Exploration des expériences psychosociales d’adultes autistes influençant les débuts, la continuité et les changements du camouflage au fil du temps : une étude qualitative à Singapour

Titre original en anglais : Exploring autistic adults’ psychosocial experiences affecting beginnings, continuity and change in camouflaging over time: A qualitative study in Singapore

Loo, B. R. Y., Teo, T. J. Y., Liang, M. J., Leong, D. j., Tan, D. W., Zhuang, S., Hull, L., Livingston, L. A., Mandy, W., Happé, F., & Magiati, I. (2023). Exploring autistic adults’ psychosocial experiences affecting beginnings, continuity and change in camouflaging over time: A qualitative study in Singapore. Autism, 28(3), 627-643. https://doi.org/10.1177/13623613231180075

Date de publication: 10/06/2023 Ajout dans AutiHub: 22/08/2026 Type: Article Langue de l’article: Anglais

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Auteurs

Auteur·ices des publications
11
Auteur·ices de la publication identifié·es comme autistes
1 / 11 (9,1 %)

Résumé

Le camouflage (également désigné comme le masquage ou le fait de passer pour non autiste) consiste à dissimuler ses caractéristiques et différences liées à l’autisme afin de s’adapter dans des situations sociales au sein de sociétés majoritairement non autistes. À ce jour, on sait très peu de choses sur l’évolution au fil du temps des motivations et des stratégies de camouflage, ou sur les facteurs psychosociaux susceptibles d’influencer les choix et les trajectoires de camouflage des personnes autistes. Dans le cadre d’une étude qualitative exploratoire menée dans un contexte socioculturel asiatique, nous avons interrogé 11 adultes autistes singapouriens (9 hommes, 2 femmes, âgés de 22 à 45 ans) sur leurs expériences de camouflage afin de mieux comprendre : (1) leurs motivations et stratégies de camouflage au fil du temps ; et (2) les influences psychosociales associées. Organisés en quatre phases (avant le camouflage, débuts, continuité et changements au fil du temps), 17 thèmes relatifs aux motivations de camouflage et 8 thèmes relatifs aux stratégies ont été identifiés. Les premières motivations de camouflage étaient principalement relationnelles, liées à une identité de soi négative façonnée par des expériences sociales défavorables. Les stratégies de camouflage sont devenues de plus en plus complexes et intégrées au sentiment de soi au fil du temps. Nos résultats mettent en évidence le rôle des pressions psychosociales précipitant le camouflage et soulignent la nécessité de changements individuels et sociétaux, notamment d’évoluer vers une acceptation et une inclusion accrues afin de réduire les pressions psychosociales exercées sur les personnes autistes pour qu’elles se camouflent. Résumé grand public Au cours de leur vie, de nombreuses personnes autistes apprennent à camoufler, c’est-à-dire à dissimuler ou masquer, leurs différences liées à l’autisme afin de nouer des relations, de trouver un emploi et de vivre de manière autonome dans des sociétés largement non autistes. Des adultes autistes ont décrit le camouflage comme une « vie entière de conditionnement... pour agir normalement », impliquant des « années d’efforts », ce qui suggère que le camouflage se développe tout au long de la vie d’une personne autiste et peut commencer tôt, durant l’enfance ou l’adolescence. Pourtant, nous savons très peu de choses sur les raisons et les modalités selon lesquelles les personnes autistes commencent à se camoufler, ou sur les raisons et les modalités selon lesquelles leurs comportements de camouflage se poursuivent ou changent au fil du temps. Nous avons interrogé 11 adultes autistes singapouriens (9 hommes, 2 femmes, âgés de 22 à 45 ans) qui ont fait part de leurs expériences de camouflage. Nous avons constaté que les premières motivations des adultes autistes à se camoufler étaient largement liées au désir de s’intégrer et d’établir des liens avec les autres. Ils se camouflaient également pour éviter des expériences sociales difficiles, telles que les moqueries ou le harcèlement. Les adultes autistes ont indiqué que leurs comportements de camouflage étaient devenus plus complexes et que, pour certains, le camouflage était devenu au fil du temps une partie de leur identité de soi. Nos résultats suggèrent que la société ne devrait pas pathologiser les différences autistiques, mais plutôt accepter et inclure les personnes autistes, afin de réduire la pression exercée sur elles pour qu’elles dissimulent qui elles sont réellement.

Camouflaging (or otherwise referred to as masking or passing) involves hiding one’s autistic-related characteristics and differences to get by in social situations in predominantly non-autistic societies. Very little is known to date about the course of camouflaging motivations and strategies over time or the psychosocial factors that may influence autistic people’s camouflaging choices and trajectories. In an exploratory qualitative study within an Asian sociocultural context, we interviewed 11 Singaporean autistic adults (9 males, 2 females, aged 22–45 years) about their camouflaging experiences to better understand (1) their camouflaging motivations and strategies over time, and (2) related psychosocial influences. Organised across four phases (pre-camouflaging, beginnings, continuity and change over time), 17 themes relating to camouflaging motivations and 8 themes relating to strategies were identified. The earliest camouflaging motivations were predominantly relational, linked to a negative self-identity that had been shaped by adverse social experiences. Camouflaging strategies became increasingly complex and integrated into one’s sense of self over time. Our findings highlight the role of psychosocial pressures precipitating camouflaging and emphasise the need for individual and societal changes, including moving towards enhanced acceptance and inclusion to reduce psychosocial pressures on autistic people to camouflage. Lay Abstract Over their lifetimes, many autistic people learn to camouflage (hide or mask) their autism-related differences to forge relationships, find work and live independently in largely non-autistic societies. Autistic adults have described camouflaging as a ‘lifetime of conditioning... to act normal’ involving ‘years of effort’, suggesting that camouflaging develops over an autistic person’s lifetime and may start early on, in childhood or adolescence. Yet, we know very little about why and how autistic people start to camouflage, or why and how their camouflaging behaviours continue or change over time. We interviewed 11 Singaporean autistic adults (9 male, 2 female, 22–45 years old) who shared their camouflaging experiences. We found that autistic adults’ earliest motivations to camouflage were largely related to the desire to fit in and connect with others. They also camouflaged to avoid difficult social experiences (such as being teased or bullied). Autistic adults shared that their camouflaging behaviours became more complex and that, for some, camouflaging became a part of their self-identity over time. Our findings suggest that society should not pathologise autistic differences, but instead accept and include autistic people, to reduce the pressure on autistic people to hide who they truly are.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 22/08/2026 23:48.

Références citées
82
Avec un DOI
78
Sans DOI, à partir du texte brut de la bibliographie
3
11 / 82 (13,4 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
2 / 82 (2,4 %)
Références avec noms d’auteurices détectés
80 / 82 (97,6 %)
Sans nom d’auteurice détecté
2
Sans titre structuré
1
Sans identifiant stable
3
Références avec noms bruts d’auteurices restant à vérifier
1
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
375
À partir du DOI ou de métadonnées externes
375
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
2
143 / 375 (38,1 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 232 / 375 (61,9 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
15 / 375 (4,0 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 15 / 143 (10,5 %). Personnes distinctes identifiées comme autistes : 12 / 301 (4,0 %).
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