism and Developmental Disorders, 8(4), 454. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-020-00225-8 OpenAlex: https://openalex.org/W3095823263
    Crossref OpenAlex
  41. Zacharie Saint-Georges , Tracy Vaillancourt (2020). The temporal sequence of depressive symptoms, peer victimization, and self-esteem across adolescence: Evidence for an integrated self-perception driven model . Development and Psychopathology, 32(3), 975. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/s0954579419000865 OpenAlex: https://openalex.org/W2964381848
    Crossref OpenAlex
  42. Joanne Smith-Young , Roger Chafe , Rick Audas (2020). managing the wait”: Parents’ experiences in accessing diagnostic and treatment services for children and adolescents diagnosed with autism spectrum disorder . Health Services Insights, 13, 1178632920902141-1178632920902141. SAGE Publications.
    Type: Article DOI: 10.1177/1178632920902141 OpenAlex: https://openalex.org/W3003859748
    Crossref OpenAlex
  43. Gosling (2023). Exploring the lived experiences of autistic women: A thematic synthesis . Review Journal of Autism and Developmental Disorders, 1.
    Type: Autre
    Crossref
  44. William Nguyen , Tamara Ownsworth , Chelsea Nicol , David Zimmerman (2020). How I see and feel about myself: Domain-specific self-concept and self-esteem in autistic adults . Frontiers in Psychology, 11, 913. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2020.00913 OpenAlex: https://openalex.org/W3024675062
    Crossref OpenAlex
  45. Green (2018). Qualitative Methods for Health Research .
    Type: Autre
    Crossref
  46. Hamdani (2023). Roadblocks and detours on pathways to a clinical diagnosis of autism for girls and women: A qualitative secondary analysis . Women’States Health, 19.
    Type: Autre
    Crossref
  47. Kirby (2021). rep .
    Type: Autre
    Crossref
  48. Kate Seers , Rachel C Hogg (2021). you don’t look autistic’: A qualitative exploration of women’s experiences of being the ‘autistic other . Autism, 25(6), 1553. SAGE Publications.
    Type: Article DOI: 10.1177/1362361321993722 OpenAlex: https://openalex.org/W3136332810
    Crossref OpenAlex
  52. Robert McCrossin (2022). Finding the true number of females with autistic spectrum disorder by estimating the biases in initial recognition and clinical diagnosis . Children, 9(2), 272. MDPI AG.
    Type: Article DOI: 10.3390/children9020272 OpenAlex: https://openalex.org/W4212916079
    Crossref OpenAlex
  53. Stella Mo , Nina Viljoen , Shivani Sharma (2022). The impact of socio-cultural values on autistic women: An interpretative phenomenological analysis . Autism, 26(4), 951. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211037896 OpenAlex: https://openalex.org/W4226237227
    Crossref OpenAlex
  54. (s. d.). Lollini, A. (2018 November 28). Brain Equality: Legal Implications of Neurodiversity in a comparative perspective. Docslib. https://docslib.org/doc/6242520/brain-equality-legal-implications-of-neurodiversity-in-a-comparative-perspective〉 .
    Type: Autre
    Crossref
  55. Kek K. Loo , Ted Hutman , Jeffrey H. Yang , David B. McAdam , Sarah S. Nyp (2021). Disorders, disabilities, and differences: Reconciling the medical model with a neurodiversity perspective . Journal of Developmental & Behavioral Pediatrics, 42(9), 763. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/dbp.0000000000001032 OpenAlex: https://openalex.org/W4288066337
    Crossref OpenAlex
  56. Kate Seers , Rachel Hogg (2023). fake it ‘till you make it”: Authenticity and wellbeing in late diagnosed autistic women . Feminism & Psychology, 33(1), 23. SAGE Publications.
    Type: Article DOI: 10.1177/09593535221101455 OpenAlex: https://openalex.org/W4281777299
    Crossref OpenAlex
  57. Marshall (2016). Managing, analyzing, and interpreting data .
    Type: Autre
    Crossref
  58. Mertens (2024). Research and evaluation in education and psychology: Integrating diversity with quantitative, qualitative, and mixed methods .
    Type: Autre
    Crossref
  59. Milner (2023). Does camouflaging predict age at autism diagnosis? a comparison of autistic men and women . Autism Research.
    Type: Autre
    Crossref
  60. Natacha Palenzuela-Luis , Gonzalo Duarte-Clíments , Juan Gómez-Salgado , José Ángel Rodríguez-Gómez , Maria Begoña Sánchez-Gómez (2022). International comparison of self-concept, self-perception and lifestyle in adolescents: A systematic review . International Journal of Public Health, 67, 1604954-1604954. Frontiers Media SA.
    Type: Article DOI: 10.3389/ijph.2022.1604954 OpenAlex: https://openalex.org/W4298005519
    Crossref OpenAlex
  61. Rebekah Morgan (2023). How do adolescent autistic girls construct self-concept and social identity? A discourse analysis . Educational Psychology in Practice, 39(2), 178. Informa UK Limited.
    Type: Article DOI: 10.1080/02667363.2023.2181316 OpenAlex: https://openalex.org/W4321783692
    Crossref OpenAlex
  62. Moustakas (1994). Phenomenological research methods .
    Type: Autre
    Crossref
  63. Beth Pickard , Grace Thompson * , Maren Metell , Efrat Roginsky , Cochavit Elefant (2020). It’s not what’s done, but why it’s done”: Music therapists' understanding of normalisation, maximisation and the Neurodiversity Movement . Voices A World Forum for Music Therapy, 20(3), 1. University of Bergen Library.
    Type: Article DOI: 10.15845/voices.v20i3.3110 OpenAlex: https://openalex.org/W3095103034
    Crossref