Mettre en lumière une population cachée : fonctionnement social et santé mentale chez des femmes déclarant des traits autistiques mais ne disposant pas d’un diagnostic

Titre original en anglais : Shining a Light on a Hidden Population: Social Functioning and Mental Health in Women Reporting Autistic Traits But Lacking Diagnosis

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Belcher, H., Morein-Zamir, S., Stagg, S. D., & Ford, R. M. (2022). Shining a Light on a Hidden Population: Social Functioning and Mental Health in Women Reporting Autistic Traits But Lacking Diagnosis. Journal of Autism and Developmental Disorders, 53(8), 3118-3132. https://doi.org/10.1007/s10803-022-05583-2

Date de publication: 20/05/2022 Ajout dans AutiHub: 08/09/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Hannah Belcher *
  2. Sharon Morein-Zamir
  3. Steven D. Stagg
  4. Ruth M. Ford

Résumé

Résumé La théorie du phénotype féminin (FPT) suggère que les femmes autistes présentent souvent des déficiences sociales moins évidentes que les hommes autistes. Nous avons examiné la possibilité d’un phénotype féminin exagéré chez des femmes non diagnostiquées mais probablement autistes. Dans deux enquêtes en ligne à l’échelle nationale, nous avons comparé le fonctionnement social et la santé mentale autoévalués entre des femmes autistes diagnostiquées et des femmes sans diagnostic ayant obtenu un score ≥ 32 au Quotient autistique. Par rapport aux femmes autistes diagnostiquées, les femmes probablement autistes présentaient une empathie et un fonctionnement social général plus élevés, et étaient plus susceptibles d’avoir reçu un diagnostic de trouble de la personnalité borderline. Les femmes autistes avaient généralement reçu davantage de diagnostics de santé mentale avant leur diagnostic d’ASC que les hommes autistes. Ces résultats mettent en lumière l’historique de diagnostics erronés vécu par de nombreuses femmes autistes.

Abstract Female Phenotype Theory (FPT) suggests that autistic women often present with less obvious social impairments than autistic men. We examined the possibility of an exaggerated female phenotype among undiagnosed but probably autistic women. In two nationwide online surveys, we compared self-reported social functioning and mental health between diagnosed autistic women and women without diagnosis who scored ≥ 32 on the Autism Quotient. Compared to diagnosed autistic women, probably autistic women had higher empathy and general social functioning, and were more likely to have received a diagnosis of Borderline Personality Disorder. Autistic women had typically received more mental health diagnoses prior to their ASC diagnosis than autistic men. These findings shed light on the history of misdiagnosis experienced by many autistic women.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 12/09/2026 18:19.

Références citées
88
Avec un DOI
82
Sans DOI, à partir du texte brut de la bibliographie
5
4 / 88 (4,5 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
5 / 88 (5,7 %)
Références avec noms d’auteurices détectés
86 / 88 (97,7 %)
Sans nom d’auteurice détecté
2
Sans titre structuré
5
Sans identifiant stable
5
Références avec noms bruts d’auteurices restant à vérifier
2
Références avec problème de récupération des métadonnées externes
1
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
399
À partir du DOI ou de métadonnées externes
399
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
2
146 / 399 (36,6 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 253 / 399 (63,4 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
4 / 399 (1,0 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 4 / 146 (2,7 %). Personnes distinctes identifiées comme autistes : 3 / 309 (1,0 %).
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